Epilepsy Talk

At Walgreens and CVS, Complaints of Medication Errors Go Missing

February 22, 2020
18 Comments

In Oklahoma, a State Board of Pharmacy released a complaint against a CVS pharmacy regarding a medication error made last year. The board took the rare step of citing the pharmacy in addition to the pharmacist involved in the error.

The Oklahoma board cited inadequate staffing in its investigation of the mistake, which involved a young man who received only one-fourth of his prescribed dose of anticonvulsant medication, according to the complaint.


Yee-Haa! I’m officially an author

January 15, 2020
47 Comments

You probably remember that my introduction to epilepsy wasn’t a rosy one. (Whose is?)

It really wasn’t until once I was older and came out of the closet that I was willing to share my “dirty little secret”.

And now look where I am…


2020 Patient Recommendations for TOP Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors

January 8, 2020
11 Comments

Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.


Epilepsy in Twitter Times

December 17, 2019
14 Comments

Twitter is not our friend.

And the misconceptions and stigma of epilepsy live on.


Epilepsy Foundation Was Targeted in Mass Strobe Cyberattack

December 17, 2019
25 Comments

Hackers sent images of flashing strobe lights to the foundation’s thousands of Twitter followers in several attacks.


Hospitals Criticized For Keeping Quiet On Charity Care…

December 12, 2019
42 Comments

“Too many nonprofit hospitals fail to adequately publicize their charity-care programs, two advocacy groups say in a survey report…


Good news, there’s a new AED in town!

December 4, 2019
68 Comments

On November 19, 2019, the U.S. Food and Drug Administration approved cenobamate (XCOPRI®) for the treatment of focal epilepsy in adults. This medication will be available in the pharmacy by the spring or summer of 2020.


Blood Tests May Help Diagnose Epilepsy

December 4, 2019
33 Comments

A recent study shows that a simple blood test can determine whether or not someone has had an epileptic seizure.

Doctors at Stanford University, California, reveal that the level of the hormone prolactin may be indicative of the type of seizure and can be measured by this blood test.

The blood test which must be used within 10 to 20 minutes after a seizure, can identify generalized tonic-clonic seizures and complex partial seizures in both adults and older children, because the level of prolactin in the blood goes up.


Epileptic Synesthesia: What Is It?

September 7, 2019
47 Comments

A friend of mine with TLE, told me he had synesthesia and I didn’t have a clue what he was talking about. And so, I set to find out exactly what this mysterious sounding condition was…

First of all, Epileptic Synesthesia is pretty rare.

It occurs in 4% of temporal lobe seizures and is theoretically caused by the actual electric discharge or abnormal stimulation of the brain in a seizure.

Sight, sound, touch, taste (and, much less often, your sense of smell) sensations can occur simultaneously and also involve involuntary movement.


Medical Marijuana — It’s Here to Stay…

May 19, 2019
93 Comments

Let’s face it. The time has come.

Even the FDA has opened its eyes with new clinical trials.

Although the AMA chooses to keep their heads in the sand. For now.

It used to be popular to debate the merits and dangers of medical marijuana.

For example, it could lead to addiction. Like cocaine. (Oh please!)

But now, there’s clinically proven scientific proof, with more to come…

“After 4,000 years of humans taking cannabis for epilepsy, we have scientific evidence it works.” — Orrin Devinsky MD, Harvard University, on results from his team’s late-stage clinical trial of cannabidiol to treat Dravet syndrome.

And that’s just the tip of the iceberg…


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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