Epilepsy Talk

What Most Offends YOU About How People Treat Epilepsy?

August 29, 2019
33 Comments

I call epilepsy the “stealth condition,” because most people don’t actually witness a seizure.

Which results in an abundance of ignorance…misinformation..and to be frank, discrimination and slurs.


Suicide and Epilepsy

August 23, 2019
21 Comments

The statistics are depressing. (Which is one of the chief factors in suicide.) But studies say that suicide can happen to anyone at any age.

Statistics

Studies show that newly diagnosed epilepsy patients are five times more likely to commit suicide than patients who had been diagnosed more than six months previously.

And a 29-fold increase in suicide risk was seen in newly diagnosed patients with a history of psychiatric illness.

“Newly diagnosed patients often have many misconceptions about the disease,” researcher Per Sidenius, MD, of Aarhus University says. “They often don’t understand that there are good treatments with few side effects.”


Why Won’t You Play With Me?

August 20, 2019
14 Comments

Once upon a time there was this girl named Ellen.

She had epilepsy and she hated the world.

So the world hated her back.

She had no friends and didn’t speak to anybody.

In turn, nobody spoke to her. Except the occasional bully.


Lefties Unite!

August 17, 2019
17 Comments

So you have epilepsy.  And you’re left-handed.  Is it a curse…a blessing…or a challenge?

Well, you’re not exactly alone.  Between six and sixteen percent of people today are left-handed. And guess what? 

Left-handedness is also associated with a higher incidence of epilepsy. 

Gee, what a surprise!

But, here’s the good news…


How to Start Your Own Adult Epilepsy Support Group

August 14, 2019
2 Comments

One thing I’ve discovered is the search for support groups is endless — and seldom successful.

Especially now that charitable contributions are tight and epilepsy centers have had to cut expenses. (Yes, our support is considered an “expense”.)

That’s why I’ve put together this short guide on how to form your own Epilepsy Support Group.


7 Myths About Medication — and the Facts Behind Them

August 11, 2019
10 Comments

Misconceptions about medicine are as common as pills on a pharmacy shelf.

We could all use a healthy dose of the truth.

Cleveland Clinic drug information pharmacist Katie Stabi, PharmD, BCPS, debunks seven of the most common myths about medications below:


Poetry Is Music To The Soul…

August 10, 2019
10 Comments

And we souls with epilepsy could use a little music.  But, since we can’t hear you, we’ll have to settle for the written word.


How Music Soothes Your Seizures…

August 6, 2019
2 Comments

Music is food for the soul, the mind and the body.

Great music, when carefully selected, can change our moods, energize us, calm us, improve our mental focus, lift us up spiritually, and help us become more healthy.

Not surprisingly, music has also been found to have a profoundly positive effect on people with epilepsy.

In fact, one research study even found that when patients are treated with music therapy as well as conventional anti-seizure meds, as many as eighty percent of seizures were reduced by seventy-five percent!


Epilepsy, Anxiety and Depression

August 3, 2019
10 Comments

One study stated that 80% of the patients with epilepsy were also diagnosed as having a depressive disorder.

Upwards of 60% of these individuals had a history of significant episodes of depression.

And 10-32% experience symptoms of anxiety.

Not too reassuring, is it?


Depression is quiet

July 31, 2019
15 Comments

Depression is quiet.

You would be surprised with how many people in your life could be going through depression at this very moment.

People hide it like a paper bag over their heads, out of fear of being judged, made fun of, seen as weak, or just not taken seriously.

Anyone can fall victim to it.


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    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →