Epilepsy Talk

Your Hospital Rights…

November 3, 2019
29 Comments

Did you know?

1. You have the right to be treated with respect, whatever your condition, whatever your reason for being admitted to the hospital…


If You’re Thinking Of Getting Pregnant…

November 3, 2019
3 Comments

Years ago, women who had epilepsy were often discouraged from getting pregnant. Today, that’s no longer the case.

Thanks to early and regular prenatal care, more than 90 percent of pregnant women who have epilepsy deliver healthy babies, according to the Epilepsy Foundation.


Prescription Switching. Do You Know What You’re REALLY Getting?

October 30, 2019
34 Comments

How many times have you had a prescription switched without your knowledge or permission?

Not just switched to a generic version of the prescribed drug, but to a different drug altogether.

Yet the practice of swapping out medications is perfectly legal in most states.

It’s called “therapeutic substitution” and it happens when a patient is switched from to a cheaper medication in the same class of drugs.


Some Stress and Anxiety Solutions…

October 27, 2019
83 Comments

Sometimes my hands shake so much, I look like I’m leading a symphony. (Without a baton.) Legs too, I have to sit down.

Maybe you panic before a test, the very fear of having a seizure, social rejection, job anxieties, debt, fear of failure, an anticipated argument, holidays, fear of flying.

There are probably as many kinds of stress and panic attacks as there are those of us who suffer from them.

And behaviors: trembling, sweating, hyperventilating, breathlessness, feeling faint or light-headed, a sense of disorientation, cramping, nausea, your heart pounding like it’s going to explode from your chest, a fear of dying.

Or you’re just plain scared.


Epilepsy and Driving (A Small Rant)

October 21, 2019
51 Comments

For three months I was “benched”. With three more months until my driver’s license was restored.

The authorities said, if I didn’t “surrender” my license by XYZ date (with the neuro and cardiologist’s report) a sheriff was going to show up at my front door and haul me away!

So, now, not only did I have epilepsy, I was a prospective CRIMINAL with epilepsy.


How much is epilepsy costing you?

October 18, 2019
18 Comments

The fact that epilepsy is expensive is no secret.

The meds, medical care, the doctors’ visits, hospital bills, health costs, the injuries and finally, the cost of self-esteem.

The statistics are sobering but true…


12 THINGS YOUR DOCTORS WON’T TELL YOU…

October 13, 2019
70 Comments

Modern medicine can do miraculous things — but every test and treatment has a downside.

And your doctor may not disclose the dangers without prompting, a new survey finds.

Researchers surveyed 2,700 patients who’d recently decided whether or not to have surgery, take a medication, or undergo cancer screening.

Most reported their physician spent far more time talking up the benefits of each choice than explaining the risks.


Return from the Edge…

October 3, 2019
38 Comments

I almost died.

For a while I couldn’t even read.

My brain needed rebooting.

They told me my heart had stopped and I was lucky to be alive.

It took me several months for my cognitive abilities to return.

Months during which I had plenty of time to think.


Drug Resistant Epilepsy News

September 30, 2019
34 Comments

News of this groundbreaking scientific discovery comes from “zarabia” a member of the epilepsy support board at WebMD.com.  It’s very exciting and offers real hope.


Confessions of 30 Years with Epilepsy…

September 26, 2019
41 Comments

When I was first diagnosed as a teen, no one knew what to do with me.

My parents refused to use the “E” word. People treated me like I was some kind of pariah (which didn’t make me feel warm and fuzzy either).

Guys never called back for a second date.

The Dilantin made me feel like a zombie…I even went into a coma once.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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