Epilepsy Talk

EEGs and beyond — which tests do you need?

May 20, 2025
4 Comments

How many of us have heard: “Your EEG is normal. You’re fine..” (“It’s all in your head?”)

I know of people who have had 5 EEGs, only to be properly diagnosed when they finally had Video EEG Monitoring. 

So if someone is trying to pass you off or is ignoring your symptoms, perhaps you should become a little more familiar with your diagnostic options…


Are You One of the 80% with Seizure Cycles?

May 15, 2025
2 Comments

Seizure cycles occur in more than 80% of people with epilepsy, a retrospective analysis found.

“The patterns are important across the course of a day, but there are also patterns over weeks and months.”


BIG Pharma’s Outsized Profits 

May 13, 2025
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Just how profitable is the pharmaceutical industry?

Are pharmaceutical companies earning too much?

Deciding whether pharmaceutical companies earn too much money is complicated.

Some of the most valuable innovations known to medicine have come from the pharmaceutical industry.

Yet, the cost of those innovations places new drugs out of reach for many patients and significantly burdens others.


In Memory of Connie Johnson…

May 11, 2025
4 Comments

If it can be said, my mother-in law died a “good” death, out of pain and surrounded by those she loved and those who adored her.


A Caregiver’s Guide to Survival…

May 9, 2025
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It’s called “burn out.”

Because, let’s face it, being a caregiver is exhausting.

You may feel guilt, resentment, anger, anxiety or helplessness.


A chief of surgery offers insider tips to finding the right surgeon 

May 7, 2025
2 Comments

If you’ve been blessed with reasonably good health, you probably don’t have a surgeon’s number on speed dial.

Therefore, the bigger question is, in the unfortunate event that you need one, how do you find the best surgeon for your medical condition?


Catamenial epilepsy — do you have it?

May 5, 2025
2 Comments

Do you notice that your seizures worsen just before your period…or during the first few days…or at mid-cycle?

You could have “catamenial epilepsy,” or hormone sensitive seizures, a tendency for increased seizures related to your menstrual cycle.

The causes of catamenial epilepsy are not totally understood.


Marijuana’s time has come. ..

April 29, 2025
10 Comments

“If everyone smoked weed, the world would be a better place.

Even if one takes every reefer madness allegation of the prohibitionists at face value, marijuana prohibition has done far more harm to far more people than marijuana ever could.” — William F. Buckley Jr.

Americans have spoken.

Congress listened.

Marijuana’s time has come.


Ode to epilepsy…

April 25, 2025
6 Comments

It strikes my head a hundred times…

It strikes my soul as many…

It strikes each thought I have…


Forecasts of epilepsy seizures could become a reality…

April 22, 2025
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Seizures are like a storm in the rain.

Not knowing when your next seizure will hit can be unnerving, at best.

Will a seizure happen five minutes from now, five weeks from now or five months from now?

It’s a crapshoot. Even with triggers and auras.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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