Epilepsy Talk

The fears of nocturnal seizures…

December 11, 2023
6 Comments

Fear. Screaming. Visions. Bright lights flashing. Hallucinations. Tongue biting. Pain. Paralysis. Pins and needles. Bed wetting.

Do any of these sound familiar?

One person described it as: “During the nightmares, I often get up and run out of the room screaming while still asleep, as if something is chasing me.”

It’s agony. And there’s little to explain it or stop it in its tracks.


Keppra — What People Are Saying 

December 7, 2023
12 Comments

To say the word “Keppra,” is to invite instant controversy.

For some people it works, for some it doesn’t and for others, it’s a living nightmare.


Dollars for docs. The secret behind medical companies hiring doctors as experts!

December 4, 2023
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“Drug companies say they hire the most-respected doctors in their fields for the critical task of teaching about the benefits and risks of the companies’ drugs.

But an investigation by ProPublica has uncovered hundreds of doctors receiving company payments who had been accused of professional misconduct, were disciplined by state boards or lacked credentials as researchers or specialists.”


How much is epilepsy costing YOU?

November 25, 2023
4 Comments

Here’s a look at how epilepsy can affect your pocketbook. And why it’s called an “orphan disease”.


Thank you…

November 22, 2023
4 Comments

Thanks for the giving,

Thanks for the sharing,


Posted in Epilepsy
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Three rituals that can make you happy… 

November 19, 2023
4 Comments

UCLA neuroscience researcher Alex Korb has some insights that can create an upward spiral of happiness in your life.

Here’s what you and I can learn from the people who really have answers:


Posted in Epilepsy

The Isolation of Epilepsy 

November 15, 2023
4 Comments

You’re reluctant to go out.

Because having a seizure can be so unpredictable and embarrassing.

You think: “What if I have a seizure?

What will people do? What will they think of me?”

Those and many other self doubting questions run through your mind.

Even if you’ve only had a few seizures, there’s always the fear that silent (or not so silent) enemy may strike again.

So why chance it?


Bullied because of epilepsy…

November 11, 2023
4 Comments

Like lions, they smell the difference…

Like hawks, they sweep down on you…

And like hyenas, they laugh and eat your heart out.


Wounds that time won’t heal — childhood abuse and epilepsy 

November 9, 2023
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All types of abuse — sexual, physical, and emotional (including verbal abuse and witnessing domestic violence) raise the risk of depression, anxiety and epilepsy-like symptoms.

Research featured in Harvard Mental Health Letter and published in The American Journal of Psychiatry looked at the damage that hostile words, and/or yelling can have on a child.

They found “words are weapons that can cause lasting wounds, especially when wielded by parents against children.


Domestic violence — when love goes wrong 

November 7, 2023
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Carol found herself in a cycle of violence from the time she was a child. By adulthood, she had already experienced multiple beatings and hospitalizations.

In the most recent attack, her husband beat her with a board, leaving her with permanent brain damage and a life-long disability.

As a result of her injury, she now has frequent seizures, difficulty with balance, and is terrified to leave her home for fear of having a seizure or falling.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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