Epilepsy Talk

What part of your epilepsy do you hate most?

November 2, 2024
12 Comments

You might find my answer trite: But I HATE falling down and walking into glass doors, walls, anything you can think of.

And my special talent is falling UP stairs…


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Epilepsy Smart Schools

November 1, 2024
2 Comments

Being “Epilepsy Smart” is important and relevant for all schools.

An “Epilepsy Smart” school is one that understands epilepsy.

It puts in place inclusive practices to support a student with epilepsy achieve their academic potential and develop positive social relationships.

After all, a large proportion of every child’s life consists of the time they spend at school.


NFL solving the brain injury crisis?

October 29, 2024
2 Comments

The future of protective helmets could change forever.

Thanks to this new, puffy 12 oz. covering – and the mom and pop shop that makes it.


Anti-epilepsy drugs and osteoporosis — it’s not just a woman’s disease…

October 27, 2024
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Do anti-seizure drugs cause reductions in bone density?

Why ask this question?


Where’d she go?

October 23, 2024
4 Comments

To Seattle for dinner. Seattle? Yup.

Well that’s a long way for dinner.

(And boy, did I mess up my flight times!)


Lefties Unite!

October 18, 2024
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So you have epilepsy. And you’re left-handed.

Is it a curse…a blessing…or a challenge?

Well, you’re not exactly alone.


The Stigma of Epilepsy… 

October 15, 2024
8 Comments

“…recently I got a call from an upset mother whose son was not allowed to go to the school prom because ‘he might have a seizure there,’ and from the distraught mother of a 4-year-old who had been expelled from her church-sponsored daycare because ‘we are not equipped to handle epilepsy,’ even though the girl had yet to have a seizure in class!”


The nightmare of nocturnal seizures

October 13, 2024
2 Comments

According to an article in Journal of Neurology, Neurosurgery & Psychiatry, if more than 90 percent of your seizures occur while sleeping, you are said to have sleep seizures.

The article also notes that an estimated 7.5 percent to 45 percent of people who have epilepsy have some form of nocturnal seizures.


Exactly what IS Neuropsychology? 

October 11, 2024
12 Comments

I never had a clue what neuropsychology was all about. Although it sounded like a good idea.

Then a while ago, I had an assessment. (Mercifully, it was the two-hour test and not the 8-hour version.)

The neuropsychologist I went to had all the records from my last 12 years with my neurologist and it was clear he had done his homework.

The question was, did my deficit in memory come from my history of seizures, my previous concussions (one of which had been only a month ago) or even age itself? (I thought to myself, geeze, I’m only 70!)

Here’s basically what happened…


Neurologist or epileptologist — who is best for YOU?

October 9, 2024
2 Comments

Who have you chosen for your seizure care?

Your primary doctor?

A neurologist?

Or an epileptologist?

Your choice could make all the difference.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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