Epilepsy Talk
The Stigma of Epilepsy…
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“…recently I got a call from an upset mother whose son was not allowed to go to the school prom because ‘he might have a seizure there,’ and from the distraught mother of a 4-year-old who had been expelled from her church-sponsored daycare because ‘we are not equipped to handle epilepsy,’ even though the girl had yet to have a seizure in class!”
The Stigma of Epilepsy…
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The stigma is ancient and it still remains today.
Laws in the United States and Great Britain that prohibited epileptic people to marry were just repealed in the late 1980s and early 1990s.
Until the late 1970s, legislations in the United States also prevented epileptic people from entering public buildings such as restaurants, shopping centers, and theaters. [US Department of Health]
Tags: Dr. Orrin Devinsky, Epilepsy, ignorance, Pulitzer prize-winning author Jon Meacham, social rejection, stigma, suicide, twitter
Twitter is not our friend.
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And the misconceptions and stigma of epilepsy live on.
A revealing study published in Epilepsy & Behavior provides evidence that the perception of epilepsy is not faring well in social media. Kate McNeil and colleagues from Dalhousie University in Canada analyzed data collected from Twitter to provide a snapshot of how epilepsy is portrayed within the Twitter community.
Tags: Epilepsy, mocking those with seizures, negative attitude, social media, twitter
Epilepsy in Twitter Times
10 Comments
Twitter is not our friend.
And the misconceptions and stigma of epilepsy live on.
A revealing study published in Epilepsy & Behavior provides evidence that the perception of epilepsy is not faring well in social media. Kate McNeil and colleagues from Dalhousie University in Canada analyzed data collected from Twitter to provide a snapshot of how epilepsy is portrayed within the twitter community…
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About the author
Phylis Feiner Johnson
I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.
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