Epilepsy Talk

Epilepsy Glossary — 100+ Terms Defined 

January 13, 2025
2 Comments

Even if you do have epilepsy, it doesn’t necessarily mean you know all the lingo. (I didn’t!) So here are some definitions of medical terms related to epilepsy…


Three Anti-Seizure Diets That Could Change Your Life…

November 29, 2024
5 Comments

Just when you feel that all is lost, and you’re about to give up on your meds, there is another option.  (In fact, there are three!)

They may not beat your epilepsy (although some people say they do!)

But they can help reduce your seizures and the amounts of medication needed.


Violence and epilepsy

November 13, 2024
4 Comments

No question about it. Epilepsy’s been the victim of bad press since ancient Greece.

There, it was sometimes called the “Herculean Disease” because Hercules was thought to have murdered his family in a fit of uncontrollable rage.

Two thousand years later, Michael Crichton wrote in The Terminal Man, “Epileptics are predisposed to violent, aggressive behavior during their attacks.”

Which didn’t exactly help.


What part of your epilepsy do you hate most?

November 2, 2024
12 Comments

You might find my answer trite: But I HATE falling down and walking into glass doors, walls, anything you can think of.

And my special talent is falling UP stairs…


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Epilepsy Smart Schools

November 1, 2024
2 Comments

Being “Epilepsy Smart” is important and relevant for all schools.

An “Epilepsy Smart” school is one that understands epilepsy.

It puts in place inclusive practices to support a student with epilepsy achieve their academic potential and develop positive social relationships.

After all, a large proportion of every child’s life consists of the time they spend at school.


Lefties Unite!

October 18, 2024
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So you have epilepsy. And you’re left-handed.

Is it a curse…a blessing…or a challenge?

Well, you’re not exactly alone.


The Stigma of Epilepsy… 

October 15, 2024
8 Comments

“…recently I got a call from an upset mother whose son was not allowed to go to the school prom because ‘he might have a seizure there,’ and from the distraught mother of a 4-year-old who had been expelled from her church-sponsored daycare because ‘we are not equipped to handle epilepsy,’ even though the girl had yet to have a seizure in class!”


Natural herbal remedies for epilepsy 

September 29, 2024
2 Comments

Long before Dilantin and Phenobarbital, there was epilepsy. And herbal remedies.

Of course, these herbal epilepsy remedies are NOT substitutes to anti-seizure medications, but are more like a supplementary support.

Most of them work by preventing a seizure and other symptoms of epilepsy.

(NYU Langone Medical Center estimates that 20 percent of people taking prescription drugs also use herbs.)

Some may sound weird and others familiar. But hey, how can you argue with success?


Epilepsy – Advice and Insights  

September 27, 2024
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Many of us were diagnosed with epilepsy at a wee age…

Others were completely taken by surprise in their teens or later years.

Whatever age you were when you were first diagnosed with epilepsy, I’m sure you have advice and insights to share from your own experiences…


The mystery of epilepsy and celiac disease 

September 20, 2024
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The relationship between celiac disease and epilepsy has been documented in medical journals for decades. Yet neurologists rarely consider it as an underlying possibility in cases of idiopathic epilepsy.

It never ceases to amaze me what an impact celiac disease can have on one’s life and quality of life, but there is no routine testing for it. Yet, I‘ve been told (and have read) that very few people with epilepsy are told of the possibility of celiac disease!


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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