Epilepsy Talk

Adult Epilepsy…Ground-Breaking New Research on Origins

June 30, 2011
3 Comments

In a ground-breaking new study which appears online in the Annals of Neurology, neurologist and neuroscientist Dr. Tallie Z. Baram and her colleagues, discovered:


Do You Know Where Your Charity Dollars Go?

May 6, 2011
7 Comments

These days, because of Federal budget cuts, virtually EVERY non-profit is desperately in need of funds.

But before you make your donations, you have to ask: Not how much money you’re giving, but WHERE it’s actually going. How do you know where your charitable dollars are being spent?


Epilepsy Foundation Applauds EEOC for New Rules Under the ADA

April 26, 2011
2 Comments

When I went to the Philadelphia “Town Hall” meeting for the EEOC, it was very impressive. The room was packed. There was a huge presentation board and someone speaking sign language for the non-hearing. There were peole of all kinds of disabilities on the ADMINISTRATION BOARD — non-seeing, wheelchair bound and others.

In other words, the EEOC doesn’t just walk the walk. They talk the talk!

Just to prove it, the EFA announced newly issued regulations from the Equal Employment Opportunity Commission for implementing Title I of the Americans with Disabilities Act Amendments Act (ADAAA). Title I protects people with disabilities, like epilepsy, from discrimination in the workplace…


Tell Your Senators: STOP Cuts in Epilepsy Research and Disability Programs…Take Action NOW!!!

March 2, 2011
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Tell Your Senators: STOP Cuts in Epilepsy Research and Disability Programs!!! Take Action NOW!

The House of Representatives recently passed HR 1, a bill that would provide funding for millions of government programs for the remainder of the current fiscal year. The bill contains cuts to programs that are important to people with epilepsy including: $1 billion in research funding at the National Institutes of Health, of which $5 million will likely come from epilepsy.

The Senate is likely to vote on this same measure in the next week.

Please ask your Senator to vote against HR 1 when it comes to the Senate. Please also spread the word by telling a friend about these cuts, NOW.


Two Tests Could Aid in Risk Assessment and Early Diagnosis of Alzheimer’s

January 19, 2011
6 Comments

From “The New York Times”, published January 18, 2011…

“Researchers are reporting major advances toward resolving two underlying problems involving Alzheimer’s disease: How do you know if someone who is demented has it? And how can you screen the general population to see who is at risk?…”


Let’s Educate Candidates for Congress about Epilepsy!

October 7, 2010
5 Comments

Take Action: Let’s Make Epilepsy an Election-Year Issue!

Election Day is less than a month away and candidates are paying close attention to what voters have to say. This gives us a great chance to educate them about epilepsy, the need to find a cure, better treatments and stopping discrimination in schools and at work.

Click on this URL to take action now
http://capwiz.com/efa/utr/2/?a=18239501&i=94296635&c=
or copy the entire URL and paste it into your Web browser.


Increase in Seizures Seen in Kids With H1N1 Flu

September 23, 2010
10 Comments

MONDAY, Sept. 20 (HealthDay News) “Children made ill by the 2009 pandemic H1N1 swine flu virus suffered more seizures and other nervous system problems than those with seasonal flu, a new report reveals…”


UPDATE: AED Suicide Risk…

August 25, 2010
12 Comments

July 28, 2010 Medical News Today

“While the Food and Drug Administration (FDA) requires a warning of an increased risk of suicide for all epilepsy drugs, a new study shows that only certain drugs may increase the risk. The study is published in the July 27, 2010, issue of Neurology®, the medical journal of the American Academy of Neurology…


Brain Injured Solders Still at Risk for Epilepsy Years Later…

July 24, 2010
1 Comment

A new study, published in the medical journal of the American Academy of Neurology, highlights that soldiers who have suffered traumatic brain injuries associated with the wars in Iraq and Afghanistan are at a significantly high risk of developing epilepsy even decades after the brain injury occurred.


Vimpat For Uncontrolled Partial-Onset Seizures

July 20, 2010
8 Comments

A recent multi-center study has confirmed earlier study results that 400 mg/day of Lacosamide (Vimpat) provides a good balance of efficacy and tolerability for patients with uncontrolled partial-onset seizures (POS), and doses of 600mg/day may provide additional benefit for some patients.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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