Epilepsy Talk
Return from Hell… | October 2, 2023
Whoever said “no pain, no gain,” was disillusioned.
Or out of this world.
For I’ve discovered pain is not only a sensation. Pain is a place.
It’s a place of fear, of longing, of it’s own demons – both real and imagined.
It’s a topsy-turvy land where what you’re expected to feel is far different than what you’ve been through.
Winston Churchill said: (And I guess he should know) “When you’re going through hell, keep on going”.
And I did. And I am.
What about you?
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Epilepsy Talk 
Something is not working right with this E TALK forum group or whatever it is suppose to be. My ID email wont work & PW isn’t there to happen as saved like it was. The names I used are gone as well. Did you ban me from your program so I could not use it ? Would not shock me at all if that is the case. Strange how almost 2 years ago you wished you could had met me in PA when I went to Phila, at the CHOP. Craig
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Comment by jcdavis@hardynet.com — October 2, 2023 @ 7:21 PM
I just wrote you a loonoong reply but it got deleted.
Please don’t think I’ve forgotten you or don’t want you here. That’s my very last wish.
I don’t know what PW is but believe me, not only am I not the operating “host” (that’s WordPress), but I’m not a techie either, which should be no surprise.
Can you try using another name (like Craig? Or James?) and devise a new password to start anew?
That’s the only suggestion I can make.
Please come back.
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Comment by Phylis Feiner Johnson — October 2, 2023 @ 8:02 PM
The expression “no pain no gain” comes from the world of exercise not from the world of illness. The expression was apparently made popular in the 1980s by Jane Fonda on her exercise tapes. The statement is partially true in that during aerobic exercise you may get lactic acid buildup which can be quite painful in the joints but aerobic exercise does have health benefits. I still regularly cycle in my eighties and often ache afterwards… the mood elevation and other health benefits that result more than make up for the pain however,
Pain during illness is a natural process but having experienced it too many times it is hard to think of it as yielding gains!
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Comment by Michael H — October 2, 2023 @ 9:05 PM
The expression “no pain no gain” comes from the world of exercise not from the world of illness. The expression was apparently made popular in the 1980s by Jane Fonda on her exercise tapes. The statement is partially true in that during aerobic exercise you may get lactic acid buildup which can be quite painful in the joints but aerobic exercise does have health benefits. I still regularly cycle in my eighties and often ache afterwards… the mood elevation and other health benefits that result more than make up for the pain however,
Pain during illness is a natural process but having experienced it too many times it is hard to think of it as yielding gains!
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Comment by Michael H — October 2, 2023 @ 9:05 PM
Well, to say it has been a terrible year so far would be an understatement. Back in late June, I suffered a seizure while driving. I ended up in the hospital for over a month. Then, I was in rehabilitation for a month and a half. I totaled my car and lost my driver’s license until I could get cleared by my neurologist. Who knows how long I will have to wait until I can drive again? I will be meeting with my doctor in November. My M.O. has always been with seizures. I always know when they are coming, so I never have had a seizure while driving. This one, though, snuck up on me. I never saw this one coming.
Thank god I didn’t hit another car or a pedestrian. My vehicle finally stopped when I hit a tree. Currently, I am still in rehabilitation. My right leg was injured, and I separated my left shoulder. I now have to use a walker. I am walking better now; my surgeon said I would not have permanent damage. I lost my car, but I am still here, and for that, I’m grateful. My dear old friend, my faithful dog Abbi, is aging; she has severe arthritis, and my time with her is limited. I regret the three months I lost with her. So, with everything that has happened, like Winston Churchill said: “When you’re going through hell, keep on going.” I will keep on going.
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Comment by phoenix286da08ec323d — October 3, 2023 @ 2:27 PM
My heart goes out to you. The closest thing that happened to me was driving through the garage and totaling my car.
But I was ok. I lost my license for 8 months, which was inconvenient, but nothing as horrible as happened to you.
But I think your attitude and perseverance will go a long way to getting you through.
And I wish you both health and joy, very soon.
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Comment by Phylis Feiner Johnson — October 3, 2023 @ 3:22 PM