Epilepsy Talk

A neurologist talks about his own epilepsy…

November 27, 2022
7 Comments

In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist.

Posted in Epilepsy
Tags: "must" reading, eye-opening, Neurologist, perceptions, reactions, reality, stereotypes, stigma

Auras without Seizures

June 15, 2020
72 Comments

Do any of these sensations sound familiar to you?

Suddenly you’re sweating, flushed, become pale or have goosebumps.

Your stomach feels queasy, like you’re going to puke.

There’s a foreboding or fear that something awful is about to happen.

Posted in Epilepsy, Research
Tags: aura, deja vu, distortion, foreboding, no seizure, odd sensation, perceptions, simple partial seizure, spatial, visual

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Phylis Feiner Johnson

I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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