Epilepsy Talk

How were YOU first diagnosed with epilepsy? | March 9, 2026

I almost drowned in the shower.

It had three round shower heads on the wall with one more huge one overhead. And a heavy plate-glass door that was like trying to get out of a vault!

All of a sudden, I felt the blood rush through my toes (that’s what it felt like) and I knew I had to get out. Or drown.

It looked like it was going to be option #2. I couldn’t turn the handle. I kept trying, but I was on my way to never-never land.

With one last push, the door miraculously opened and I landed with my head right over the door sill. Body still in shower.

Pretty dramatic.

But, it wasn’t the first or the last time I passed out.

I fell all the time. Up the stairs, down the stairs, standing still.

I  walked into walls (and broke my nose), doors, poles, anything upright.

But everyone thought I was just clumsy. Which I was.

But with a surgeon for a step-father and a psychologist for a step-mother, you thought they’d be a bit clued in.

Maybe they were. Maybe they weren’t.

But when I was diagnosed — at the insistence of my father (at least HE was paying attention), I was told by one and all in my family that I had “crooked brain waves”.

They never mentioned the “E” word. And I never knew any better.

Isn’t denial a wonderful thing?

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2 Comments »

  1. Annie Buchanan's avatar

    My first seizure was about 10 years ago. I was attempting to climb aboard our boat and fell into the water! The dog immediately jumped in after me and tried to save me. Then my boyfriend jumped in and I woke up with Paramedics taking me to the hospital. Ugh!

    Liked by 1 person

    Comment by Annie Buchanan — March 9, 2026 @ 12:37 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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