Epilepsy Talk

Epilepsy – a dirty little secret?  | February 12, 2026

Why would you say: “I have epilepsy.”

To be included — or excluded?

To be accepted — or rejected?

To be understood — or misunderstood?

To be loved — or laughed at?

I’d say, all of this — or more.

Epilepsy is either a grace — or a dirty word.

It’s all a matter of how you look at it.

And how you say it.

Speak up. Speak out. Shout!

Let the world know.

I am me. No matter what you label me.

I have a voice…a life…and a heart.

You can help me or hurt me.

You can ignore me or plead ignorance.

But I’m not going to go away.

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2 Comments »

  1. Zolt's avatar

    I’m my own man, more of a solitary type, where by it means nothing to me what others think about me, or my medical condition. I’m my own person that has a handicap that comes to visit at times. All the other times i’m as normal as the rest of the people. So when the devil comes a knocking i deal with it in my own way, and once i recover everything is back to normal. Nothing to be ashamed of, just need to do things a little differently than others.

    Life is too wonderful to care about what ignorant people might think. Anyways there a lot more good people than bad, i think. Like a dog or a cat that can sense negativity so can i and i don’t care to deal with negative people.

    Early on in life i knew to chose my friends wisely because some friends can lead u down the wrong road.

    Like

    Comment by Zolt — February 12, 2026 @ 10:46 AM

    • Phylis Feiner Johnson's avatar

      Beware of toxic people. You’ve learned that lesson well.

      And yes, being your own person I think, is what we all strive for.

      Like

      Comment by Phylis Feiner Johnson — February 12, 2026 @ 11:07 AM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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