Epilepsy Talk

Epilepsy – a dirty little secret?  | January 16, 2026

Why would you say: “I have epilepsy.”

To be included — or excluded?

To be accepted — or rejected?

To be understood — or misunderstood?

To be loved — or laughed at?

I’d say, all of this — or more.

Epilepsy is either a grace — or a dirty word.

It’s all a matter of how you look at it.

And how you say it.

Speak up. Speak out. Shout!

Let the world know.

I am me. No matter what you label me.

I have a voice…a life…and a heart.

You can help me or hurt me.

You can ignore me or plead ignorance.

But I’m not going to go away.

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Posted in Epilepsy
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5 Comments »

  1. Jeffrey Lee Hatcher's avatar

    Never on the 1st three dates (unless I spaced pretty bad for a moment or two). Always at a job interview – if they discriminate, you’re better off someplace else. Only at an interview, I’d say that I ‘had some seizures a while back.’ I wouldn’t use the term ‘epilepsy’.

    Liked by 1 person

    Comment by Jeffrey Lee Hatcher — January 16, 2026 @ 10:59 AM

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  2. Jeffrey Lee Hatcher's avatar

    Blogs – I do when among strangers to combat the boneheads. Better to be E than stupid.

    Liked by 1 person

    Comment by Jeffrey Lee Hatcher — January 16, 2026 @ 11:04 AM

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  3. Phylis Feiner Johnson's avatar

    Jeffrey, all very good points. Except I had a flaming seizure on my first date with Arthur.

    We’ve been married for 45 years! 🙂

    Like

    Comment by Phylis Feiner Johnson — January 16, 2026 @ 11:07 AM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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