Epilepsy Talk

People talk about their out-of-body experiences…  | September 23, 2025

“My back was on the ceiling and I was looking at my body laying there, and it was very freaky. While out-of-body I was just staring at my nose and freaking out a little but something told me you are gonna be alright.”

Alterations of consciousness are critical factors in the diagnosis of epileptic seizures. Some people report sensations of separating from the physical body, experiences that may, in rare cases, resemble spontaneous out-of-body experiences.

New research has linked these experiences to instabilities in the temporal lobe, and to errors in the body’s sense of itself — even in healthy individuals.

With simple partial seizures, some people report having out-of-body experiences. Time may seem distorted as well.

These out-of-body experiences (OBE) can vary from person to person, but they often involve the sense of floating above one’s actual body and looking down. For neuroscientists, the phenomenon is a puzzle and an opportunity: Understanding how the brain goes awry can also illuminate how it is supposed to work.

Among the patients who have had out-of-body experiences, some reported “being attracted by a spiral, like in a tunnel.” Others described “entering my body, like in an envelope, from the top.”

“Seems to be that all of us can be placed somewhere along a sliding scale, based on how unstable or erratic our temporal lobe is, and some people are more prone to these experiences,” said study researcher Jason Braithwaite of the University of Birmingham.

People speak of their own experiences:

“The best way I can describe it is that it was like watching television in your mind.”

“First experience: Young teenager, lying on my bed,  focused on a point on the wall, felt myself floating, went through a wall like in the movie Ghost.”

“I used to have ‘night terrors’ starting at around age 6 until age 9 or 10, always after some sort of feverish state. I would go to sleep and soon awaken to the feeling of my body expanding and vibrating beyond it’s apparent physical limitations, this would be accompanied by a rumbling sound, gradually growing louder in my head. It was like the engines of a jumbo jet starting up until eventually it would drop into a continuous high pitch tone which would finally fizzle.”

“This paralysis lasts for a few minutes. I then return to normal. I have no warning when these episodes will occur. They do not link in to any particular life event, illness, etc. I have experienced them over more than three decades, but not for the last couple of years.”

During these times I was out-of-body 6 to 8 hours and felt a great sense of urgency to get back asap. I could not go into buildings, homes or cars. I could see or sense the essence in those locations. I could locate a person very fast if I had something personal of theirs, especially if they wore or had it on the person recently. I could sense what I call their essence. It was more of a floating experience.”

“I saw the trees get smaller, then I knew I was in space because I saw the earth, then I saw our solar system, the speed increased to a point where there was no speed. I was in a new place so far away in locale from Earth that none of our published research has disclosed.”

“I found myself in a tunnel whose walls were fuzzy, like a white thick fog and slightly illuminated, like under a cloudy overcast. I was stationary. I asked myself if there was an end to this tunnel. Then I was transported through this long tunnel of which I first saw no end, then an extremity of a blackness of space, then a star, then several. I got out of the tunnel to find myself in a space full of stars.”

“The floating feeling feels like something is taking me away. I don’t know how else to explain it. Taking me away, or trapping me, and immediately I have an overpowering urge to fight it. That’s where the paralysis part comes in. I feel like I’m under a hundred feet of water, or like I have chains around me. I try to move my arms and legs and I can’t or if I do manage to, it’s with an incredible lethargy and it’s so slow, so feeble, that it’s useless. Sometimes I try to shout or scream, and I can’t make any sound come out. “

“Almost anyways, my body locked and it felt like i just slipped out of my body. My surroundings were blue and I was standing beside my bed and it looked the same as reality but I woke in excitement.”

“It’s the weirdest thing ever. It’s like your hypnotized.”

“Interestingly though, several years ago around 2002/2003 I went through a phase of a span of about 2 to 3 years of having intense OBEs multiple times a week, and sometimes multiple times per night. But over the years and currently, they have become less frequent (or my awareness of them have decreased). It’s almost like I “been there, did that” kind of thing, almost as if I needed to have those experiences at that time in my life. I accept and embrace the OBE experience for what it is, very real to me and a life/belief changing experience.”

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Resources:

http://www.oberf.org/stories_obe.htm

https://the-line-up.com/7-people-describe-the-unexplainable-out-of-body-experience-that-completely-changed-their-outlook-on-life

https://www.theatlantic.com/science/archive/2017/07/the-neuroscience-of-out-of-body-experiences/534696/

https://www.livescience.com/15005-normal-body-experience.html

http://www.astralvoyage.com/real-astral-story.php?story=19

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3923147/


4 Comments »

  1. Gail Barry's avatar

    i I once had a bad seizure while working with a full boiling kettle which went all over my front. Then I was floating up near the ceiling in my bedroom though I didn’t recognise it. I was cursing whoever it was who wouldn’t stop screaming, looking down I saw some young woman lying on a bed, a man kneeling at her side. When I came round a few hours later and got the story it was myself and our GP. I suppose my brain just couldn’t take the pain so I floated away

    Liked by 1 person

    Comment by Gail Barry — September 23, 2025 @ 10:15 AM

  2. forevermymissingchild's avatar

    I tried to reply in the comment section that comes up when you tap “Reply”, but it wouldn’t bring up my keyboard (using my android), so I am leaving my comment through the email port, hope that’s ok.         When I heard about auras I was pretty young & it was in reference to my father & the sensation he had before have a full blown tonic clonic seizure (only had the warning ⅓ of the time). The way it was described to me was a emitting fuzzy bright light around everything.        Later in life when I myself started having seizures, I never once saw any kind of lights, however I experienced something I couldn’t quite put words to. Over time and unfortunately having continuous more frequent & more severe seizures I was able to describe the sensation.       Of course the couple of neurologists I had the unfortunate experience of meeting looked at me like I was a complete crack pot. Both very serious individuals, and older or as my grandmother would say “fuddy duddy”. They preferred for their patients to fit into a box of preset perimeters and any deviation was scoffed at and dismissed.       Just before a seizure, I would experience a glitch or a skip in reality as if time instantly went back to 3 seconds prior and played over again, kind of like a record skipping, some times this “skip” would repeat 2-3 times in rapid fire & was very disorienting and a bit scary. It also gave me that 2-3 second warning to immediately drop to the ground to minimize the damage the seizure would cause. The “skip” soon had another sensation join in, and it was that seemingly Deja Vu sensation, very strong Deja Vu, and that was followed by a overwhelming feeling of utter terror. I’m talking the kind of terror only imagined by life or death fight for survival situations.. end of the world type fear.      Most people I’ve talked to with epilepsy don’t recall anything during their seizures, as in conscious or unconscious. Admittedly there are plenty where it’s a complete blank spot for me as well, however there are just as many where I experience the most terrifying “dream” of several scary   ?     standing over my body as I am lying down. I cant move and nobody will talk to me. I try to squeeze my eyes shut because I don’t want to see their faces if light hits them but my eyes are forced open, a couple are angry I’m trying to fight and a couple others are sympathetic & trying to calm the angry ones yet still nobody is talking. They are bending way down getting closer to my face & I know I’m about to die … thats when Ill come out of my post seizure unconscious state, usually one of the bad episodes that requires CPR.    I’ve broken a EMTs nose, given a couple of black eyes and tried to taze my would be rescuers because I come to fighting for my life. I really hate the fear & it lasts for weeks after a seizure. C. Johnson

    Yahoo Mail: Search, Organize, Conquer

    Liked by 1 person

    Comment by forevermymissingchild — September 27, 2025 @ 6:44 AM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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