Epilepsy Talk

Daily, Weekly Seizure Cycles More Common Than Previously Thought | September 14, 2018

Seizures cycles occurred in more than 80% of people with epilepsy, a retrospective analysis found.

These cycles most often were circadian, but also included weekly and longer periods, reported Mark Cook, MD, of the University of Melbourne in Australia, and co-authors in The Lancet Neurology.

“There are patterns to when epileptic seizures occur, but these are hard to recognize unless you collect lots of data,” Cook told MedPage Today.

“The patterns are important across the course of a day, but there are also patterns over weeks and months.”

“While there has been extensive documentation about circadian (24-hour) patterns of seizures, longer cycles have been less frequently studied,” he added.

“We thought that cycles existed in women related to hormones, but in fact they are just as common in men. We don’t yet know what controls these cycles.”

To continue, go to: https://www.medpagetoday.com/neurology/seizures/75082?xid=nl_mpt_%20SRNeurology_2018-09-14&eun=g678262d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=NeuroScope_091418&utm_term=SM%20NeuroBreak%20Alert

Article by Judy George, Contributing Writer, MedPage Today


20 Comments »

  1. At age around 35 my seizure pattern started changing when my 4th ever GRAND MAL seizure happened, as I maybe think it all started changing with my 3rd one 4 years before that. After many GM seizures in a 17 year span, after only having 3 in 31 years, 4 after 34 years, something seems to have changed especially after a GRAND MAL happened in 2012 when a bad concussion followed after I fell & hit the concrete floor. I had a little bleeding on the front side of my skull & no real damage was done to my brain according to the CAT SCAN, as 3 months later the MRI affirmed all of that. So why can I feel fine & suddenly with in seconds while just sitting here, I can get like strange feelings in my head, after a slightest feeling in my stomach happens over 50% of the time, but very few times I will have a seizure to happen, as long as I am focused on fighting it off with taking my Lobelia herb tonic, I now am trying BACOPA every other day or so, no every day, as I am very cautious of using too much as I did get a seizure felling when I tried it for the 1st time but no seizure happened from that, so I go to 10 drops of it taking it every other day or 2. Lobelia still is my 911 herb knowing if I still go into it, I will not be in it as long as I would otherwise with out it, Something from that concussion has to have made something change where more seizure activity can happen more often than less, even without the toxic food & drug chemicals that do cause triggers in making seizures happen.

    Like

    Comment by CD — September 14, 2018 @ 7:36 PM

    • According to my research (which isn’t as thorough as yours) Bacopa Leaf has been used for centuries in Ayurvedic medicine as an effective home remedy for epilepsy.

      It is a powerful nerve health promoter and is known to enhance memory, concentration as well as treat epilepsy.

      It enhances nerve health and protects the neurons against damage, keeping seizures at bay.

      Lobelia is an effective herb that was historically used in the treatment of epilepsy.

      It has anti-spasmotic action that helps in abating seizures.

      But you know this already, as you do so many other things, CD. 🙂

      Like

      Comment by Phylis Feiner Johnson — September 14, 2018 @ 9:53 PM

  2. Interesting idea. I’d also suggest (from my own experience over several decades and from comparing notes with others) that the cycles can happen much more slowly- months, even years. For those of us who have kept -and hung onto- reasonable accurate seizure diaries going back years, it’s sometimes possible to see these happening.
    I wasn’t too sure from reading the article if this included noticed change in patterns over the years as well. I’ve noticed it in myself roughly every 5 years where it usually gets bad enough to warrant a drug tweak or change. But that might be a case of becoming immune to the meds. Who knows…

    Like

    Comment by Katie — September 14, 2018 @ 8:30 PM

    • In my humble opinion, I think the drugs may be losing their effectiveness over those five years.

      Anti-Epilepsy Drugs Lose Effectiveness Over Time…

      https://epilepsytalk.com/2018/08/06/anti-epilepsy-drugs-lose-effectiveness-over-time/

      Like

      Comment by Phylis Feiner Johnson — September 14, 2018 @ 9:56 PM

      • Agree Phylis, it probably is more likely to be that with regards to the 5 year changes. Any suggestions on how to convince neuologists that AEDs CAN actually lose their effectiveness- they seem to be the only ones who refuse to acknowledge
        it!!

        With the mentioned study though, obviously it’s easier to pick up the seizure activity with the deep electrode vs self reporting, as I suspect there’s a lot of activity that goes on that we’re not always able to pick up on or can be total certain it’s sz activity.

        But I’ve certain had times over the years where it’s gone “quiet” for a while (a while being 2-4 weeks) followed by several TCs over the next 1-2 weeks. I don’t get partial seizures but goodness knows what’s going on at a sub-clinical level inbetween times. Would you consider that to be a cycle as per this topic?

        Like

        Comment by Katie — September 15, 2018 @ 6:14 PM

      • Could be.

        But how often do you have your blood levels checked to see if the meds are at an effective level?

        Like

        Comment by Phylis Feiner Johnson — September 16, 2018 @ 11:26 AM

      • Every 6 months would be good.

        Like

        Comment by Phylis Feiner Johnson — September 16, 2018 @ 11:50 AM

      • Phylis- I hope this shows up under your reply re blood levels- there isn’t a ‘reply’ option there for some reason to carry on the conversation.

        Where I live Lamictal levels aren’t routinely done unless there some obvious problems going on. I had one done following a cluster a few weeks ago and it was actually fine, right in the middle of the range as it always has been. Topamax levels don’t exist, nor did gabapentin when I was on that. I gather that’s the case with most of the new generation AEDs?

        It would certainly be one useful way to find out if my lamictal levels are fluctuating (even subtly) but it’s just not practical unfortunately. Much easier in dilantin days!

        Like

        Comment by Katie — September 16, 2018 @ 5:37 PM

      • No blood tests for therapeutic levels?

        I know, I had blood tests for my Lamictal levels. (They were a disaster. I was at 50%!)

        But I don’t know about other meds, Katie.

        Like

        Comment by Phylis Feiner Johnson — September 16, 2018 @ 10:14 PM

  3. There is a pattern normally for everything, key is finding it. I can totally relate to the ones that had it once a month. But like all patterns they can change and one must change with them.

    I’ve always thought that it’s a build up of something in our bodies that at the point of the seizure, it gets activated. It could be a chemical imbalance, or maybe even an electrical imbalance, similar to how lighting happens, the imbalance of positive and negative ions need to balance things out, this is where it finds the weakest point and it discharges itself by grounds itself, whereby creating the thunder and lighting we hear. Similar to our brain, it’s weak point is were the injury or damage of the brain where the seizures starts at. And when it gets activated the seizures are not pretty. At my last job i worked at a computer farm, lots and lots of computers, well the static electricity was quite high. I remember getting shocked a lot. Now that i’m retired my static electricity activity is noware near what it was and my seizures have gotten better. From once a month to 4 to 8 months without one.

    Zolt

    Liked by 1 person

    Comment by Zolt — September 14, 2018 @ 11:55 PM

    • Zolt, actually I thought of you when I read this. And obviously you know a LOT more about it.

      I guess that’s why they call seizures “an electrical storm” in the brain!

      Like

      Comment by Phylis Feiner Johnson — September 15, 2018 @ 10:01 AM

    • “I’ve always thought that it’s a build up of something in our bodies that at the point of the seizure, it gets activated. It could be a chemical imbalance, or maybe even an electrical imbalance, similar to how lighting happens, the imbalance of positive and negative ions need to balance things out, this is where it finds the weakest point and it discharges itself by grounds itself, whereby creating the thunder and lighting we hear.”

      Zolt, great analogy. I’ve always likened the buildup to a pressure cooker that’s about to blow, and I’m not going to feel better till I have the seizure. In fact, about about 3-4 days of a build up I actually WANT the TC just to get it over and done with and stop climbing the walls! Many people I”ve talked to over the years have similar experiences and also wonder about some sort of electrical buildup well it makes sense when you think about about the brain electricity connected to E? Given I start getting that build up after 2 weeks seizure free I really wonder if I’m someone who just HAS to have a TC on a regular basis to “clear” excess electricity from my system. Does that make sense or even seem reasonable?

      Like

      Comment by Katie — September 15, 2018 @ 6:23 PM

  4. Is there a site for people with Siezure disorder i learned over 40 brain operations caused my Siezure. From Russell R Hanawalt my email is rusty.hanawalt@yahoo.com.

    Like

    Comment by rusty.hanawalt@yahoo.com — September 15, 2018 @ 11:39 AM

  5. This is a website for seizure disorders. But you might try Facebook, there are dozens.

    Like

    Comment by Phylis Feiner Johnson — September 15, 2018 @ 12:34 PM

  6. I do not have epilepsy, but I have a son who does. So I’m just an observer in this. Son’s seizures appear to be well controlled by medication. He hasn’t had one for two years now. But there are cycles of migraine headaches and/or depression. They seem to be connected to the cycles of the moon (full moon being the worst). But it doesn’t happen every month, so it could be coincidental. Weather changes seem to influence migraines and/or depression too.

    Like

    Comment by Martha — September 17, 2018 @ 12:25 AM

    • I think your hunch about barometric pressure is on the mark.

      Weather differences such as sudden changes in temperature, dark skies, thunder, or bright, hot sunlight and humidity may be a definite trigger for some.

      Like

      Comment by Phylis Feiner Johnson — September 17, 2018 @ 12:21 PM

  7. I’ve started to write down everything down….and over a year I want to look into it and see if there is a pattern. I’m so surprised to tune into this page and find this article when I was thinking around the same lines.

    Like

    Comment by GhostWriter — September 19, 2018 @ 4:39 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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