Epilepsy Talk

Who is Your Personal Hero? | March 24, 2026

For me, it was my Grandfather, who believed in me completely and thought that I could accomplish anything I set out to do.

At the age of 14, I said I wanted to be a writer.

“Fine,” he said. “You’ll go to the Columbia School of Journalism.”

(Unfortunately he died long before that and nobody else had any faith in me. They all thought I was “damaged goods.”)

My husband is my second hero for being so steadfast and true.

He is supportive through thick and thin. (Even my attempted suicide.)

And he actually made it possible for me to become an epilepsy advocate.

I quit my “day job” as a promotional freelance writer and joined his company as VP of Community Outreach.

That’s how Epilepsy Talk was born.

And of course, ALL of you are my personal heroes. Compassionate and caring. Generous and giving.

Without you, I don’t know what I’d do.

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3 Comments »

  1. Flower Roberts's avatar

    We are thankful for those who had faith in you. You are an important source. HOORAY PHYLIS!

    Liked by 2 people

    Comment by Flower Roberts — March 24, 2026 @ 11:09 AM

  2. Chester Kuhn's avatar

    My son Lance for sure. My brave boy was diagnosed with epilepsy at a young age. He turns 25 in June!

    Liked by 1 person

    Comment by Chester Kuhn — March 24, 2026 @ 12:36 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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