Epilepsy Talk
My little bundle of love is home… | November 19, 2019
We’re back from Chicago, after getting home at 2:30 in the morning.
Emily is a cute as can be. Right now she looks like a little twig. All brown and a little over two pounds.
The cat show was quite an experience and Emily did place in her class with a big beautiful ribbon.
Needless to say, our breeder and I were very pleased.
And Emily seemed pleased, herself.
Noe she’s in hiding under the bed, coaxed out by feather wands and other assorted toys. But she’s still very shy.
We can’t wait to snuggle her and cuddle her. Once she’s ready.
So cheers for Emily our adorable, award-winning kitten.
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Epilepsy Talk 
OH YOU LUCKY LADY!! I FEEL SOOOO HAPPY FOR ALL OF YOU!!!!! CONGRATULATIONS MY FRIEND AND PLEASE MAKE LOTS OF GOOD MEMORIES 😊🙏🏼🦅💗😇😘😘. P.S. the pharmacy changed my medications back to the brand name medications yesterday. I won’t lie I was KIND OF NERVOUS AND A BIT AFRAID!! But I woke Thismorning and for the FIRST TIME IN THE LONGEST TIME I CAN FEEL!!!!!!! WOW!!!!!!! I was SO EXCITED I JUMPED OUT IF BED AND TOLD MY HUSBAND “I CAN FEEL, I CAN FEEL EVERYTHING EVERYWHERE ON MY BODY NOW!!!!!!!! 😃😃😃😃😃😃😃😃🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼🦅🦅🦅🦅🦅🦅🦅💗💗💗💗💗😘😘. I just wanted to let you know Phylis and I SINCERELY HOPE YOU REALLY LIVE AND ENJOY YOUR NEW ADDITION!! Once again CONGRATULATIONS TO ALL OF YOU!!!!!!! 😊🙏🏼🦅😇💗😘
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Comment by Kathy S.B — November 19, 2019 @ 10:19 AM
Congratulations on your pharmacy success.
We’re loving Emily. Especially when we can get her out of hiding! 🙂
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Comment by Phylis Feiner Johnson — November 19, 2019 @ 11:27 AM
Thank you 🙏🏼🦅💗😘. I can’t believe I had to suffer through all of that for years and it wasn’t even my fault!! Good thing I took all of my HIGH SCIENCES!!!!!!! I caught it myself then questioned the pharmacy about it. But try a little bottle with some “sensations (my cat likes the “fish flavour” 😘). Just shake it and she’ll come out 😻😻😻😻😻😻😻💞💞💞💞💞💞💞
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Comment by Kathy S.B — November 19, 2019 @ 12:19 PM
Banging the food can with a spoon is helpful, too!
And let’s hear it for High Sciences and self advocacy.
You should be proud of yourself!
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Comment by Phylis Feiner Johnson — November 19, 2019 @ 1:10 PM
Yes that works as well 😊. Well we all help eachother and that’s why you write to help us all either help ourselves and eachother 🙏🏼🦅💞😻. Apparently I have to give myself a couple week to continue to adjust, but it’s amazing how one night can change a lot of thing and give feeling, balance, sight and HOPE back where it was once lost!! 😘💗🦅🙏🏼💞
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Comment by Kathy S.B — November 19, 2019 @ 1:17 PM
Wishing you a smooth transition and adjustment!
YAY HOPE!
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Comment by Phylis Feiner Johnson — November 19, 2019 @ 2:28 PM
WOW!! I never realized being “re-adjusted” back to brand name medications would take such a toll on my body and me!!!!!!! I haven’t had any seizures, but I will admit it has been tiring so far. I hope you have a very good day today and are REALLY ENJOYING THE NEW ADDITION!! 😘🦅🙏🏼
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Comment by Kathy S.B — November 21, 2019 @ 9:27 AM
Well, I think every change is an adjustment that your body has to get used to.
Good that your body is responding in such a positive way!
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Comment by Phylis Feiner Johnson — November 21, 2019 @ 9:59 AM
I actually told my husband yesterday “WOW!! I could almost jump to the sky one minute!! And FLOP TO THE GROUND the next!! I wish there were ways to figure out how long it would take, the process and just what to expect”. It upset me thinking of all the people who may have the same issue and not know or even be aware of it!! Plus not be able to afford it as well!! Thank you Phylis 😊😻
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Comment by Kathy S.B — November 21, 2019 @ 10:09 AM
I think it takes six weeks to cross the blood/brain barrier.
So, just hang in there!
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Comment by Phylis Feiner Johnson — November 21, 2019 @ 10:22 AM
Makes me wonder if it’s the generic medications that are getting epileptics more sick or even helping us. Because here in Canada my understanding is they only prescribe or give “generic medications” not “brand name medications” unless specified by the doctor on our files as in a “no substitution” order. Shucks all that time I thought I was allergic to my laundry detergent, just couldn’t see properly or feel properly and smell right!! I thought it was in my diet and sleep all this time.
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Comment by Kathy S.B — November 21, 2019 @ 10:42 AM
Generic drugs have 80% of the original formula and 20% of (unknown) filler.
Often it changes from drug to drug. That’s why consistency is so important.
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Comment by Phylis Feiner Johnson — November 21, 2019 @ 10:48 AM
WOW!! I knew that! But oddly if it weren’t for you and “Epilepsy Talk” I may not even have had that knowledge and applied it to what I already was told decades ago!! For that I have SINCERELY THANK YOU PHYLIS AND FOLLOWERS!! 😘🙏🏼🦅😇💞😘. For you Phylis I have to let you know PRETTY PLEASE LISTEN TO YOU NEW ADDITION!!!!!!! Because oddly (I think through smell and something else) our FUR BABIES REALLY ARE OUR GUARDIANS!!!!!!! 🙏🏼🦅😇💞😘. It just makes me wonder WHY are we being made to take “generic medications” is that is knowledge well known to the medical professionals? And or why is it SO EXPENSIVE to get BRAND NAME MEDICATIONS than generic medications? Maybe that’s how come some epileptics can be having such a hard time with their medications? 🤔🤔🤔🤔🤔🙏🏼🦅💞
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Comment by Kathy S.B — November 21, 2019 @ 11:26 AM
I think name brands are more expensive for both BIG Pharma and the pharmacies themselves.
Just thing of all the mark-up and profit. Follow the $$$.
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Comment by Phylis Feiner Johnson — November 21, 2019 @ 11:30 AM
That may very well be!!!! Just makes me wonder whatever happened to the compassionate carings people of our societies and countries that REALLY DO WANT TO HELP? And not for monetary gain. Or IF THE MEDICAL PROFESSIONALS (neurologists, doctors and nurses) are even aware of differences? As epileptics we try so hard to teach, show and tell them yet it almost feels as though we aren’t being heard. Yet we’re the “epileptics” not them. All those poor neurologists, epitologists, and Various medical personal who are getting the bad rap just is not right. Because it may end up not having much to do with them after all or they may not even know. Thank you 🙏🏼😘
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Comment by Kathy S.B — November 21, 2019 @ 11:40 AM
Of course they know the differences.
But many can’t afford the name brand and for the majority of people, generics do work. (Like for me.)
I think it’s the insurance companies that are driving this train.
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Comment by Phylis Feiner Johnson — November 21, 2019 @ 11:44 AM
That’s not proper. Because how can anyone (medical or non medical professionals or even person and family) be able to know or even prevent the negative effects of the medications if their only on 80% of their true amount of medication. I don’t mean to create any trouble I apologized but it is knowledge that we should be aware of that’s all. Thank you 😊🙏🏼🦅💞
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Comment by Kathy S.B — November 21, 2019 @ 11:49 AM
Here it costs me $185.00 for the brand name “tegretol cr” as opposed to the $85.00 for “generic tegretol”. Just an example 💞🦅😘
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Comment by Kathy S.B — November 21, 2019 @ 11:45 AM
A very good example!
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Comment by Phylis Feiner Johnson — November 21, 2019 @ 12:10 PM
Also Phylis my family doctor had “no idea” that I was prescribed “BRAND NAME MEDICATIONS ONLY”! Or that it was even in my file until I mentioned it myself. Then she seen it on my file and it was immediately changed back. Just food for thought. That’s all
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Comment by Kathy S.B — November 21, 2019 @ 4:11 PM
Perhaps a note from your neurologist would have helped? Or a little more attention by your family doctor?
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Comment by Phylis Feiner Johnson — November 21, 2019 @ 5:51 PM
I was put in my chart back in 1985 because I couldn’t handle the “generic tegretol and Dilantin”. It REALLY HURT MY STOMACH TOO MUCH!! So I opted for the grand male seizure instead. I was lucky in the sense that my family doctors at the time both had a “vested interest” in epilepsy due to personal matters. And they caught it. That’s when it was changed because I also had hives (I just sucked it up and never said anything) until I was asked by them and then I told them. That’s when I was told to NEVER TAKE A NO NAME OR GENERIC MEDICATIONS EVER!! Because I was allergic to generic medications. I took it for granted it would be adhered to by the pharmacy. Then it was changed without my knowledge.
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Comment by Kathy S.B — November 21, 2019 @ 6:00 PM
FYI: it is in my medical chart
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Comment by Kathy S.B — November 21, 2019 @ 6:00 PM
All the more reason why you HAVE to be vigilant!
Nobody knows your body like you.
And I’m glad you know and don’t take for granted your well-being.
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Comment by Phylis Feiner Johnson — November 21, 2019 @ 6:11 PM
Thank you Phylis 😘. But truth be told I became to complacent and trusting when I shouldn’t have!! All I knew was THIS ISN’T/WASN’T RIGHT!!!!!!! It was through various organizations, friends, yourself, the people on your site and actually sitting down and (THANK GOODNESS I AM A PAPER HOARDER) I was able to actually CATCH IT MYSELF!! 😊🦅💞😘
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Comment by Kathy S.B — November 21, 2019 @ 6:16 PM
Well, at least you caught it!!!!
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Comment by Phylis Feiner Johnson — November 21, 2019 @ 8:54 PM
Your very right!! Thank you 😊. It’s just initial re-adjustment period and I have to go see the neurologist in early December as well. OH I HOPE THAT GOES GOOD!! 🙏🏼🦅💞
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Comment by Kathy S.B — November 22, 2019 @ 12:40 AM
Congratulations to Emily and all of her people.
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Comment by leica2015 — November 19, 2019 @ 2:30 PM
Thank you, Leica. She’s getting feistier by the hour!!!
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Comment by Phylis Feiner Johnson — November 19, 2019 @ 2:35 PM
Congrats Emily. I’ll bet you’re as wonderful as your owner.
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Comment by Donna Jones — November 19, 2019 @ 9:46 PM
MORE wonderful, I’d say! 🙂
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Comment by Phylis Feiner Johnson — November 20, 2019 @ 9:56 AM