Epilepsy Talk

Epilepsy Support Groups

January 28, 2019
8 Comments

One thing I’ve discovered is the search for support groups is endless — and seldom successful. Unless you live in a metropolitan area.

But, if you do find a support group, you’ll find an amazing wealth of camaraderie, compassion and caring.

Not every group does the same things. Even groups with similar activities may have different results because of the individuals involved…but think of it as a learning and bonding experience.

You’re interacting with people who share a similar illness, but perhaps different solutions. You can share your feelings, fears, concerns and perhaps get answers.

But most importantly, you can join a community of caring and know that you’re not alone.


Adult Epilepsy Support Groups

November 2, 2013
21 Comments

Here’s a list of Adult Epilepsy Support Groups across the country that I’ve compiled. Hopefully it will be of help.

If you have any additions or suggestions, please, sing out!!!


Your Medical Chart — What’s On It?

February 22, 2012
38 Comments

When asked if they’d like to see their doctor’s notes, patients in two new studies overwhelmingly said yes. But doctors aren’t nearly as enthusiastic.

The idea of opening up doctor’s notes has been around for decades. Advocates figure that patient oversight will reduce medical errors and help patients be more engaged. Patients have a legal right to see their records. But actually getting those notes — especially those that doctors take during a visit can be painfully slow (and expensive!)


CT Scans: Reassuring or Risky?

November 30, 2010
9 Comments

Some studies have increased concern about radiation exposure and other problems from CT overuse. One recent study revealed that the risk of getting cancer from a single CT scan could be as high as 1 in 80!


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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