Epilepsy Talk

Epilepsy: Meditation vs. Medication

September 18, 2020
8 Comments

Neither is mutually exclusive.

You can have medication without meditation. Most of us do.

You can do meditation without medication. Most of us wouldn’t and shouldn’t take that risk.

But together, they can enhance one another.


Who is Your Personal Hero?

September 15, 2020
6 Comments

For me, it was my Grandfather, who believed in me completely and thought that I could accomplish anything I set out to do.

At the age of 14, I said I wanted to be a writer.

“Fine,” he said. “You’ll go to the Columbia School of Journalism.”


Exciting Stuff!

September 12, 2020
33 Comments

A Facebook follower suggested today that I apply to the International Bureau for Epilepsy for one of their Global Teams.


Violence and Epilepsy

September 10, 2020
31 Comments

No question about it. Epilepsy’s been the victim of bad press since ancient Greece. There, it was sometimes called the “Herculean Disease” because Hercules was thought to have murdered his family in a fit of uncontrollable rage.

Two thousand years later, Michael Crichton wrote in The Terminal Man, “Epileptics are predisposed to violent, aggressive behavior during their attacks.”

Which didn’t exactly help.


Exactly what IS Neuropsychology?

September 6, 2020
26 Comments

I never had a clue what neuropsychology was all about. Although it sounded like a good idea.

Then a while ago, I had an assessment. (Mercifully, it was the two-hour test and not the 8-hour version.)

The neuropsychologist I went to had all the records from my last 12 years with my neurologist and it was clear he had done his homework.

The question was, did my deficit in memory come from my history of seizures, my previous concussions (one of which had only been a month ago) or even age itself? (I thought to myself, geeze, I’m only 67!)

Here’s basically what happened…


Epilepsy – Advice and Insights

September 1, 2020
33 Comments

Whatever age you were when you were diagnosed with epilepsy, I’m sure you have advice and insights to share from your own experiences.


The First Time…

August 29, 2020
26 Comments

I remember five jets of water, pummeling me from the shower walls and ceiling.

All of a sudden, a metallic taste in my mouth.

Strange and disgusting.


21 Praises of Wisdom to Pass On…

August 24, 2020
17 Comments

Everyone has a mantra that they live by. Here are some on mine.

Feel free to add to the list.


If You Didn’t Have Epilepsy, How Would You Change Your Life?

August 21, 2020
69 Comments

If you did have the options — without epilepsy haunting you — what would you choose to do?


Where’s The Funding? Epilepsy As An Orphan

August 19, 2020
23 Comments

Here are the facts, unhappy though they may be…

Epilepsy is the 4th most common neurological problem – only migraine, stroke, and Alzheimer’s disease occurs more frequently.

Its prevalence is greater than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined.

As many people die from epilepsy as from breast cancer.

There are 150,000 new cases of epilepsy diagnosed each year, and a total of more than 2 million Americans are affected by it.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


Next Page »

    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →

    Enter your email address to follow this blog and receive free notifications of new posts by email.

    Join 2,975 other followers

    Follow Epilepsy Talk on WordPress.com