Epilepsy Talk

Beyond EEGs — Diagnostic Tools for Epilepsy

February 23, 2017
49 Comments

How many of us have heard: “Your EEG is normal. You’re fine..”(“It’s all in your head?”)

I know of people who have had 5 EEGs, only to be properly diagnosed when they finally had Video EEG Monitoring.

So if someone is trying to pass you off or is ignoring your symptoms, perhaps you should become a little more familiar with your diagnostic options…


Wrong Diagnosis?

March 2, 2014
9 Comments

There are many ways that your medical care can go wrong. All of the phases from diagnosis to treatment can have some type of error.

Studies of error types: An Institute of Medical Report attempted to quantify the types of medical errors that occur in healthcare settings.

One cited study lists causes of errors as follows:


New Epilepsy Diagnosis — Now What?

April 30, 2012
14 Comments

You’ve just been diagnosed with epilepsy…

YOU’RE SCARED. Who wouldn’t be? THE DOCS. There are lots of terrific ones. THE TESTS. They can actually help to correctly diagnose your epilepsy. I’LL DIE. Not very likely. MY LIFE IS OVER. No, it’s not, but it will change…


12 THINGS YOUR DOCTORS WON’T TELL YOU…

October 13, 2019
24 Comments

Modern medicine can do miraculous things — but every test and treatment has a downside.

And your doctor may not disclose the dangers without prompting, a new survey finds.

Researchers surveyed 2,700 patients who’d recently decided whether or not to have surgery, take a medication, or undergo cancer screening.

Most reported their physician spent far more time talking up the benefits of each choice than explaining the risks.


Conditions Commonly Misdiagnosed as Epilepsy…

September 11, 2018
10 Comments

A moment of unresponsiveness — the inability to recall what just happened…convulsions or jerking movements…sudden stiffness of the body.

These are classic symptoms of an epilepsy seizure — triggered by abnormal electrical impulses in the brain.

And while these symptoms may indicate epilepsy, other brain abnormalities or injuries could also lead to seizures.

Having a seizure doesn’t automatically mean you have epilepsy.  And without testing, the diagnosis – or misdiagnosis – can be pretty scary.

There are loads of conditions that have symptoms similar to epilepsy.  Here are the most common…


Treating Seizures — 7 Amazing New Breakthroughs

April 27, 2018
16 Comments

What if you could predict an oncoming seizure in time for you stop it? Or even prevent it?

That day may be coming sooner than you think, thanks to these seven new technologies.

You’ll learn what they are, how they work and how far along they are.

There’s a lot of new and exciting research going on — all over the world — about predicting and preventing seizures. 

The latest research combines scientists who excel in engineering, math, physics and technology in a dedicated collaborative effort.

And even though most the actual technology isn’t here yet, the future holds promise for us all.


Explaining Epilepsy to a Friend

November 29, 2014
14 Comments

Here are some common questions a person may ask about epilepsy. What it is, what it does. And what you should do if someone has a seizure.


Epilepsy and Encephalitis

September 18, 2013
39 Comments

Imagine an inflammation so powerful that it can play havoc with your brainstem, cerebrum, cerebellum, spinal cord, and peripheral nerves.

That’s the neurological damage that can happen as a result of encephalitis.


Dravet Syndrome — New Hope Through Research

August 25, 2013
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Severe Myoclonic Epilepsy of Infancy was first described by Dravet in 1978.

In 1992, Dravet and colleagues found at least 172 published cases. Since then there have been numerous new cases.

Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare and catastrophic form of intractable epilepsy that begins in infancy.


    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →