Epilepsy Talk

Thanks for the giving… | November 23, 2022

There’s so much to be grateful for…

Your generosity of spirit…

Your compassion and caring…

Your comfort and support…

Your understanding and wisdom…

You are an inspiration…

The reason I get up in the morning…

The essence of my being.


8 Comments »

  1. Reblogged this on Disablities & Mental Health Issues.

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    Comment by Kenneth — November 23, 2022 @ 10:03 AM

  2. Being alive. Being able to walk.

    Liked by 1 person

    Comment by HoDo — November 23, 2022 @ 10:11 AM

  3. Just knowing 10 years ago how the worse seizure in my life happened, and I am still here to live & tell about it. My eye doctor who just looked at the detached retinia that he attached back told me the retina that he worked on should never go bad for the rest of my life, BUT that my other eye & retina at any time I can have the same thing to have happen. I say NO to that if no seizures like that will never happen again.

    Liked by 1 person

    Comment by James D — November 23, 2022 @ 12:40 PM

  4. Can not believe it was just over 10 years ago, when my worse GRAND MAL seizure happened to me. From it I got a detached retina which when I saw my eye surgeon on Friday, I reminded how it’s been 10 years &he checked out my 1st check up to the surgery to now 10 years later. he told me from the 1st visit back to now, I should never have a problem with my damaged retina I had 10 years ago, while saying that my left retina can do the same thing that I had my right retina to do, with out having a GRAND MAL seizure for it to happen. So I am thankful I had a great eye surgeon 10 years ago & a good neurologist for my past 7 years, that I believe as it did take some years that he listened, & tried me on XCOPRI last year in NOV of 2021, 2 week after my last GRAND MAL seizure that I now have been seizure free for 55 weeks, and I have now been able to eat some foods that 1 year ago would had developed into a GRAND MAL but today, I can eat those foods, NO ALL I have tried to eat in a meal or 2 in 1 day or 1 week, to test out my brain chemistry which seems to be a NORMAL brain chemistry now as 1960,, 62 years ago my 1st seizure happened on Thanksgiving Day. I remember saying to God,, 61 YEARS IS ENOUGH after that last seizure on 11-09-21, as this XCOPRI drugs started 1 year ago, 2 weeks after my last seizure. I do believe that God knows when ENOUGH IS ENOUGH, no matter if it is seizures or anything else 1 person has had to live with as my mother now at age 91, seems to have the worse things to happen to her now for the past 2 years with all she has had to endure, as I now feel guilty about staying seizure free, BUT I KNOW she is not being stressed out from seeing me in a seizure from having them 3 to 6 times a year. Now if only my moms health can just get better OR as I have told her more than a few times as she says too, WE BOTH ARE READY FOR THE RAPTURE OF JESUS CHRIST TO HAPPEN, as it will happen quicker than anyone can blink their eye at any time when we do not expect it to happen. So when a person like my brother in-law ( who does not believe in the life of Jesus ) says LIFE GETS BETTER EVERY YEAR, they have no idea how worse it is going to get for him, quicker than you blink an eye. I know life is GOING TO BE BETTER FOR ME, while he thinks by his own power that he is going to have it better by all that HE DOES & DID to make it that way for him & my sister. We shall see who is right very soon I hope by seeing the RAPTURE HAPPEN or just die as then we will see a glimpse of all that HEAVEN is going to be like and THAT I AM THANKFUL FOR.

    Like

    Comment by James D — November 23, 2022 @ 4:58 PM

  5. Knowing nothing about Epilepsy but waking up in hospital intensive care units all over the country wherever I happened to be, I had nightmares & hardships coping with my seizures for 20 years & I never thought I was going to make it this far.
    But surviving the neurological disaster & radical hardships, I can’t believe I’m still alive.
    Thanks to your informative website & inspiring forum for members to share their experience on Epilepsy, I’v learned a whole lot on how to accept & cope with my seizures.
    Thank you for sharing your experience, you all made my life a whole lot better than I can ever imagine.
    Therefore, I wish you happy thanksgiving day & happy holidays.
    Gerrie

    Liked by 1 person

    Comment by Gerrie — November 23, 2022 @ 10:07 PM

  6. Thank you for all you do for us !

    Liked by 1 person

    Comment by Bonnie — November 23, 2022 @ 11:27 PM

  7. Who’s that for, us or the world we have to face up to, I’m not feeling generous to those who have abused me because of my epilepsy, and they aren’t generous to me or anyone else I know with epilepsy

    Like

    Comment by Miss Gail Barry — November 24, 2022 @ 2:30 AM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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