Epilepsy Talk
Thanks for the Giving… | November 24, 2021
There’s so very much to be thankful for…
All of you and the richness you have brought to my life…
The happy news you share in these times of stress and strife…
Your comfort, support and wisdom…
An abundance of generosity and caring…
The endless giving…
Thank you from the bottom of my heart.
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Epilepsy Talk 
Thank you as well for being there when we need someone to talk to…not just someone but someone who understands what we’re talking about.
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Comment by Ed Lugge — November 24, 2021 @ 11:01 AM
Thank YOU Ed, for being part of our family.
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Comment by Phylis Feiner Johnson — November 24, 2021 @ 11:06 AM
Reblogged this on Ken's Devotions.
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Comment by Kenneth — November 24, 2021 @ 12:09 PM
Thank you for giving continually! Reading your information is great!
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Comment by Toni Robison — November 24, 2021 @ 12:12 PM
Thank you, I have learned more on this site than anywhere
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Comment by Wally Venechuk Canada — November 24, 2021 @ 12:56 PM
Oh Phylis, I feel it’s the other way around for sure!!
Happy Thanksgiving to you and Arthur and Happy Thanksgiving to all!!
I am grateful to all as well!!🥰
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Comment by Janet R. — November 24, 2021 @ 1:06 PM
Phylis,, YOU do not realize the changes & difference that you make where I know there are some out there, I am 1 of them, who has the determination to end the seizures no matter how it gets done before death happens to us. Still tomorrow makes it 61 years for this and I get a call from my doctors office to have a 72 HOUR EEG done and it never amazes me as to WHY this is getting done as it is, for the reason/s he is doing it, as I am to maybe say after 72 hours & the reading of the EEG for getting a RNS IF I may have a seizure in that 72 hours that may determine more proof that the RNS is going to benefit me, BUT I was told that a VNS I could have as well IF I wanted 1 of them. I am sure that a RNS cost more & takes longer to plant inside the head, so of course THAT is what needs to get done no matter what one would really work BEST FOR ME. 2 to 3 years ago the VNS was an 80% chance for me to be seizure free for life, BUT TODAY it’s the RNS that is 70+% chances of living a seizure free life, as the VNS will only NOW BE A LESS THAN 10% chance to be seizure free for life. Can’t see how in a 2 to 3 year time span that a 60 to 70% drop in a VNS is so bad to have done today. HOW does that happen that a RNS is to be so much better & MORE EXPENSIVE, so it has to be 80% better to get done.? I’m getting tired for 61 years being played & used as a RAT & just looked at as a case number for clinical studies & trials. After 61 years this is the TIME THAT God needs to do his acts of MERCY & or GRACE, & just HEAL US ALL, & make these actors of carers for us who experiment on us PAY for their scams & deceitful actions where THEY KNOW nothing is ever going to help us 24/7.
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Comment by James D — November 24, 2021 @ 2:03 PM
I appreciate your blog posts. Thank you Phylis.
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Comment by Flower Roberts — November 24, 2021 @ 3:45 PM
Thank you so much for everything you do for people with epilepsy of all kinds.
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Comment by Hetty Eliot — November 24, 2021 @ 11:27 PM
Phylis,
Thank you for your invaluable contribution to our lives, you have made this world a better place to live standing shoulder to shoulder with all of us, sharing our journey in life.
Happy holidays!
Gerrie
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Comment by Gerrie — November 25, 2021 @ 3:07 PM
Shoulder to shoulder is where I want to be…and stay.
Wishing you a blessed Thanksgiving.
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Comment by Phylis Feiner Johnson — November 25, 2021 @ 5:09 PM