Epilepsy Talk

I Am Not a Camel … but I Do Have Epilepsy | June 30, 2021

Here’s an excerpt of a successful woman’s odyssey through the world of epilepsy… It’s riveting.

By Maya Schenwar, Truthout | Op-Ed

“Why am I telling you all this?

First of all, I really wanted to share this glamour shot I took of myself in the hospital with my head tangled in wires (see below).

I think the cyborg-Medusa look could be the next runway hit.

More importantly, though: For a long time, I didn’t want to tell anyone in my professional world about this unique feature of my brain.

On the topics-that-are-fun-to-disclose-in-the-workplace-o-meter, epilepsy ranks somewhere between ‘I’ve been embezzling candy from the vending machine for the past 15 years’ and ‘I am actually a camel.’ 

I was worried about being viewed as an invalid, a workplace hazard, a weirdo.

But above all, I was afraid that people would see me as stupid.”

To continue, go to:


1 Comment »

  1. Reblogged this on accidentalactivistsite and commented:
    Bravo … Its time there are serious conversations about this …


    Comment by the accidental activist — July 2, 2021 @ 9:22 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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