Epilepsy Talk

A Reason to Celebrate! | May 15, 2021

Epilepsy Talk has just surpassed 3,000 visitors a day.

And that’s because of YOU!

Your wisdom, compassion and caring…

Sharing your experiences, so that other members know they’re not alone.

We don’t have all of the answers. But we sure can help one another.

That’s why we’re here.

That’s why I treasure each and every one of you.

And that’s why Epilepsy Talk has become a destination.


26 Comments »

  1. Way to go, Phylis! SO proud of you and the community you have created! Keep going strong!

    Liked by 1 person

    Comment by Mary Ellen Gambon — May 15, 2021 @ 10:25 AM

  2. After using so many medications. I am now using VIMPAT. It cones from Switzerland and costs Humana $1,000. I pay $100 monthly. BEST DRUG. Absolutely NO SIDE EFFECTS.

    Liked by 1 person

    Comment by Rita McDonald — May 15, 2021 @ 10:58 AM

  3. Reblogged this on Ken's Devotions.

    Like

    Comment by Kenneth — May 15, 2021 @ 11:21 AM

  4. Woohoo!!…. Great job Phylis!! We’re here for you!! And more importantly, here for eachother!! Great work!! Keep it going!!

    Liked by 1 person

    Comment by Aaron Holmes — May 15, 2021 @ 11:51 AM

  5. The most important thing, as you said, is being here for each other.

    Hooray for the Epilepsy Talk family!

    Like

    Comment by Phylis Feiner Johnson — May 15, 2021 @ 11:53 AM

  6. Thank you for being here. I share your posts with our FB group, “Coachella Valley Epilepsy Community” and people are so thankful.

    Liked by 1 person

    Comment by Paul Harris — May 15, 2021 @ 12:23 PM

  7. It’s mostly because of YOU, Phyllis. Thank you for all that you do.

    Liked by 1 person

    Comment by Robin Beers — May 15, 2021 @ 12:31 PM

  8. And it’s also because of what you contribute, Robin.

    Like

    Comment by Phylis Feiner Johnson — May 15, 2021 @ 12:34 PM

  9. O frabjous day!

    Liked by 1 person

    Comment by HoDo — May 15, 2021 @ 12:42 PM

  10. Congratulations! This is a great milestone that I have no doubt will be surpassed by another not long from now. Its great to see all the big hearted people here.

    Liked by 1 person

    Comment by Bill Roh — May 15, 2021 @ 1:22 PM

  11. Congratulations! You fill a community need!

    Liked by 1 person

    Comment by Doreen — May 15, 2021 @ 4:47 PM

  12. Congrats! thanks for the info. My diagnosis is still fairly new and without any answers from doctors, I decided to do my own research, read the stories & experiences of others as well as keep a medical journal in hopes of finding answers.

    Liked by 1 person

    Comment by 5thgenerationgirl — May 15, 2021 @ 9:44 PM

    • Research is the most important but also, so is the personal experiences of others.

      That’s what makes Epilepsy Talk so special. The sharing of experiences and information. Plus everyone’s unwavering support.

      The diary idea is a good one. If you haven’t selected one, here’s an app you might consider: https://www.seizuretracker.com/

      Like

      Comment by Phylis Feiner Johnson — May 16, 2021 @ 8:14 AM

  13. Phylis, In your devotion & commitment to fight against Epilepsy, you have built a bridge to connect us all together looking for answers & support for our medical hardships.
    It’s pleasing to note that the bridge you have built has expanded to grow, covering greater communities in need of answers & support to the neurological disorder we all have been looking & trying to remedy.
    The growing visitors to the website & forum is testimony to the invaluable contribution you had been providing to the war against Epilepsy.
    You are doing a whole lot of good more than you will ever come to know.
    Therefore, you’ve earned honorable place in the war against Epilepsy.
    Congratulations, Keep up the great job!
    Gerrie

    Liked by 1 person

    Comment by Gerrie — May 16, 2021 @ 6:44 AM

  14. That’s slightly over 2 visits per minute, 24/7, every minute.

    Liked by 1 person

    Comment by HoDo — May 16, 2021 @ 7:33 AM

  15. Thank you, Phylis…for sharing a spot with us where we can show our importance, how we’re not everyone’s burden. We often need a friend or two but here we find much more. If a battle needs to be won, it’s nice to have this strong army behind you.

    Congratulations!

    Liked by 1 person

    Comment by Ed Lugge — May 16, 2021 @ 9:24 AM

    • That means a lot to me Ed. And the analogy of an army is terrific. We’re here for each other, we’re strong and we’ll never give up. On the world or each other.

      Like

      Comment by Phylis Feiner Johnson — May 16, 2021 @ 11:23 AM

  16. Congratulations, Phylis! This is an amazing milestone. Keep up your awesome work.

    Best, Dan

    >

    Liked by 1 person

    Comment by Dan Vincent — May 16, 2021 @ 10:41 AM

  17. I have learned more about seizures & side effects of the AED’s / ASD’s that people take, & it confirms me that I am not the only person that feels as I do at times. Where else would I go to, to learn all of that ? Facebook is so PC that you can not tell how somethings effects your brain chemistry, yet here on Epilepsy Talk, you can suggest things, believe that your experiences are not fake, but a REALITY, and the reality of it all, anyone can learn as much here & maybe more as you would in any neurologist office. Thank you Phylis. We ALL could teach the EFA & CURE a thing or 2. 1 would be LISTEN TO US 1st, not the NIH & all neurological experts who do not have seizures daily or in every season of the year.

    Liked by 1 person

    Comment by James D — May 16, 2021 @ 1:42 PM

    • The difference between research and stories is vast. Research is supposed to be objective, yet we are continually learning about biases. Research is never about the whole person. Our stories are stories of the embodied, lived experiences of real people in real situations, not multiple-choice tests that can be scored by a computer. This site is valuable because we can appear here whole.

      Liked by 1 person

      Comment by HoDo — May 16, 2021 @ 2:05 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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