Epilepsy Talk
NEWS FLASH: The UN now says medical weed is a less dangerous drug | December 4, 2020
There’s hope on the horizon…
The UN now says medical weed is a less dangerous drug.
Even though it’s a long way from legalization, a United Nations commission has voted to reclassify cannabis.
That means acknowledging the plant’s medical value and paving the way for further therapeutic use of the drug internationally.
The 27-25 vote by the Vienna-based UN Commission for Narcotic Drugs was based on 2019 recommendations by the World Health Organization (WHO), which provides technical expertise on drugs to the UN.
The decision removes cannabis and cannabis resin from Schedule IV of the 1961 Single Convention on Narcotics Drugs, where it was listed alongside drugs such as heroin as having little to no medical or therapeutic value.
To find out more: Click on: https://www.vox.com/2020/12/3/22149503/un-marijuana-weed-legalization?ncid=newsltushpmgnews
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That’s awesome news! 🙂
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Comment by 17mwatson — December 4, 2020 @ 12:44 PM
NPR just posted a story the the U.S. House has voted to decriminalize marijuana.
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Comment by HoDo — December 4, 2020 @ 2:46 PM
Lol 😂 I’M A CHICKEN!!!!!!! 🐥
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Comment by Kathy S.B — December 4, 2020 @ 8:15 PM
The problem however is that Marijuana is very expensive and health insurance does not cover it. So hard to afford it.
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Comment by prasadmok — December 4, 2020 @ 3:45 PM
I had a very weird reaction on what I was put on!!!!! One was THC (I was to start in a little in the am) then VERY GRADUALLY work my way up to CBD (again a VERY LITTLE) at night time. So I started with one and oddly my left leg and foot started to feel numb!! Then my left arm. So I turned chicken and simply stopped!!!!! It’s been a few days now and I can feel my foot, leg and arm normally again!! Almost makes me scared to try the cbd at night time now!! 😱😱😱😱😱😱😱
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Comment by Kathy S.B — December 4, 2020 @ 8:22 PM
You should have been starting with the CBD which is the pure form of medical marijuana. The THC is an additive, a slight halogen which has the added pain relief. Balancing the two is the important and difficult part.
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Comment by Phylis Feiner Johnson — December 5, 2020 @ 10:18 AM
Yes!! I completely agree with you!!!!! Maybe its just me and my guilty conscience kicking in because I’ve never done this before!! Thank you Phylis I greatly appreciate you!!
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Comment by Kathy S.B — December 5, 2020 @ 12:04 PM
You know that’s what I thought too!! So I’m kind of confused and now (between me and you) a 🐥💩
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Comment by Kathy S.B — December 5, 2020 @ 12:24 PM
but the smeeeeellllllll🤢🤢🤢🤮🤮🤮 I guess internally swallowed is the least offensive to neightbor.
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Comment by Hetty Eliot — December 4, 2020 @ 8:49 PM
How about trying the tablet form, the tincture form
or even gummies!
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Comment by Phylis Feiner Johnson — December 5, 2020 @ 10:19 AM
I was thinking the gummies too!!!!! Lol 😂 but like I said “the fear finally defeated me!!!!!!! 😳😰😱 and I am a CHICKEN TO KEEP TRYING NOW!!!!!!! 🐥🐥🐥🐥🐥🐥🐥”
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Comment by Kathy S.B — December 5, 2020 @ 12:06 PM
Lol 😂 maybe it’s just me, but I DO NOT LIKE THE SMELL OF BURNING WEED!!!!!!!For some reason it turns me into a monster!! So I chose the oil you put under your tongue
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Comment by Kathy S.B — December 4, 2020 @ 8:59 PM
Good choice. You can also try edibles or make it into a tincture.
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Comment by Phylis Feiner Johnson — December 5, 2020 @ 10:22 AM
I was prescribed two different ones. One for the day time and then another one for the night time. But after what I went through for the day one (to start with) I didn’t feel right. So I called my neurologist and your correct it’s supposed to be cbd, but I’m not sure now. After my incident with that first one I’m a bit chicken to try the other one now. I figure it’s better to be honest that to be sorry later.
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Comment by Kathy S.B — December 5, 2020 @ 12:28 PM
I’m not one that likes to admit when I’m scared!! But when I couldn’t feel my lips too that’s when I stopped!!!!!!! Oddly I can be a rebel in disguise easier than admitting “my lips are going numb too”!! Certain people I know make better rebels in this sense NOT ME!!!!! I’m a 🐥💩😰
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Comment by Kathy S.B — December 4, 2020 @ 9:03 PM
This is one video from Dr Fisher I think is very instructive for people with epilepsy,
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Comment by prasadmok — December 4, 2020 @ 9:11 PM
Thanks to Dr. Fisher & Stanford University for the invaluable devotion & professional services to fight epilepsy, this’s where I discovered what epilepsy is all about, watching myself having two grand mal seizures in a week recorded on video, while going through EEG & MRI tests.
The informative experience has helped me to learn on how to cope with seizures for 20yrs.
I wish him success in all his inspiring projects to cure seizures.
Gerrie
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Comment by Gerrie — December 4, 2020 @ 11:09 PM
Dr. Fisher saved my life and he still is.
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Comment by prasadmok — December 5, 2020 @ 12:38 AM
When I used to play and then coach hockey and various sports I used to get my husband to video tape my practices so I knew who to help next time and what to do for my next practice. I never thought of watching or videotaping now or even watching things. Thank you SO MUCH GERRIE!! Please take care of yourself and please be well my friend 😊🙏🏼🦅❤️
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Comment by Kathy S.B — December 5, 2020 @ 12:11 PM
I wish we all had him!!!!! 🙏🏼🦅🙏🏼❤️
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Comment by Kathy S.B — December 5, 2020 @ 2:16 PM
Thank you so much for the video. A “must” for anyone with epilepsy or with a loved one who has epilepsy, to watch.
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Comment by Phylis Feiner Johnson — December 5, 2020 @ 10:32 AM
Yes Kathy, While watching yourself having seizures on video can be shocking & traumatizing, for those of us who knew nothing about Epilepsy or refused to recognize, accept & acknowledge the neurological disorder we’ve never been exposed to encounter, the shocking experience turned into wake up call to face one of the adversities in our lives.
As one of the attending Neurologists watching me in total shock & disbelief explained to me in layman terms, “our brains are like eggs therefore fragile & sensitive to any internal & external incidents that we may never had thought to be dramatic or unsafe at work or in our homes until our brains start reacting to the environment we had been exposed to. Therefore, it’s all about staying safe from potential or possible risks drastically affecting our brains”.
This was my introduction to epilepsy & thanks to Dr. Fisher & his crew at Stanford University, I learned to accept the neurological disorder & cope with my seizures to the best way I can to survive for 20yrs.
Gerrie
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Comment by Gerrie — December 5, 2020 @ 1:35 PM
Goodmorning Gerrie (😊on my part of the globe). Yes I have to admit the tough ones to watch were the ones where I knew I was going to have a seizure and made my team take a knee so I could try and get off the ice!! Sometimes I didn’t quite make it either! But I did come and same with my husband and children to discover it was when I knew I was under the gun or under a lot of pressure and stress and VERY TIRED OR HUNGRY!!!!!!! This time around it came down to (I just found out and was diagnosed as well) with arthritis in my neck and upper back. Which is why I get the really bad headaches (which is usually my person sign to take it easy). This time around though I think I just pushed myself too hard and lifted too much and hurt myself too bad!! Lol 😂 BUT I WILL HEAL SOMEHOW SOMEWAY!!!!!!! I PROMISE!!!!!!! Now I had two injections in my neck and back to help with the pain from the arthritis and my doctor has to give orders for a rolling order of them in two weeks. Even reading was PAINFUL!!!!!!! Sorry for the hiatus, but I’ve been taking it easy in a nice dark quiet room for awhile 😊. On the flip side I realized you can watch television from another room!! Lol 😂
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Comment by Kathy S.B — December 5, 2020 @ 2:03 PM
OH THANK YOU!!!!! 🙏🏼🦅🙏🏼💝
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Comment by Kathy S.B — December 5, 2020 @ 12:07 PM
That’s the only seizure med I haven’t been prescribed, all the other didn’t/doesn’t help at all
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Comment by Chris — December 5, 2020 @ 12:20 AM
Pots history is a prime example of how easy it is to brainwash people through propaganda.
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Comment by Zolt — December 5, 2020 @ 11:19 AM
I tried a long message few times and they seem to get lost. Will try in parts. See if that works.
Here are some of his other videos of Dr Fisher. You can search online for older ones.
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Comment by prasadmok — December 5, 2020 @ 11:34 AM
Thank you for sharing the invaluable experience & informative mission of my inspiring hero, Dr. Fisher leading the war against epilepsy.
Gerrie
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Comment by Gerrie — December 5, 2020 @ 1:48 PM
I wrote a long message before, but somehow these are getting lost. Maybe can’t send multiple videos in one post. Will try in multiple [arts.
Below are parts of it.
Here are some of his other videos. You can search online for older ones.
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Comment by prasadmok — December 5, 2020 @ 11:36 AM
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Comment by prasadmok — December 5, 2020 @ 11:37 AM
Looks like gravatar does not post post has certain videos. You can search on Google for some of Dr Fisher’s other videos.
Dr Fisher tried rTMS on me. Apparently it helped some people with epilepsy. It did not help me. Dr Fisher indicated he wants to try it again if tDCS did not work out. Once this CoronaVirus goes away I might try that again. This again does not require any surgery/implanting anything in the brain.
For some people drugs do not work and unfortunately I am one of those. I have Seizures pretty much every day and Grand Mals every so often.
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Comment by Prasad Mokkapati (@prasadmokkapati) — December 5, 2020 @ 11:40 AM
I must admit since this coronavirus hit I had no problems being home all the time. Believe it or not the problem came when my husband and children were also made to stay home too!! And in my culture BREAKING AWAY FROM MY AUNTIES AND MOTHER INLAW!!!!!!! Their elders now and their a very integral part to our families!!!!!!! Plus my mother inlaw lives next door lol 😂. So I can’t keep her away I tried!!
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Comment by Kathy S.B — December 5, 2020 @ 12:19 PM
Another one of Dr Fisher’s talk.
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Comment by prasadmok — December 5, 2020 @ 11:41 AM
Deep Brain Stimulation is all I know about. Not tDCS.
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Comment by Phylis Feiner Johnson — December 5, 2020 @ 12:10 PM
I actually enquired about that as well. Of course hopeing/praying someday I may be able to get off some of these medications!!!!!!! And stopping the seizures too!!
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Comment by Kathy S.B — December 5, 2020 @ 2:05 PM
Seizures are just one aspect of epilepsy. The bigger ones are the anger, frustrations, relationships and suicidal thoughts that affects people with epilepsy.
Medications exacerbate these conditions as well. I have to admit I have gone through these and at times still go through these conditions.
I am part of a group who have weekly Google meets where we sort of help each other. If anybody else are going through similar situation like us and would join on these weekly saturday calls, let me know and I can forward that url.
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Comment by prasadmok — December 5, 2020 @ 4:23 PM
I am soon to be 60 years old . I have smoked cannabis since my teenage years. I can tell you I have tried tinctures, oil vaping, brownies, gummies , choclate bars ect…
The only way to get the full effect without being overpowered by it is to smoke it. Less is more. By smoking it YOU can control your dosage. You get the full synergy of the terpenes which are important and not in any of the above mentioned forms. You take one or two drags of the flower and put it out . You see how you feel. Your body says more you take another drag. And wait again. I used to smoke huge amounts recreationally but once in my twenties I realized that less is more. Now 1 or 2 drags of a good indica or hybrid and it’s enough. My son has drug resistant epilepsy and I have witnessed him begin to have a seizure having myoclonic jerks and he runs his nose right before the grand Mal comes and by smoking a half a joint to s whole joint STOPS IT IN ITS TRACKS! . He never wanted to try it and now that he came around 7 years ago and did try it his seizures are maybe once a year. He is a neuropsychology major and has finally made his senior year. With a 3.8 GA . It has been a huge struggle due to medical drops almost 2 years one time but at 28 he is in the home stretch. Again the flower is the right choice , you just have to find the strain that is right for your body. He needs flower that relaxes your body and is not too much in the head. Indica strains are the ticket for him with THC levels around 15 to no more than 20% . If you do not wish to smoke ( combust it) you get a vaporizer and do it that way . Vaporizing heats it but does not combust it. Good luck to all of you.
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Comment by Tom — December 5, 2020 @ 5:18 PM
Wow Tom! What an awesome story. A tribute to you and your son’s persistence.
I think most of us have a lot to learn about medical marijuana and the sources for your kind of wisdom are scarce.
Thanks for your honesty and your help. Sharing your story is invaluable.
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Comment by Phylis Feiner Johnson — December 5, 2020 @ 8:32 PM
Phyllis , Thank you.I am a truth seeker. I refuse to validate what the mainstream narrative puts out as gospel. I refuse to be manipulated and I always do my own due diligence and read all the research papers I can. Lazy people get fooled , I won’t get fooled again.Ever.
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Comment by Tom — December 6, 2020 @ 12:48 PM
Wow Tom,,, Thank you for sharing your practical experience & your son’s inspiring struggle & brave drive to achieve his dream against all odds.
Lucking close exposure & connection to marijuana consumMany of us have no idea of what’s behind all that legislative war, political fiasco or medical ramifications associated with marijuana plant being barred from consumption in a society where a whole lot more medical products are made from narcotic drugs & made available by pharmaceutical industry like opium byproducts for medical remedy.
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Comment by Gerrie — December 6, 2020 @ 4:00 PM
Wow Tom,,, Thank you for sharing your practical experience & your son’s inspiring struggle & brave drive to achieve his dream against all odds.
I got respect for your son who refuses to give up from achieving his dream even when his seizures are making it difficult to pursue his goal. Cheers!
Therefore, there’s a whole lot more to gain from reading your first-hand, realistic & dependable information than to hear, trust & relay on the establishments with self-serving political agenda, churning incomplete & lopsided information in marijuana & epilepsy relations .
Lucking close exposure & connection to marijuana consumption, many of us have no idea of what’s behind all that legislative war, political fiasco or medical ramifications associated with marijuana plant being barred from consumption in a society where a whole lot more medical products are made available from narcotic drugs by pharmaceutical industry like opium byproducts for medical consumption.
Finally, it’s looking like the wall barring marijuana for medical consumption is crumbling down to the point that the UN & World Health Organization is finally succumbing to reality.
Best wishes to all & good luck to your son in achieving his dream beating down epilepsy.
Happy Holidays!
Gerrie
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Comment by Gerrie — December 6, 2020 @ 4:40 PM
Phylis, Please note that something is wrong with the software/link, intermittent disruptions to post comments.
Thanks!
Gerrie
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Comment by Gerrie — December 6, 2020 @ 4:56 PM
??? I don’t know how that happened Gerrie, but it must have been frustrating to be stopped in your tracks.
😦 😦 😦
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Comment by Phylis Feiner Johnson — December 6, 2020 @ 5:54 PM
I asked my neurologist about cannibis but she said it wouldn’t work in my Temporal Lobe Epilepsy, in 1998 I got a Vagus Nerve Stimulator – I still take medication and no longer have drop attacks.
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Comment by Leon Chavarria — December 13, 2020 @ 1:03 PM
Well, I guess that’s good news and bad news.
Keep in mind, that cannabis doesn’t work for everyone and sometimes the desired result is missed. Other times it can be a crap shoot, finding and adjusting the right dosage and format.
So, it looks like the VNS is your best solution. And the fact that you no longer have drop attacks is good news.
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Comment by Phylis Feiner Johnson — December 13, 2020 @ 1:27 PM
Reblogged this on Disablities & Mental Health Issues.
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Comment by Kenneth — January 20, 2021 @ 11:58 AM