Epilepsy Talk

In Case of Emergency — New Solutions | July 10, 2020

Here are some methods to stop a seizure in its tracks. Or shorten one.

And help relieve you of the dreaded after-effects.

Possibilities you might not have known about…especially the new nasal sprays.

Recently some children have been using Ativan or Klonpin tablets or wafers, placed under the tongue for rescue from seizure activity — which is an excellent way to go.

Then there’s Diastat. Traditionally, it’s been the first line of fire in rescue meds for extreme seizures.

It’s available in a gel form that is inserted into the patient’s rectum to stop a cluster of repeated seizures. (It’s absorbed more quickly that way.)

However children, adults and caretakers aren’t too keen about it, and you can understand why.

Now, it’s been made available in a liquid oral form that comes in a syringe and goes right into the cheek of the mouth.

Also, Versed (Midazolam) and Ativan have been approved as antiepileptic nasal sprays. Plus, Versed can be inserted in the side of the cheek.

The way they work is by crossing the nasal mucosa and the blood brain barrier, providing rapid relief for people as they feel a seizure coming on. Or if someone is in the midst of a cluster of seizures.

And of course, the majority of patients tested preferred the nasal spray in terms of convenience!

(Ask your neuro about them, because they’re relatively new.)

In short, you have these new options which can control seizure activity. Find out more.

Your pharmacist can be a terrific source because he/she’s worked with most of the meds and knows the up-sides and the down-sides.

And remember, once you know all your options, you may be less fearful and more in control when a seizure strikes.

 

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Resources:

http://www.ice-epilepsy.org/emergency-administration-of-rescue-medications.html

http://abcnews.go.com/Health/Wellness/epi-pen-epileptic-seizures-researchers-step-closer/story?id=15646106#.T3slEavHLHQ

https://www.nih.gov/news-events/nih-research-matters/using-autoinjectors-treat-seizures

https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-rescue-therapies/nasal-rescue-medicines

https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-rescue-therapies/oral-rescue-medicines

https://www.epilepsysociety.org.uk/emergency-medication

https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-rescue-therapies

https://www.epilepsy.com/learn/seizure-first-aid-and-safety/responding-seizures/using-rescue-medications

 


7 Comments »

  1. Seizure control can be a moving target. What works in summer may not work in winter. What works in the morning may not work at night. What works when you are thirty may be useless when you hit fifty. The interactions of hormones, food, supplements, medications and environment is infinitely complex. Keep a notebook. Try to see patterns. People testing these new medications, or meds with new applications, didn’t test them on everyone.

    You are the expert in your seizures, not any of your doctors. If you are lucky, your doctor will listen to you and learn from you.

    Liked by 1 person

    Comment by HoDo — July 11, 2020 @ 4:35 PM

    • Meanwhile, if you’re not lucky enough for your doctor to listen to you, here’s a seizure diary that many have found helpful:

      Seizure Tracker

      https://www.seizuretracker.com/News-Tracks/Seizure-Diary-About.php?PV=

      SeizureTracker.com is dedicated to providing people living with epilepsy and their doctors with free comprehensive tools to help understand relationships between seizure activity and anti-epileptic treatments.

      Founded by parents of a son who suffered from daily seizures, this online seizure diary empowers people living with epilepsy to become active leaders in their own treatment, working hand-in-hand with doctors. The easy-to-use tools found at SeizureTracker.com allow patients to create personalized reports of logged seizure activity and treatment history that can be easily shared with their medical team.

      Like

      Comment by Phylis Feiner Johnson — July 11, 2020 @ 4:50 PM

      • I was thinking not only of tracking seizures, but of noticing some of the weirdnesses we experience. For instance, I crash around 4 in the afternoon. This needs attending to. Anything out of place, or different. Or maybe too different.

        Liked by 2 people

        Comment by HoDo — July 11, 2020 @ 5:15 PM

  2. Goodmorning Phylis 😊. I wonder if they have that spray in “CANADA” yet?

    Liked by 1 person

    Comment by Kathy S.B — July 14, 2020 @ 1:09 PM

    • I researched it and all I could find is a phone number for inquiries: For additional medical information about NAYZILAM (which is Midazolam Nasal Spray) , patient assistance, or any other information please visit NAYZILAM.com or call ucbCARES® at 1-844-599-2273. Full affordability information can be found at UCBUSA.news/Affordability.

      Liked by 1 person

      Comment by Phylis Feiner Johnson — July 14, 2020 @ 1:16 PM

      • Thank you VERY MUCH Phylis!! Out of curiosity do we still require a prescription from our doctor? And if so, can we order from Canada? Or how does that part work? Thank you and please be well 😊💕

        Liked by 1 person

        Comment by Kathy S.B — July 14, 2020 @ 1:40 PM

  3. I know that you need a prescription for Midazolam. You’ll have to call the phone number I gave you for availability. Or ask your doctor.

    Like

    Comment by Phylis Feiner Johnson — July 14, 2020 @ 1:48 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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