Epilepsy Talk

Poetry Is Music To The Soul… | August 10, 2019

And we souls with epilepsy could use a little music.  But, since we can’t hear you, we’ll have to settle for the written word.

So, whether it’s lyrics or poetry…write on!



  1. I had a battle with my boss;
    And as always, it was a loss.

    I do not ask for undue praise;
    All I want is my promised raise!

    (Sometimes you just have to smile at life even when things are down)

    Liked by 1 person

    Comment by Mark Thompson — August 11, 2019 @ 9:24 PM

  2. I’m smiling. I love it!

    (Most of my poetry is either sad or angry. I guess that’s one way to vent your spleen!)


    Comment by Phylis Feiner Johnson — August 11, 2019 @ 11:35 PM

  3. “With this brace around my leg and all these fucking seizures
    I’m screaming “fuck you world”, who the hell needs ya
    Don’t cha know that I’m fucked, bitch I’m living a lie
    Poppin pills to survive, bitch I’m ready to die

    Chorus (2x)
    Well I sit back, relax, and watch the tears roll down
    I try and scream for help, but I aint making a sound
    I’m walking all alone cause my heart has faded
    I’m begging for help but I’m already jaded” – FiO Baby

    Liked by 1 person

    Comment by Michael Fiore — August 13, 2019 @ 12:31 PM

  4. “Im here to paint you a portrait, make an impression, Van Gogh
    See Im speaking from the heart, cause i just need you all to know
    That I am high all the time, I barely have feelings
    But thats the price you pay, when your body stops healing

    And honestly, neurologically, these seizures are not commonly
    Spoke about, why? Because it fucks with you psychologically
    I know these doctors wanna help, prescribing pills with generosity
    But believe me when I tell you they’ve created a monstrosity

    I’ve been told to hide all my medical conditions
    But fuck it Im a tell the world, I don’t need your permission” -FiO Baby

    Liked by 1 person

    Comment by Michael Fiore — August 13, 2019 @ 12:36 PM

  5. “Seizures cause amnesia, day ones calling at their leisure
    Saying finish what you started, as I’m looking for relievers
    Shit I just need a breather, from the boulders on my shoulders
    Its time to wake on up, damn someone pour the Folgers” -FiO Baby

    Liked by 1 person

    Comment by Michael Fiore — August 13, 2019 @ 12:39 PM

  6. Like

    Comment by Michael Fiore — August 13, 2019 @ 12:42 PM

  7. Fantastic video by Michael Fiore — https://www.youtube.com/watch?v=tSTdSo5XI90

    Liked by 1 person

    Comment by Phylis Feiner Johnson — August 13, 2019 @ 1:33 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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