Epilepsy Talk

Medical Marijuana — It’s Here to Stay… | May 19, 2019

Let’s face it. The time has come.

Even the FDA has opened its eyes with new clinical trials.

Although the AMA chooses to keep their heads in the sand. For now.

It used to be popular to debate the merits and dangers of medical marijuana.

For example, it could lead to addiction. Like cocaine. (Oh please!)

But now, there’s clinically proven scientific proof, with more to come…

“After 4,000 years of humans taking cannabis for epilepsy, we have scientific evidence it works.” — Orrin Devinsky MD, Harvard University, on results from his team’s late-stage clinical trial of cannabidiol to treat Dravet syndrome.

And that’s just the tip of the iceberg…

Ever since Dr. Sanjay Gupta — a practicing neurosurgeon — used his CNN special “Weed” to show how CBD cannabis medicine helped a six-year-old child with Dravet Syndrome reduce her seizures from 300 per week to just a few per month, doctors, patients and their families have been clamoring for access.

(CBD — or Cannabidiol — is a compound in cannabis that has medical effects but does not make people feel “stoned”.)

Here’s how it works…

Medical researchers believe cannabidiol provides therapeutic benefit by interacting with receptors in the brain and spinal cord. Including interaction with many other neurotransmitter/neuromodulator systems, for a reach that extends nearly throughout the body.

Moreover, researchers say current knowledge of the cannabinoid system suggests the existence of other cannabinoid receptors yet to be discovered.

The proof is unmistakably present. Especially for those with drug resistant epilepsy.

Take the story of Regan Engelhardt…

After experimenting with different strains and CBD ratios, Regan Engelhardt’s daily seizure frequency fell from 50 seizures per night down to five.

Before cannabis, her seizures dramatically altered her ability to walk, sleep, eat, or drink. She had been hospitalized for dehydration as a result.

According to her mother, the pharmaceutical medications delayed her ability to walk until the age of 2 and left her “catatonic.”

Currently, Regan’s cannabis medicine has allowed her to be weaned off one pharmaceutical medication, has increased focus, and is able to sleep through the night.

“You see so much more light back in her eyes” her mother Suzie says.“ Just a couple of weeks ago I wondered if she would ever come back.”

“In the coming months, if the FDA is comfortable about how things are going, there will be a number of senior epileptologists in major university centers throughout the US, each treating a couple of dozen patients with various epilepsies,” said Dr. Geoffrey Guy, MD.

The debate is over. It’s time to get down to business.

NOTE: Each state has its own guidelines regarding the cultivation, possession and use of medical marijuana.
To find information about each state’s rules, regulations and standards go to http://norml.org/legal/medical-marijuana-2

Medical Frequently Asked Questions http://norml.org/marijuana/medical/item/medical-frequently-asked-questions

Articles of Interest:

When Cannabis Goes Corporate http://www.nytimes.com/2014/05/25/business/international/when-cannabis-goes-corporate.html?emc=edit_hh_20140527&nl=health&nlid=27745593&_r=0

Canada’s First Cannabis Vending Machine Starts Operation http://www.collective-evolution.com/2014/05/08/canadas-first-cannabis-vending-machine-starts-operation/

Cannabis Helping Children with Severe Epilepsy http://www.wakingtimes.com/2012/07/17/cannabis-helping-children-severe-epilepsy/

Dr. Sanjay Gupta’s Pot Confessional Gets Global Headlines http://www.cnn.com/2013/08/09/health/gupta-weed-reaction/

Too High? Medical Marijuana Dispensing Machine’s Stock Increases 3,000% http://venturebeat.com/2012/11/17/too-high-medical-marijuana-dispensing-machine-companys-stock-increases-3000/

To subscribe to Epilepsy Talk and get the latest articles by email, simply go to the bottom box of the right column and click on “Follow”

Resources:
http://medicalmarijuana.procon.org/view.resource.php?resourceID=000881
http://thejointblog.com/breaking-fda-approves-trials-cannabis-based-epilepsy-medicine/
http://www.medpagetoday.com/MeetingCoverage/AMA/43043?xid=nl_mpt_guptaguide_2013-11-20&utm_source=guptaguide&utm_medium=email&utm_content=mpt&utm_campaign=11
http://www.medicaldaily.com/fda-approves-marijuana-based-epilepsy-drug-use-kids-clinical-trials-261998
http://www.wakingtimes.com/2012/07/17/cannabis-helping-children-severe-epilepsy/

 


93 Comments »

  1. I’m curious about marijuana for my epilepsy. I’m a lucky epileptic who has well controlled epilepsy because of keppra and tegretol. My only problem is the tegretol is giving me low sodium levels in the blood. My neurologist is wanting to reduce the amount of tegretol which puts me back in the danger zone where I feel seizures coming on. Does anyone else have any ideas?

    Liked by 2 people

    Comment by Eve Quigley — May 19, 2019 @ 10:54 AM

    • Yes, you might try medical marijuana.

      Have you read the article: The Great Debate — Medical Marijuana

      https://epilepsytalk.com/2019/05/15/the-great-debate-medical-marijuana/

      There are some fabulous insights in the comments.

      Like the ones from Tom. (Near the bottom of the comments.)

      “Terpenes are what guides him to which hybrid will work best. Terpenes are what make lemons and oranges and grapefruit have their odor. When you smell a strain and it is right for you, your mouth actually waters. All you naysayers need to do research. You can start by going to leafly.com and looking up the strains. By looking at each tab they describe all the effects of each strain and what they are good for. As for dosage less is more. You smoke a half a joint and see how you feel. And if you have CBD oil on hand and you feel it’s too much, you take CBD oil which negates the effect of the THC . Mother nature in bet wisdom provides both in the same plant as a guard against too much physco activeness.”

      I think you should start with his suggestion, and go to http://www.leafly.com first.

      Liked by 1 person

      Comment by Phylis Feiner Johnson — May 19, 2019 @ 11:22 AM

      • Wow Phylis you almost sound like your about to hop off the fence 😉😀. Maybe I don’t feel so bad after all now? I just really don’t like the smell of it and honestly I’m kind awkwardly nervous about marijuana. Yet I actually have a prescription I’ve never filled yet. But I really do like the classes they teach and the doctors and staff who go through everything with you. It’s amazing to realize how much the doctor knows about your history once you go. You may be surprised how well your treated there by the doctor and staff and how though they are.

        Liked by 1 person

        Comment by Kathy S.B — January 19, 2020 @ 9:16 PM

    • First of all where do you live? If you live in a legal state get your card. Secondly what type do you have? 3rd Do you also experience insomnia, anxiety, depression? For most young people the Charlotte’s web strain which is all CBD 0.7 % thc or lower is good for say under 14 years old but as you grow older you need THC to work in harmony with the CBD. So you would lean towards Indica strains with low THC content and high CBD
      Which hits the body much more heavily than getting you high in your head. Your muscles all relax and you feel depending on the strain, relaxed euphoric , happy , giggly, if experiencing 8ns9mnia and anxiety and depression there are strains that deal that as well as epilepsy all in one. Smoking or vaping is preferred due to peoples metabolism. Easier to control the dosage by following the less is more rule. 1 puff at a time until effects reached . Go to leafly.com and 3xplore the strains which are as follows Sativa which are clear headed highs, that are cerebral, euphoric, giggly, good for depression ,anxiety, appetite ect. Then indica strains which are felt more in the body and basically come from a lineage of Afghanistan growers . Then you have Hybrids which are the 2 strains cloned together to create even more powerful medicine.

      Liked by 2 people

      Comment by Tom — May 19, 2019 @ 11:31 AM

      • Tom, you’re a godsend.

        I did refer Eve to your comments in the previous article, but THESE are even more helpful for a beginner!

        Liked by 1 person

        Comment by Phylis Feiner Johnson — May 19, 2019 @ 11:35 AM

      • Goodmorning Phylis 😊. WOW!! Until NOW I HAVE ALWAYS BELIEVED MARIJUANA WAS A “NO NO”!!!!!!! However AFTER WHAT IS HAPPENING NOW (ESPECIALLY WITH MY STOMACH HURTING SO EXTREMELY AWFUL, I CAN’T EAT!!!!!!) it has left me almost feeling like “I’M GOING CRAZY WITH THE PAIN AND STARVATION”!!!!!!! I haven’t been able to eat since 1.5 weeks ago because my stomach and intestines (they thought appendicitis, but I’m too old) and “IMPACTED BOWELS” I’m at the point of FELLING LIKE MAYBE I AM OR I AM A “Hypochondriac”!! I was in emergency the second day in a row because it HURT SO BAD I WAS KEELED OVER!!!!!!! I WANT TO SWEAR AT THE DOCTOR (but I didn’t) however he sure made me feel like I was INCOMPETENT AND OVERREACTING!!!!!!! I haven’t been able to eat in almost a week and a half!! I started looking at my medication and I COULDN’T BELIEVE THE DOCTOR HAD ME UP TO 22.5 pills a day a year ago!! I VERY GRADUALLY CUT IT DOWN TO 18.5 over a year and now down to 12.75 pills a day. ITS THE MEDICATION THAT’S KILLING ME!!!!!!! I told my husband and some friends “NO WONDER WE HAVE AN OPIOD DRUG EPIDEMIC!!!!!!! THEY JUST KEEP GIVING ME MORE AND MORE MEDICATION AND I CAN’T KEEP UP ANYMORE!! THE DOCTORS ARE KILLING ME!!!!!!!”. I was on tegretol 1600mgs a day, Dilantin 800mgs a day, magnesium 40mg, trazadone .50mg, Calcium 500mg, clobazam 20mg, ferrous gloconate (iron), folic acid 1mg, and ibprophen 600mg a day!!!!!!! And the doctor said it was still in my head!! I’ve refused to try marijuana and my doctor is “ANTI-MARIJUANA” however MAYBE IT IS TIME TO CONSIDER MY OPTIONS NOW!!!!!!! Thank you 🙏🏼🦅😇❤️. SOME DOCTORA IN ALBERTA, CANADA DO NOT SERIOUSLY THINK THAT MAYBE SOMETIMES 40 YEARS OF MEDICATION CAN TAKE ITS TOLL!!!!!!!! THANK YOU I WILL ALWAYS BE THANKFUL FOR YOU AND THIS BLOG!! Take care ❤️

        Liked by 1 person

        Comment by Kathy S.B — May 19, 2019 @ 12:08 PM

      • That’s an awful lot of drugs. Even the number you’ve weaned yourself down to.

        Before you try marijuana, I suggest you might try one of the anti-epilepsy diets. Especially with your stomach problems.

        Three Anti-Seizure Diets That Could Change Your Life…

        https://epilepsytalk.com/2018/02/15/three-anti-seizure-diets-that-could-change-your-life/

        Liked by 1 person

        Comment by Phylis Feiner Johnson — May 19, 2019 @ 1:12 PM

    • I also have low sodium levels, low blood pressure and low sugar levels lol

      Liked by 1 person

      Comment by Kathy S.B — May 19, 2019 @ 1:38 PM

    • Goodevening Eva 😊. Well I too am VERY SLOWLY WEANING OFF OF TEGRETOL AND I REFUSE TO TAKE KEPPRA!!!!! And yes I too have sodium problems caused by the tegretol!!!!! I always make sure I try to stick to 1.5 litres of water or fluid a day and I try and eat (now yogurt too) and lots of beef jerky and if needed salt water toffee. Plus I mix a packet of powdered “gastrolyte” (an electrolyte powder for the sodium replacement) with Powerade and I always have “salt water toffee” kicking around and use “HIMALAYAN SALT” as well with my supper. When I don’t eat much I try to drink a meal replacement drink to try and help with what I missed in the day. I hope that helps 😊

      Liked by 1 person

      Comment by Kathy S.B — January 19, 2020 @ 9:23 PM

      • Thank you!

        Liked by 2 people

        Comment by Eve Quigley — January 20, 2020 @ 11:01 AM

      • Your VERY WELCOME EVE!! 😊. Please have a very good day today and take care of yourself 😊🙏🏼🦅😇💕

        Liked by 1 person

        Comment by Kathy S.B — January 20, 2020 @ 12:34 PM

    • I do

      Like

      Comment by Kathy S.B — January 27, 2020 @ 3:56 PM

  2. Hello my name James. I’ve had Epilepsy since I was as kid. I didn’t know what was really going on with me. I would wake out of it and didn’t know what happens or what I was doing. Add I got older they got worse. One night I couldn’t get women up from one and the EMT had to come get me. I lost 2 days in the hospital. When I finally woke I asked where am at?  I had no idea what happened. When they did test the Doctor said that I had tremendous seizure spikes around my brain. I had no idea what that meant. People called the one I has called a Grandma Seizure. My dog ward trying to let it be known that something was going on with me. He would come to me then go to another room barking then come back to me. I heard he did this until I was checked on. He’s an awesome smart dog. His name is Thor. He’s half a Lab and half Boxer.I had another one a week later, but was able to get elme up out of it. This has affected my life so much. I need support and want to assist others that’s going through this. I have trembles in both hands now and get none wanting pity from work. Im on medication, but it seems like if I skip it that another one will try tipp come on. That’s what I wad told anyway. So I set reminders everywhere sho I don’t miss a dosage. I would like to meet others with this to talk face to face. I would le to make new friends with Epilepsy. If you would like this as well, to get to know one another please reply  back and let me know.

    Thank you, 

    Jsmes

    Liked by 1 person

    Comment by jjayp75 — May 19, 2019 @ 11:51 AM

  3. I’m glad it is here to stay for those that it helps…. It’s too bad it’s not an option for me. It will help certain seizures I have. However, all it does for me is triggers the others.

    Liked by 1 person

    Comment by Justin Shaffer — May 19, 2019 @ 12:04 PM

  4. Glad to help, its experience although they call it anecdotal. Intellectuals love to dictate from their marble palaces to us peons what we need. All we are to them is a cash crop to be planted and harvested. There is no way any scientist can tell you the effects of any given drug without having experienced the effects themselves. That’s why they tell epileptics to man up and deal with the side effects INSTEAD of figuring out how to compound the drug and remove the side effects. The side effects generate more revenue by prescribing other drugs to counteract the side effects which in turn cause other side effects.
    Take the opioid epidemic, what they do not tell you was that it was created on purpose and then when they decided to pull the prescriptions they created the problem of people turning to the streets to buy them and or using heroin which is cheaper. Most of these deaths came from heroin mixed with fentanyl and not oxycodone itself. They also do not tell you that most of these same people who became addicted are actually suffering from depression and that anti depressants are more placebo effect than effective and that’s why they use the oxy over the anti depressants. Also take note that mostly all anti epileptic drugs are also used as anti depressants except for SSRI’s. And each one rewires your brain and cause withdrawal syndromes. Stevie Nicks from Fleetwood Mac has said that withdrawing from klonopin was worse than Herion. Benzos are the devil . Go to benzobuddies.com or .org not sure which to find out about benzo withdrawal syndrome which doctors refuse to aknowledge.

    Liked by 2 people

    Comment by Tom — May 19, 2019 @ 12:05 PM

    • You’ll enjoy this:

      What do Stevie Nicks and Whitney Houston Have In Common?

      https://epilepsytalk.com/2014/06/01/what-do-stevie-nicks-and-whitney-houston-have-in-common/

      Liked by 1 person

      Comment by Phylis Feiner Johnson — May 19, 2019 @ 1:06 PM

    • This’s why I love this resourceful & informative social network website, ordinary people searching for answers to their medical difficulties & supporting each other, exchanging experience on how & what’s the best way to remedy their medical difficulties, Epileptic seizures, medications & the cruel side effects of their medications.
      While I’ve never sought nor tried medical marijuana to control or reduce my seizures, it’s inspiring to see, read, hear & know that there’s light across the tunnel, helping people to live a normal life far beyond the social misconceptions & legal rerestrictions to medical marijuana.
      It’s long overdue to fight & eradicate this nightmare, Epilepsy.
      And if medical marijuana can help save these broken lives, social misconceptions & legal dictatorships should NOT stand on the way to condemn & torment the victims of Epilepsy into more seizures & hardships.
      Enough is enough!
      Gerrie

      Liked by 2 people

      Comment by BahreNegash Eritrea — May 19, 2019 @ 1:23 PM

      • Thanks Gerrie. I certainly agree. On all points.

        That what we’re here for.

        To educate, inform, share, care, comfort and help one another understand their condition as well as other options.

        Liked by 1 person

        Comment by Phylis Feiner Johnson — May 19, 2019 @ 1:30 PM

      • If may I please ask you Gerrie would you take it if you had an opportunity? I ask you because I know your very educated, aware and also have epilepsy. It almost feels as though we’re in kind of the same boat which is why I ask. Thank you 😊😘

        Liked by 1 person

        Comment by Kathy S.B — January 19, 2020 @ 3:37 PM

  5. I apologize the doctor purged my stomach and I’m now just taking the Dilantin 400mg, tegretol 1600mg, clobozam 20mg, pentoprazole magnesium 40mg, trazodone HCL 45mg, lactulose 40ml/day, one multi-vitamin, and tramadol HCL 37.5mg & acetaminophen 325mg for pain.

    Liked by 1 person

    Comment by Kathy S.B — May 19, 2019 @ 1:06 PM

    • Kathy, I feel sorry for you, going through all these unfortunate predicament.
      You should have a Lawyer going after the Doctor & the hospital, seeking recovery for medical malpractice.
      May God bless your heart to stay strong.
      I lost trust on “Doctors & hospital establishments” long time ago, therefore I keep my sister on “emergency contact list” for immediate contact, before any stupid doctor starts experimenting his practice on me.
      And I believe that’s why I’m still alive today.
      Gerrie

      Liked by 2 people

      Comment by BahreNegash Eritrea — May 19, 2019 @ 1:56 PM

      • THIS IS THE MOST PAINFUL THING I HAVE EVER FELT IN MY LIFE AND I AM HUNGRY!!!!!!! Thank you 🙏🏼❤️. I wish I was able to find THE ONE DOCTOR FROM EMERGENCY!! He said the medical professionals are BEGINNING TO REALIZE “EPILEPTICS ARE BEING DECEITFUL OR LYING!! And they may have a name for it now!! SSADH DEFICIENCY. He’s the ONLY ONE WHO HAS EVER GIVEN ME HOPE!! Except my old family doctors because they had a personal vested interest in epilepsy. Their daughters are epileptics too!! ❤️

        Liked by 1 person

        Comment by Kathy S.B — May 19, 2019 @ 2:35 PM

      • Since SSADH deficiency seems to be one of those rare “orphan” diseases, it would make sense that everyone is scratching his/her head.

        Bravo to the doc who discovered and defined it for you. (I could barely even read the research!)

        Like

        Comment by Phylis Feiner Johnson — May 19, 2019 @ 4:17 PM

      • Wow we have to talk Phylis!! So I ended up back In Emergency again!! Even after being purged!!!!!!! This time I actually got to see my REAL DOCTOR!! Because my left leg was going numb!! She very quickly put me on an I.V. And ran bloodwork!! Turned out my blood sugar levels as well as my electrolytes and blood pressure were VERY LOW THAT TIME!! It felt like my head was going to EXPLODE!! I was getting dehydrated and LACKING SODIUM!!!!! I went for my ultrasound and the doctor who seen me THE FIRST TIME IN EMERGENCY (who told me to “get a ball and squeeze it, that it was all in my head”) phoned me back and said there was nothing!!!!!!! This time even my left arm felt tingly and now my right foot!! It IS SO WIRED BECAUSE WHEN I LAYDOWN EVERYTHING GOES AWAY!!!!!!! But the minute I get up IT ALL STARTS AGAIN!!!!!!! So I phone MY REAL FAMILY DOCTOR AND CAN’T GET IN UNTIL JUNE 4,2019!!!!!!! Even my husband is beginning to question me now!!!!!!!!!!!!!!!!!!!!!!!!!!! I know what I’m feeling and what it is IS NOT GOOD AT ALL!!!!!!! But in all HONESTY THE FIRST DOCTOR (who blamed disregarded my husband and daughter and asked how much I drink and what kind of drugs I’m taking and wouldn’t talk to my husband afterwards because my husband and daughter got upset due to the fact I don’t drink or take any other drugs other than the ones they give me) even TREATED ME AND STILL TREATS ME LIKE SOMETHING IS WRONG WITH ME IN MY OWN HEAD!!!!!!! I don’t know what to do now?? I JUST MAKE MYSELF GET UP AND DO YARD WORK EVEN IF IT HURTS!!!!!!! I guess that’s what we get for “SMALL TOWN DOCTORS” or a “EPITOLOGIGIST” not a real neurologist!!!!!!! Now what? I don’t know what to do except keep drinking “POWERADE” (with salt) and TRY AND EAT A LITTLE!! And wait until JUNE 4,2019!!

        Liked by 1 person

        Comment by Kathy S.B — May 28, 2019 @ 6:08 PM

      • Oh Kathy, I feel for you. No Doctor until June 4th? That’s a week from today.

        How can you IMAGINE low blood sugar levels, electrolytes and blood pressure?

        My guess (and I’m no doctor), is that you have a blockage somewhere.

        Have you had an ultrasound? An MRI? (I’ve lost track in all this mess.)

        Like

        Comment by Phylis Feiner Johnson — May 28, 2019 @ 6:18 PM

      • I’ve almost had everything under the sky and planets, but you know NO MRI!!!!!!! In ALL HONESTY I WAS THINKING A BLOCKAGE OR STONES OR EVEN SOMETHING MY GRANDMA PASSED AWAY FROM!!!!! Because they had to remove some of her “SMALL AND LARGE INTESTINES”. I was (her and my great grandparents and great aunties and uncles baby) and with her until she passed away. Plus SHE SWORE EVERYONE TO SECRECY AND NEVER TO TELL ME!!!!!!! But I’m pretty sure it was called “CHROANS”. I don’t want my extended to know or children because I don’t like attention and I did mention that to the doctor as well. Lol I just to be prepared and at least know what’s going on!! Because of what I went and still go through (with my grandma) I DO WANT MY CHILDREN AND HUSBAND TO KNOW EVERYTHING!!!!!!! That way they never feel as though they are to blame 😘❤️. But if that’s it then THE DOCTOR SHOULD DARN WELL FIGURE IT OUT DARN QUICK!!!!!!! I’m about to turn 49 years of age and I’ve had epilepsy since I was a baby I guess, but the doctor didn’t find out until I was 8 years old. Oddly because he was a new doctor in town and his daughter was an epileptic too!!

        Liked by 1 person

        Comment by Kathy S.B — May 28, 2019 @ 6:49 PM

      • It could very well be Crohn’s, which is not hereditary.

        Crohn’s disease is an inflammatory bowel disease (IBD).

        It causes inflammation of your digestive tract, which can lead to abdominal pain, severe diarrhea, fatigue, weight loss and malnutrition.

        Inflammation caused by Crohn’s disease can involve different areas of the digestive tract in different people.

        The inflammation caused by Crohn’s disease often spreads deep into the layers of affected bowel tissue.

        Crohn’s disease can be both painful and debilitating, and sometimes may lead to life-threatening complications.

        While there’s no known cure for Crohn’s disease, therapies can greatly reduce its signs and symptoms and even bring about long-term remission.

        With treatment, many people with Crohn’s disease are able to function well.

        https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304

        Liked by 1 person

        Comment by Phylis Feiner Johnson — May 28, 2019 @ 9:25 PM

      • I was forced to sign a letter a couple of months ago by my doctor in order to be able to even get my prescription

        Liked by 1 person

        Comment by Kathy S.B — January 19, 2020 @ 3:38 PM

      • OMG!

        Like

        Comment by Phylis Feiner Johnson — January 19, 2020 @ 7:53 PM

      • I PROMISE TO CREATOR/GOD, ALL MY OLD PEOPLE AND MY GRANDMA!!!!!!! Even I was SHOCKED!! But it’s almost as though they hold their expertise and medication hostage until we sign away our right to defend ourselves legally now!!

        Liked by 1 person

        Comment by Kathy S.B — January 19, 2020 @ 8:01 PM

      • You know Gerrie seems to me simply getting a lawyer is a task in itself!!!!!!! If I could find one I WOULD DEFINITELY DO THAT NO QUESTIONS ASKED!!!!!!! Just seems to me it’s impossible to find one here in Alberta Canada!! I have truly tried and will keep trying I PROMISE!!!!!

        Liked by 1 person

        Comment by Kathy S.B — January 21, 2020 @ 4:58 PM

    • Kathy,,, I’m not interested in recreational use of marijuana.
      But I’ve been taking various prescription drugs to cure my seizures for 20 years but beyond the dreadful side effects of the prescription drugs, NONE of the prescription drugs has ever stopped my seizures.
      Therefore, even though I’ve never considered nor tried marijuana, I certainly will take marijuana ANY DAY, providing that marijuana will stop my seizures for sure.
      In my book, anything is justified to cure my medical hardships.
      Gerrie

      Liked by 2 people

      Comment by BahreNegash Eritrea — January 20, 2020 @ 5:09 AM

      • There are two key chemical compounds found in marijuana, aka weed, dope, Mary Jane or countless other nicknames.

        Only THC (tetrahydrocannabinol) gets you high, while CBD (cannabidiol) is increasingly being used to treat medical conditions such as sleeplessness and anxiety .

        These chemicals, collectively known as cannabinoids, are most potent in the cola — the flowers or buds at the top of plant.

        There are three main types of plant. Indica, stout and bushy, is purported to produce a mellow high.

        The taller sativa is said to give a more energetic lift. A hybrid may have features of each.

        The essential oils that give a plant flavor like citrus or clove are terpenes.

        Pot’s poor cousin, hemp, doesn’t get you high but does contain CBD and has long been used to make clothing and rope and for other industrial purposes; it’s even sprinkled on cereal in the form of seeds.

        Liked by 1 person

        Comment by Phylis Feiner Johnson — January 20, 2020 @ 10:51 AM

      • Medical researchers believe cannabidiol provides therapeutic benefit by interacting with receptors in the brain and spinal cord. Including interaction with many other neurotransmitter/neuromodulator systems, for a reach that extends nearly throughout the body.

        Moreover, researchers say current knowledge of the cannabinoid system suggests the existence of other cannabinoid receptors yet to be discovered.

        The proof is unmistakably present. Especially for those with drug resistant epilepsy.

        Take the story of Regan Engelhardt…

        After experimenting with different strains and CBD ratios, Regan Engelhardt’s daily seizure frequency fell from 50 seizures per night down to five.

        Before cannabis, her seizures dramatically altered her ability to walk, sleep, eat, or drink. She had been hospitalized for dehydration as a result.

        According to her mother, the pharmaceutical medications delayed her ability to walk until the age of 2 and left her “catatonic.”

        Currently, Regan’s cannabis medicine has allowed her to be weaned off one pharmaceutical medication, has increased focus, and is able to sleep through the night.

        “You see so much more light back in her eyes” her mother Suzie says.“ Just a couple of weeks ago I wondered if she would ever come back.”

        Liked by 1 person

        Comment by Phylis Feiner Johnson — January 20, 2020 @ 10:55 AM

      • Thank you Gerrie I greatly appreciate your opinion!! It means a lot to me 😊🦅💗. I guess believe it or not that’s where I find myself seriously a bit nervous about trying it at all!! I find though her in Canada the doctors and neurologists almost IMMEDIATELY SHOOT IT DOWN WHEN I ASK THEM!!!!! A part of me feels it because they fear losing the “KICK BACKS” from DRUG COMPANIES or just PLAIN OLD SCARED!!!!!!! But I sure wish they would hurry up and get with the program and become a TEAM MEMBER INSTEAD OF AN OPPONENT!!

        Liked by 1 person

        Comment by Kathy S.B — January 20, 2020 @ 12:20 PM

  6. Oy. See above:

    Three Anti-Seizure Diets That Could Change Your Life…

    https://epilepsytalk.com/2018/02/15/three-anti-seizure-diets-that-could-change-your-life/

    Liked by 1 person

    Comment by Phylis Feiner Johnson — May 19, 2019 @ 1:15 PM

  7. He said it was SSADH DEFICIENCY HE IS SUSPECTING

    Liked by 1 person

    Comment by Kathy S.B — May 19, 2019 @ 2:25 PM

    • Succinic semialdehyde dehydrogenase (SSADH) deficiency is a rare inborn error of metabolism that is inherited as an autosomal recessive trait.

      In individuals with the disorder, deficient activity of the SSADH enzyme disrupts the metabolism of gamma-aminobutyric acid (GABA) and can cause a variety of neurological problems.

      About half of those affected experience seizures, difficulty coordinating movements (ataxia), and decreased reflexes (hyporeflexia).

      Liked by 1 person

      Comment by Phylis Feiner Johnson — May 19, 2019 @ 4:14 PM

      • OH REALLY? Is there a way to deal with that type of problem on our own. Lol so we can just eat. I told the doctor “okay then doesn’t that mean if my sodium is that low as well as my blood pressure and sugar levels that’s maybe an I.V. May help for “immediate assistance”? Or what can I do right now (OTHER THAN TAKE MORE PILLS) so I can at least eat and NOT BE IN SO MUCH PAIN?? He never gave me and answer and left. Then I was I have an ultrasound 2 weeks later. I still haven’t eaten and I’m starving!!

        Liked by 1 person

        Comment by Kathy S.B — May 19, 2019 @ 4:24 PM

      • You’re not going to like this answer:

        “A broad spectrum of antiepileptic medication has been used to treat this condition. While vigabatrin is an irreversible inhibitor of GABA-transaminase and thus inhibits the formation of succinic semialdehyde, it has shown inconsistent results in treatment of seizures associated with SSADH deficiency.” https://www.ncbi.nlm.nih.gov/books/NBK1195/

        Like

        Comment by Phylis Feiner Johnson — May 19, 2019 @ 4:29 PM

      • I wish I could do better or do SOMETHING to help you Kathy. 😦

        Like

        Comment by Phylis Feiner Johnson — May 19, 2019 @ 4:31 PM

      • OH WOW!!!!!!! SHUCKS I HAVE NO CLUE HOW TO EVEN SAY THAT WORD!! And I actually speak a SECOND LANGUAGE OR MAYBE THAT’S THIRD!!!!! Are my babies going to have it? Or could be why I am skinnier than all of them!! AND WERE A HUGE FAMILY IN ALL WAYS!!!!!!! I’ve never heard of it or have NO CLUE WHAT TO SAY!!!!!!!!!!! HOLY!!

        Liked by 1 person

        Comment by Kathy S.B — May 19, 2019 @ 4:39 PM

  8. It’s VERY RARE. That’s why it comes under the heading of NORD — National Organization of Rare Diseases.

    But my guess is that it’s a metabolic issue.

    Like

    Comment by Phylis Feiner Johnson — May 19, 2019 @ 4:51 PM

    • Hi Phylis. Thank you ❤️. Maybe that’s why my doctors CAN’T FIGURE OUT WHAT IT IS!! So how do we cope or eat or even get the sodium, sugar, fats, enzymes and PAIN AWAY FAST!!!!! If these doctors can’t figure it out!! OH I WISH I COULD FIND THAT DOCTOR THAT WAS ON THAT NIGHT!!!!!!! Funny how it takes one fill in doctor to come up WITH SOMETHING!!!!! Instead of MAKING ME FEEL LIKE ITS ALL IN MY HEAD AND CRAZY THINKING I’M A HYPOCHONDRIAC!!!!!!! Lol “SQUEEZE A BALL!!!!! LOL”

      Liked by 1 person

      Comment by Kathy S.B — May 19, 2019 @ 4:58 PM

      • Hi Phylis. I AM GOING TO TRY MY HARDEST TO FIND HIM!!!!!!!! I’m SO HURT AND YOU WOULD THINK IF I’M LACKING SODIUM THEY WOULD PUT ME ON AN I.V. AT LEAST!!!!!!! Oh I HOPE MY CHILDREN DON’T GET IT BUT I THINK I SHOULD AT LEAST BE GIVEN CONFIRMATION AND SOMETHING IN ME!! Darn what a let down!! Thank for everything and all the information Phylis and please have a very good day today 😘🙏🏼🦅😂❤️

        Liked by 1 person

        Comment by Kathy S.B — May 19, 2019 @ 5:07 PM

  9. I think this may be where an endocrinologist comes in.

    Liked by 1 person

    Comment by Phylis Feiner Johnson — May 19, 2019 @ 5:02 PM

  10. For what it’s worth, I just read a study:

    Intervention/treatment for Succinic Semialdehyde Dehydrogenase Deficiency

    Device: Transcranial magnetic stimulation (TMS)

    Device: Magnetic resonance imaging (MRI)

    Device: Electroencephalogram (EEG)

    Procedure: Bio-specimen Collection

    https://clinicaltrials.gov/ct2/show/NCT03758521

    Liked by 1 person

    Comment by Phylis Feiner Johnson — May 19, 2019 @ 5:08 PM

  11. Has anyone reported back the use of cannabis who suffers from Musicgenic seizures?

    Liked by 1 person

    Comment by Bob Hanson — May 20, 2019 @ 9:50 AM

  12. Not that I know of.

    Like

    Comment by Phylis Feiner Johnson — May 20, 2019 @ 11:17 AM

  13. Worldwide, laws need to change. It would be okay for me to take medical marijuana in Canada, but I can’t bring any of it anywhere, due to Canadian law and international law.https://travel.gc.ca/travelling/cannabis-and-international-travel
    Since I’m not interested in swotching and experimenting, cannabis does not seem like a viable treatment at this time.

    Liked by 2 people

    Comment by Marlyn — May 21, 2019 @ 3:05 PM

  14. Everyone’s different.

    They have different ideas and different circumstances.

    Sometimes it helps. Sometime it hinders. 😦

    Like

    Comment by Phylis Feiner Johnson — May 21, 2019 @ 4:10 PM

    • Ain’t that the truth? The funny thing is, I’ve spent most of my life treating things naturally. Until I couldn’t. This one got the best of me.

      Liked by 2 people

      Comment by Marlyn — May 21, 2019 @ 5:06 PM

  15. Well, it’s slowly changing here.

    (Medical marijuana is even legal in Pennsylvania!)

    Maybe soon the laws will relax there.

    One can only hope.

    Besides, BIG Pharma and the government don’t want to miss out on the $$$ opportunities.

    Liked by 1 person

    Comment by Phylis Feiner Johnson — May 21, 2019 @ 5:10 PM

  16. My job let me go yesterday because they thought I was too much of a liability. It tore my heart up on the inside. My insurance just stated just started today as well. So now I had to cancel my insurances today. This illness has really affected me mentally. I had to file though state today. I feel like less than a man now. Depression has really sunked in now, and I don’t know which step to take next. I have just thought about ended it all, but I know that it won’t solve anything. I just have to figure out what’s the next step to take in this life I’m having.

    Liked by 2 people

    Comment by jjayp75 — May 24, 2019 @ 9:55 PM

    • I’m really sorry to hear that. Life has thrown you a curve ball. The question is, which direction is it taking you? Time will tell. I hope you get the help you need.

      Liked by 2 people

      Comment by Marlyn — May 25, 2019 @ 1:30 AM

    • Jay, you will find a way through this terrible time.

      Here are some links that may help:

      Health Insurance — No-Cost & Low-Cost

      https://epilepsytalk.com/2017/08/17/health-insurance-no-cost-low-cost/

      Epilepsy — Top Financial and Medical Assistance Programs

      https://epilepsytalk.com/2019/03/19/epilepsy-top-financial-and-medical-assistance-programs/

      DEEPLY DISCOUNTED DRUGS WITHOUT INSURANCE

      https://epilepsytalk.com/2010/03/18/deeply-discounted-drugs-without-insurance/

      Liked by 1 person

      Comment by Phylis Feiner Johnson — May 25, 2019 @ 9:33 AM

    • Please have faith that something better is going to happen for you in your life. I became epileptic when I was 47. I had a successful hairdressing business and was happily working 6 days a week, long hours and then blammo…..epilepsy struck.
      My best friend Arlene had died 3 years earlier from brain cancer which began with the same symptoms. So I figured it was only a matter of time and I’d be joining her. I had a hard time believing that I had the garden variety of epilepsy at my age!
      I kept trying to work, even sold my business and tried to work with the new owner and I just couldn’t. So I came home and became very very depressed. I sat in my recliner for 6 months hardly leaving the house and then I thought screw this! I got a LOT of counseling from mental health to help build up my self confidence. I must admit I have a long way to go before I can say I am there…..but I am trying.
      I have created a home based business where to my surprise people actually want me to cut their hair! The pariah……epileptic because this was how I was feeling about myself!
      Every day isn’t perfect, but it is much easier to manage at home because I control the stress levels here.
      I pray for you that you will be able to navigate your way toward a new normal and find your self worth again…..because it IS POSSIBLE!

      Liked by 2 people

      Comment by Eve Quigley — May 25, 2019 @ 10:56 AM

  17. Thank you Marilyn. I guess I’m needing to know how are others with this issue are dealing with this? Having this has really did a180° to my life, and it’s so hard to except the changes life has given me with this. I get so worried about anxiety being so much that seizure might happen again. I don’t know when one occurs, but I try to do everything in my power to keep it from happening. I missed a medication dosage last weekend, and heard that I had one. It pissed me off so bad. So now I keep medication everywhere my and I have reminders everywhere now as well. I have family members that call to remind me. I still don’t know boys to take this as a positive. The only way I know to take is a hurtful negative change in my life. Now my mom is calling me wanting to know if I have taken my medication like I’m a little kid. It’s worse enough when others do it and now my own mom. It makes feel worse on the inside.i just don’t know how to take this, and I appreciate you all on here. Thank you.

    Liked by 2 people

    Comment by jjayp75 — May 25, 2019 @ 9:31 AM

    • Jay, I’ve found that the best reminder is to set an alarm on my cell phone.

      But this may help.

      Medication Reminders You Won’t Forget

      https://epilepsytalk.com/2014/04/06/medication-reminders-you-wont-forget/

      Liked by 1 person

      Comment by Phylis Feiner Johnson — May 25, 2019 @ 9:37 AM

      • Lol I actually get “pill packs” and write it or check mark my calendar when I’ve taken my medications. And now we have a security system that will trigger and notify those close to me if I need them or have a really bad seizure or can’t move!! And PRETTY SOON A NEW WATCH TOO!!!!! Please check out the “DANNY DID FOUNDATION”!!!!!!! I PROMISE THEY CAN HELP YOU GET ONE (with time of course), but it does take a bit of footwork on your part too. However that is what they are there for!! All they ask is to help keep SPREADING THE WORD ABOUT WHAT “SUDEP” IS AND BRING AWARENESS TO ALL PEOPLE!! And DO NOT GIVE UP!! Epileptics are SPECIAL PEOPLE FOR A REASON!!!!! Just find your reason to do well for you and the rest will fall into place!! ❤️🦅💗

        Liked by 1 person

        Comment by Kathy S.B — January 19, 2020 @ 9:02 PM

      • Exactly right,,, Setting up the ALARM to take your daily medications & setting up the CALENDAR in the cellphone/iPhone for pending appointments, doctor’s visits & personal businesses can certainly help overcome memory difficulties & make life a little easier.
        Gerrie

        Liked by 2 people

        Comment by BahreNegash Eritrea — January 20, 2020 @ 11:46 AM

    • Well Jay I have pretty much been on all sides of the fence with this one!! At it stands now one on hand I COMPLETELY UNDERSTAND WHERE YOU COMING FROM AS A PERSON WHO IS TRYING SO HARD TO REMAIN INDEPENDENT!! On the other hand I TOO AM A MOTHER!! And I HAVE TO ADMIT EVEN I AM GUILTY FOR CALLING MY SON, DAUGHTERS AND THOSE WE HAVE RAISED!! But that’s a “MOM THING” I PROMISE!! 🙏🏼. As a mom of children it doesn’t matter how old they are!! If I am still here on the face of the earth in body and my children are here in body as well then I WILL ALWAYS CHECK ON THEM TOO!! However as an epileptic I ALSO COMPLETELY UNDERSTAND WHY MY HUSBAND, FAMILY AND FRIENDS CONSTANTLY CALL ME TOO!!!!!!! Yes sometimes it can be a bit overwhelming but then again IT IS DONE OUT OF SHEER LOVE FOR YOU!!!!! Please if anything TRY AND APPRECIATE THEM ALL FOR THAT!!!!!!!! I still do that with my son and he’s 26 years old too!! The only thing I ask of my children is PLEASE CHECK IN HOWEVER YOU MUST DAYLY (message or call) just so I know in my heart all is well. If it isn’t and you EVER HAVE TO COME HOME (for whatever reason) NO QUESTIONS ASKED JUST KNOW YOU ALWAYS HAVE ONE!!!!!!! 😘🙏🏼🦅🦅😇😇💞💕😘😘😘😘😘😘😘. Then I can sleep well or at least try 🙏🏼🦅😇😘

      Liked by 1 person

      Comment by Kathy S.B — January 19, 2020 @ 8:54 PM

  18. Eve, you are indeed a story of triumph and inspiration.

    Bravo to you for your courage and persistence.

    You are to be admired by all of us.

    Thank you for your story.

    Liked by 1 person

    Comment by Phylis Feiner Johnson — May 25, 2019 @ 10:59 AM

  19. I am now down to: 1200mgs/daily of tegretol Cr, 400mgs/daily of Dilantin, two tablets that have calcium, vitamin D 500mgs&25UG, 300mg/daily of iron (but I take it every other day), folic acid 1mg/daily, pantoproazole magnesium 40mgs/daily and Lyrica 25mgs/ daily. The doctor is slowly trying to wean me off of tegretol and then hopefully Dilantin. But slowly increase the Lyrica. Oh and Lactulose 40ml once a day, but I only take 30mgs/daily.

    Liked by 1 person

    Comment by Kathy S.B — January 19, 2020 @ 9:47 PM

  20. Thank you for the information, all these time I had no idea of what ALL that political fiasco is all about.
    It’s good to know that marijuana is making difference for those who need some relief in their lives.
    Gerrie

    Liked by 2 people

    Comment by BahreNegash Eritrea — January 20, 2020 @ 12:39 PM

    • Medical Marijuana — What the Experts are Saying

      https://epilepsytalk.com/2018/10/13/medical-marijuana-what-the-experts-are-saying/

      Liked by 1 person

      Comment by Phylis Feiner Johnson — January 20, 2020 @ 2:07 PM

      • Having access to medical marijuana, hearing, understanding & knowing the testimony of victims of Epilepsy & other medical difficulties relieved by the prescription of medical marijuana regiment, what gives the politicians who NEVER had medical hardships to decide the fate of victims of epilepsy?
        Why would it be difficult to have access to potential remedy to survive & cope with medical hardships that could be cured by medical marijuana?
        If doctors & medical experts are NOT against prescribing medical marijuana, why should the politicians deprive the patients who need the medical treatment?
        It’s looking like for society to challenge the miscalculated ambitions of the politicians.
        Gerrie

        Liked by 1 person

        Comment by BahreNegash Eritrea — January 22, 2020 @ 1:28 AM

      • Gerrie,

        Here’s some fuel for your fire:

        The Great Debate — Medical Marijuana

        https://epilepsytalk.com/2019/05/15/the-great-debate-medical-marijuana/

        Like

        Comment by Phylis Feiner Johnson — January 22, 2020 @ 10:51 AM

      • Phylis,
        While traditional healers & traditional medicine is still serving the wellbeing of society all over the world since Biblical times, only very few submissive communities would let political zealots prescribe the “well-being” of society the politicians claim to “serve & protect”.
        And in this particular case, while marijuana might NOT be the only ultimate answer to all social ills & medical hardships many patients are forced to live with, denying & depriving the potential remedy for those patients who need the benefits of medical marijuana is outright cruel punishment, any society should NEVER put up with.
        In the era of human race advancing to manipulate the space & conquer the moon, it should NOT be a miracle to find out & take advantage of traditional medicine that has been curing social ills & medical difficulties for centuries.
        Therefore, it’s long overdue for science to break away from the manipulation of political zealots motivated on blackmailing society for their own political agenda & financial gains.
        Gerrie

        Liked by 1 person

        Comment by BahreNegash Eritrea — January 22, 2020 @ 11:59 PM

      • Gerrie,

        You might find this article interesting:

        Crossing Ethical Lines: How Your Tax Dollars Are Funding Cannabis Opponents

        https://www.leafly.com/news/politics/tax-dollars-used-fund-cannabis-opponents-clear-violation-ethics

        Like

        Comment by Phylis Feiner Johnson — January 23, 2020 @ 9:56 AM

      • Phyllis,
        It’s just hard to fathom that the tax dollars that can help to carryout the research of medical benefits of marijuana is being used to ban marijuana, depriving the medical benefits of the substance to the patients who need it the most.
        Disclosing the corrupt crusade, it’s very unfortunate to see the misplaced priorities of society.
        May God’s devine intervention save the victims of Epilepsy.
        Gerrie

        Liked by 1 person

        Comment by BahreNegash Eritrea — January 24, 2020 @ 6:55 AM

  21. Here’s what some (non political) people have to say:

    “To Whom It May Concern:

    I was trapped, prevented from seeing my friends and family.

    Recollections of masks of blood, five failed brain surgeries, countless drugs, and thousands of seizures, imprisoned me in Colorado, away from my loved ones residing in my home state of New Jersey.

    Discovery of a curing anti-epileptic was bleak, as hope began to fade.

    Then, after 11 years, I began utilizing my sole effective treatment – the medicinal use of marijuana, as a state-registered medical marijuana patient.

    There was only one problem that remained, I couldn’t return home to share my remedied state of health with my family.

    Acknowledging that an abrupt abandonment of the drug would provoke seizures, and aware of the fact that marijuana was illegal in New Jersey, I was barred from visitation.

    Until now, when I have been presented the opportunity to safely return home under New Jersey’s recently enacted medical marijuana legislation.

    A current senior at Colorado State University, I am at last able to spend time with my loved ones healthy.”

    Kind regards,

    Tim DaGiau

    “I had my first seizure at 15.

    The older I got, the more often the grand mal seizures would occur.

    After having an automobile accident because of seizing, I aggressively sought an answer for this problem.

    There was no answer, just experiments.

    My physicians put me on so much medication, the whites of my eyes were yellow because they were destroying my liver.

    I was also experiencing kidney problems for the first time in my life. Even after being medicated, I was still having seizures.

    At that point I decided to stop relying on traditional medication. I have been smoking cannabis for almost three years without having one seizure.

    My eyes are now clear and I am no longer suffering from all the side affects of the pharmaceuticals. My quality of life has improved 100 per cent” — Ann

    “Marijuana use appeared to be a protective factor against first seizures in men. […]

    Marijuana contains numerous cannabinoid compounds that differ in convulsant and anticonvulsant properties.

    Anticonvulsant properties were first noted in the 15th century, yet studies in humans have been few. […]

    The authors conclude that heroin use is a risk factor and marijuana use a protective factor for new-onset seizures.” — John C. M. Brust

    “I have found in my study of these patients that cannabis is really a safe, effective and non-toxic alternative to many standard medications.

    There is no such thing as an overdose.

    We have seen very minimal problems with abuse or dependence, which at worst are equivalent to dependence on caffeine.

    While a substance may have some potential for misuse, in my opinion, that’s a poor excuse to deny its use and benefit to everyone else.” — Philip Denney, MD

    “I want to go one step further, because this whole issue of drugs in our society is misplaced.

    Drugs have infected the society, but I think we need to look at it more as a medical and a health issue than as a criminal justice issue.” — Dennis Kucinich

    Liked by 1 person

    Comment by Phylis Feiner Johnson — January 20, 2020 @ 2:10 PM

  22. Goodmorning Phylis 😊. Wow I’m impressed!!!!! You hit a very hot topic button!! It’s kind of like the Tegretol, Dilantin, trazodone and now Lyrica I am on now!! It’s like people all keep coming up with the negative things about with me not, but everyone doesn’t have to go through all of the “CONCOCTION OF POISONOUS MEDICATIONS” we as epileptics get put on. As the doctor is trying to wean me off of tegretol, Dilantin, clobazam and trazodone the pharmacist keeps trying to put me back on them!! Then family and friends start to come up with all the warning and fears of Lyrica!!!!!!! Maybe I should ask for Lamictal as well and try the marijuana too now? I wonder how they would all respond then or at this point it they would realize all we can do is exactly as you said “PICK OUR OWN POISON” that suits us best and helps us the most. Thank you for this Phylis some of us REALLY NEEDED THE EDUCATION!!!!!!! 😊🙏🏼🦅😇😘

    Liked by 1 person

    Comment by Kathy S.B — January 21, 2020 @ 9:14 AM

    • I’m on Lamictal and it’s been very good for me.

      Once I got over the initial hump (I was crazy/hyper) and changed my nighttime dose to the afternoon, I was fine.

      Virtually 99% seizure-free for 10+ years!

      Liked by 1 person

      Comment by Phylis Feiner Johnson — January 21, 2020 @ 9:41 AM

      • OH YOU LUCKY LADY!!!!!!! I AM SOOOOOOO HAPPY FOR YOU!!!!!!! 😃. I was wondering is “lyrica” the same thing? Also as we are on the topic my oldest is on medicinal marijuana for her back because she got into a car accident. However I have to admit THE SMELL IS DRIVING ME AND MY HUSBAND CRAZY!!!!!!! Lol I have literally opened all my windows and doors to AIR OUT MY HOUSE in the middle of the -20 to -30’s because of it!!!!!!! I just want sure if “Lyrica” and “Lamictal” were the same medication or not? However IF SHE CHOSE A DIFFERENT FORM OF MARIJUANA WE MAY NOT GO CRAZY!!!!!!! And yes we told her that too 😊

        Liked by 1 person

        Comment by Kathy S.B — January 21, 2020 @ 10:11 AM

      • Lyrica (pregabalin) was originally FDA approved as an anti-epileptic drug.

        It works by slowing down impulses in the brain that cause seizures.

        Pregabalin also affects chemicals in the brain that send pain signals across the nervous system.

        https://www.drugs.com/lyrica.html

        Lamictal is the brand name of lamotrigine, an anti-epileptic medication that also belongs to a class of drugs known as anticonvulsants.

        Lamictal is used alone or in combination with other drugs to treat seizures in adults and children with epilepsy.

        It may also be used to help prevent the extreme mood swings of bipolar disorder in adults.

        https://www.webmd.com/drugs/2/drug-8486-7217/lamictal-oral/lamotrigine-oral/details

        Liked by 1 person

        Comment by Phylis Feiner Johnson — January 21, 2020 @ 10:31 AM

      • If I may because I hardly see any thing on because I hardly see anything in regard for can I ask about how the changes in a woman’s life changes (menstrual cycle, pregnant and menopause) affect how an epileptic woman maybe treated and what medications are best for that special time in their lives? Thank you

        Liked by 1 person

        Comment by Kathy S.B — January 26, 2020 @ 5:23 PM

      • Try reading the article:

        Hormonal Imbalances and Seizures in Women

        https://epilepsytalk.com/2019/11/25/hormonal-imbalances-and-seizures-in-women/

        Liked by 1 person

        Comment by Phylis Feiner Johnson — January 26, 2020 @ 9:16 PM

      • Thank you Phylis 😊🙏🏼🦅💗. I hope your having a very good day today and evening 😊🙏🏼🦅😇💗

        Liked by 1 person

        Comment by Kathy S.B — January 26, 2020 @ 9:17 PM

      • If she has her medical card see if dispensary has transdermal patches made by Mary’s Medicinals. And she could switch to vapes which have basically no smell.

        Liked by 2 people

        Comment by Tom — January 21, 2020 @ 12:31 PM

      • Thank you Tom 😊. I greatly appreciate you and your advice 😊

        Liked by 1 person

        Comment by Kathy S.B — January 21, 2020 @ 1:05 PM

      • May I please ask how much can be taken if the Lamictal per day? Thank you 😊

        Liked by 1 person

        Comment by Kathy S.B — January 21, 2020 @ 6:56 PM

      • The recommended maintenance dose of LAMICTAL as monotherapy is 500 mg/day given in 2 divided doses.

        Liked by 1 person

        Comment by Phylis Feiner Johnson — January 21, 2020 @ 8:10 PM

  23. For those of you who believe vaccines are safe , read this article. I was looking up a bio pharmaceutical stock and when I looked at what they did I found out they create vaccines.
    Now they are working on RSV vaccine and Conair virus coming from China. Here’s the kicker they are using aluminum phosphate to stimulate you autoimmune response. Aluminum phosphate is known to cause neurological damage and central nervous system damage. Now think hard, my son who has JME and is drug resistant as a baby was given 3-5 vaccinations in one visit. Now the skull does not close on a baby fully till its over a year old. This means the aluminum or mercury used to create immune system response back then 28 years ago crossed the blood brain barrier and is stored in the brain.
    They have acknowledged that it causes Alzheimers disease.

    https://www.sciencedirect.com/science/article/pii/S014976348980051X
    Create the problem, wait for the reaction and then offer a temporary fix? You decide for yourselves. I just am presenting facts.

    Liked by 1 person

    Comment by Tom — January 22, 2020 @ 10:12 PM

  24. I’m afraid that vaccines are both poisonous AND very political.

    More Evidence That Vaccine Policy Is Political

    https://www.historyofvaccines.org/content/blog/gavin-newsom-california-politics-vaccination

    The administration of the diphtheria and tetanus toxoids and whole-cell pertussis (DTP) vaccine and measles, mumps, and rubella (MMR) vaccine has been associated with adverse neurologic events, including seizures.

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC320893/

    Like

    Comment by Phylis Feiner Johnson — January 22, 2020 @ 10:32 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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