Epilepsy Talk

What’s the worst accident you’ve ever had because of a seizure? | December 14, 2017

The worst accident I ever had was the one that caused my seizures.

I was at an ice rink, speed skating, when some jerk put his foot out. (A real funny joke.)

Into the boards I went, flying over the ice.

Only to land up laid out in the lap of the skating coach,  who knows how long later.

After that came the falling that became my trademark.

I fell upstairs, downstairs, on the pavement (resulting in some lovely concussions), but my parents refused to recognize them as seizures.

I was just clumsy. And not diagnosed until two years later. (Tonic clonic and absence seizures.) And then treated like a leper.

It was a long journey to become who I am today.

What was YOUR worst accident?

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  1. My accidents are never ending, but the worst was 2015, I burnt my hand, had an Atonic and collapsed holding an iron during a voluntary job. Nobody found me for some time when they did, I’d sustained deep dermal burns to my entire right hand. I had skin grafts taken from the groin area, and still tape my hand up at night with silicone tape. 😩 I’ll never forget the agony. Still smiling 😁


    Comment by Elaine Howell — December 14, 2017 @ 1:05 PM

    • Hello Elaine, terrible that happened to you. Hope you are recocovering well.


      Comment by shefali — December 14, 2017 @ 1:53 PM

    • Oh how horrific. I once fell on an iron, but I bounced right back in shock. Still have the scar, 50 years later, but that’s nothing compared with your travesty.

      And yet, you’re still smiling. Bravo for you!!!


      Comment by Phylis Feiner Johnson — December 14, 2017 @ 4:19 PM

  2. Faceplant in the gravel behind the music festival’s main stage was one. About 7 years ago I had one in a cab on way to the airport transport ride. Needless to say I missed my flight.


    Comment by Travis — December 14, 2017 @ 3:34 PM

    • Faceplants on the concrete are my specialty. But I’m sorry you missed your plane. I’ve never had THAT disappointment. 😦


      Comment by Phylis Feiner Johnson — December 14, 2017 @ 4:21 PM

  3. I have a scar on my face from falling at home after a seizure (fortunately it’s small and mostly hidden under my nose) . But the scariest was waking up in the hospital after I had been driving to work and not knowing if I had hit someone while driving. Luckily no one was injured. I am sorry to hear that someone actually caused your epilepsy. In my mind that’s a crime. Thanks for running this site and letting people share their stories. 🙂


    Comment by David — December 14, 2017 @ 5:07 PM

    • After my first soiree driving, I went into five non-moving objects in ten days. After that I hung up my keys for the next ten years. Another one of my many mishaps.


      Comment by Phylis Feiner Johnson — December 14, 2017 @ 7:02 PM

      • I hated losing my liscence. I look back at who all could have been hurt, including myself🚕🚑🚗.


        Comment by Val — September 27, 2018 @ 7:10 PM

      • Well as they say: “Better than safe than sorry.”

        But I remember the keen longing to get my licence — and my independence — back.

        Just going grocery shopping or to the drug store was a big deal — and inconvenience.


        Comment by Phylis Feiner Johnson — September 27, 2018 @ 7:30 PM

  4. 18 years ago when working in front of the computer, I made a big faint. For 20 minutes I did not know where I am. I woke up on the couch. Studies followed: EEG, a scanner, but doctors said there was no such disease. That’s why they did not cure me, but I went to the barracks, which was the mistake. Now I’m doing different drug samples.


    Comment by Tirousse — December 15, 2017 @ 8:58 AM

  5. I was 20 miles in MT backcountry riding mountain bikes with a friend. We had climbed for 3 hours to get to a summit. After resting for a half hour we proceeded on our way. 10 minutes later I tried to holler at a friend who was wearing headphones. I was rolling down the side of a mtn and had a seizure.

    When I was coming to I heard people talking helicopters and search and rescue. 2 people found me and called in a mtn rescue. Music man returned with info of my condition. I had gone head first into some ground cover narrowly avoiding disaster all around me.

    I have generalized tonic clonic seizures. My eyeballs were scratched and my jaw took a hit. Like I always say, it’s safer to have a seizure wearing a helmet.

    10+ years of trileptal has made me hyponatremic. I didn’t have enough electrolytes in my water. 2 weeks later I went on a 1200 mile bike tour, solo. I took my electrolyte supplements for a seizure free bike tour. It’s great to feel normal


    Comment by Andrew Plant — December 15, 2017 @ 4:46 PM

    • OMG. YOU ROCK!

      After an unmitigated disaster like that.

      I’ll never complain about a chipped tooth or concussion again. 😉


      Comment by Phylis Feiner Johnson — December 15, 2017 @ 5:43 PM

  6. I won’t ever forget a bike accident, in the middle of town. I fell hard onto the concreate street. When that happened, a rib was cracked, with that cutting into the kidney. This all happened because of a Grand-Mal seizure. That totaled my bike. The ambulance took me to the hospital. The doctors did tests on me. They found that my neurologist, at that time, had over-dosed me. That was the worst seizure that I had. Thank goodness that that neurologist doesn’t live here any more. I’m doing well now. Not many petie-mal seizures, and I ride my bike all the time! Mny people still can’t beleive it.


    Comment by whittemore1958 — December 16, 2017 @ 9:56 PM

    • OMG! Did you turn toxic? Was your kidney ok? Was it pierced? How awful.

      But I’m glad to see you’re still riding your bike! 🙂


      Comment by Phylis Feiner Johnson — December 16, 2017 @ 10:15 PM

  7. I’ve had numerous accidents from seizures: concussions, broken bones, a crashed car and yes, lost jobs, but psychologically the worst accident happened once when I went to pick up my kids at daycare.
    Strapped them into car seats, prepared to drive home and wham! a partial seizure. Unaware of why we weren’t leaving, the kids later told me that they kept shouting and took their little shoes off, trying to hit me in the head and wake me. Luckily, daycare owner saw my lone car outside, came out and called my husband.
    No, I no longer drive.
    Yes, 17 yrs later my kids still remember that day!


    Comment by skolly9 — December 18, 2017 @ 6:27 PM

  8. Happily you didn’t drive then. That was a godsend.

    And I understand why you don’t drive now. 😦


    Comment by Phylis Feiner Johnson — December 18, 2017 @ 9:48 PM

  9. For me it was a car accident. I left work at 5pm and hoped on the freeway in the San Francisco bay area. A grand mal knocked me out and i then drove into a car then swerved and hit the sound wall. Thank god i didn’t go into the oncoming traffic and no one was hurt. A witness told police she saw me seizing. Talk about being all shook up.


    Comment by Zolt — January 12, 2018 @ 9:37 PM

  10. I have complex- partial seizures . became lost in a field driving a tractor, found myself in a deep ditch while driving a pickup. I bet i had a siezure while breaking a horse. I ended up on the ground, An broke my ankle and collarbone, the horse was stand ing looking scared about twenty yards away. My first siezure is when I 25 years old. I’ll bet I’ve had other seizures that I never knew. Ive taught school and coached wrestling for 8 years. Now I have been managing grain elevators for over 20 years. The worst is when I find out somebody as seen I had seizure that I didn’t realize I had. 5 years had a VNS. because the drugs werent helping control my seizures. The VNS has helped dramatically.


    Comment by Danny Wicke — January 15, 2018 @ 1:08 PM

  11. I started having seizures less than a year after the surgery. The doctors tried different medications . I asked the doctor of VNS because I read about it. VNS doesn’t work for everyone, but it really helped me. I still run a grain elevator, drive, and break and train horses. I hope to hear from others with VNS or interested in it. But also let God have a chance to help by just asking him.


    Comment by Danny Wicke — January 15, 2018 @ 11:21 PM

  12. My daughter fell down a flight of stairs


    Comment by Chari — January 17, 2018 @ 12:49 AM

  13. I broke my ankle I’m better now tho


    Comment by benno — January 28, 2018 @ 9:42 AM

  14. i was going in for minor exam following day { something we all go through when hitting 50 .. } well , drank that stuff , ended up throwing it up , then had multi seizures that evening .total of 3 in less than hour .. good thing my husband , sons were there to help out .. called back , to the surgery number they gave , told them , what happen , told them may have to cancel , & see what my primary dr wants to do ..{ was on Dialatin 200 mg & mysoline 500 mg at the time } my dr had me in that morning , checked my levels , the mysoline was slightly higher , dialatin , was very low …. she wanted me to see my nureo , he had me in to change the meds , plus EEG , after 4 days , put me on keppra .. but during the 3 seizures , had back injury in 3 different areas neck , 11-12 had to be plasti cement & lower spinal area .., couldnt , work any more ..miss working but couldnt stand , sit , or walk cause the pain goes straight to the leg , then numbs right up ..


    Comment by Cathy Flowers — September 26, 2018 @ 11:23 AM

  15. I would have to say that it one that happened in a pool, back in ’89. Hadn’t had a seizure for 8 months, so my neurologist let get back into swimming, and I took a swimming class at a YMCA to freshen up. I told the instructor about my Epilepsy, and asked him to keep an eye on me. He did not, and one day all of a sudden, I had a Complex Partial and I collapsed to the bottom of the pool. If it hadn’t been for a lady standing next to me, who’s husband had Epilepsy, I would of drowned. She noticed the seizure right away and got me up, then the instructor helped her get me up onto the side of the pool. The “lifeguard” didn’t come over until I had regained consciousness. I haven’t set foot in a pool ever since that day, even though I loved swimming.


    Comment by David Jensen — November 2, 2018 @ 10:35 PM

    • You can’t seem to get cut a break.

      Some “lifeguard”. Asleep on the job, I’d say.

      Thank goodness for that heavenly stranger.

      I’m glad you’re still with us!


      Comment by Phylis Feiner Johnson — November 3, 2018 @ 9:02 AM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →

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