Epilepsy Talk

Who’s at Fault? | July 22, 2017

Instead of humane and compassionate treatment, doctors, hospitals and the legal system are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:

A Dearborn doctor falsely diagnosed hundreds of kids with epilepsy and was richly compensated ($350,000 extra!) for “bringing business to the hospital.”  Many of the children were put on dangerous drugs that made them sleepy and in some cases suicidal.

A British man was abused by Christian Brothers, and locked in a mental hospital for 33 years as an “epileptic”.

A woman in Pittsburgh was handcuffed, shackled and restrained during an epileptic seizure because the police suspected her of being on cocaine.

A hospital in England admitted that a doctor misdiagnosed epilepsy or over-prescribed drugs for 170 children.

A woman had her Dilantin level ramped up – due to erroneous blood tests — and she ended up in a different hospital the next day on life support.

A 5-year-old boy died after being given seven times too much of an anti-epilepsy drug.

It’s interesting that whenever a crime or harm is done to a person with epilepsy, or as soon as the person’s epilepsy becomes known, the accused are veiled in immunity.

Any claims by someone with epilepsy that they have been physically abused are written off or ignored, stating that the person cannot function properly with their degree of epilepsy, and that additional treatment is necessary to prevent the incident from happening again.

The degree of the outcome is basically irrelevant, from inflicted emotional trauma, to assault and battery, to robbery, kidnapping, rape, and murder.

And, to add insult to injury, people with epilepsy experience these atrocities at a much higher frequency, because they are regarded as having something “wrong” with them. 

The results of the harm will most likely be often written off because the person had epilepsy. Therefore they don’t “count.”

Even the number of witnesses, the degree of evidence, and the presence of law enforcement officials are basically irrelevant.  Most people tend to turn their heads and pretend nothing happened.

Well-documented cases with complete sets of video, don’t sustain punishment, legal action, correction, change in policy or even change in protocol.

And so the blame goes to the victim.  (Are they insinuating that we’re all nuts?)

This resulting denial of “equal protection under the law” is an additional abuse.

It’s sad to know, the very “authorities” who swore to protect, serve and save our lives, can be as deadly as the epileptic seizures we are forced to live with, everyday.

Elsewhere, this country would call such abuse as crimes against humanity.

In most states, having a seizure is technically illegal, and while prosecutions are not many, they do happen.

When prosecutions happen, many states only allow the insanity defense, which strongly implies that the government itself regards epilepsy as a form of mental illness, in addition to the prejudiced public.

Above are publicly documented stories.  The private stories below are as personally traumatizing and horrific to believe, no less prosecute…

Like the lady who was almost convinced by doctors to pull the plug on her 16-year old daughter’s life support, because they asserted her young life would no longer have any “quality”.

The patient who came into the ER experiencing non-stop seizures who was considered too loud and unruly, so he was placed by nurses in a room down the hall, where the staff and waiting room patients would be spared the “scene.”

Nobody took the time to check on him until 30 minutes later by which time he needed to be put on a ventilator and subsequently died.

In Quebec, patients with epilepsy were written off as “crazy” and were imprisoned in a psychiatric hospital, where they were strapped to their beds all night, kept abusively in straitjackets, or left zombie-like from too many drugs.

“I have woken up in four point restraints.  Been injected with medication that caused me to have Grand Mal seizures.  I have also been on toxic doses of AEDs, which is part of the reason why I am now so physically ill.”

“I was put in the Harborview Psychiatry Intensive Care Unit for treatment of my epileptic seizures.  Epilepsy?  No. Insanity?  Yes. Or so they concluded in their wisdom.”

“I have been denied food, meds, sleep, needed medical care, etc.  Whatever happened to healing?  Prisons get more attention, but the problem is much worse in hospitals.”

“I made a good life for myself until I tried to get help from the medical establishment.  Once they started ‘taking care of me’ and not allowing me to take care of myself, that’s when everything went out of control and I got so seriously ill, I could no longer work.”

Laws are being broken, rights are being denied, people are suffering, being abused, ignored and dying.

Exactly what is the definition of a “doctor”? A “hospital”? Or “legal rights”?

And what does it take for someone with epilepsy to be treated with care like a real, bona fide patient?

Another article of interest:

Your Hospital Rights…  https://epilepsytalk.com/2010/09/28/your-hospital-rights/

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Resources:

http://www.thefreelibrary.com/Abused+by+Christian+Brothers,+locked+in+a+mental+hospital+for+33yrs…-a081236137

http://blogs.abcnews.com/thenote/2010/07/judge-clarence-thomas-nephew-derek-tasered-by-hospital-staff-family-says.html

http://www.simonbaker.me/2/hi/uk_news/england/1682630.stm

http://www.oikos.org/psychabuse.htm

http://www.mlive.com/news/detroit/index.ssf/2010/06/lawsuit_dearborn_doctor_falsel.html

il.co.uk/news/article-1329263/Bailey-Ratcliffe-died-given-seven-times-epilepsy-drug.html

http://www.fiercehealthcare.com/story/doctor-wrongly-diagnosed-children-scam-more-money-lawsuit-claims/2010-06-15#ixzz16PIiV1pk


14 Comments »

  1. Yes,, and we who live with seizures all our life, are all looked at by these neurologists that if we are not cured or healed by now, 20 + or 50 + years, we will not be any important patient for them to have any compassion for curing or healing us. So make sure as I have had for the past 35 years WHAT is in every AED, they want all of us to take. Also compare these drug chemicals to all the food chemicals in our foods. There will be no surprise to anyone where all chemicals will soon be in all foods & drugs,, when these doctors will then say,, WELL FOODS ARE MEDICINES & MEDICINES ARE FOODS. They are saying that more today, while ignoring the chemicals in BOTH drugs & foods & drinks that are killing us. The book EXCITOTOXINS,,, The Taste That Kills will explain all I mentioned, written by Dr. Russel Blaylock who was a brain surgeon. I’m sure Dr. Ben Carson would not agree with Dr. Blaylock on most things he talks about in his book. When any brain of any child gets damaged by drugs, HELL is not harsh enough a penalty for those neurologists who does that.

    Liked by 1 person

    Comment by C D — July 22, 2017 @ 7:40 PM

  2. Unless a doctor can count you among his/her “successes,” you’re a failure. 😦

    Liked by 1 person

    Comment by Phylis Feiner Johnson — July 22, 2017 @ 8:09 PM

  3. Condemned for being possessed by demons, you would think the ancient days of lynching victims/patients of Epileptic seizures are long gone.
    Unfortunately, surviving Epilepsy & the torment, abuse & deadly encounters with the modern day civilized world’s medical establishment does NOT prove that the ancient days of lynching seizure victims has changed much, either.

    Thanks to my good friends blasting into the hospital emergency room, forcing the ER hospital “Doctors” to release me from being handcuffed to intensive care unit bed for two days for my Grand mal seizures presumed blacking out & hallucinating from illegal drug overdose.

    How long must the Epilepsy victims take the criminal torture of wicked establishments?

    It’s long overdue for the Epilepsy patients, families & organizations to fight against the criminal establishments gambling with our lives for profit.

    Like

    Comment by Gerrie — July 22, 2017 @ 11:32 PM

    • Who’s the one who should be arrested?

      Good thing you were almost dead, you might never have gotten out of there. (No humor intended.)

      Like

      Comment by Phylis Feiner Johnson — July 23, 2017 @ 9:44 AM

  4. ER had my drug allergies including Tegretol, which I became allergic to after 16 years of use. They put me on a floor and noted I was in status. They injected me with 2 medications. One I do not remember but my Epileptologist later told me it was Tegretol. I am grateful to be alive ! It is on my Medic Alert badge and my history.

    Liked by 1 person

    Comment by red2robi — July 23, 2017 @ 1:48 PM

  5. one time went to hospital put on ventilator,For three days no diantin.given ha e grand mals.had all my recordsfor some reasondidnt seem inrush to giveme them no troublewith other meds.couldnttalk for almost 3 days final?y mywife rea!ized it.Also notice when epilepsy mentioned even medical people try tochange subject..

    Like

    Comment by Robert Therrien — July 23, 2017 @ 3:33 PM

    • They HAD all your records but didn’t read them? What did they think they were. Comic books?

      No mention of epilepsy, no meds? Why did these people think you were there?

      Like

      Comment by Phylis Feiner Johnson — July 23, 2017 @ 5:13 PM

  6. What was the psychiatric hospital in Quebec?

    Like

    Comment by philamisan — July 23, 2017 @ 4:37 PM

  7. I wanted to vomit after reading about the abuse of the boy in the orphanage who was “saved” by a seizure, and sent to a psychiatric hosp until he was an adult. From one hell to another. And all the others who have suffered and are suffering……….

    Like

    Comment by skolly9 — July 23, 2017 @ 8:21 PM

  8. These things, suck, no doubt about it. It will always happen now and then, but do what you can do. Protect yourself, wear ID with epilepsy on it (Road ID is a current favorite), teach others about seizures in venues available to you such as First Aid Classes, Company Safety meetings.

    Like

    Comment by Kate Jacques — July 24, 2017 @ 9:07 AM

    • I believe strongly in education and advocacy. Because these are acts of sheer ignorance. (With a little malice thrown in for extra measure.)

      Like

      Comment by Phylis Feiner Johnson — July 24, 2017 @ 9:17 AM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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