Epilepsy Talk

Heat Is Not Our Friend | June 26, 2016

And it can trigger some pretty awful consequences.

Like the time I was gardening at high noon. (What was I thinking about?) I fell backwards, hitting my head on the walkway. And I couldn’t ask for help because I was out cold. Baking in the sun.

And I’m sure you have your own stories. About passing out, puking or just feeling like you’re as dizzy as if you were on a roller coaster ride.

An epileptologist explained that heat can trigger a seizure for some people because it’s firing up the neurons in the brain which can cause a seizure.

Some examples:

Heat Exhaustion (“Heat Stroke”)

Heat exhaustion, commonly known as heat stroke, is a condition caused by the body’s inability to keep itself cool.

The body stays cool by perspiring (sweating), as the perspiration evaporates.

On days that are especially hot and humid, extra moisture in the air causes perspiration to evaporate more slowly, causing your body temperature to rise.

If left untreated, heat stroke can cause different symptoms.

Symptoms of Heat Stroke

The early symptoms of heat stroke are not terribly serious but should be considered a warning.

Earliest symptoms may include nausea and vomiting, fatigue and weakness, headaches, muscle cramps and dizziness.

As the condition worsens, you may experience not only seizures, but also high body temperature, the absence of sweating with very hot or flushed dry skin, a rapid pulse, difficulty breathing, odd behavior, confusion, hallucinations and disorientation.

And you could become comatose.

Hot Weather and Epilepsy

There is no scientific evidence that heat itself causes seizures to occur in people suffering from epilepsy.

Becoming severely overheated can cause seizures, but an average hot day is not in itself the culprit.

It’s mainly changes in weather that trigger epileptic seizures.

For example, someone who keeps his house very cool in the summer may go out into the hot weather, and the change in temperature may trigger seizure activity.

Summertime mean thunderstorms, and the lightning produced during such storms can also be a trigger.

Going from a dark room into the bright sunshine can cause seizures, too.

Dehydration and Epilepsy

Make sure you have plenty of fluids in your system if you have epilepsy.

Too much perspiration and not enough fluid intake can cause a drop in sodium and sugar levels (hypoglycemia), both of which have been known to cause seizures.

Also, sweating or urinating too much may cause too much of your seizure medication to be expelled from your body, lowering both your therapeutic medication levels and your threshold for seizures.

Anti-Seizure Medication Side-Effects

Certain anti-seizure medications, such as the drug Topamax, may cause side-effects that require more fluid intake.

For example, Topamax may cause decreased sweating and higher body temperature, which can prevent your body from cooling itself adequately.

Normally, the process of sweating and evaporation of sweat facilitates body cooling.

In extreme temperatures in excess of 90° F (32.2° C), the amount of heat produced, exceeds the cooling effect of sweat evaporation.

Likewise, if the humidity reaches 100%, evaporation of sweat is no longer possible, and your body loses its ability to dissipate heat.

Eventually, your body’s temperature rises, leading to severe dehydration, swelling of brain tissue, low blood pressure, organ damage, and possibly death.

What Should I Do if I Think I Have Heat Stroke?

Heat stroke traditionally is divided into three classic varieties:

Exertional heat stroke typically occurs in younger athletic individuals who exercise vigorously in the heat until the body’s normal thermoregulatory mechanisms are overwhelmed.

Classic heat stroke more commonly occurs in older individuals or in those with underlying illnesses who are exposed to extreme environmental temperatures and/or humidity.

Another less common type of heat stroke is sunstroke (heat stroke caused by direct exposure to the sun).

What Does the “Heat Index” Mean?

The heat index tells you how hot it feels outside in the shade.

It’s not the same as the outside temperature.

The heat index is a measurement of how hot it feels when relative humidity is combined with the effects of the air temperature.

When you’re standing in full sunshine, the heat index value is even higher.

A heat index of 90°F or higher is dangerous.

How Can I Prevent Heat Illness?

When the heat index is high, stay indoors in air-conditioned areas when possible.

If you must go outside, take the following precautions:

Wear lightweight, light-colored, loose-fitting clothing.

Protect yourself from the sun by wearing a hat or using an umbrella.

Use sunscreen with a sun protection factor (SPF) of 15 or more.

Schedule vigorous outdoor activities for cooler times of the day — before 10:00 a.m. and after 6:00 p.m.

During an outdoor activity, take frequent breaks.

Drink water or other fluids every 15 to 20 minutes, even if you don’t feel thirsty.

If you have clear, pale urine, you are probably drinking enough fluids. Dark-colored urine is an indication that you’re dehydrated.

Having heat exhaustion or heat stroke makes you more sensitive to hot conditions for about a week afterwards.

Your doctor can tell you when it is safe to return to your normal activities.

Heat-Related Illnesses and First Aid

Heat stroke is a medical emergency that may result in death! Call 911 immediately.

Heat exhaustion is the body’s response to loss of water and salt from heavy sweating.

Signs include headache, nausea, dizziness, weakness, irritability, thirst, and heavy sweating.

Heat cramps are caused by the loss of body salts and fluid during sweating.

Low salt levels in muscles cause painful cramps.

Tired muscles — those used for sport and outside work — are usually the ones most affected by cramps.

Heat rash, also known as prickly heat, is skin irritation caused by sweat that does not evaporate from the skin.

Bottom line: Try to stay out of the heat. Or if you must, take the proper precautions.

Your body will thank you.

To subscribe to Epilepsytalk.com and get the latest articles by email, simply go to the bottom box on the right, enter your email address and click on “Follow”.



  1. Thanks, Phyllis! This is definitely one I will keep, and distribute to my son’s caregivers.


    Comment by Martha — June 26, 2016 @ 11:57 AM

  2. Great article Phylis! Thanks for the info!


    Comment by Soo Ihm — June 26, 2016 @ 1:32 PM

  3. I normally have seizures where I just stare and have no awareness and it lasts 3-5 minutes, but one day I had a seizure where I fell to the ground. It was real hot that day, so that’s what I attributed it to, so thanks, because I never want to have that again. After I was alright. A policeman asked if I was alright, because the people who witnessed it were concerned. Thank God they were nice.

    Liked by 1 person

    Comment by mary levell — June 26, 2016 @ 4:03 PM

  4. Wearing sunscreen is a whole separate issue from heat related illnesses. Not sure why you included it here. Keeping out the UVs does not keep out the heat. Also some sunscreens can interfere with your body’s ability to cool itself through sweat by gunking up your pores. There is also the issue of vitamin D or lack thereof which tends to be greater in people with epilepsy.

    Sorry if I’m picking a nit here Phyllis. Otherwise a very informative article. I just didn’t want to see caution about excessive heat turning into sunshine phobia.

    Living here in Hawaii, I don’t have much choice about being in a warm place but I find that fans are the answer instead of AC. Your point about going from a chilly AC-ed building out into a seriously hot day is a good one. Using fans helps reduce the heat index without making too much of a shock as you transition in and out.


    Comment by paleobird — June 26, 2016 @ 5:16 PM

  5. Point well taken. Thanks, paleobird!

    (I’ve got a fan on right now. I took a walk and I’m running with sweat and A.C. just doesn’t make it.)


    Comment by Phylis Feiner Johnson — June 26, 2016 @ 6:19 PM

  6. Summer keeps me in the house , I hate summer because of the heat. It can make me have a seizure. I like temperature to be 75 DEGREES DOWN.


    Comment by michele metzger — June 26, 2016 @ 11:44 PM

  7. I’m right there with you! 🙂


    Comment by Phylis Feiner Johnson — June 27, 2016 @ 9:24 AM

  8. I own my landscaping business I love warm weather. The key as you say is to be hydrated and adjust to the 90 degree weather. A lot of people who work with me in the gardens have more issues than I do. They are similar. Stay in shape all year.


    Comment by Clare — June 27, 2016 @ 9:24 AM

  9. Staying in shape all year is wise advice. No sudden heroics in the heat, please!


    Comment by Phylis Feiner Johnson — June 27, 2016 @ 9:26 AM

  10. Hmm, i love the summer heat. Best time of the year for me. I’ve been known to sun tan in 100+ degrees weather and i just love it. 🙂 Weird, I know. It’s ok if you understand that you need to work up to that type of sun tanning. If you have never tanned before, it’s not wise to do it for long when starting out. But i’ve never had a seizure because of the heat, knock on wood.


    Comment by Zolt — June 27, 2016 @ 2:16 PM

  11. Better you than me! 🙂


    Comment by Phylis Feiner Johnson — June 27, 2016 @ 3:42 PM

  12. I love summer! But the heat and humidity is awful were I live. The bright sun bothers my eyes. I get more migraines and seizures. Heat is a big trigger. I spend a lot of time inside. Need to stay hydrated.


    Comment by epilepsyadvocacyblog — June 29, 2016 @ 6:30 PM

  13. I wish I didn’t have to weed and prune my garden in the PA heat and humidity.

    Maybe I should just “go back to nature”?


    Comment by Phylis Feiner Johnson — June 29, 2016 @ 6:39 PM

  14. Reblogged this on cheerfulbiz.

    Liked by 1 person

    Comment by Veronique — July 4, 2016 @ 5:07 PM

  15. I just got finished reading several posts about people and their experiences with Keppra, SSI, and doctors on a different page here. There are so many infuriating and debilitating aspects for people who are hit with such an exponential double whammy as epilepsy, between the disorder itself, then dealing with the people and bureaucracies who control their lives. I would like to share my daughter’s story. We’ve resolved her red tape for now, but I’m expecting more in the near future. I’m curious if anyone is familiar with the kind of epilepsy my daughter has. Her form of epilepsy was independently given by both her neurologist and the neuropsychologist at a major teaching university in Los Angeles, and her test report is not available at the moment.

    Amy, now almost 27, has a rare form of epilepsy that, unbeknownst to us, she’s had from birth (and perhaps in utero). But, except for several visible focal and petit mal seizures she had (and seemingly outgrew on medication) as a toddler she appeared to be symptom free until age 16. At 4 years, her father and I separated and for many years she suffered because of it. Suffice it to say that on top of all her neurodevelopmental issues, she also had severe clinical depression. She was always– fill in the blank with your choice of physical symptoms–getting her out of many circumstances.

    She was a VERY complicated daughter and sister. And even though I’m a child psychologist it only gets you so far (and that, friends, isn’t far). On the one hand, I didn’t know enough to be an expert, but on the other, more than enough to be a loud and tenacious advocate when need be. But what saved us was that my best friend and colleague WAS top experts in special needs and regularly took the tough cases. She knew her stuff.

    So, about here you might be taking a refrigerator or bathroom break : )

    Amy began having mild-ish developmental problems in infancy that just kept progressing: delayed development milestones, terrible behavior problems, adhd, ocd, tics, sensory integration issues, a social communication disorder, learning disabilities, processing problems… etc. By the time she was 8, I think we had them all. Despite having a history of seizures, only two doctors ever thought to do a repeat EEG, and after each of them there wasn’t any indication of seizures. But she jerked in her sleep a lot, and finally I video recorded her about around 16, which I would later show a neurologist.

    Around that same time, she had been developing strange neurological symptoms- 23 to be exact- some of which might have been considered as “just Amy” with her chronic “I don’t feel well” complaints. Others were clearly neurological. I took her to a neurologist who examined her- the cursory in-office exam- and after reading her history he took me aside and said, “it’s all in her head”. I didn’t know whether to be offended, punch him, or feel relieved. Mostly, I felt so incredibly sad and angry for my daughter, who- at this point- felt like nobody ever believed her (including me sometimes). But he ordered a sleep study which they said wasn’t perfect, but looked okay… I was exhausted from the prior 16 years- 12 of them as a single mom with another child- and I dropped the ball.

    I hope this isn’t off the charts self-indulgent, but it feels good to share this with others who can understand. I took her to other doctors, until she finally ended up at a major hospital in Los Angeles for a 10 day EEG study. At 20 years old she was finally diagnosed with epilepsy. The first medication they wanted to put her on was Kepra.

    I came home and read story after story of how Kepra shattered so many lives. I’m sure that it has helped maybe just as many or more, and there are potential major side effects with any of these meds, but that one drug terrified me. She was medication-resistant, and we modified cocktail after cocktail, I could never give in. I felt there was absolutely no margin for the kind of error I read about.

    At this point, while she isn’t a typical 27 year old, she looks nothing like she did as a child. But how great to know the underlying issue.

    She finally had VNS surgery which helped with her epilepsy and her depression, and she is finally seizure-free. If this tenuous two-month period can turn into three she’ll get to drive again.

    I’d welcome feedback if there is any.

    Thanks for this community!


    Comment by Sue — July 15, 2016 @ 10:08 PM

    • Sue, I try not to push my limits either way, however, I prefer cold weather to hot weather. Just my thoughts.


      Comment by Jeffrey Liakos — December 13, 2016 @ 5:46 PM

  16. Sue, first of all, you know that EEGs are not the be all and end all of testing.

    Beyond EEGs…Diagnostic Tools for Epilepsy


    Secondly, Keppra or no Keppra, if your daughter is drug resistant, no med is going to entirely help.

    Third of all, it is possible to have pseudo seizures AND epilepsy, but if that were the case, I don’t think the VNS would have done it’s job.

    Finally, I think the VNS was a brilliant move, and I don’t know why any of those goons didn’t think of it before.

    Also, I don’t know if you’re familiar with the new Aspire generator for the VNS. But, it’s nothing but good news.

    VNS…Exciting News!


    I think you’re great and I applaud your perseverance!


    Comment by Phylis Feiner Johnson — July 16, 2016 @ 10:40 AM

  17. I told you about the man I write about in prison who has epilepsy. He was born seizing and they didn’t think he would live. He had brain surgery at 12 to try to stop some of the brain bleeds. It slowed the seizures down but didn’t stop them. I read this article because it was about the heat. He is in a Texas prison that has no AC and is often over 100 degrees for weeks on end. Every year people die of the heat.. One prison the moved him to ( 8 in all) they had him working in the field. They knew he had epilepsy. He would have seizures and would also pass out from the heat without a seizure. They pretty much laughed at him he tried to get moved to a different type of work. The lack of care for all inmates is so wrong. All chronic conditions from heart disease to diabetes doesn’t matter. They will just watch you die rather than take you to medical.


    Comment by SonniQ — August 3, 2016 @ 2:52 PM

  18. Great guys. Die and we’ll have one less inmate. 😦


    Comment by Phylis Feiner Johnson — August 3, 2016 @ 3:37 PM

  19. Philys Feiner Johnson, I prefer cold weather over hot weather personally.


    Comment by Jeffrey Liakos — August 7, 2016 @ 1:03 PM

  20. I HATE the heat. At least in the cold, you can bundle up and (hopefully) be warm.


    Comment by Phylis Feiner Johnson — August 7, 2016 @ 1:38 PM

  21. Cold weather generally speaking never bothers me.


    Comment by Jeffrey Liakos — August 7, 2016 @ 2:25 PM

  22. As long as I can bundle up, I’m a happy camper!


    Comment by Phylis Feiner Johnson — August 7, 2016 @ 4:54 PM

  23. I enjoy the cold weather.


    Comment by Jeffrey Liakos — August 7, 2016 @ 7:26 PM

  24. You’re one of the lucky ones! 🙂

    I just keel right over.

    In fact, my last concussion was caused by fainting from the heat and smacking my head on the brick walkway.



    Comment by Phylis Feiner Johnson — February 17, 2017 @ 4:51 PM

    • Phylis Feiner Johnson, I find myself drawn more to cold than heat. Quite honestly, one thing that does help is when I have a hot cup or so of coffee, either that or tea.


      Comment by Jeffrey Liakos — April 8, 2018 @ 6:25 PM

  25. Thanks for the article it answered lots of questions I had. After tons of meds, three surgeries, etc. I now only have nocturnal seizures when taking two meds. I guess that’s pretty good in itself. We haven’t found any obvious trigger for any of them. I have always been a “chilly willy” with Raynaud’s syndrome causing me to be cold often. I usually sleep with covers on-not super heavy but always enough to keep me warm. One of the things that we are trialing is that I may be too warm when I sleep, thus causing seizures whenever the stars line up correctly(boo hiss). So I have been trying to sleep with light covers ie. 1-2 sheets and no warm covers. As far as outside heat it bothers me only like anyone else. I tried living down South but it was too hot and humid for me. I left because of the humidity basically not any seizures. Since I’ve been married we have always had a fan on in the bedroom and the ac on in the rest of the house. All of which is a little uncomfortable for me but the heat really bothers hubby. So, despite keeping the house cool I have continued having my seizures. I will be three months seizure free in three days. I have been seizure free for longer than that a couple of times which has been awesome! Plus I am in menopause right now so I have the dreaded “hot flashes”. Except for being uncomfortable occasionally that hasn’t seemed to have changed anything as far as my seizures. Is it possible that keeping my core more cool as I sleep is helping? Or does it seem like I’m just grasping at straws? Am I just looking for something to feel like I have control over? I certainly give up my covers if it really was the problem. But if it isn’t I would gladly take them back! I’m guessing that the only way to tell if this is correct is plain old anecdotal evidence along with the meds finally at the right level. Thanks for letting me chatter on. It is nice to have someone to talk to that “gets it”. Thank you and have a good seizure free day. Peace


    Comment by Cindy Fiser — April 21, 2017 @ 11:02 AM

    • Cindy, I know from my experience that I can only sleep with a light flannel sheet. (And I’m 99% seizure-free.) So, take that for what it’s worth.

      And the hot flashes made me crazy. Sometimes, I was so desperate that I stuck my head in the freezer.

      That being said, three months seizure free in three days, is GREAT. You must be doing something right.


      Comment by Phylis Feiner Johnson — April 21, 2017 @ 11:25 AM

      • Thanks, I sure hope so. Of course, the possibility of having a seizure will always be hanging over my head. But I am to the point where if it seems to be working I’m not going to rock the boat. Thank you for your support for all of us!


        Comment by Cindy Fiser — April 21, 2017 @ 11:31 AM

  26. “If it ain’t broke, don’t fix it!”

    Congratulations in advance. And thanks for the compliment. 🙂


    Comment by Phylis Feiner Johnson — April 21, 2017 @ 11:53 AM

    • Phylis Feiner Johnson, you said ditto when I commented that I enjoy cold weather. My preference is for colder weather than the heat of the summer.


      Comment by Jeffrey Liakos — July 12, 2017 @ 2:13 PM

      • Colder weather you can do something about, like bundle up.

        Hot weather is just merciless, in my opinion.


        Comment by Phylis Feiner Johnson — July 12, 2017 @ 3:50 PM

  27. Heat cramps! Not drinking enough fluids! Gee!

    Thank you! The heat wave is still on!
    You are so helpful!


    Comment by red2robi — July 20, 2017 @ 9:27 PM

  28. […] Heat Is Not Our Friend […]


    Pingback by I can Feel The Rain Coming – Living In The Garden Of Optimism — September 7, 2017 @ 10:56 AM



    Comment by Maria DeFalco — October 18, 2017 @ 1:59 PM

  30. Maria DeFalco, I have no love for the hot weather. Strange as it may be for some people to hear, I prefer much colder weather.


    Comment by Jeffrey Liakos — April 8, 2018 @ 6:28 PM

  31. Summers temperatures high, never take cool drinks cool water is unfavorable.
    Take only pot water or Luke warm water, exercise before sunrise or after sunsets or before one hour of sunsetting
    Take only food according to season or which fits your health


    Comment by Syed yusuf — May 8, 2018 @ 9:53 AM

  32. Phylis Feiner Johnson, hypothermia and heatstroke are 2 things to take seriously. However, as long as it is not raining outside, cold weather does not give me a lot of grief. That could change as I get older, however, I am more inclined toward Winter weather over the Summer weather.


    Comment by Jeffrey Liakos — May 8, 2018 @ 9:18 PM

  33. Phylis Feiner Johnson, as long as I am able to move around freely, even in the cold weather, I am very comfortable. The only places I probably would not want to be are the Arctic or Antarctic regions of the Earth. Other than that, cold weather does not cause me too much distress.

    Liked by 1 person

    Comment by Jeffrey Liakos — May 9, 2018 @ 12:09 PM

  34. Weather causing problems? Definitely!!! People at work used to think I was crazy when I’d mention ‘there’s a storm coming within the next 3 days”…. after realizing I was right almost all the time, they started asking me,
    “Well, what’s the weather going to do?” ‘Whether’ the weather is slight or severe, I always have problems.

    I agree with your preference to cold rather than hot.
    I always say, “yes, you can pile more and more blankets over yourself,but you can ‘only take off so much before you’re……………..” Yep! (always have to chuckle at myself when I say that………………..)

    Liked by 1 person

    Comment by Karen — July 15, 2018 @ 1:46 AM

    • Oh yes, and forgot mentioning stress- sometimes
      I have a terrible day- yes, when under any stress. Anger does it too. I’ve always been surprised how funerals don’t cause added spells but it would be terrible to wish for them.

      Liked by 1 person

      Comment by Karen — July 15, 2018 @ 1:50 AM

      • I don’t think the Arctic or Antarctica would be on my top 10 either!

        Karen, as for the storm predictions: it has to do with barometric pressure.

        Weather differences such as sudden changes in temperature, dark skies, thunder, or bright, hot sunlight and humidity may be a definite trigger for some.

        As for stress, it can increase cortisol, known as “the stress hormone” because cortisol is secreted in higher levels during the body’s “fight or flight” response to stress.

        And, as you may imagine, it’s responsible for several stress-related changes in the body which also may influence seizure activity.

        Negative emotions related to stress, such as anger, worry or fright, may also cause seizures.

        This happens because the limbic system, the portion of the brain that regulates emotion, is one of the most common places for seizures to begin.

        You’ll probably find that you have more seizures during or after periods of anxiety or stress.


        Comment by Phylis Feiner Johnson — July 15, 2018 @ 10:11 AM

  35. Phylis Feiner Johnson, demanding physical activity, a cup or so of coffee or tea, will keep me going. Unless it is so cold that it is better off being indoors.


    Comment by Jeffrey Liakos — July 26, 2018 @ 9:25 AM

  36. I can’t (and wont) argue with that.


    Comment by Jeffrey Liakos — July 26, 2018 @ 12:53 PM

  37. Phylis Feiner Johnson, as a follow up, the only time cold weather causes me any issues is when my left foot (the foot that I fractured) starts to ache. So I will admit to a downside to cold weather for me. However, I have a reasonably high tolerance for it.


    Comment by Jeffrey Liakos — August 28, 2018 @ 6:35 PM

  38. It would be good to know how having brain surgery does change in whatever ways brain chemistry. I had mine in 2001 almost 18 years ago & my brain seizure pattern did change & changed again in 2012 after a concussion due from a GRAND MAL seizure from just very little MSG in 1 to 2 ounces of food. But the brain chemistry after my surgery puzzles me in how after the surgery as 2001 was a hot year, I never minded the heat since yet before surgery I was always prone to more seizures in those months with NO R’s. It was like from September to April the HERE WE GO AGAIN with more seizures was a promise as to what to have happen. Now it seems all reverse for the weird unexplained reasons since surgery on 7-11-01 as my last one was in APRIL, 28,, an R month, thinking back from ApRil,I had one in MaRch, DecemerR, 2018 NovenbeR & SeptembeR, but one in July on 7-11-18 of all days, then MaRch 5th & that was all for 2018. All of them happened at home as this past week I tried the VIMPAT again to see if that will make a difference since a concussion has happened from a GRAND MAL after I was off VIMPAT & LAMICTAL in 2012 for a few months.


    Comment by C D — June 2, 2019 @ 8:31 PM

  39. I think you’d better skip the “R” months for your own sanity and peace of mind. (All puns intended.)


    Comment by Phylis Feiner Johnson — June 2, 2019 @ 8:35 PM

    • So for the last 6 + weeks that I have been back on the VIMPAT. not 1 sign of any seizure activity, even as looking back in the past where I did have GRAND MAL seizures, maybe the VIMPAT is what I should had never went off of in 2012. Heat like what we had this past week in other days in the past would had given me petit mals & as I said that was decades befere brain surgery. ” I HAVE BEEN INSIDE FOR MOST OF THIS PAST WEEK so it is not only the drug VIMPAT I may give some credit, but ”common sense” too. I know when my sodium level gets lower from sweating so much, I load up later on it by eating any salty food there is, & drinking the WATER I need, & nothing else. Also,, I make sure with that salt intake that NO MSG is in that food either, as MSG is considered in a salt as well as the EXCITOTOXIN & CARCINIGIN that it is.Same goes for ASPARTAME as well as I never drink diet drinks or have ANY sugar free DRINKS & FOODS, that are in all frozen desert foods, & baby foods & dairy from yogurts Ice Creams & alike to all & every flavored milks.especially ALOMOND & SOY MILK & other ORGANIC milks. Plus you gain weight & you have NO SUGAR ? MSG’s are in them all also. All to say DO NOT abuse your brain in other ways, even before you go out in the heat. Eating & drinking those toxic foods & drinks, BEFORE you go outside in the heat, is always inviting a heat stroke or a seizure, or any other neurological attack by something else. Any human brain is MORE ACTIVE from the ingestions of MSG & ASPARTAME, & THE HEAT will make that activity 100X’s worse. LIKE THE HEAT, Aspartame’s & MSG’s are no friends before going outside in the HEAT OR COLD when you are going to be active. I know, as I have lived it for over 55 years seeing what foods & drinks HAVE DONE to me in the past, until I figured it out WHAT had been happening & triggering the seizures, . No matter when the body is active more than normal,, the brain chemistry will always be more active as well to keep the body going, UNTIL something happens. Maybe VIMPAT or a drug like it can help, but common sense usually works the best. Your neurologist should know all about this, unless he or she has to learn from you 1st. Some of mine had to.

      Liked by 1 person

      Comment by C D — July 22, 2019 @ 7:50 AM

  40. Done this and discovered it as it was happening.
    I was riding to get my meds on one of the warmest Novembers on record in Alabama in 2016.
    I made it to my destination, I ride a bicycle. I had Powerade, I had water, what I didn’t anticipate that day was it being so hot to deplete my salt levels too quick.
    I made it to where I was going, but had to buy some chips to replenish my sodium(salt) levels. I now carry a bag of chips if it’s going to be above 85 & humidity above 60%. Especially on bicycle.

    Liked by 1 person

    Comment by Donald Gulledge — July 22, 2019 @ 8:55 AM

  41. I saw a Question “asking what the Heat Index is”?
    Heat index isn’t the temp, but the temp combined with high humidity rates above 60% will make the temp more unbearable in dry heat.
    Say it’s 85 degrees with 60% humidity, that 85 degrees will feel like 90-94 with humidity that high and total unbearable & more dangerous especially if you have heat triggers on seizures.

    Liked by 1 person

    Comment by Donald Gulledge — July 22, 2019 @ 9:06 AM

  42. Yesterday, our temperature was 94 degrees with a heat index of 104. 😦


    Comment by Phylis Feiner Johnson — July 22, 2019 @ 10:10 AM

  43. Phylis Feiner Johnson i have a group and you can add me you want, its called epilepsy Friends support it has pooh on it.


    Comment by tonya — July 22, 2019 @ 2:25 PM

    • I am a member of Epilepsy Friends Support.

      Isn’t that the same group?

      If you want to join EpilepsyTalk and receive articles regularly, just go to the bottom of the right column, enter your email address and click on “Follow”

      I hope you’ll join us!


      Comment by Phylis Feiner Johnson — July 22, 2019 @ 3:02 PM

  44. Reblogged this on catsissie.


    Comment by catsissie — July 28, 2019 @ 12:43 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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