For those of you who have been wondering…

For those of you who have been wondering… | June 8, 2016

What is Epilepsy Talk and who is that masked lady behind it?

Epilepsy Talk is a website that I created after 35 years of being a copywriter. And decades of having epilepsy myself.

My last client — before I chucked advertising for this labor of love — was a Health & Wellness company where I learned to research, research, research.

That’s the basis of my articles. Think of a subject, then research it to death (not literally), write, edit, double-check my facts and then release it for the public to read.

You can find the actual resources at the bottom of each article, with a hotlink which will take you there.

I hope you enjoy reading the articles and that you can take away a little more knowledge and understanding after reading them.

To subscribe to Epilepsy Talk and get the latest articles, simply go to the bottom box of the right column, enter your email address and click on “Follow.”

Posted in Epilepsy
Tags: 35 years, Epilepsy, epilepsytalk.com, health and wellness, labor of love, Research, write

31 Comments »

You do a great job!

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Comment by Kate jacques — June 8, 2016 @ 9:08 AM

Reply
- Oh Kate. Thanks.
  
  LikeLike
  
  Comment by Phylis Feiner Johnson — June 8, 2016 @ 9:16 AM
  
  Reply
Good Morning Phylis,

You have done an OUTSTANDING job of research & then reporting your findings for those that are afflicted with epilepsy or are family members or friends of these folks.

I did post an email awhile back seeking anyone out there that would like to communicate via your web site to assist me coping with the loss of my Fraternal Twin Brother Allan, but as of this posting no response. My email is : ajgolfnut5@gmail.com

Have a Wonderful day Phylis & many thanks again for your tireless reporting…it is very meaningful !

AL “AJ” Johnson – Ontario, California

P.S. The Support Groups you kindly shared with me previously…for the most part charge a fee & unfortunately our household budget is too tight to afford even the sliding scale being offered.

LikeLike

Comment by AL "AJ" Johnson — June 8, 2016 @ 9:30 AM

Reply
- AJ, I’m sorry about the support groups, but happy that I’ve helped you in other ways.
  
  LikeLike
  
  Comment by Phylis Feiner Johnson — June 8, 2016 @ 10:26 AM
  
  Reply
You have done an awesome job and I’m really grateful to have found this because it’s helped with a lot of questions thankyou!

LikeLiked by 1 person

Comment by Kathy — June 8, 2016 @ 9:43 AM

Reply
- I’m happy to help, however and whenever I can. Thanks, Kathy.
  
  LikeLike
  
  Comment by Phylis Feiner Johnson — June 8, 2016 @ 10:27 AM
  
  Reply
Did a good job over the years and it has helped me out a lot.

LikeLiked by 1 person

Comment by Corina — June 8, 2016 @ 9:56 AM

Reply
- That’s music to my soul, Corina!
  
  LikeLike
  
  Comment by Phylis Feiner Johnson — June 8, 2016 @ 10:28 AM
  
  Reply
You do a great job and I always enjoy your research! Thanks!!

LikeLike

Comment by Karen Hall — June 8, 2016 @ 10:03 AM

Reply
Thank you, Karen. The research part is the most difficult, but the most rewarding part of my job.

It’s the hardest I’ve ever worked, and the most rewarding!

LikeLike

Comment by Phylis Feiner Johnson — June 8, 2016 @ 10:31 AM

Reply
Happy Anniversary Epilepsy talk!!

Al, you might try looking for a local hospital that treats brain tumors patients. Sometimes there are free support groups there. Many people dealing with brain tumors also, suffer from frequent seizures.Topic of epilepsy or seizure prevention is often discussed and they are usually free. You might even just start your own meeting at your local library Its all about volunteering your time for the good of humanity. As you do this you will find the joy and comfort YOU need in helping and giving to others. Now, I just need to practice what I preach a little better. Regarding your brother

LikeLike

Comment by ala — June 8, 2016 @ 11:38 AM

Reply
- Adult Epilepsy Support Groups — Updated
  
  https://epilepsytalk.com/2013/11/02/adult-epilepsy-support-groups-updated-2/
  
  LikeLike
  
  Comment by Phylis Feiner Johnson — June 8, 2016 @ 11:56 AM
  
  Reply
- Good morning or afternoon Phylis wherever you might be in the U S.
  
  Appreciate your reply & recommendation to contact a local hospital or library to possibly formulate a support group.
  
  I was just hoping that someone out there would see my email address & we could communicate via this means to help support one another….namely a surviving Twin that is faced with the day in & day out memories of both the good & not so good times spent together.
  
  I will leave my email address once again in the event someone would like to email me: ajgolfnut5@gmail.com
  
  Thanks again for being there Phylis.
  
  AJ Ontario, California
  
  P.S. I am also trying to be strong for my wife who is still not out of the woods with have 2 breast cancer surgeries.. We just celebrated our 40th. Wedding Anniversary this past Saturday.
  
  LikeLike
  
  Comment by AL "AJ" Johnson — June 8, 2016 @ 12:08 PM
  
  Reply
  - I’m sorry no one has reached out to you Al.
    
    And I know it must be very tough going through your wife’s cancer.
    
    Nonetheless, Happy Anniversary and know that my heart is with you.
    
    LikeLike
    
    Comment by Phylis Feiner Johnson — June 8, 2016 @ 3:51 PM
When my seizure doctor, wanted to know what I meant when I was talking about my seizure warning. I wrote down what you said they were I wrote it down ,took it to him, and he agreed and said that is true. I learned a lot from being on here.

LikeLike

Comment by michele metzger — June 8, 2016 @ 12:04 PM

Reply
Great, Michele! Knowledge truly is power! 🙂

LikeLike

Comment by Phylis Feiner Johnson — June 8, 2016 @ 3:53 PM

Reply
You have been such a help to me. I could not believe some of the things that were happening to me after my stroke and before I knew it I realized I was normal. I was having psychic seizures constently. I was not having some new weird panic attacks that my psychiatrist and therapist thought They needed to treat. One day I had one and went unconscence and GP sent me to a Nuero and they immediately did EEG and MRI and all was picked up. Not only that but thyroidectomy 6 months after stroke now on thyroid meds for life. I can no longer eat Gluten either as of 2 years. So weight loss even though Depakote is drug of choice and for the first time even controlling my moods (I am Bipolar 1, on Disability because of). I also have to be cautious of cholesterol as that is what caused stroke. On meds for that too. I make all meals at home now. No going out to eat. It’s a different life now. I bought an Adult Trike 2 months ago so I can get around now too! 🙂

LikeLike

Comment by Penny — June 8, 2016 @ 3:59 PM

Reply
- Wow Penny, what strides you have made. I’m so proud of you! (And you should be, too!)
  
  LikeLike
  
  Comment by Phylis Feiner Johnson — June 8, 2016 @ 4:23 PM
  
  Reply
I forgot to mention my stroke was July 2012. That is when all this started. My Bipolar1 was diagnosed on 2000, years before. My memory and putting things on paper is hard. I go back and look at it later and see what I forgot. lol

LikeLike

Comment by Penny — June 8, 2016 @ 5:07 PM

Reply
At least you remember where it is to look at later!!! 🙂

LikeLike

Comment by Phylis Feiner Johnson — June 8, 2016 @ 5:31 PM

Reply
If you’d like to see a lot of information on the RNS, got to http://www.neuropace.com Then click on How the RNS System Works. there they have videos and a bunch of things to read.

LikeLike

Comment by Shawn Wittman — June 8, 2016 @ 8:24 PM

Reply
- Thanks Shawn, that’s how I got some of my research.
  
  LikeLiked by 1 person
  
  Comment by Phylis Feiner Johnson — June 9, 2016 @ 9:46 AM
  
  Reply
Hey Phylis,

You are a light in a dark world.

Cheers,
Zolt

LikeLike

Comment by Zolt — June 9, 2016 @ 7:39 PM

Reply
And that coming from you Zolt, means the world to me.

LikeLike

Comment by Phylis Feiner Johnson — June 10, 2016 @ 10:36 AM

Reply
Thanks for all you do Phylis! Together we can help each other and raise awareness

LikeLike

Comment by Freya Symes — July 17, 2016 @ 11:38 PM

Reply
Thanks for the compliment Freya. Hopefully, as our own advocates, we can educate and make people aware of just what epilepsy is.

LikeLike

Comment by Phylis Feiner Johnson — July 18, 2016 @ 10:01 AM

Reply
I wanted to Thank-You for helping me understand more of this.

LikeLike

Comment by Gail Paul — August 5, 2016 @ 5:23 PM

Reply
Thank YOU, Gail!

Welcome to the family…

LikeLike

Comment by Phylis Feiner Johnson — August 5, 2016 @ 5:35 PM

Reply
Im so happy tou do this Phyllus. You have become my “go to” person. I feel like I finally have a hand to hold onto in this journey.

LikeLike

Comment by Bonnie Bond — December 20, 2016 @ 12:02 PM

Reply
Bonnie, I’m glad I can help. And there are many hands here to hold through this difficult journey.

LikeLike

Comment by Phylis Feiner Johnson — December 20, 2016 @ 4:12 PM

Reply
Glad your here Phylis , to guide each one of us , with many infor

LikeLiked by 1 person

Comment by Cathy Flowers — December 30, 2021 @ 9:32 AM

Reply

Leave a reply to Phylis Feiner Johnson Cancel reply

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You do a great job!

LikeLike

Comment by Kate jacques — June 8, 2016 @ 9:08 AM

Oh Kate. Thanks.

LikeLike

Comment by Phylis Feiner Johnson — June 8, 2016 @ 9:16 AM

Good Morning Phylis,

You have done an OUTSTANDING job of research & then reporting your findings for those that are afflicted with epilepsy or are family members or friends of these folks.

I did post an email awhile back seeking anyone out there that would like to communicate via your web site to assist me coping with the loss of my Fraternal Twin Brother Allan, but as of this posting no response. My email is : ajgolfnut5@gmail.com

Have a Wonderful day Phylis & many thanks again for your tireless reporting…it is very meaningful !

AL “AJ” Johnson – Ontario, California

P.S. The Support Groups you kindly shared with me previously…for the most part charge a fee & unfortunately our household budget is too tight to afford even the sliding scale being offered.

Comment by AL "AJ" Johnson — June 8, 2016 @ 9:30 AM

AJ, I’m sorry about the support groups, but happy that I’ve helped you in other ways.

LikeLike

Comment by Phylis Feiner Johnson — June 8, 2016 @ 10:26 AM

You have done an awesome job and I’m really grateful to have found this because it’s helped with a lot of questions thankyou!

LikeLiked by 1 person

Comment by Kathy — June 8, 2016 @ 9:43 AM

I’m happy to help, however and whenever I can. Thanks, Kathy.

LikeLike

Comment by Phylis Feiner Johnson — June 8, 2016 @ 10:27 AM

Did a good job over the years and it has helped me out a lot.

Comment by Corina — June 8, 2016 @ 9:56 AM

That’s music to my soul, Corina!

LikeLike

Comment by Phylis Feiner Johnson — June 8, 2016 @ 10:28 AM

You do a great job and I always enjoy your research! Thanks!!

Comment by Karen Hall — June 8, 2016 @ 10:03 AM

Thank you, Karen. The research part is the most difficult, but the most rewarding part of my job.

It’s the hardest I’ve ever worked, and the most rewarding!

Comment by Phylis Feiner Johnson — June 8, 2016 @ 10:31 AM

Happy Anniversary Epilepsy talk!!

Al, you might try looking for a local hospital that treats brain tumors patients. Sometimes there are free support groups there. Many people dealing with brain tumors also, suffer from frequent seizures.Topic of epilepsy or seizure prevention is often discussed and they are usually free. You might even just start your own meeting at your local library Its all about volunteering your time for the good of humanity. As you do this you will find the joy and comfort YOU need in helping and giving to others. Now, I just need to practice what I preach a little better. Regarding your brother

Comment by ala — June 8, 2016 @ 11:38 AM

Adult Epilepsy Support Groups — Updated

https://epilepsytalk.com/2013/11/02/adult-epilepsy-support-groups-updated-2/

LikeLike

Comment by Phylis Feiner Johnson — June 8, 2016 @ 11:56 AM

Good morning or afternoon Phylis wherever you might be in the U S.

Appreciate your reply & recommendation to contact a local hospital or library to possibly formulate a support group.

I was just hoping that someone out there would see my email address & we could communicate via this means to help support one another….namely a surviving Twin that is faced with the day in & day out memories of both the good & not so good times spent together.

I will leave my email address once again in the event someone would like to email me: ajgolfnut5@gmail.com

Thanks again for being there Phylis.

AJ Ontario, California

P.S. I am also trying to be strong for my wife who is still not out of the woods with have 2 breast cancer surgeries.. We just celebrated our 40th. Wedding Anniversary this past Saturday.

LikeLike

Comment by AL "AJ" Johnson — June 8, 2016 @ 12:08 PM

- I’m sorry no one has reached out to you Al.
  
  And I know it must be very tough going through your wife’s cancer.
  
  Nonetheless, Happy Anniversary and know that my heart is with you.
  
  LikeLike
  
  Comment by Phylis Feiner Johnson — June 8, 2016 @ 3:51 PM

When my seizure doctor, wanted to know what I meant when I was talking about my seizure warning. I wrote down what you said they were I wrote it down ,took it to him, and he agreed and said that is true. I learned a lot from being on here.

Comment by michele metzger — June 8, 2016 @ 12:04 PM

Great, Michele! Knowledge truly is power! 🙂

Comment by Phylis Feiner Johnson — June 8, 2016 @ 3:53 PM

You have been such a help to me. I could not believe some of the things that were happening to me after my stroke and before I knew it I realized I was normal. I was having psychic seizures constently. I was not having some new weird panic attacks that my psychiatrist and therapist thought They needed to treat. One day I had one and went unconscence and GP sent me to a Nuero and they immediately did EEG and MRI and all was picked up. Not only that but thyroidectomy 6 months after stroke now on thyroid meds for life. I can no longer eat Gluten either as of 2 years. So weight loss even though Depakote is drug of choice and for the first time even controlling my moods (I am Bipolar 1, on Disability because of). I also have to be cautious of cholesterol as that is what caused stroke. On meds for that too. I make all meals at home now. No going out to eat. It’s a different life now. I bought an Adult Trike 2 months ago so I can get around now too! 🙂

Comment by Penny — June 8, 2016 @ 3:59 PM

Wow Penny, what strides you have made. I’m so proud of you! (And you should be, too!)

LikeLike

Comment by Phylis Feiner Johnson — June 8, 2016 @ 4:23 PM

I forgot to mention my stroke was July 2012. That is when all this started. My Bipolar1 was diagnosed on 2000, years before. My memory and putting things on paper is hard. I go back and look at it later and see what I forgot. lol

Comment by Penny — June 8, 2016 @ 5:07 PM

At least you remember where it is to look at later!!! 🙂

Comment by Phylis Feiner Johnson — June 8, 2016 @ 5:31 PM

If you’d like to see a lot of information on the RNS, got to http://www.neuropace.com Then click on How the RNS System Works. there they have videos and a bunch of things to read.

Comment by Shawn Wittman — June 8, 2016 @ 8:24 PM

Thanks Shawn, that’s how I got some of my research.

LikeLiked by 1 person

Comment by Phylis Feiner Johnson — June 9, 2016 @ 9:46 AM

Hey Phylis,

You are a light in a dark world.

Cheers,
Zolt

Comment by Zolt — June 9, 2016 @ 7:39 PM

And that coming from you Zolt, means the world to me.

Comment by Phylis Feiner Johnson — June 10, 2016 @ 10:36 AM

Thanks for all you do Phylis! Together we can help each other and raise awareness

Comment by Freya Symes — July 17, 2016 @ 11:38 PM

Thanks for the compliment Freya. Hopefully, as our own advocates, we can educate and make people aware of just what epilepsy is.

Comment by Phylis Feiner Johnson — July 18, 2016 @ 10:01 AM

I wanted to Thank-You for helping me understand more of this.

Comment by Gail Paul — August 5, 2016 @ 5:23 PM

Thank YOU, Gail!

Welcome to the family…

Comment by Phylis Feiner Johnson — August 5, 2016 @ 5:35 PM

Im so happy tou do this Phyllus. You have become my “go to” person. I feel like I finally have a hand to hold onto in this journey.

Comment by Bonnie Bond — December 20, 2016 @ 12:02 PM

Bonnie, I’m glad I can help. And there are many hands here to hold through this difficult journey.

Comment by Phylis Feiner Johnson — December 20, 2016 @ 4:12 PM

Glad your here Phylis , to guide each one of us , with many infor

Comment by Cathy Flowers — December 30, 2021 @ 9:32 AM

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