Epilepsy Talk

Top Seizure Apps For Smartphones… | August 2, 2015

A recent study published in the International Journal of Epilepsy has found that certain smart phone apps might aid those with epilepsy.

Led by Dr. Lakshmi Narasimhan Ranganathan from the Institute of Neurology, Madras Medical College (Madras, India), the researchers surveyed the mobile applications available for the everyday care of patients with epilepsy.

Those apps include seizure diaries as well as medication trackers with reminders to take the next pill.

Apps are available to answer any question patients with epilepsy might have and to remind doctors about drug interactions to watch out for.

Most of them are free of charge.

The authors say that special sensors integrated into cell phones might allow continuous drug monitoring too.

Rather than taking anti-epileptic drugs all of the time and suffering their cognitive side-effects, people might take those drugs only when a seizure is coming on.

“People with epilepsy may have a seizure today and another in a month but they are taking drugs all the time,” Ranganathan said.

“If there were a monitor to inform patients of a seizure, then they could take a dose of medication at that time alone.”

Many people already consider it hard to imagine life without a smartphone.

But the potential for smartphones to improve health and healthcare is just beginning to be realized.

Here are some examples:

My Epilepsy Diary is your self-management tool to help you record, track and manage your seizures and epilepsy.

The Diary lets you record your medical history, seizures, meds, side-effects, moods or other personal experiences.

You can track changes over time, keep records of your medications and create a Seizure Response Plan to share with your family, friends and health care team.

My Epilepsy Diary also helps you remember what to do — you can have reminders of when to take your drugs, when to refill a prescription, or when you have medical appointments or tests.

My Epilepsy Diary lets you print out reports or send them to others, including your health care team, electronically.

No more forgotten details.
No more complicated record keeping.
No more trouble remembering your medications.

My Epilepsy Diary makes managing your epilepsy, or your loved one’s epilepsy, fast and easy. (Free — For Apple products only.) http://www.epilepsy.com/get-help/my-epilepsy-diary

Seizure Tracker is a smartphone application that was developed by a parent of a child with epilepsy.

The program gives you the opportunity to log and track seizure activity, make appointments and follow a medication schedule.

The data is compiled into customized reports which include graphs for doctors and patients to assess.

It provides you with tools to help understand your seizures and enhance your communication with your care providers along with information on possible therapies.

Surveys and Polls can enhance your understanding of how you compare to others with epilepsy.

Customized reports include graphs comparing seizure activity and medication dosages.

Log and track seizure activity, appointments, and medication schedules through a simple calendar interface from your computer, Android or Apple device.

Free and easy to use online, anywhere. Simply click to set up a free, new account  https://www.seizuretracker.com/

Seizure Disorder Coach helps you know what to do when you suddenly find yourself in an emergency event that requires emergency seizure assistance.

By giving step-by-step, yes/no questions, Seizure Disorder Coach provides you with a Lay Rescuer-level set of instructions that help everyone from the trained to the untrained know how to give proper emergency seizure assistance.

Seizure Disorder Coach benefits:

Real-time, step-by-step instructions coaching through an emergency epileptic seizure situation (not just a reference guide).

One touch, step-by-step instructions through breathing and choking emergencies.

Real-time, audible step-by-step instructions for CPR rescue.

Real-time, audible pacing and breathing instructions during CP.

Nearest ER location finding assistance utilizing Google Maps (data/wifi connection required).

Emergency Intake Questionnaires for documenting key information for EMTs when they arrive on scene.

Emergency instructions stored on your Apple device, so you have access to step-by-step instructions any time. Free. http://resqrsoftware.com/seizure.php

Epdetect (Epilepsy Detector Application) is an accelerometer based mobile phone application that uses advanced signal processing to detect epileptic seizures.

It runs on most mobile phones that support SMS messaging, movement detection and GPS position location.

The addition of the seizure detection signal processing enables the phone to function as a wearable seizure detection system, with remote signalling to carers.

Epdetect monitors the wearers movements, distinguishing between normal movement and movement associated with a Tonic–Clonic seizure.

If a seizure is detected, Epdetect will contact and alert your care giver with your status and GPS position.

Compatible with Android devices. Free. http://www.epdetect.com/

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Resources:
http://www.bcepilepsy.com/blog/epilepsy-related-applications-for-smartphones.aspx
http://www.annalsoflongtermcare.com/content/cellphone-apps-may-help-those-epilepsy
http://www.epdetect.com/index.html
http://www.elsevier.com/atlas/story/people/theresanappforthat


9 Comments »

  1. “Rather than taking anti-epileptic drugs all of the time and suffering their cognitive side-effects, people might take those drugs only when a seizure is coming on.”

    I was also thinking of this since I have an aura, i can simply take my emergency pill Ativan when it happens, rather than taking pills everyday.

    Greenstone, the maker of Gabapentin that i had taken for like 2 yrs, stopped making the drug, then the pharmacy gave me some other brand and it was horrible. Made my stomach hurt and i did gain weight with it, just to aliviate the stomach pains. Just yesterday i picked up some other manufacturer, hope it will be as good as Greenstone was.

    I simply use a regular calendar to write down the seizures i have and just keep track of the time it happened. I used to keep more detailed post, but not anymore.

    Like

    Comment by Zolt — August 4, 2015 @ 12:43 PM

  2. I keep my meds by my toothbrush and the others by the fridge. To be honest, I’m not a tech kind of girl. (And my seizures are well controlled.)

    How’s the new med working?

    Like

    Comment by Phylis Feiner Johnson — August 4, 2015 @ 2:42 PM

  3. Thanks for asking Phylis, the new drug seems to be a lot better. But it’s still to early to say, but so far, i think it ‘s a winner!! Woo hoo!!

    For my emergency pill, Ativan, i have my easy to open containers around the house where in the past i’ve had seizures. I also have one in my car, just in case.

    One good thing with the gabapentin is that it still causes my seizures to happen in the mornings. Except when they switched me from Greenstone to the new brand, I had one during the day. It was a weird seizures, came on very slow and wasn’t as bad as the ones i’m used to.

    When was your last seizures? Mine was July 27.

    God bless,
    Zolt

    Like

    Comment by Zolt — August 5, 2015 @ 7:54 PM

  4. Glad to hear the new meds are working better. So we’re just back to the morning seizures.. 🙂

    Good idea for the Ativan.

    My last seizure was on June 9th, in the middle of the grocery store. When I came to, I kept on asking for my shoes! (Which had gone flying, along with the rest of me.)

    They asked if I was with anyone and I said: “Yes, my husband. He’s tall blonde and in the bathroom.” (???)

    Oh well.

    Like

    Comment by Phylis Feiner Johnson — August 6, 2015 @ 9:13 AM

  5. Reblogged this on cheerfulbiz.

    Like

    Comment by Veronique — August 24, 2015 @ 5:59 PM

  6. I like!

    Like

    Comment by Ron Ebbert — November 18, 2015 @ 7:34 AM

  7. Thanks Ron!

    Like

    Comment by Phylis Feiner Johnson — November 18, 2015 @ 8:48 AM

  8. Are there any apps for Windows phones ?

    Like

    Comment by Tom Parady Jr — April 9, 2017 @ 1:00 PM

    • It’s pretty tricky, but you can convert Seizure Tracker into Microsoft, if you want to badly enough.

      From Seizure Tracker: “Using the Seizure Tracker Data Download Tool —

      Files can be created in XML for Excel, XML or JSON formats.

      The XML for Excel file can be imported into MS Excel and currently includes a sheet with profile information and data export parameters along with a sheet listing out event information.”

      Sounds awfully complicated for us Microsoft folks.

      Meanwhile, the Epilepsy Foundation has “My Seizure Diary” which runs on IOS.

      Here’s their link:

      http://www.epilepsy.com/release/2016/3/epilepsy-foundation-launches-new-digital-web-tool-my-seizure-diary

      I hope this garbled mess helps!

      Like

      Comment by Phylis Feiner Johnson — April 10, 2017 @ 9:02 AM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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