Epilepsy Talk

Traumatic Brain Injury Support Groups | April 13, 2014

Facts:

TBI is the leading cause of death and disability for persons under 35 years of age.

It can happen without warning to people of all ages and all walks of life.

A Traumatic Brain Injury occurs when an outside force impacts the head hard enough to cause the brain to move within the skull or if the force causes the skull to break and directly hurts the brain.

A rapid acceleration and deceleration of the head can force the brain to move back and forth across the inside of the skull.

The stress from the rapid movements pulls apart nerve fibers and causes damage to brain tissue.

There are many causes of brain injury, including shaken baby syndrome, physical violence, automobile and motorcycle accidents, blunt force trauma, industrial and home accidents, sports injuries, strokes, aneurysms, encephalitis, anoxia, tumors, criminal assaults, alcohol, substance abuse and, of course, combat.

The brain is such a complex system, the effects of TBI vary enormously and profoundly from person to person. They consist of cognitive, physical disabilities, and emotional problems – which may compound each other.

Cognitive effects are more universal. They include short-term memory loss, inability to organize and process information, difficulty concentrating and problems with initiation and abstract thinking.

For an overview, go to http://www.bcftbi.org/about-tbi/facts.asp

General Support Groups

The Brain Injury Association of America’s nationwide network of chartered state affiliates provide direct support, information, resources, education and advocacy for individuals living with brain injury, their friends and family, professionals who provide research, treatment and services to the general public.

Brain Injury Association of America
http://www.biausa.org/index.htm
Traumatic Brain Injury Support Groups
http://www.bcftbi.org/tbi-resources/support-groups.asp
The Brain Injury Support Network Development Project Support Groups
http://tbisurvivorsnetwork.ning.com/page/support-groups-3

To find an affiliate near you, click on a state on the map provided.
http://www.biausa.org/state-affiliates.htm

State Groups

Arizona — Brain Injury Alliance Support Groups
http://biaaz.org/coping-with-brain-injury/support-groups
California — St. Jude Brain Injury Network Support Groups
http://tbioc.org/support-groups/
California — San Francisco — Traumatic Brain Injury Network
https://www.stmarysmedicalcenter.org/Classes_And_Events/199825
California — San Francisco — Traumatic Brain Injury Network
https://www.stmarysmedicalcenter.org/Classes_And_Events/199825
Chicago — Rehabilitation Institute Support Service
http://www.ric.org/resources/educational-services-support-groups/heads_up/
Colorado — The Brain Injury Alliance Support Groups
http://biacolorado.org/support/support-groups/
Connecticut — Brain Injury Alliance Support Groups
http://biact.homestead.com/Pages/RESOURCES.html
Florida — Brain Injury Association Support Group — Memorial Healthcare System
http://www.mhs.net/community/supportgroups/brain-injury-support-group.cfm
Georgia — Brain Injury Association Support Groups (Scroll down page to Support Groups — Listed by County)
http://www.braininjurygeorgia.org/support.htm
Illinois — The Brain Injury Association Support Groups
http://www.biail.org/support.htm
Illinois Traumatic Brain Injury Support Groups
http://www.equipforequality.org/programs/tbi/supportgroups.php
Indiana — Brain Injury Association Support
http://www.biai.org/Documents/2013%20BIAI%20Support%20Groups.pdf
Kansas and Greater Kansas City — Brain Injury Association Support Groups
http://biaks.org/brain-injury-support-kansas.htm
Kentucky — Brain Injury Alliance Support Groups
http://www.biak.us/support-groups
Louisiana — Brain Injury Association Support Groups (Scroll down to the middle of the page.)
http://www.biala.org/support-groups-1
Maryland — Brain Injury Association Support Groups
http://www.biamd.org/index.php?/Table/Brain-Injury-Support-Groups/
Massachusetts Brain Injury Association
http://www.biama.org/pdfs/SUPPORT%20GROUP%20LISTING%20%2008%2013.pdf
Missouri — Brain Injury Association Community Support Groups
http://www.biamo.org/SupportGroups.aspx
New Hampshire — Brain Injury Association Support Groups
http://www.bianh.org/pdf/SupportGroups.pdf
New Jersey — Brain Injury Alliance
http://bianj.org/support-groups
New York State — Brain Injury Association Support Groups
http://bianys.org/bianys-support-groups.htm
New York — North Shore — LIJ Epilepsy Center
http://www.northshorelij.com/cushing-neuroscience-institute/our-centers/traumatic-brain-injury-center-patients-support-groups
New York — Ulster County Support Group
http://nyconnects.ulstercountyny.gov/programB.php?cat_id=29&prog_id=111
Ohio — Brain Injury Association Support Groups
http://www.biaoh.org/whocontact.html
Oregon — Brain Injury Alliance — Support Groups
http://www.biaoregon.org/supportgrp.htm
Pennsylvania — Lehigh Valley Good Shepherd Rehabilitation — Support Groups
http://www.goodshepherdrehab.org/
Brain Injury Support Group for Teens
http://www.goodshepherdrehab.org/brain-injury-support-group-teens
Brain Trauma Support Group for Adults
http://www.goodshepherdrehab.org/brain-trauma-support-group-adult
South Carolina — Charleston — Trident Head Injury Support Group (THISG)
http://thisg.org/
Tennessee — Nashville — Trauma Survivors Network at Vanderbilt Hospital Support Groups
http://www.vanderbilthealth.com/traumasurvivors/24902?previewsession=1
Texas — Brain Injury Support Groups
http://www.hhsc.state.tx.us/hhsc_projects/abj/SupportGroups.shtml
Texas — Brain Injury Alliance Support Groups
http://www.texasbia.org/find-support-group
Vermont — Brain Injury Association Support Groups
http://www.biavt.org/index.php/coping-with-tbi/support-groups.html
Virginia — Brain Injury Association Support Groups
http://www.biav.net/virginia-support-groups.htm
West Virginia — TBI Support Groups
http://tbi.cedwvu.org/active-tbi-support-groups.php
Washington State — Adult Support Groups
http://www.braininjurywa.org/supportgroups.php
Washington State — Traumatic Brain Injury (TBI) Support Group
http://www.cascadecares.com/traumatic-brain-injury-support-group
Wisconsin — The Brain Injury Alliance Support Groups
http://www.biaw.org/support.htm

Web Sites — Resources — Traumatic Brain Injury —
http://www.bcftbi.org/tbi-resources.asp
Traumatic Brain Injury Support Group — Online
http://traumaticbraininjurysupport.org/
Traumatic Brain Injury Support Group — Online
https://www.facebook.com/pages/Traumatic-Brain-Injury-Support-Group/180684948672011

 


2 Comments »

  1. Hmm, would a brain tumor be considered as TBI?

    Like

    Comment by Zolt — April 14, 2014 @ 4:28 PM

  2. No, but you could get a brain tumor as a result of a TBI.

    This story might interest you…

    A Fallen Football Hero

    https://epilepsytalk.com/2012/12/05/a-fallen-football-hero/

    Like

    Comment by Phylis Feiner Johnson — April 14, 2014 @ 5:38 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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