Epilepsy Talk

Epilepsy — Applying for Social Security Disability Benefits — Straight from the Source | July 22, 2013

If you suffer from epilepsy and wish to qualify for Social Security Disability benefits, you must be able to prove that you meet the criteria of the Social Security Administration (SSA)’s Blue Book listing for the condition.

The Blue Book is a guideline created by the SSA for disability adjudicators to follow when approving or denying disability claims.

A copy of the Blue book can be found here: http://www.ssa.gov/disability/professionals/bluebook

If you can prove through medical documentation that you meet the criteria of a listing, it will increase your chances of receiving an approval of benefits during the initial stage of the application process.

In the case of epilepsy, your condition will fall under Section 11.02 or 11.03 of the Blue Book depending on which form of epilepsy you suffer from.

Section 11.02 addresses convulsive epilepsy while Section 11.03 addresses non-convulsive epilepsy.

Section 11.02 – Convulsive Epilepsy

In order to qualify under section 11.02 of the Blue Book, you must be able to prove that you suffer from a typical seizure pattern including all of the associated phenomena. The seizures must occur more frequently than once a month in spite of at least three months of prescribed treatment.

Section 11.03 – Nonconvulsive Epilepsy

In order to qualify under Section 11.03 of the Blue Book, you must prove that you suffer from petit mal, psychomotor or focal seizures that are documented by a typical seizure pattern.

These seizures must occur more than once per week despite three months of prescribed treatment.

You must also be able to prove that there are alterations of awareness or loss of consciousness and unconventional behaviour along with significant interference of activity during the day.

SSI and SSDI

Once the SSA has deemed you disabled, you must meet other criteria in order to qualify for one of the two available disability programs.

The two available disability programs include SSI (Supplemental Security Income) and SSDI (Social Security Disability Insurance).

Under the SSDI program, you must have earned enough work credits in order to qualify for benefits.

As a general rule, you must have worked for at least half of the time you have been able to work.

For example, if you are 24 years old, you should have been able to work for six years (between the ages of 18 and 24) and must have worked three of those six years in order to qualify.

If you have been able to work more than ten years, you must have worked five of the past ten years in order to qualify for SSDI benefits.

If you do not have enough work credits to qualify for SSDI benefits, you may be able to qualify for SSI benefits.

SSI is a needs-based program.

In order to qualify, your income cannot exceed $710 per month as an individual or $1,066 per month as a couple.

Your assets must also not exceed $2,000 as an individual or $3,000 as a couple.

How to Apply for Disability Benefits

To apply for disability benefits you can visit your local Social Security office or apply online at the SSA’s website (http://www.socialsecurity.gov/pgm/disability.htm).

When filling out the application paperwork, make sure you are as detailed as possible with your answers.

These answers will help the SSA determine whether or not you meet the disability requirements.

Also make sure you provide medical evidence proving the above-mentioned disability criteria.

Written statements from treating physicians will also weigh heavily on the outcome of your disability claim.

Article by Ram Meyyappan
Social Security Disability Help
For more information on applying for disability benefits with epilepsy, please visit: http://www.disability-benefits-help.org/disabling-conditions/epilepsy-and-social-security-disability
ram@ssd-help.org

Other articles of interest:

Secrets to Winning Your Social Security Claim   https://epilepsytalk.com/2011/08/11/secrets-to-winning-your-social-security-claim/

A Little-Known Benefit for Aging Veterans  https://epilepsytalk.com/2013/05/21/a-little-known-benefit-for-aging-veterans/

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59 Comments »

  1. THANKYOU! I AGREE 100% of all that said. MY PROBLEM-I am capable of WORKING-NO PROBLEM HERE,I WANT to CONTINUE WORKING,I WOULD WORK TILL I am 100,000 yrs old,I CANT STAND SITTING AROUND HOUSE. I have been offered jobs that are associated w/my CAREER/TRAINING-AUTO MECHANIC,I STILL HAVE ALL MY TOOLS/EQUIP. from when i WORKED as Mechanic. My Dr. filled out Medical Exemption Forms for me to continue working as mechanic-only HE SUBMITTED FORMS to my EMPLOYER INSTEAD. Tried explaining several times what Dr. did to Dr. but he just doesnt UNDERSTAND! No other Drs. in area that deal w/epilepsy.

    Like

    Comment by lckyedd — July 22, 2013 @ 12:04 PM

    • ED, Tell the receptionist (n a friendly manner), that you’re coming in to physically pick up your papers. (You may have to pay small fee.)

      As I said it’s your right under the US Information Act.

      If he/she does not cooperate, have your local EFA chapter intervene.

      They are all too familiar with the subject.

      Like

      Comment by Phylis Feiner Johnson — July 22, 2013 @ 12:51 PM

  2. Sometimes its the meds you take can put on ssd. I take 3 different meds and with the side effects

    Like

    Comment by Jack — July 22, 2013 @ 12:16 PM

    • Jack, could you explain how this works? Because Doug has a question about meds and SSD and I’m not sure if I gave him the correct answer.

      Like

      Comment by Phylis Feiner Johnson — July 24, 2013 @ 10:13 AM

      • At the end of the day,,, It ALL comes down to the “DOCTORS”, signing one “disable” or not.

        The rest is just bureaucratic wrestling, SHUFFLING PAPERS between SSA & the “disabled”.

        Like

        Comment by Gerrie — July 24, 2013 @ 9:37 PM

  3. I dont feel i need to be put on SSDisability. I can basically do all i did before but maybe just a little slower till i get used to all again. I am type of person who would rather work all time than not work-Still take Rests/Breaks. I used to work 2jobs while going to school to learn to become Mechanic,all w/no problems. was seizure free over 25yrs until new Dr. comes in,changes meds from Dilantin to Keppra;Keppra didnt agree w/me and caused seizure. Drive License recalled till seizure free. I needed Drive License to remain work as Auto Mechanic-KEEP MECHANIC LICENSES. Dr. filled out all the necessary paperwork for me to remain work,keep mechanic licenses. Only problem was Dr. sent copies of PAPERWORK to my Employer instead of the Dept. of Transp. who would have handled all. Papers were EXEMPTION PAPERS which would allow me to keep all Mechanic Licenses,Perform same work except not Drive. Since i no longer had valid Mechanic Licenses employer let me go. Tried to deny me unemployment saying i didnt want to do work. I appealed and won my right to collect Unemployment. Now that Unemployment done i apply for Disability-TURNED DOWN. I knew i would since i am very capable of performing same type work as before-only little slower. I just dont know where to go next?? Been offered AutoMechanic Jobs,but when i say how Licenses no valid-all changes. Here i am w/over $15,ooo in tools sitting in my Garage along w/toolbox. I could never get anything close to what i paid,even though all in TOP SHAPE. I am very much capable of doing all work as before but just a little slower-TILL I GET BACK TO DOING WHAT I DID BEFORE. I am at TOTAL LOSS as what to do/where to go now.??? ED

    Like

    Comment by lckyedd — July 22, 2013 @ 1:52 PM

  4. I think you should take your case either to your local EFA or the man himself, ram@ssd-help.org.

    He should be able to evaluate your situation.

    Like

    Comment by Phylis Feiner Johnson — July 22, 2013 @ 6:03 PM

  5. same happen to me as no’ 3 person writing worst was real allergic to kepra landed in hospital for 3days didn’t know what happened to me blood pressure wouldn’t come to normal it took me a year to get over kepra . I used to be on dillantin did fine but neurologist didn’t want to listen . finally am back on dillatin and doing ok so far

    Like

    Comment by jeannine — July 23, 2013 @ 10:45 AM

    • Hey EXACT SAME SITUATION-TAKEN off DILANTIN,PUT on KEPPRA-BANG,very 1st seizure in over 20+yrs. Lost career-OUT of WORK,UNABLE to COLLECT DISABILITY-DONT QUALIFY. NOW WHAT?? No INCOME but yet BILLS to PAY!! (nice thing is OWN HOME) Drop me a message,NICE TO FINALLY KNOW ANOTHER PERSON SAME EXPERIENCE,NOW NO-BODY WILL THINK I LYING!!! ED

      Like

      Comment by lckyedd — July 24, 2013 @ 8:31 AM

      • ok , was it STATE DISABILITY , OR SSI/D.. 2 different things , both you pay into , BUT , STATE DIS, is run by the state , through UI , must be on it for 12 mos./ 1 yr,… SSI/D.. is SSI { plus is 2} one is SSI/ R, other is SSI/D.. SOCIAL SECURITY , WILL TRY TO DO BOTH ! i have tried for 20 yrs . & depending , where you live at , too .. if you tried , even once .. dont give up either …its those drs that the SSI , put you through .. !! BEND OVER TOUCH YOUR TOES .. OR TAPPING A PEN / PENCIL { YUP this happen to my son who was in the military ! i would of told that DR , ” HEY DAMN IT , . THATS REALLY BOTHERSOME.. !!he got a lawyer , & had to go through VA , for the paper work .. { boy was that FUN .being he was under 30 yrs of age , also Mechanic in military , he cant stand more that 15 minutes , sit more than 15 mins , or walk more thats what his VA dr put down !! .}….but he finally got it ..

        as for bending over touching your toes , IT HAPPEN to my friend .. from what the SSI DRS , are going through is , ” IF YOU CAN DO THIS , YOU CAN WORK!!..{ this happen to my friend , when had her knee , worked on , bone on bone , hurt her back , hurt her knee on the job , thus , she warned me on this too ..
        heck after many times , i kept this in mind .. 8 yrs ago , had my drs write down i should , being i cant lift more than 3lbs .. reason , i had a seizure , injured my back , herniated disc &compression fracture.. there went my 25 yrs in retail .. , on top of this had hep/ c , due to meditcation i was on .. had to switch ,{ was on dilantin & mysoline ..}… ASAP!{ dilatin } so really watch your liver on this drug !!the levels will , show false poss..soo toxic , if really high , then , would be soo low as if your not taking it {?}, when you did !!
        went on keppra .. sure at first , had the side effects .. but over came that .. then came the weight lost .. didnt know what was going on .. ran back to drs .. had cancer ! .. this time , was an female issues .. long story .. the size of a softball .. i was on STATE DISABILITY.. SDI .. comes jan , my last , of my SDI , FILED FOR SSI/D .. due to my back , had to use a cane , feeling weak , had an appt , with those EVIL SSI/ DRS .. they asked me to , BEND OVER TAKE OFF MY SHOES , TOLD THEM may i have a chair ? they told me “BEND OVER , ” I WAS IRRATE ! , then told then ” OK , BUT , IF I FALL OVER I WILL HAVE YOUR LICENSE .. { MEDICAL THAT IS } she told me ” FOR GET IT .. ..{what she wanted was for me to take off my shoes so she could weigh me .} then asked me how much i weigh , told her ., then back to waiting rm , 10 min later the dr called me .. OMG , COULDNT UNDERSTAND HER LANGUAGE EITHER ! yup , she must of came over from a forign country .. Europe? Russia? , she asked me soo many questions , take off the sun glasses , why am i shaking , { sun glasses , is for , the sensitivity towards light {Photophobia,} , so i wear sun glasses , even at night , the shaking , heck , who knows .. could be from the meds i take .. that causes it , seizure meds arent the only meds i take either , its HBP MEDS { HIGH BLOOD PRESSURE } PAIN MEDS , FOR BACK , PLUS SEIZURE , … then told , me to walk a straight line , i had to use my cane . she told me ” NO , NO , CANE .. thinking WTF H , is she thinking of .. told her i have to use the cane , to stay stable on my feet .. but warning , ” IF YOU WANT ME TO , NOT USE ME CANE , I WILL FALL , ARE YOU WILLING TO PICK ME UP? & IF MY HUSBAND , HAS TO COME IN , & SEES ME ON THE FLOOR , I WILL ALSO , HAVE YOUR MEDICAL LICENSE .. she said forget it .. then asked me to close my eyes & touch my face , nose , squeeze her fingers .. then said , thats it .. came the court hearing , had a lady , from EMPLOYMENT OFFICE , mention that being , i had no other work skills , working in retail , for soo many yrs , i was granted SSI/D .. Its not , much , getting paid have to pay for meds ,{ REMEMBER , medical only pays 80%, you have to pay , 20%.. its best to either get another personal insurance to , help you out .. 10% is better than the 20 .. & also , make sure , you have the drs notes .. no matter what , ask, if you can have a seizure train dog .. to help you out ..

        Like

        Comment by Cathy Eliza Flowers — July 29, 2013 @ 12:17 PM

      • State SSI. I can pretty much do all i did before but not as quick,till get used to being off BUTT again. Guess i will just have to ask good ole Dr. to add my name to his Bank Account,this way i can have $$$ come in. ED

        Like

        Comment by Ed Hricak — July 31, 2013 @ 8:42 AM

  6. Hi Jeannine,

    For some docs, Keppra seems to be the first line of action these days. But certainly not for all patients.

    I’m glad and proud that you stood up for yourself, because here’s other people’ s experiences:

    Keppra – What People Are Saying…

    https://epilepsytalk.com/2010/10/15/keppra-%E2%80%93-what-people-are-saying%E2%80%A6-2/

    Like

    Comment by Phylis Feiner Johnson — July 23, 2013 @ 3:45 PM

  7. Phylis, maybe I missed it, but I wondered if there was any info on long term issues caused by meds and disability benefits? I don’t need them or want them, but I fear what could happen over the long haul.

    I don’t have seizures often enough to qualify based on your article, and hope that always stays the case, but if someone had cognitive issues, for example, from long term use of epilepsy drugs, would they be able to qualify?

    Like

    Comment by Doug — July 24, 2013 @ 12:36 AM

    • Here Problem: I am 100000000% capable working,i wish to return to my CAREER as an AUTO MECHANIC. My IDIOT Dr. filled out forms for me to remain working and keep Mechanic Licenses-I was soooo HAPPY. But like an idiot my Dr. is,he sent all the PAPERWORK to keep Mechanic Licenses to EMPLOYER instead of Dept. of Trans.,info. along w/ADDRESS is Listed at TOP of FORMS WHERE to RETURN PAPERS. Guess my Dr. cant read/understand simple instructions-he sent PAPERWORK to EMPLOYER instead of Dept. of Trans. Since Dept.of Trans. never recieved EXEMPTION FORMS for me to keep Mechanic Licenses and Remain WORKING my Employer hired an 18yr old straight from HIGH SCHOOL,no previous EXPERIENCE,NO LICENSES etc. OUT i went after 15+ yrs w/Employer. Other than taking vacation days 1day @time i very seldom,if at all,missed work. Employer/Boss would go away Fri. and leave me to run SHOP myself,no other employees were working. I did regular Mechanic work,i billed out customers-these bills already made up,i just cashed them out. My Boss trusted me this much;when he would go away these Fridays and trust me w/Business i was also left $$$$ and all Inspection Stickers. I had keys to open up,given alarm code to turn alarm off upon entering/turn alarm on/set when leaving Fri. I never STOLE anything. Another nice thing-I WAS ONLY AUTO MECHANIC in the AREA that had EMISSION REPAIR LICENSE-if your car failed Emission Test you are not ALLOWED a State Inspection Sticker-even if your vehicle was passing-until vehicle passed Emissions. If after 3rd attempt your vehicle still didnt pass,repair work was done to try to help pass you were issued a WAIVER. Waiver issues an Emission Sticker and allows a State Sticker to be issued-only 1yr. EXACT work to be done next time. I just cant get Dr. to re-fill out forms. Also same w/Drive License-ALL REQUIREMENTS met-remained seizure free-to have Drive License Re-instated,only Dr. needed to fill out&SIGN form-HE JUST TOO LAZY TO DO!! Now what?? Cant work,cant Drive-SO HOW am I SUPPOSED to PAY BILLS etc.?? Contacted Epilepsy Foundation for ASSISTANCE several TIMES-STILL EXACT SAME SITUATION/PLACE as from BEGINNING??? ED

      Like

      Comment by lckyedd — July 24, 2013 @ 8:25 AM

    • Doug,

      RE: Social Security for drug side-effects or “damage”

      Unfortunately, I think the answer is no.

      Drugs can screw with your brain, but I don’t think any doc is going to own up to that.

      And the doctor’s records are the most important part of the Social Security merry-go-round. 😦

      Like

      Comment by Phylis Feiner Johnson — July 24, 2013 @ 9:53 AM

  8. Ed, perhaps this article can help you:

    FREE Legal Resources

    https://epilepsytalk.com/2010/09/19/free-legal-resources/

    Like

    Comment by Phylis Feiner Johnson — July 24, 2013 @ 10:06 AM

    • Hi PHYLIS,i MUST SAY THIS-YOU are #1,i dont know where the **** alot of us would be if you did not start this website-THANKYOU VERY MUCH.  I appologize if i may have said something inconvenient.  ED   THANKYOU PHYLIS!

      ________________________________

      Like

      Comment by lckyedd — July 24, 2013 @ 11:04 AM

  9. Doug,

    Apparently Jack (comment 2) has had success getting SSD because of drug disabilities.

    “Sometimes its the meds you take can put on ssd. I take 3 different meds and with the side effects.”

    Perhaps you should contact him, in reply to his post.

    I said I possibly gave you wrong information — and asked how he did it.

    Hopefully, we’ll get a reply.

    Like

    Comment by Phylis Feiner Johnson — July 24, 2013 @ 10:30 AM

  10. If worse comes to worse, anyone can contact Ram at ram@ssd-help.org

    Like

    Comment by Phylis Feiner Johnson — July 24, 2013 @ 10:33 AM

  11. WHAT are you SUPPOSED to DO-DONT QUALIFY for DISABILITY,YOUR **** Dr. wont RELEASE YOU to go BACK to WORK?? WHO is going to PAY BILLS?? I THINK I AM GOING to START FORWARDING ALL BILLS to DR. ED

    Like

    Comment by lckyedd — July 24, 2013 @ 11:08 AM

  12. Ed,

    See comment #18.

    FREE Legal Resources

    https://epilepsytalk.com/2010/09/19/free-legal-resources/

    Like

    Comment by Phylis Feiner Johnson — July 24, 2013 @ 11:22 AM

  13. As Gerrie says: “At the end of the day,,, It ALL comes down to the “DOCTORS”, signing one “disable” or not.
    The rest is just bureaucratic wrestling, SHUFFLING PAPERS between SSA & the “disabled”.

    Id like to say I don’t believe it.

    But I’d also like to see people wo are disabled in any way, get the assistance they need (to survive.)

    The question is: who’s holding the cards and who pays?

    And how do you get what you NEED?

    Like

    Comment by Phylis Feiner Johnson — July 25, 2013 @ 8:35 AM

    • Hi Phylis,Ed back again. I have read alot of the posts being left and alot of them say DILANTIN #1. As i mentioned,I DONT FEEL DISABLED in ANYWAY SHAPE or FORM. I was doing very very good on Dilantin-99.99% until NEW Dr. switched me over to Keppra,thats when 1st seizure occurred in very long time. As of leaving reply,i am still w/my Dilantin but I NOT WORK-my career as Licensed Certified Mechanic over with. All i can really say-THANKYOU DR. for switching me to keppra,causing 1st seizure in very long time. TODAY-i am not working,not Driving-DISABILITY i do not qualify for. It was determined that since i can pretty much do all i did before becoming unemployed-I am not DISABLED. Been trying to get Epilepsy Foundation to assist,but so far NOONE has. PLEASE PLEASE KEEP THIS WEBPAGE RUNNING,HELPFUL. ED

      Like

      Comment by lckyedd — July 25, 2013 @ 9:05 AM

  14. Ed,

    I have given you all the information I have.

    Like

    Comment by Phylis Feiner Johnson — July 25, 2013 @ 9:15 AM

    • I know,sorry for asking again. YOU are #1 here. ED

      Like

      Comment by lckyedd — July 25, 2013 @ 9:42 AM

  15. Hey Ed,

    How long ago was your last seizure? Also where do you live? Most states will give you back your licence in 6 months or shorter. In California, i got mine back in 3 months after a crash on the highway. Grand mal in the middle of rush hour traffic. The angels were watching over me that day. And a few other days as well. 🙂

    Also if your doc sent the paperwork to your old employer, can he just readdress it the correct place?

    If worst gets to worst, maybe look for some other type of job in the mechanical field. Like manager at a dealership for mechanics doing the emissions. Or a manager in a parts place.

    Good luck,

    Zolt

    Like

    Comment by Zolt — July 26, 2013 @ 2:46 PM

    • You got to love this site,,,,

      “In California, I got mine back in 3 months after a crash on the highway. Grand mal in the middle of rush hour traffic”.

      God Zolt,
      Where in the hell have I been all this years,,, ???

      Just like ED,,, The Doctors reported my seizures to state authorities, suspending my DL immediately. I’ve given up my DL, long time ago.

      Thanks Zolt,, Time to get back to action, rattling few feathers,,, starting from my Doctors Office.

      ED,,, Let’s go raise hell, defending our rights !!!
      BTW: It would be for your best interest if you can write a letter to your Congressman & Senator to get involved in your behalf (that’s what your tax-dollars is for).
      Good Luck !!!

      Like

      Comment by Gerrie — July 26, 2013 @ 6:31 PM

      • YOU ROCK GERRIE!!!

        Like

        Comment by Phylis Feiner Johnson — July 26, 2013 @ 8:03 PM

      • Contacted Senator in my area for assistance,he pretty much got stuck same PLACE i did-DR. Dr. wont clear me/release any info. even to STATE OFFICIAL-?? I dont qualify for Disability,i cant work,cant drive-WHO THE HELL is SUPPOSED TO PAY my BILLS,BUY ME FOOD,etc. ??

        Like

        Comment by lckyedd — August 6, 2013 @ 11:59 AM

      • Wrote letter to Govt. official in my area/town. Stuck in exact same spot as me-DR. wont release info. on what going on,why license wont be restored. Now i am stuck in rut,guess i will have to contact our good ole pres.-Baraack;anybody know his phone#(cell#)/or #at WHITE HOUSE?? Ed

        Like

        Comment by lckyedd — August 6, 2013 @ 12:04 PM

      • You are going to LOVE this: I contacted the MAYOR,the MAYOR HIMSELF,of the town i live in hoping to get assistance,as reccommended-HE DOESNT WANT TO GET INVOLVED!!   What next,our Beloved President,i think he would get up off his ass and come down to my house,take me out for a wonderful lunch/Dinner-or Breakfast-mmmmm,cant wait. Big question here would be who treats who??  Cmon,this lovely country we live in-I am sure i would get stuck PAYING!!  Nobody wants to get involved w/assisting me!!   Ed

        ________________________________

        Like

        Comment by lckyedd — August 7, 2013 @ 8:14 AM

    • THANKYOU for REPLY. Last SEIZURE several years ago,this when Dr. switch me from DILANTIN-LOMG TERM DRUG WHICH KEPT ME SEIZURE FREE-to Keppra which caused SEIZURE after few doses. Tried explaining to Dr. what go on but he no listen. I went back to DILANTIN myself,REMAINED SEIZURE FREE. Tried applying for different type jobs but still #1 thing remains-NO DRIVE LICENSE. Been offered several Auto Mechanic Jobs but had to turn down since no Work(inspection/emission)Licenses. Dr. filled out paperwork to remain work as Mechanic,Keep work Licenses-like an idiot he sent all paperwork to Employer instead DMV. Tried explaining what happen-NOBODY seem to LISTEN,CARE. The only PEOPLE that really care are THOSE on this WebSite,we all stickup for each other. THANKYOU ED

      Like

      Comment by Ed Hricak — July 29, 2013 @ 9:20 AM

      • EXCELLENT IDEA ED,,, “Guess i will just have to ask good ole Dr. to add my name to his Bank Account,this way i can have $$$ come in.”

        Fantastic preposition.

        Listen ED,
        The best way to cut off the SSA/SSI bureaucratic nightmare is get your Congressman/Woman or Senator involve on your behalf.

        Like

        Comment by Gerrie — July 31, 2013 @ 5:53 PM

      • Hi Phyllis,i understand what you are telling me,i TRUST YOU 100% and want say THANKYOU. Believe it or not,i already did contact my local Senator for assistance-i got nowhere;i have been calling back,leave messages-still get nowhere,nobody even calls me back. I have requested a NEW DR.,when i go in i am taking all Paperwork given me saying it is ok to remain working as Mechanic,even copies of Exemption Forms allowing me to remain an Inspection Mechanic. I will keep you informed. THANKYOU VERY MUCH for all YOUR KINDNESS. ED

        Like

        Comment by Ed Hricak — August 1, 2013 @ 9:43 AM

      • Ed, with the sen, or congress ppl , check all of them , who are for , disabilty ppl seniors , disability rights , { also dont forget their going on their months long vaca too .. may , want to also try legal aids too who work for disabilty , every state has one .. good luck

        Like

        Comment by Cathy Eliza Flowers — August 1, 2013 @ 9:48 AM

      • Phyliss,would be able to assist me,have been trying to contact my Local Senator concerning my issues/problems i am facing w/epilepsy? When i try to contact them OUTLOOK EXPRESS comes up as email service to send email with,my browser doesnt accept outlook express,i use google/verizon.  Be able to assist me w/this??  I so much want to take your advice.   THANKYOU   ED

        ________________________________

        Like

        Comment by lckyedd — August 4, 2013 @ 2:00 PM

      • ED, see if they are on facebook or any social media , ie Twitter , linkedin*( think thats the spelling ] see if you can send a message through that .,.

        Like

        Comment by Cathy Eliza Flowers — August 5, 2013 @ 8:00 AM

      • They do not want to get involved-some fantastic country we live in!!

        Like

        Comment by lckyedd — August 6, 2013 @ 12:09 PM

  16. on the DL, heard alot of issues requarding them, from what i have learn BEFORE , GETTING ONE , C, DMV , gives a 3 PAGE LETTER TO YOU , MUST GIVE TO DR , THE DR THEN GIVES IT TO / SENDS TO C DMV.. the letter contains , what meds your on, hows your seizures , doing ,exc.. many asked me WHY NOT DRIVE .. so i called CA DMV .. talked to someone who handles the license on those with disabilties , such as diabeties , seizures ” E” .. i asked these questions :” ok had E seizures for over 45 yrs , past drivers training , test 100%, but , always , had seizures , with out any warnings.. now my question to you what if , i had one while driving , then hit a person , injured , / death occured , what happens ,,? CA DMV , RESPONED ” well , you can be sued for medical bills of the other person , or would have to pay , for the funeral , ” plus , if it was a fraud , of not , putting that you put it down on the DMV RECORDS , POSSIBLE JAIL TIME, TOO ..this could go up to 1-2 yrs .. this guy also mention , depending who the person is , could be a lawyer , you hit , sues you for everything you have , being now , he cant work! … then , theres a mother to be , walking her 3 yr old to the park , you hit the mom , injuring her , but she has trouble , with pre birth , as for the 3 yr old , she died right there .. ” this really , made me think on ” do i really want to drive ? sure my seizures are under control, BUT , are they really ?!? { really , havent had one , in 8 yrs } when on other drugs , happened every month , or at end of my last seizure being a yr.. now on a drug , really good .. but , i always think “WHAT IF , TODAY , I HAVE A SEIZURE ? “WHAT IF I ….. nah .. not taking a chance with that .. nor , losing my home , or items , i recd ..
    ALSO being also in calif , they can do blood work , urine test , to see what meds you are on too , if poss, you can be charged also with DWI.. { this also goes , for drugs OTC .. } .. few yrs ago , a guy , had a seizure , hit a parent on vacation from Europe , hit & killed his 3 / 4 yr old daughter , injured him too { never filed with his dr either }.. broken arm , sued the driver , driver lost his license , also , his home .. another one , just brought a car , she , had a seizure , driving on HIGHWAY 50 .. right into the cliff..she was killed , she too never filed with dr , nor told DMV either { a car dealer ship told my husband & myself this ..
    heres one thing , too the many reasons why many drs dont really , want to fill out the forms they are afraid of any malpractice suit , by saying , you are on these meds , & controlled by meds ,{ dmv , & also , my drs , told me this .. } heres another thing too , being pot is also an issues , { many , are thinking it will help , in seizures , if stopped , for any reason , they can also do blood work , charge you , with DWI , LOST OF LICENSE .. even the state of CO , was thinking bout this .. still in courts ..

    Like

    Comment by Cathy Eliza Flowers — July 27, 2013 @ 11:39 AM

  17. Cathy, you had epilepsy and CANCER and all they cared about was you walking across the floor without a cane.

    THAT IS PERVERSE!

    Good for you for advocating for yourself, threatening to report them and have their medical license revoked.

    I’m sure that got there attention!

    Cathy, you’re a brave example to us all.

    Like

    Comment by Phylis Feiner Johnson — July 29, 2013 @ 12:54 PM

    • yes i did .. one thing many , esp my drs which treat me , stand up to them . even , after i recd the ssi/d , told my mom , she came out & mention after all these yrs , what happen , i told her stood up to them.. { sorry it was long , but , had to tell my story .. hope many , who gives up , on it , { the system } wont ,..stand up & fight for whats theirs

      Like

      Comment by Cathy Eliza Flowers — July 29, 2013 @ 1:49 PM

    • I was seizure free over 30+yrs until new Dr. came in,oe Retire after 30+yrs. He was sooo kind/helpful,helped me start new career;Dr was right by side when my Mom passed away,kept checking up,seeing if i need anything. New Dr. come by,switch me from Dilantin to Keppra-SEIZURE! As of yet,NO WORK,NO COLLECT SS,just sit home go crazy! ED

      Like

      Comment by Ed Hricak — July 31, 2013 @ 8:35 AM

  18. You are correct. It IS your legal right.

    Maybe this link will help:

    Social Security Claims — Winning Secrets

    https://epilepsytalk.com/2011/08/11/secrets-to-winning-your-social-security-claim/

    Like

    Comment by Phylis Feiner Johnson — July 29, 2013 @ 2:12 PM

  19. Ed, to find your local government officials, simply go to
    http://capwiz.com/efa/dbq/officials/.

    Key in your zip code, and you will find the names of ALL of your elected officials.

    You’ll find “Contact” information on the top of the page.

    CALL them, don’t email, because the email will go directly into the “spam” file. (I know this from experience.)

    Or else, arrange an appointment with them and bring all of your papers.

    Like

    Comment by Phylis Feiner Johnson — August 4, 2013 @ 3:01 PM

    • Contacted govt. official,they are stuck in same exact spot-DR.-wont release info. about anything.   Ed

      ________________________________

      Like

      Comment by lckyedd — August 6, 2013 @ 12:07 PM

    • hi Phylis,you will love this: I called the Local Goverment-MAYOR-in city i live in to see about getting assistance-HIS REPLY:I DONT WANT TO GET INVOLVED!! Guess i will need to contact man himself-that is if he says he really is-about getting assistance. I dont know what kind of world we live in. I paid disability insurance/coverage-was part of taxes taken out of pay when i was working,to cover me in case i couldnt work anymore. Now i am not even entitled to it. Some world we live in. Ed

      Like

      Comment by Ed Hricak — August 7, 2013 @ 11:22 AM

      • OMG , ED… i would make , sure if he is running again for 2nd term , to either show up with a sign , { if he was for disabilty rights } that he is not .. i get tired of these goverment ,fools stating they are for rights of the disabiled , then lies ….try legal aid .. to help ..

        Like

        Comment by Cathy Eliza Flowers — August 7, 2013 @ 11:35 AM

      • ED,
        Having tried your best to resolve the problem with patience, reasonable time & due process, CUT THE CHASE, drag the corrupt system to court.

        Contact a Lawyer who would represent your BEST interest for FREE & shake your Doctor, the bureaucrats & politicians,,, to respond immediately, before pursuing further legal litigation for your CIVIL RIGHTS VIOLATIONS in court of law.

        Ed,
        Contact The Lawyers’ Committee for Civil Rights

        http://www.lawyerscommittee.org

        KEEP FIGHTING THE CORRUPT SYSTEM.

        Wishing you all the best.

        Like

        Comment by Gerrie — August 7, 2013 @ 6:29 PM

      • Ed,,, Try LEGAL AID FOR FREE & The Lawyers’ Committee for Civil Rights champions the legal rights of people of color, poor people, immigrants and refugees, with a special commitment to …

        http://www.lccr.com

        Like

        Comment by Gerrie — August 7, 2013 @ 6:37 PM

  20. Call the President

    PHONE NUMBERS

    Comments: 202-456-1111
    Switchboard: 202-456-1414

    Write a letter to the President

    Here are a few simple things you can do to make sure your message gets to the White House as quickly as possible.

    1. If possible, email us! This is the fastest way to get your message to President Obama.

    2. If you write a letter, please consider typing it on an 8 1/2 by 11 inch sheet of paper. If you hand-write your letter, please consider using pen and writing as neatly as possible.

    3. Please include your return address on your letter as well as your envelope. If you have an email address, please consider including that as well.

    4. And finally, be sure to include the full address of the White House to make sure your message gets to us as quickly and directly as possible:

    The White House
    1600 Pennsylvania Avenue NW
    Washington, DC 20500

    Like

    Comment by Phylis Feiner Johnson — August 6, 2013 @ 12:53 PM

  21. Are the rules different if I am applying for a dependent child (under 18 years old) who has epilepsy?

    Like

    Comment by Michelle — August 21, 2013 @ 6:31 PM

  22. I honestly don’t know. I would suggest you contact Ram Meyyappan — Social Security Disability Help directly. ram@ssd-help.org

    Like

    Comment by Phylis Feiner Johnson — August 21, 2013 @ 7:18 PM

  23. My daughter been having seizures since she was 2, she is now going on 5 they occur like every three months apart. I applied for ssi but she was denied. Is there anyway she could be awarded benefits from social security?

    Like

    Comment by Tiffany Griffin — November 14, 2016 @ 4:08 PM

    • Tiffany , get your daughters pedi dr { nuro & pedi } to write letters , to SSI /D, you may , also , if necessary see if your congressman / woman in your area , have a heart for those with disabilities .. { i really dont do this , but sometimes it helps ..i know ours in Sacramento does , also help many vets .. } .. but with SSI , you , have 3 tries , with them , then their drs , would test her/ him , just keep on filing appeals with them .. & must be with in that 60 day periods .. also , bring in any school work , teachers reports , if shes in Special Ed , also get the schools report on what grade level she is at .. also , could , be on whos working too , too much money bring home , may want to check the award / denied letter from SSI ..sometimes , they go on what each parent , brings home , must be in the states COLA stats .. heres what we had to deal with , being both my husband & myself on ssi/d , we wanted to go on medi-cal .. being , both of us , made over a certain amount , { 950.00 } we couldnt get medi-cal , we would have to either be separated ,or divorced , then , we could get it , but , we would of hads to pay a Share of Cost .. which was 1250.00 .. which was how much my husband got from his SSI/d .. i yelled at the judge telling him , thats insane ,because housing alone is outrageous , just in California .. so may , either work part time , if possible .. let me know on what happens & check the denial letter again .. reapply again too .. Take care Cathy

      Like

      Comment by Cathy Flowers — November 14, 2016 @ 7:11 PM

  24. The only thing I know of is Social Security Benefits for Children with Disabilities.

    Here’s the link:

    https://www.ssa.gov/pubs/EN-05-10026.pdf

    Like

    Comment by Phylis Feiner Johnson — November 14, 2016 @ 5:27 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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