Epilepsy Talk

What were your most formative moments? | April 21, 2013

For me, it was three different stages, ages and issues…

1. Growing into my own skin…

Being a pre-teen or a teenager is, to say the least, no picnic. Add the layer of epilepsy on top of it and you’ve got a disaster waiting to happen.

But once I started to mature and grow more comfortable in my own skin, I could accept who I was — and that epilepsy was part of that.

2. Going from “ugly duckling” to “swan”…

Every day of my life, my beautiful mother told me (or reminded me) how fat and ugly I was.

Well, yes. I was quite the chubbette at ten. But, by fourteen years old, I was 5 feet, 10 inches and 125 pounds with long, long hair (which I lost, thanks to Dilantin).

I think you get the picture. Unfortunately, I didn’t, for decades.

3. The biggest discovery and life-changer was knowing I was worthy of love…

Lots of people — family included — talked the talk. But they didn’t walk the walk. Especially when old friend epilepsy stepped in.

But there were those loving, loyal few who filled my life with joy. And made me feel beautiful — all over.

And then came Arthur. A flaming seizure on our first “date” and wedding bells 366 days later. He is my friend, my partner, my love…still 34 years later.

And they all lived happily ever after.

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  1. when I started having a seizure one night that went on and on. my wife finally called an ambulance. I came to a little before the ambulance arrived, but it was a REAL wake up call!


    Comment by Alan Bishop — April 23, 2013 @ 6:27 PM

  2. I know literally — and figurative — how you feel!


    Comment by Phylis Feiner Johnson — April 23, 2013 @ 6:53 PM

  3. […] via What were your most formative moments? | Epilepsy Talk. […]


    Pingback by What were your most formative moments? | Epilepsy Talk | Hey Sweetheart, Get Me Rewrite! — April 25, 2013 @ 8:03 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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