Epilepsy Talk

Great Epilepsy Alert Jewelry | April 8, 2013

Medical Alert jewelry goes back more than 50 years, when simple metal bracelets and necklaces noted a wearer’s medical condition.  It was a great idea to help emergency personnel provide faster treatment. But as smart as the idea was, some people were less than enthusiastic to wear them because they were was so downright unattractive.

Now there are plenty of great looking alternatives, for example, you’ll find some very cool jewelry at:

Gina Tonella https://www.etsy.com/listing/851343630/medical-id-charm-bracelet-personalized?ref=shop_home_recs_1&pro=1&frs=1, pretty personalized charm bracelets, with a heart charm and your choice of discs to indicate your condition.

Sticky Jewelry http://www.stickyj.com/ has cool Pandora style bracelets, beaded bracelets, bangles and lots of fashion forward medical alert jewelry.

Lauren’s Hope   http://www.laurenshope.com/category/87/womens-medical-alert-jewelry has medical ID jewelry ranging  from casual to elegant…bracelets, necklaces, ankle bracelets…you can even create your own personalized, custom design.

The bottom line?  You don’t have to sacrifice style for safety!

However, it’s important to note that many first responders are instructed NOT to go into your purse or wallet. (It’s a privacy issue.) So, if you’re wearing something they can’t identify, it’s a moot point.

Also make sure you’ve assigned a Power of Attorney. I know it sounds scary but if you’re out cold, there’s not much you can tell them about yourself.

With that in mind, here’s some important information about the Medical Alert Foundation. http://www.medicalert.org/ 

Medics recognize it and you can change your information, when needed. (Like if your meds change.) They also know whom to contact, especially if you end up in the hospital. The price for membership is just $30 a year. And if you have an “Advance Directive,” they will include it with your information — FREE.

Another life-saving option is the Medical Text ID  https://www.hopepaige.com/text-id.aspx a powerful Medical ID in case of emergency. It assigns a unique personal identification number (PIN) that is displayed on a wallet card, key chain, sticker or snap-on device that can be worn on clothing. The PIN is linked to an online account that you can set up on your secure iB Web site. Your online account has information about who you are, what medications and allergies you have and up to ten emergency contacts.

A new and clever entry is SquID Squares. SquIDs connect to to your online medical profile and optionally alert emergency contacts by text and/or by email. An EMT or medical care provider can access your medical profile by scanning the QR on the front of the SquID with one of the thousands of FREE apps or by going to the URL found on the back of the SquID. The subscription to the online medical profile is FREE for life. No monthly or yearly fees, ever! Myidsquare.com/products/squid-squares

And if it’s kid’s medical alert jewelry you’re looking for, go to: Kid’s Medical Alert Jewelry That’s Functional and Fun https://epilepsytalk.com/2012/07/25/kids-medical-alert-bracelets-that-are-fun-and-functional/

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  1. Hi Phylis, have you seen the new MedicAlert jewelry. They have some very stylish jewelry. There are even sports bands that have the emblem but do not look like a Medic Alert. They are though.

    I hope you will look up the new jewelry that MedicAlert has.

    Liked by 1 person

    Comment by Ruth — April 9, 2013 @ 12:34 PM

  2. I read the whole article that you wrote and noticed it there. I would not change Medic Alert for any of the others.I have looked them all up and have seen their jewlry before. A lot of them are flimsy and would break during a seizure.

    Hope this finds you feeling well.

    Liked by 1 person

    Comment by Ruth — April 9, 2013 @ 1:57 PM

  3. Thanks for your advice Ruth.

    Right now, I’m getting over a concussion! 😦


    Comment by Phylis Feiner Johnson — April 9, 2013 @ 2:34 PM

  4. I am sorry to hear that you have a concussion. What happpened? Did you fall down during a seizure?

    Take care,

    Liked by 1 person

    Comment by Ruth — April 9, 2013 @ 7:38 PM

    • No, the fall was my fault. Positively stupid.

      Walking in the rain in COWBOY boots (no traction) over a closed steel grate.

      Boy, did I pay for my carelessness. Tomorrow I go to the internist, who’s been out of the loop for a while…

      Thanks for your caring, Ruth. You’re always so thoughtful.


      Comment by Phylis Feiner Johnson — April 9, 2013 @ 10:50 PM

  5. Let me know what the doctor says.

    I see that epilepsytalk has their own jewelry for children.

    I like you, as a friend, Phylis. Friends naturally care for friends.

    I have a new email address. My “live” one, I cannot get into. finders12336@lyahoo.com

    Liked by 1 person

    Comment by Ruth — April 10, 2013 @ 7:02 AM

  6. Thanks for the e-mail update.

    I figured it was important for kids to have their own style of medical alert jewelry that’s “hip” to them. 🙂


    Comment by Phylis Feiner Johnson — April 10, 2013 @ 9:23 AM

  7. What’s “hip” nowadays?

    Liked by 1 person

    Comment by Ruth — April 10, 2013 @ 9:43 AM

  8. Reblogged this on Hey Sweetheart, Get Me Rewrite! and commented:
    An excellent blog on Living With Epilepsy from a very dear friend.

    Liked by 1 person

    Comment by Terry Irving — April 25, 2013 @ 2:04 PM

  9. Hi Terry, I take it that Phylis is your very dear friend. I went to your website and when I pressed on Read More, it sent me here. I did not comment!!

    Phylis, are you his dear friend? Did you give him permission to reblog your post? Just out of curiosity.

    It is true Phylis that a lot of the alternative jewelry is popular nowadays.

    Liked by 1 person

    Comment by Ruth — April 25, 2013 @ 6:32 PM

  10. Terry is one of Arthur’s best friends from HIGH SCHOOL.

    He was one of the first friends of Arthur’s that I met before I was married.

    He’s a true blue, wonderful, love of a person.

    And VERY talented.

    He was a producer for ABC among other things.

    I consider it an HONOR that he reblogged my post.


    Comment by Phylis Feiner Johnson — April 25, 2013 @ 6:38 PM

  11. Hi Phylis, I am glad that you and Arthur have such a good friend. Friends are hard to find.

    Liked by 1 person

    Comment by Ruth — April 25, 2013 @ 8:25 PM

  12. Have you heard of Embrace! It’s a band that works through phone charting siezures. And alerts someone when you have one

    Liked by 1 person

    Comment by jennyme306 — January 14, 2015 @ 1:00 PM

  13. Yes. It sounds and looks fantastic. But it’s still in the funding “indie go-go” stage and won’t be available until July (I think) firstly to investors. 😦

    But have you heard about the “Smart Phone”?

    It’s a motion detecting and alerting wristwatch that can detect seizures and alert caregivers within seven to 10 seconds!

    The device is a wristwatch which has a GPS module and a proprietary accelerometer/gyroscopic sensor inside to detect the excessive and repeated motions that happen during Generalized Tonic-Clonic seizures and some types of Myoclonic (grand mal) seizures.

    It then records the time, duration and location of the occurrences.

    Automatic text message and phone call alerts are sent via Bluetooth to an android cell phone (an iPhone version is in the works) of one or two designated family members or caregivers.

    And you can also summon help with a simple push of a “Help” button.

    The SmartWatch — A New Type of Seizure Monitor!




    Comment by Phylis Feiner Johnson — January 14, 2015 @ 1:11 PM

  14. It is so hard to get one because of the cost

    Liked by 1 person

    Comment by Donna gilson — January 28, 2019 @ 3:49 PM

  15. Most epilepsy patients being on disability income & constraining budget, shouldn’t Medicare & the insurance agencies cover the cost of this desperately needed alert bracelets many patients should have like their prescription drugs?

    Liked by 1 person

    Comment by BahreNegash Eritrea — December 28, 2019 @ 10:51 PM

  16. I would like to find a better bracelet for my VNS magnet. Perhaps one that say’s “This is not an Apple watch” you have no idea how many times I’ve been asked that. One with “Epilepsy” and “check wallet card” would be perfect.

    Liked by 1 person

    Comment by Donna Jones — December 26, 2020 @ 2:04 PM

    • Most of the bracelets described can be inscribed with the message of your choice.

      However, not all EMTs are allowed to go through peoples’ personal possessions. Like your purse.


      Comment by Phylis Feiner Johnson — December 26, 2020 @ 4:47 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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