Epilepsy Talk

No-Cost or Low-Cost Drugs and Patient Assistance Programs | May 23, 2012

Today, things are constantly changing. Especially when it comes to epilepsy medications and resources.

Some companies have expanded their programs or even offer new ones. Others have cut their funds, and sadly others have ceased to exist.

Here’s a new and comprehensive list. Please feel free to add any resources that you know of…

PHARMACEUTICAL DRUGS

Acthar Gel (ACT)

Questcor Pharmaceuticals

http://www.acthar.com/mspatient/getting-started

Banzel and Zonegran

Eisai Neurology Patient Assistance Program  https://www.rxhope.com/pap/info/paplist.aspx?programid=1647&fieldtype=programid

Carbatrol

Shire Pharmaceuticals Carbatrol Patient Assistance Program

http://www.rxassist.org/pap-info/company_detail.cfm?CmpId=84

Depakene, Depakote, Depakote ER

Abbott Patient Assistance

http://www.rxassist.org/pap-info/company_detail.cfm?CmpId=65

Diastat, AcuDial Rectal Gel and Mysoline

Valeant Pharmaceuticals Patient Assistance Program

http://www.rxassist.org/pap-info/company_detail.cfm?CmpId=85

Dilantin, Lyrica, Neurontin and Zarontin

RxAssist Patient Assistance Program Center

http://www.rxassist.org/pap-info/company_detail.cfm?CmpId=39

Felbatol

Meda Pharmaceuticals Patient Assistance Program

http://www.felbatol.com/patient_assistance.html

Gabitril

Cephalon Patient Assistance Program

http://www.rxassist.org/pap-info/company_detail.cfm?CmpId=122

Keppra, Keppra XR

Keppra Patient Assistance Program

http://www.patientassistance.com/profile/ucbpharma-196/

Lamictal and Lamictal XR

Glaxosmithkline Patient Assistant Program

http://www.rxassist.org/pap-info/company_detail.cfm?CmpId=125

Tegretol, Tegretol XR and Trileptal

Novartis Patient Assistance Foundation Program

http://free-medicine-info.tripod.com/1645.html

Topamax

Johnson & Johnson Patient Assistance Foundation

http://www.access2wellness.com/a2w/patient-pap.html

Vimpat

Vimpat Patient Savings Program

http://www.vimpat.com/hcp/resources/patient_savings_program.aspx

VNS Therapy Access Program

http://us.cyberonics.com/en/vns-therapy-for-epilepsy/patients-and-families/resources/insurance-and-reimbursement

For a summary of antiepileptic drugs, go to:  http://my.epilepsy.com/epilepsy/medicine_summary

EPILESPY CARE AND GUIDANCE – WHEN YOU NEED IT MOST…

Access 2 Wellness –designed to assist people with limited or no health insurance get the help they need to lead healthier lives.  People can learn about a variety of assistance programs that, combined, offer more than 1,000 prescription medicines and medical products for free or at a discount to qualified individuals. http://www.access2wellness.com/a2w/index.html

Epilepsy Foundation Medication Coverage — 25 prescription med links, plus links for generics and Veteran’s benefits. http://www.efwp.org/programs/pap_list.shtml

The HealthWell Foundation — committed to addressing the needs of individuals with insurance who cannot afford their co-payments, co-insurance, and premiums for important medical treatments. http://healthwellfoundation.org/

Free Medicine Program — established by volunteers, the Free Medicine Program helps patients substantially reduce or completely eliminate their prescription drug costs. http://www.freemedicineprogram.org/

Needymeds — a list of programs that assists people who cannot afford medicine or healthcare costs. This information is available anonymously and free of charge. http://www.needymeds.org/

Partnership for Prescription Assistance — helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free. http://www.pparx.org/

Patient Assistance Program — a free resource created by Volunteers in Health Care, is a national, nonprofit resource center designed to help connect patients who cannot afford their prescription medications with patient assistance programs.    www.rxassist.org

Prescription Assistance U.S. — a free online resource for anyone looking for free prescription and RX programs. This is not a discount card program or a paid service. It is a user-contributed database of local government or non-profit agencies that provide people with medical needs drug assistance of different types. http://www.prescriptionassistance.us/ar/about

Pharmaceutical Company Patient Assistance Programs — many pharmaceutical companies offer Patient Assistance Programs to those who cannot afford the cost of their medications but are ineligible for Medicaid due to their income. Click here for a list of each company’s contact information:   http://www.efwp.org/programs/pap_list.shtml

Pharmahelper — is a comparison search engine for prescription medicine and detailed drug knowledge.  It helps you save money and buy prescription drugs safely online.  You can also research drugs, compare pharmacy prices, even find drug savings based upon your particular condition. http://www.pharmahelper.com/

Premier Recovery Resources — (also known as RxCut), offers free access to savings up to 75% off prescriptions and up to 50% off the typical price of laboratory tests and imaging services. http://www.prrxcut.com

Prescription Hope — over 1,500 brand name medications are offered as prescribed by your doctor. $15 per prescription per month service fee. There is a yearly enrollment fee of only $15, no other medication cost and no hidden costs. www.prescriptionhope­.­com/­what-­we-­offer.­html

RxSavingsPlus — a free drug/prescription discount card, to help lower the price for medication. It can be used at CVS Pharmacy, Target, Rite Aid and 60,000 participating pharmacies nationwide. And offers an average of 20% off the retail price of drugs.  (Kind of skimpy, but one-stop shopping.) http://www.rxsavingsplus.com/

SelectCare Benefits Network — over 1400 brand name and many generic medicines for a net cost of only $20 per month. By becoming a member of SelectCare Benefits Network you will be assigned a Personal Care Advocate who will simplify the process of applying for Patient Assistance Programs and make it easy for you to get your medications for very little out-of-pocket cost.  http://www.myrxadvocate.com/

Together Rx Access — individuals and families without prescription drug coverage can gain access to immediate savings on hundreds of brand-name and generic prescription products right at their neighborhood pharmacies. Also connects you with resources about access to coverage options and more. http://www.togetherrxaccess.com/

Epilepsy Foundation’s Veterans Outreach Program — social and supportive services resources as well as information and assistance with the VA Health Services Registration process. (Bottom half of page.)http://www.epilepsy.va.gov/index.asp 

VA Epilepsy Centers of Excellence  –16 sites that are linked to form 4 regional centers for diagnosis, clinicalcare, information and research. http://www.epilepsy.va.gov/


9 Comments »

  1. Phyllis,

    While patients would love a break in the high costs of their medical & drug bills, the BUREAUCRATIC NIGHTMARE & MERRY-GO-ROUND to get results from these “patients assistance programs” is so UNBEARABLE, many patients I know feel DISCOURAGED from trying & applying for the assistance programs.

    Therefore, they would rather save themselves the headaches of bureaucracy & not even TRY to seek the so called “patients assistance programs”.

    WHILE THE IDEA IS NOBEL, SIMPLIFYING & EXPEDITING THE PROCESS WOULD MAKE THE ASSISTANCE PROGRAMS FAR MORE DESIRABLE THAN JUST KEEP FILLING OUT FORMS, AFTER FORMS, AFTER FORMS,,,,, FOR GOD-KNOWS THE “ADVANTAGE OF THE ASSISTANCE”.

    There had to be a better way to make these “patients assistance programs” far more simpler & expedite, than ETERNAL INTERROGATION.

    FOR GOD SAKE,,, Providing assistance does NOT have to be climbing mount Everest.

    Like always,,, Phyllis,

    Thank you for your DEVOTION, to the plights of millions who live with Epilepsy.
    YOU ARE DOING A WHOLE LOT GOOD, MORE THAN YOU WILL EVER COME TO KNOW IN YOUR LIFE TIME.

    Like

    Comment by Gerrie — May 23, 2012 @ 11:33 PM

  2. RE: Patient Assistance Programs, my only (feeble) reply would be “if you don’t succeed at first, move on.” Not very satisfactory.

    Here’s a link for DEEPLY DISCOUNTED DRUGS WITHOUT INSURANCE

    https://epilepsytalk.com/2010/03/18/deeply-discounted-drugs-without-insurance/

    But it probably won’t tell you what you don’t already know.

    If I had to bet on a service, it would be Premier Recovery Resources – (also known as RxCut). Because it seems pretty straightforward in offering free access to savings up to 75% off prescriptions and up to 50% off the typical price of laboratory tests and imaging services. http://www.prrxcut.com

    I just got the PDR Pharmacy Discount Card which claims savings up to 75% on 50,000 drugs at over 50,000 pharmacies. (Pretty bold statement.)

    They say: “No pre-approval needed. This card is not insurance. You will not be turned down for a pre-existing condition.”

    I haven’t tried it yet, but the email address is: http://www.rxreliefcard.com or 1-800-776-0760.

    Who knows? Maybe they’ll be the real deal!

    Like

    Comment by Phylis Feiner Johnson — May 24, 2012 @ 10:15 AM

  3. Thanks for the resource Phylis! I agree with the other comment, it really can be hard and frustrating to deal with the whole bureaucracy, but in the end I’m glad that there are resources out there for those who really need it. The truth is that there is always a way!

    Like

    Comment by RX Jane — July 3, 2012 @ 4:02 PM

  4. If you just have the fortitude to wade through the muck and the mud and the persistance to keep moving, till you get where you need to be!

    Like

    Comment by Phylis Feiner Johnson — July 3, 2012 @ 5:30 PM

  5. I have had nothing butr success with Patient Assiant. The 3 medication I am on are all free to me due to my situation. Yes I have to fill out the paperwork every year, so what. It means I get my meds for free. I have been unemployeed for so long and was worried I wouldn’t get them. My parents were footing the bill for awhile at $1500 a month.

    Like

    Comment by Gretchen Hall — August 7, 2012 @ 7:09 PM

  6. That’s fabulous Gretchen! I wish you’d spread the word around…like on Facebook, if you belong?

    Like

    Comment by Phylis Feiner Johnson — August 8, 2012 @ 9:39 AM

  7. Hi
    I want epilex syrup
    I needed a question epilex or epilum same medicine or not ?

    Like

    Comment by Davinder p singh — August 10, 2015 @ 12:41 PM

  8. Epilex is Valproic Acid and Epilum is Sodium Valproate.

    Like

    Comment by Phylis Feiner Johnson — August 10, 2015 @ 2:53 PM


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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