Epilepsy Talk

Epilepsy and Energy Drinks – Think Before You Drink! | October 23, 2011

It feels good and it tastes good, it’s easy to drink and it gives you that extra jolt of energy. But is it really worth it?

Think the death of 18-year-old Irish athlete, Ross Cooney, who died within hours after playing a basketball game and consuming four cans of “Red Bull”. (Subsequently it was banned in France.)

While we all need an energy boost from time to time, an energy drink may not be the best way to get it, experts say. In fact, the FDA doesn’t even define the term “energy drink,” leading the labeling up to the manufacturer.

There are reports of seizures induced by energy drinks. Some believe they’re caused due to the “crash” that follows the energy high. And although there is no danger of over caffeination in one drink, more than one drink can lead to adverse side effects which include nervousness, irritability, frequent urination, and arrhythmia.

And it’s important to know the repercussions for your body. The entire theory about energy drinks is they will actually give you energy, and they do. Too much energy and it wears off rapidly, causing the person to go into a tired slump. In fact, seizures can be caused by the increase in the energy which actually burns up that same energy.

In November 2010, the University of Texas Medical School at Houston reported that energy drinks contain more caffeine than a strong cup of coffee, and that the caffeine combined with other ingredients (sometimes not reported correctly on labels) such as guarana, amino acid taurine, green tea and other herbs, vitamins and minerals, may interact. Energy drinks consumed with alcohol may affect heart rates, blood pressure and even mental states. The caffeine content of a single energy drink ranges from 70 — 200 milligrams per 16-oz serving while a 16-oz cup of coffee can contain 20 — 300 milligrams.

Not surprising, most of the energy from these drinks comes from the sugar and caffeine, (which can be very dehydrating), not from the unnecessary extras which might sound romantic and fortifying. But those high-tech sounding ingredients are of no value, and potentially harmful in large amounts. And just trying to figure out exactly how much of each stimulant is contained in an energy drink can be difficult.

“Pimp Juice”, “Full Throttle”, “Rock Star”, “Monster Energy”, “Rage”, “Cocaine”, “Red Bull” — these are some of the high-powered energy drinks being marketed to young adults. The web sites for these products are full of images of macho lifestyles. They promote beverages containing ingredients that sound scientific, but may be unfamiliar to many consumers.

Energy drinks have also been associated with seizures in people with no history of epilepsy. This is thought to be mostly result from caffeine, but taurine may also be implicated. It has anticonvulsant effects, but it in some situations it may actually provoke seizures. And excessive consumption of energy drinks may bring about seizures in those who suffer from certain forms of epilepsy. This is caused by the “crash” that follows the energy high after consumption.

For example, (even though it’s a small sampling), four patients had seizures after consuming large amounts of energy drinks (multiple cans of product, usually on an empty stomach). One patient experienced two separate episodes that were both related to intake of multiple cans of “Monster”. One patient experienced a seizure when using a “diet pill” (containing caffeine) in conjunction with one 24-ounce can of “Monster”. At follow-up, no further seizure activity was demonstrated by patients after abstaining from energy drinks

Also, energy drinks may pose a serious health risk for some children, especially those with diabetes, seizures, cardiac abnormalities or mood and behavior disorders. A new study, in the March issue of Pediatrics, the journal of the American Academy of Pediatrics, determined that energy drinks have no therapeutic benefit to children, and both the known and unknown properties of the ingredients, combined with reports of toxicity, may put some children at risk for adverse health events.

Yet, especially athletes, account for half of the energy drink market, and according to surveys, 30 percent to 50 percent of adolescents report consuming energy drinks. The high levels of stimulants such as caffeine, taurine, and guarana, are a little scary and safe consumption levels have not been established for most adolescents. Because energy drinks are frequently marketed to athletes and at-risk young adults, it is important for pediatric health care providers to screen for heavy use and to educate families and children at-risk for energy drink overdose, which can result in seizures, stroke and even sudden death.

So whether you’re a kid or an adult…energy drinks are a risky proposition. Is it really worth it?

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  1. My son thinks they are great but he is not totally his nice self. He is not polite. He gets a quick tempered.
    When is not drinking them he is fine.

    I fine them to give me a headache. I do not recommend them.

    I like peace and tranquility!


    Comment by Toni Robison — October 23, 2011 @ 4:42 PM

  2. Well, it’s probably that he’s so hyped up on sugar and caffeine, it brings out the “beast” in him. That stuff in high concentration can do it.

    Personally, I think they taste nasty.


    Comment by Phylis Feiner Johnson — October 23, 2011 @ 5:37 PM

    • If I understand correctly you saying caffeine is not good for complex partial epilypsy?


      Comment by leone — April 7, 2018 @ 6:26 AM

      • Caffeine stimulates the nervous system.

        Adrenaline is released and the liver begins to emit stored blood sugar.

        Insulin is then released, and blood sugar drops below normal — a common seizure trigger.

        And caffeine can be a “stealth” drug, too. It can be found as an ingredient in medications, including some antihistamines and decongestants.


        Comment by Phylis Feiner Johnson — April 7, 2018 @ 10:59 AM

      • I tried energy drinks and I was having bad chest pains. There not good for anyone. I had sharp pain in my chest. I took my self to the emergency room and i had test done. Was ask what i had i said energy drinks. I was told to never drink them said i was close to having a heart attack. I had siezure and I was kept for 3 days in the hospital.


        Comment by Russell Ray Hanawalt — May 7, 2019 @ 6:20 PM

      • OMG! That’s awful.

        At least you were smart enough to go to the hospital right away.

        Thank goodness!


        Comment by Phylis Feiner Johnson — May 7, 2019 @ 6:26 PM

  3. Imaginary enery.
    For white collar workerers, it might make you feel a little more awake.

    For actual physical and manual labor, a worker
    needs natural energy.

    Out of curiousity, I tried it once when I went fishing early in the morning. There was no difference. I still had to have my coffee to get started.


    Comment by mkfarnam — October 23, 2011 @ 9:39 PM

  4. No thanks. The taste alone isn’t worth it. Yuck!


    Comment by Phylis Feiner Johnson — October 24, 2011 @ 1:15 PM

  5. Energy Drinks: More Deadly Than Healthy

    “New York Attorney General Eric T. Schneiderman has subpoenaed three makers of energy drinks — Monster Beverage, PepsiCo and Living Essentials — in an investigation about whether they have been misleading consumers about health risks and, too, possibly violating federal law by promoting the drinks as dietary supplements rather than as foods (which are under FDA regulation).

    In particular, the companies are accused of misleading consumers about the drinks’ caffeine content and whether all the ingredients in the drugs are accurately disclosed, says the New York Times. For instance, labels may say that drinks contain black tea extract and guarana, but may not note that these contain additional caffeine.

    The drinks contain from about 80 milligrams to more than 500 milligrams of caffeine; one test has shown that 5-Hour Energy Drink contains about 207 milligrams of caffeine. In contrast, a 12-ounce drink of cola has about 50 milligrams of caffeine and a 5-ounce coffee about 100 milligrams…

    Read more: http://www.care2.com/causes/energy-drinks-more-deadly-than-healthy.html#ixzz252CqZTfF


    Comment by Phylis Feiner Johnson — August 30, 2012 @ 9:09 AM

    • Hi..I’m new to this forum…I would like to ask a question if I may about black tea extract…I’ve been epileptic since 1996 from a motocycle accident, I control my epilepsy very well with a small dose of Dyna Lamotrigine (200mg/day)…I haven’t had a grand mal seizure for more than 5 years, even though I do get the ora now and then but nothing severe…I have had 3 grand mal seizures this month…my neuro whom I have been seeing since I was diagnosed said that it was extremely unusual to become grand
      mal all of a sudden, esspecially after being seizure free for such long time…he immediately increased my dose of lamotrigine to 600mg…I was feeling pretty brain dead on that dose and was still having seizures…small ones, to full on grand mal…I was brain storming like mad and was trying to think of what I had possibly changed in my diet in the 6 week odd period prior to my grand mal…I think that I found it, with the help of your site…I have been drinking an ice tea from out local shop, it’s a very popular brand in this country (South Africa) owned by a massive company…the label says “Black Tea Extract 0.14%”…I did some research on this ingredient and it seems that it contains caffeine, so I stopped drinking it…my seizures were gone completely , not even a hint of a seizure…label on the bottle says nothing about caffeine…I just need to confim that black tea extract was responsible for my seizures? Any info would be much appreciated…thanks…Joey

      doubled my


      Comment by Joey — December 1, 2012 @ 9:58 AM

      • Black tea contains 2% to 4% caffeine, which affects thinking and alertness. ( One cup of black tea has 40 mg of caffeine.)

        Interactions You Should Know About. If you are taking:

        •MAO inhibitors : The caffeine in black tea could cause dangerous drug interactions.

        •Stimulant drugs such as Ritalin: The stimulant effects of black tea might be amplified.

        •Drugs to prevent heart arrhythmias or to treat insomnia , heartburn , ulcers , or anxiety (Black tea might interfere with their action. (Lamictal is both an anti-anxiety med and an anti-seizure drug.)

        •Folic acid : Black tea may decrease the absorption of folic acid into the blood stream.

        I hope this helps!


        Comment by Phylis Feiner Johnson — December 1, 2012 @ 11:42 AM

      • Thanks for getting back to me so quickly…the thing that I need to confirm is if the “black tea extract” was the cause of my grand mal seizures?…They stopped immediatley after I stopped drinking the tea…within 24 hours in fact…and I was having quite a few petit mal seizures daily, on more than double my dose of my meds…I had been drinking it for about 5 weeks almost daily…so my question is…was it the black tea?…I reccon that it must have been but I want to know for sure if that caffiene percentage is enough to have caused the grand mal, it’s a very chemical peach flavoured tea…with nothing but preservatives andflavourants…not a healthy “tea” by the looks of things…why don”t they put “contains caffeine” on the bottle…any thoughts?…thanks a wack!…Joey


        Comment by Joey — December 1, 2012 @ 12:02 PM

  6. F.D.A. Posts Injury Data for 3 Drinks

    As its policy on highly caffeinated energy drinks is scrutinized, the Food and Drug Administration publicly released records on Thursday about fatality and injury filings that mentioned the possible involvement of three top-selling products…



    Comment by Phylis Feiner Johnson — November 18, 2012 @ 12:51 PM

  7. Caffeinated Drink Cited in Reports of 13 Deaths

    Federal officials have received reports of 13 deaths over the last four years that cited the possible involvement of 5-Hour Energy, a highly caffeinated energy shot, according to Food and Drug Administration records and an interview with an agency official.

    The disclosure of the reports is the second time in recent weeks that F.D.A. filings citing energy drinks and deaths have emerged.

    Last month, the agency acknowledged it had received five fatality filings mentioning another popular energy drink, Monster Energy.



    Comment by Phylis Feiner Johnson — November 20, 2012 @ 10:01 AM

    • Hi again Phylis…the reason I asked specifically is because my laywer says that with all the things that I’ve lost ie. being able to drive legally, head trama, could have been killed in my car the first time I seizured (in more than 5 years)…or injured/killed someone else, had to up my dosage which really makes me feel like a zombie etc gives me a really strong case in court, so I’m contemplating it…so basically they have taken my livelihood (I’m a computer network technician and all of my clients are business’ that I have to drive to) and quality of life away from me in less than a month and a half…the thing that I’m trying to find out is if the black tea extract which I believe has quite a decent dose of caffeine 2-4 % if I understood you correctly before compared to less than 2% in a cup of coffee…which I haven’t had since 1996 (unfortunately) as well as coke or anything with caffeine in it…I’ve been very careful with anything that might affect my head…so the question that I need to ask is, if black tea extract contains caffeine, then why don’t they put it on the label to protect peeps like me?…Thank you so much for all of the info, I really appreciate it…this is the first time I’ve ever joined on a forum (hence the long windedness)…and you’ve been really helpful!…got you bookmarked!..best…Joey



      Comment by Joey — December 1, 2012 @ 3:44 PM

      • Sigh. Your lawyer has his head up his ass. 😦

        If you were to sue every manufacturer that has black tea extract as an ingredient or non-disclosed caffeine (like the products listed above), it would take a lifetime and a half and wheelbarrow full of money.

        These are corporate giants. They have LOTS of lawyers. AND mucho money.

        My cousin sued a nursing agency because of wrongful death (not only true but confirmed by about 5 doctors). They didn’t settle for 5 years and she got a pathetic amount. And that was an act of negligence that KILLED her husband.

        If you want to get even, contact the FDA. Be a whistle blower. Help others. But I don’t think you’re going to see a dime from this, despite all the hardship and damage.


        Comment by Phylis Feiner Johnson — December 1, 2012 @ 5:38 PM

  8. Joey, the fact that your seizures ceased when you stopped drinking the tea should tell you something.

    But it could be more than just the caffeine. The preservatives and other (many undisclosed) ingredients could have an effect also.


    Comment by Phylis Feiner Johnson — December 1, 2012 @ 1:50 PM

  9. This is kind of the opposite in my case but may be somewhat related.

    I was diagnosed with Epilepsy when I was 15 years old and am 27 now. I take 400mg a day currently.

    I drink a ton of pop 4-5 cans a day on my weekends and had been drinking about 2 energy drinks each day for 4 days a week. I decided to stop drinking energy drinks due to all of the fuss about the deaths that were being pinned on them.

    I ended up having a grand mal seizure a week after quitting out of nowhere! I was seizure free for about 2-3 years and the cause of the previous seizure was because i neglected in taking my medication properly.

    I don’t see how massive quantities of caffeine are causing seizures but possibly the overall crash of something in the energy drinks do.



    Comment by chase — December 5, 2012 @ 3:38 PM

    • Hi Chase,

      That’s really interesting, I went to our local hospital yesterday and saw the neuro prof who overseas the epilepsy clinic…cut a long story short…caffeine is definately a trigger (in my case, a radical trigger)….any stimulant like coffee, coke, black tea…nevermind redbull or monster x…the last two will give me a seizure within in 20 minutes. I’ve had more than 2000 seizures since 1996…trust me, caffeine is my Krytonite.


      Comment by Joey — December 6, 2012 @ 12:27 AM

      • While I understand these comments were written a few years ago, I’m constantly amazed at how many people don’t take into consideration that one of the factors that needs to be considered is our ever changing metabolism. I know if I haven’t eaten enough food in general and take my meds I feel the effects of them much faster. If I’ve eaten a decent meal and digestion can take place as it should, I will obviously feel a lot better. Throw a Red Bull in the mix or other stimulants loaded with caffeine and who knows what will happen!?!? I kind of wonder if this is why there is so much talk about eating organically and avoiding all those preservatives, dyes and otherwise unhealthy things that flow through the ground water. I’m not saying I eat ONLY food pure and free from pesticides and organic stuff….I try within my best limits to eat as healthy as possible within my budgetary limits and it seems to work for me. Those stimulant drinks don’t just effect the brain…after drinking one of those drinks I picture the brain sending out a signal that effects the rest of the body and so I picture the brain sending out teletype messages in rapid-fire motion putting the body in overdrive. There has to be an adverse effect somewhere….if not a seizure there could be some other reaction somewhere else it only makes sense… I’m thinking it’s like Speed was in the 60’s and 70’s ya’ think? That wasn’t good either….


        Comment by Janet — August 20, 2015 @ 2:44 PM

  10. Well Chase, you certainly seem to be an exception to the rule! (But you know, “rules” weren’t meant to fit everyone!)

    Here’s the low-down on caffeine:

    Caffeine stimulates the nervous system. Adrenaline is released and the liver begins to emit stored blood sugar. Insulin is then released, and blood sugar drops below normal — a common seizure trigger.

    And caffeine can be a “stealth” drug, too. It can be found as an ingredient in medications, including some antihistamines and decongestants.

    Common Epilepsy Triggers…


    Weird Epilepsy Triggers… (You’ll love this!)



    Comment by Phylis Feiner Johnson — December 5, 2012 @ 5:57 PM

  11. I am 32 yrs old and just had my 2nd gran mal seizure a week ago. My 1st was 3yrs ago and when it happened the neurologist ran every test possible. Cat scan, MRI, EKG,EEG……….nothing. Nothing to show why I had a seizure or that I would ever have one again. The only thing I could think of was that I had been more stressed than usual at work. Fast forward to last week when surprisingly to me I had another. I was not stressed. I did skip a meal here and there, and I did drink a rockstar energy drink every day. The more I thought about it, I remembered that I had been skipping meals and drinking 5-hour energy drinks when I had my 1st seizure. The new neurologist i saw says the rockstar is probably a “trigger” for me and not to drink them. I am still in disbelief and denial that a little ole drink could cause a serious thing like a seizure to happen! Is there any way of proving that this is what caused my seizures? Please give me any advice you have.


    Comment by Melissa — December 8, 2012 @ 1:02 AM

  12. Well Melissa, I think it’s a few things…

    First of all, stress is the #1 trigger on the hit parade.

    Stress can trigger hyperventilation which can provoke seizures, especially absence seizures. It can increase cortisol, known as “the stress hormone” because cortisol is secreted in higher levels during the body’s “fight or flight” response to stress. And, as you may imagine, it’s responsible for several stress-related changes in the body which may also influence seizure activity.

    Negative emotions related to stress, such as anger, worry or fright, may also cause seizures. This happens because the limbic system, the portion of the brain that regulates emotion, is one of the most common places for seizures to begin. You’ll probably find that you have more seizures during or after periods of anxiety or stress.

    Spotty eating can disturb your electrolytes and create an imbalance, plus you’re talking about an insufficient vitamin/nutrient supply.

    Epilepsy and Electrolytes

    Fighting Seizures Nutritionally

    Third, caffeine stimulates the nervous system. Adrenaline is released and the liver begins to emit stored blood sugar. Insulin is then released, and blood sugar drops below normal — a common seizure trigger. And caffeine can be a “stealth” drug, too. It can be found as an ingredient in medications, including some antihistamines and decongestants. Not to mention energy drinks.

    What you can do to pinpoint the culprit, is to keep a Daily Seizure Diary.

    Every day, write down your sleep patterns, what you eat and when, your daily activities (including emotional upsets, stress, etc.) and if you have a seizure, write down how you felt before (triggers, auras?) how you felt afterwards, and if you can, the duration of the seizure.

    That will go a long way in helping your doc understand what’s going on with you and if, indeed, it’s the energy drinks that’s causing your triggers or perhaps that, coupled with something else.

    I hope this helps…


    Comment by Phylis Feiner Johnson — December 8, 2012 @ 10:55 AM

  13. Add Gatorade to the list of toxic drinks…

    The disgusting ingredient in Gatorade



    Comment by Phylis Feiner Johnson — December 14, 2012 @ 9:56 AM

  14. ER visits tied to energy drinks double since 2007

    A new government survey suggests the number of people seeking emergency treatment after consuming energy drinks has doubled nationwide during the past four years, the same period in which the supercharged drink industry has surged in popularity in convenience stores, bars and on college campuses.



    Comment by Phylis Feiner Johnson — January 16, 2013 @ 3:51 PM

  15. The advice I was given by my doctor is simple. Read the ingredients given. Put it back on the shelf if you don’t recognize an ingredient, or if it says “Spices” or “Sugar Substitute” or anything -alose. I am going for some Allergy Testing next week, and am going to find out if I have any allergies. But, I DO know my triggers are MSG and Aspartame. Red Food Dye, may be a new one. I want to know! Had a MASSIVE reaction to Red Velvet Cake, and want to know if it was the Food Colouring.

    My advice is to know yourself. NO one should be drinking Pop AND Energy Drinks and asking “What happened?”


    Comment by Jennifer Chase — March 5, 2013 @ 9:42 AM

  16. BRAVO! Excellent advice Jennifer.


    Comment by Phylis Feiner Johnson — March 5, 2013 @ 11:39 AM

  17. First off, why are “young kids” drinking these? NY state bans the sale of them to anyone under 18. I agree with that. And secondly, this article states that most of the seizures “caused by energy drinks” were in people who consumed “multiple cans”. Who the hell in their right mind would have more than 1 a day? Never mind 1 or 2 (or 4!) in a short period of time? That’s where the problem lies. Yes, maybe the contents/ingredients are bad for you, but a little common sense goes a LONG way too! I have epilepsy, like my energy drinks, and have never experienced an issue with them. But I only have like 2 a week, and I’m 36 years old. Not 14.


    Comment by Mark — May 29, 2013 @ 4:24 PM

  18. With age comes wisdom… 🙂


    Comment by Phylis Feiner Johnson — May 29, 2013 @ 4:55 PM

  19. tasted it only once , because it was only thing my son had in the car.. never again !! yes is a coffee drinker , heck , at one time , back 35 yrs ago , i could kill off a pot of coffee no problem .. & still sleep , now , i cant do that , i buy organic coffee , { Marley coffee} best coffee .. just one cup , relaxes me , plus doesnt have that boom a rang effect ..


    Comment by cathy — March 15, 2014 @ 3:41 AM

  20. Mmmmm. There’s a difference between coffee and sludge…especially good coffee!

    Does your coffee come in grounded or as beans?


    Comment by Phylis Feiner Johnson — March 15, 2014 @ 10:28 AM

  21. Wow a lot of excellent material!


    Comment by how to know which garcinia cambogia to buy — April 4, 2014 @ 5:12 AM

  22. heres something on colas , had liver cancer few yrs ago , when the nurses was telling us on what to eat & drink , caffiine was a BIG NO-NO .. one of the nurses did a science trick , which i forgot about ,. take a nice red steak , put in bowl , glass , pour coke over it .. with in hrs , it cooks the steak ..even with certain E drugs such as Tomapax , cant really drink it the sodas , cut any meds to 1/2 its dosage , same with caffines drinks too ..


    Comment by cathy — August 5, 2014 @ 2:47 PM

  23. Try pouring it over a penny if you want the penny to shine! 🙂


    Comment by Phylis Feiner Johnson — August 5, 2014 @ 4:22 PM

  24. I don’t know if anyone here will have any answers for me but I’m getting pretty desperate so here it is. I am a 29 year old female with no family history of my symptoms. In June of this year, I noticed I was very anxious with my children and family and would snap off on them for the smallest things. I went to my Dr. and he prescribed the smallest dose of Paxil. This helped with the anxiety but I noticed I developed a slight tremor in my hand. The Dr. felt this was probably caused by the Paxil and gave me a choice to take meds for the tremor, go off of the Paxil, or do nothing. I decided to live with tremor. In later August, I started having episodes of vertigo. At first it was once a week, then once every few days, and had gradually grown to multiple times during a day. I have also developed a stutter. I saw a Neurologist who ran some blood tests, had me walk in a line, and draw a circle. Everything came back negative. He said I have benign positional vertigo and an essential tremor. He said all of my problems were caused by the Paxil. Also, I drink and have done so for many years energy drinks. (I know it’s bad and I’m trying to quit) I drink 4 of the Monster Rehabs each day. Like I said this is not new it’s been this way for years. I told the Neurologist about my consumption and he said this was not related but of course told me I needed to quit doing that. So I stopped taking the Paxil and after a week my symptoms continued to get worse. The vertigo got so bad I lost my balance and hit my head (not hard enough to hit my head). Within the last few weeks I also started going numb in my nose/mouth/chin area when the vertigo come on. The tremor has also started in my neck, my head looked like I was shaking my head no. These symptoms are not constant but occur almost daily. Two weeks ago I had a terrible day, the vertigo was constant and really strong, the stutter was so bad I struggled to talk, and my face was numb. I called the Neurologist and all they said they could do would be send me to the hospital (it was night time by the time I called) and give me Vellum. I was able to cope through the night and woke up the next day feeling drunk but a little better. They also prescribed Topamax 25mg to take twice a day which helped. The vertigo is still here every day but it doesn’t effect me the way it had before. The tremor has significantly improved. The stutter and numbness seem to only come on when I’m getting close to needing another dose. What I want to hear from everyone is have you ever heard of this happening? It is consuming my thoughts and I don’t believe that all of this was caused by the Paxil because my family can tell you the Paxil has worn off (I’m trying not to lose it on them it’s just taking some thought practice). Why does a seizure medication give me relief? It is frustrating that the Dr. says at 29 I have a tremor and vertigo but can’t tell me why. I am scheduled for a PENG test and an MRI and will hopefully find out something from that but I am frustrated with how long this whole process has taken. I drive a long distance each day and I have been stuck sitting in my car waiting for the feeling to pass on multiple occasions. Any answers would be great. I have started reducing my energy drink consumption this week but it will be a slow process.


    Comment by Amanda — November 18, 2014 @ 11:05 PM

  25. My candid advice: stop the energy drinks. (I know, they’re addictive). There’s a good chance that they are related to your symptoms, because they have a neuro degenerative effect.

    Do you have a good neurologist? If not, this list should help.

    2014-2015 Comprehensive List of GOOD Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors


    The testing should give you a good idea of where you stand.

    In the meantime, try to keep a daily epilepsy diary. Note what you eat and when (food allergies) your sleeping habits (sleep deprivation), emotions and actions during the day (stress), times of symptoms (vertigo, numbness, etc.) and duration. Plus, any specific triggers you can think of.

    This will help both you and your doc get a better idea of what’s going on with you.

    In other words, tests by themselves are not enough. YOU need to give specific input, too.


    Comment by Phylis Feiner Johnson — November 19, 2014 @ 11:25 AM

    • Thank you! I have started keeping a journal and have made it down to two energy drinks a day. I am going to continue to cut them back. Some new symptoms started this week again occasional, numbness and tingling in feet and lower legs (5 times per day lasting a couple minutes) also in my left fingertips (on two seperate occasions). I had my PENG test today and the DR who gave me the test said his conclusion is that this is not an inner ear issue. He was able to set off the Vertigo two times. I also had the MRI and of course I don’t have the results from the Dr for that. I received a notification for a patient portal and on their they stated my major complaints as Vertigo/tremor/ thin cuts through CP. Whil I recognize the Vertigo and tremor portion of this, I do not recognize the last part. Do you know what that means or what that refers to? I am trying to be patient but when I called the Neurologist today they said I probably won’t hear from my Dr. until a week from Monday. (Holiday)

      Thanks! I really appreciate your advice!


      Comment by Amanda — November 21, 2014 @ 11:00 PM

  26. “Seizures are commonly associated with cerebral palsy.

    It is estimated that as many as half of those with cerebral palsy are also affected by seizures. Several types of seizures exist:

    Focal seizures – In focal (partial) seizures, activity registers in a portion of the brain and can be called “simple” when not impacting awareness or memory; or, “complex” when momentarily affecting awareness or memory. Focal seizures generally do not cause loss of consciousness.

    Petit mal seizures – In petit mal seizures, a short-term loss of consciousness occurs, but lasts only a few seconds with rapid recovery. During this time, the person’s speech or activity may momentarily stop.

    Tonic-clonic seizures – A tonic-clonic, formerly known as grand mal, seizure is the most common type of seizure for those with cerebral palsy. In a tonic-clonic state, the person may cry out, stiffen, fall to the ground, shake or jerk, and bite the tongue. The electrical activity is registered as full-brain.”


    I hope this helps, Amanda.


    Comment by Phylis Feiner Johnson — November 22, 2014 @ 9:48 AM

  27. You got it Janet. Although we surely will never known what’s in speed, energy drinks are neurotoxins.




    But you, as well as I, know that “organic” foods are not pure angels either.

    Is it Organic?


    Essentially we have to be our own “food police” and figure out what’s best for us.

    But some people don’t know. And others don’t care.


    Comment by Phylis Feiner Johnson — August 20, 2015 @ 3:20 PM

  28. Today is World Health Day
    Good morning Madame Participate and create awareness about the diseases and the problems of overtaking and undertaking of medication. Mishaps and other misuse of drugs. Public Awareness Campaigns would be helpful


    Comment by Syed yusuf — April 7, 2018 @ 10:35 AM

  29. I know & have known for 50 + years, this has been a problem as to WHY people can have seizures of any type & even headaches. All the toxic chemicals found in these drinks & DIET sodas now ALL sodas all have ASPARTAME, NITRATES, NITRITES & CITRIC ACIDS which all causes seizures. Saccharin years ago before was used before 1980, & ASPARTAME was ever a word and seizures were a non-stop thing for me when I HAD TO HAVE SACCHARIN & no sugar. Sugar was GOOD I had no seizures, bur SACCHARIN WAS BAD & MORE SEIZURES happened. So FDA uses ASPARTAME aka SACCHARIN or very close to it, as the same affects to a human brain are the same or WORSE, when you see the NUMBERS, not from an increase in a world population, but from MEDICAL SCIENCE LIES TOLD to us of how Saccharin & Aspartame are so much better & safer to use than SUGAR. REALLY ? Look how WATER is of every color sold today everywhere, and water is to be CLEAR WITH NO COLOR to is when you know you have a good well & drink it daily. City & town water is a joke, and you pay dearly for it as it can kill you, but not instantly, but at a VERY SLOW PACE so that you never see what is happening to you & your brain, especially in a kids & infants brain. Of course there are more reasons WHY they use chlorine & floride in town & city water, but when more people who live in heavy populated areas, have MORE neurological conditions than what people have them living out away from towns & cities,, that should make anyone with active & thinking brain cells take action in those towns & cities where they live. In the county where I live they want ALL homes under a county water plan. Where I live water runs down hill, not up hill, and the well here is all of 1 mile away from a public road. I will never pay for any water line to run UP HILL to supply me H2O. The water here is good & I do not need nothing in it besides 2 O & 1 H. So it’s not just diet sodas & power energy drinks that makes seizures happen for over 60 years.


    Comment by C D — June 4, 2018 @ 10:56 AM

  30. I stay away from coffee, because the smell almost makes me think that I’m having an aura, and the nerves in my mouth can’t stand soft drinks, like Pepsi. But I was wondering, my medications make my muscles take sooooo long to “wake up” now adays, that even my local Epilepsy Specialist and the one I’ve seen at Johns Hopkins have suggested that I use Ensure, or a drink called Boost in the morning, to help my body “wake up”. Do these fall into the category of Energy Drinks? They’ve certainly helped a lot, with the pile of medicines that I have to take.


    Comment by David Jensen — September 20, 2018 @ 12:07 PM

  31. With out reviewing the food labels on each, I had seen them before & BOTH are saturated with MSG’s & ASPARTAME’s which are both TOXIC to any human brain. Things like CARRAGEENAN, many of the GUMS, DEXTROSE, NATURAL & ARTIFICIAL FLAVORS, MALTODEXTRIN, SUCRALOSE, are just some I know you will read on these labels from plain or flavored Ensure or Boost drinks. My one uncle lived the last few years seeing doctors, as he had the flu more than enough, 2 times, then later his immune system shut down, and the ENSURE or BOOST drinks were all he was having for nutrition. Also he could not think to well to tell you how he really felt, but these 2 drinks were ALWAYS & still is safe to drink daily, that were approved by the wonderful FDA. So this was 12 years ago when he died 7 IF these drinks were so great, HE would be living today at age 96, but he passed on at age 84. So you think they will help lower or stop seizures, OR make more happen AND make them more worse to have ? You’ll never see me buying any of these toxic drinks and the AAN should come out saying how DANGEROUS they really are to the human brain, BUT they instead, have to help their neurologists who they have trained & taught in their schools of neurology.


    Comment by C D — April 1, 2019 @ 9:39 PM

    • I don’t think ANY drinks per se would have kept your uncle alive.

      There’s nutrition, hope and miracles being hyped here.


      Comment by Phylis Feiner Johnson — April 1, 2019 @ 9:44 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

    View Full Profile →

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