Epilepsy Talk

Prevent Medication Changes… | September 14, 2011

This letter has been created by the Epilepsy Foundation to make explicitly sure that no substitutions are made to your prescription without full consent by you and your doctor.  You might want to make a copy of it for your files.

Dear Pharmacist:

Thank you for providing me with the valuable service of filling my needed prescriptions. The purpose of this letter is to let you know that I have epilepsy and it is vital that I receive the same medication from the same manufacturer monthly in order to maintain the expected level of seizure control and side effects. Please ensure that no changes are made to my medications, including a change in manufacturer, without prior consent from my physician and myself. Please note this request in my file. To assist you, I have listed below the name, manufacturer, and dosage of the medications I am currently taking.

Thank you very much,

Your Signature________________________________________

Today’s Date______________________

Your Printed Name_____________________________________

Phone Number____________________

Physician’s Name______________________________________

Phone Number____________________

Brand Name__________________________________________

Generic Name_________________________________________

Manufacturer _________________________________________

Dosage ______________________________________________

Epilepsy Foundation of America

Not another moment lost to seizures


  1. Nice my Dr. warned me about this issue as well, good to see the form, I will bring it to Costco on my next refill…the last refill was the same, they said they try to keep it the same brand when available.


    Comment by Aje — September 15, 2011 @ 10:42 PM

  2. It would be good if you could have some copies made of the form.


    Comment by Phylis Feiner Johnson — September 15, 2011 @ 11:41 PM

  3. It’s too late for me. I’ve already been switched from Dilantin to Phenytoin and from the original orange band to grey band to red band and now they’re solid pink.

    They gave me excuses about shortage, and then less costly.
    But I’ve read that the original brand cost alot more than generic.

    I guess we’re all use to gettin’ screwed.


    Comment by mkfarnam — September 16, 2011 @ 6:35 PM

  4. This is very important as I’ve noticed that some pharmacist without your consent will actually fill your order with generic rather brand just because in their ideal its the same thing. But to many of us with Epilepsy we often know that we can not take generic so making a switch without disclosing this to us dangerous for us. Thank you Phyllis for providing us with the letter to that effect. I know many people who would benefit from this information.


    Comment by Joseph Laxamana — September 19, 2011 @ 6:06 PM

  5. The pharamacy did switch to generic of tegretol when I was pregnant 19 years ago. I ended up in the ER and learned the hard way. My son is fine, but figured it was the change over that did it. We were grateful nothing serious happened to him,


    Comment by Toni Robison — December 3, 2011 @ 12:01 AM

  6. Perhaps the No Substitution letter at the top will help you in the future…


    Comment by Phylis Feiner Johnson — December 3, 2011 @ 3:18 PM

  7. […] download the letter, go to https://epilepsytalk.com/2011/09/14/make-sure-no-changes-are-made-to-your-medications/ Share this:TwitterFacebookLinkedInLike this:LikeBe the first to like […]


    Pingback by Make sure no changes are made to your medications… « epilepsyconnection — July 14, 2012 @ 11:01 AM


    Little did I knew, there was going to be MAJOR shocking difference by simply GRABBING THE GENERICS.

    God, this is a nightmare.
    Trying to adjust to the GENERICS last three months ALONE, I’m having SEVERAL combination of Grand mal & hallucinating petite mal seizures, looking like “PANIC ATTACK” as witnessing friends calling Ambulance in PANIC, define my NEW conditions after 10 STABLE YEARS,

    Thank you for rescuing me again, I’m going to desperately NEED these forms to STOP MY SEIZURES.

    Thank you 😉


    Comment by Gerrie — August 21, 2013 @ 11:04 PM

  9. 10 stable years gone to the ghosts? Geeze. Because of generics, I presume.

    Here are two articles you might find interesting:

    Why Your Pharmacist is Your Best Friend


    Prescription Switching. Do You Know What You’re REALLY Getting?



    Comment by Phylis Feiner Johnson — August 22, 2013 @ 9:10 AM

    • This has been totally unexpected experience, disturbing to know, we could be EXPENDABLE for entrusting our well-beings for “medical establishments”, far more INTERESTED in mighty-dollar than controlling our seizures.
      “The pharmacy running out” of the original prescription should have been responsible enough to let patients know, replacing with “generic” can & may cause drastic change to the patient’s well beings.
      For God sake, OUR LIVES DEPEND ON THESE PRESCRIPTIONS. Therefore, the Pharmacies should NOT gamble with our lives,
      I guess, It’s time to take total control of our prescriptions, than having to hope, the Pharmacies will deliver accordingly.


      Comment by Gerrie — August 29, 2013 @ 4:16 PM

    • Yes Phylis, Thank you for coming to my rescue.


      Comment by Gerrie — August 29, 2013 @ 4:18 PM

  10. Im on med’s that my dr told them not to give me generic but the medical Im on wont pay for the good ones they said to use generic first.


    Comment by Shawna — February 21, 2014 @ 10:29 AM

  11. Sigh. Well insurance rules. $$$$$. 😦


    Comment by Phylis Feiner Johnson — February 21, 2014 @ 11:13 AM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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