Epilepsy Talk

“Epilepsy Meetup” — Support Groups Around the World | June 2, 2011

If you’re looking for a support group — or if you want to start your own support group — “Epilepsy Meetup” is a fantastic site to know about.

It features an interactive map where you can look for a group, a search engine to find a support group near you and a list of the largest meetup groups. Family and friends are welcome.

For more information, go to:  http://epilepsy.meetup.com


  1. I have checked before, and there is no support group nearby.


    Comment by ruth brown — June 2, 2011 @ 9:49 PM

  2. I have been looking for a support group near Asheville, NC and haven’t had any luck finding one. I have a strong interest in passion in starting one up in this area and looking for others who would like to join. If anyone is interested, feel free to email me at Element106@yahoo.com.
    Thanks and blessings of wellness to you all.


    Comment by Kate — June 3, 2011 @ 5:01 PM

  3. You might start one through that “meetup” website. But I think the best thing to try is:

    1. Call your local Epilepsy Foundation and find out if they have any recommendations for people in your area.

    2. Contact local hospitals and see if they’re interested in setting one up.(That’s what I’m in the process of TRYING to do.)

    3. Ask your neuro.

    Good luck — to BOTH of us! 🙂


    Comment by Phylis Feiner Johnson — June 3, 2011 @ 11:42 PM

  4. Good Luck Kate & Phylis. 🙂 🙂 Kate, my Hubby grew up in Asheville. 🙂 Or surrounding areas. Sure wish we lived there Now! 🙂 I know Hospitals Mite be interested, but, if you are looking to set a ‘Homier’ atmosphere, consider ‘Pot Luck’ Breakfast/Lunches or Suppers once a mth. You could try Contacting others w/ EP thru Craigs List. 🙂 And to Keep them coming back, Make meetings about More than Just EP & problems. 🙂

    I think the ‘biggest’ problem for those w/ Ep will be finding Transportation. Once you have a few members, it mite be a good idea to try to set up ‘car pools’ to eliminate this problem. 🙂

    Love Candi


    Comment by candi — June 5, 2011 @ 4:39 PM

    • Craig’s list???? Where would you find them? How would you find them?

      Candi, I do agree with the home approach and I’ve been thinking about that ever since you and I discussed it.

      If I’m so lucky as to finally getting the hospital to come through, I could either take it “off campus” and do what you originally suggested (car pools, rotating houses for meetings, etc.)

      Or I could bring in different kinds of goodies to the hospital meetings. SOMETHING to lighten the atmosphere up.


      Comment by Phylis Feiner Johnson — June 6, 2011 @ 7:53 PM

  5. Hi Y’all. What a great website. It did reinforce the idea that I need to get busy with that hospital thats interested in some kind of support group. I used the ‘meetup’ site and the only places for me within a HUNDRED miles would be New York City or Hartford Connecticut. The site doesn,t take into account having to cross huge bodies of water. Talk about transportation issues! I’ll bet this site is a huge blessing to many people thouigh. thanks for the info, Phylis


    Comment by Charlie — June 6, 2011 @ 6:38 PM

  6. Walk on water? Hmmmm. I don’t think so.

    Oh well. I guess the “meetup” site isn’t such a great idea after all.

    But Charlie, you’re the one who inspired me!

    Sounds like you’re just plain havin’ too much fun! 😉


    Comment by Phylis Feiner Johnson — June 6, 2011 @ 7:57 PM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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