Epilepsy Talk

Gratitude is the Attitude — Part 4 | December 31, 2010

We have so much to be grateful for, especially me:

1. For your support, strength and caring…

2. Your smart, sensitive advice…

3. The compassion you share so generously…

4. All of your kind, wise encouragement…

5. Your never-ending love and dedication…

You are MY godsend…today, tomorrow and always.


  1. Yaaayyy!!!! I am thankful for so much room !!!
    I am thankful for a new year !!
    I am making black eyed peas,, hog jowls, collard greens and corn bread for tomorrow !!!(really !)
    Hog jowls are unsliced bacon,, I’m sorry if I scared anyone,,,,


    Comment by patricia moran — December 31, 2010 @ 10:19 PM

    • and Tammy ( my daughter ) went to see Morning Glory and she said it is really cute, she doesn’t understand why it only got a 2 star rating,,,


      Comment by patricia moran — December 31, 2010 @ 10:24 PM

  2. Hi Pat, I am grateful for the extra room too. You cannot scare me with food. If I have never eaten a food, I will have to learn to eat it. You get use to a food after a while.

    I am grateful that we have food of any kind.
    I am thankful that the sun is out yesterday and today.It will dry things out.


    Comment by ruth brown — January 1, 2011 @ 5:03 AM

  3. Hey Y’all,
    Pat, you really made my mouth water, that sounds sooo good! kinda made me homesick ;o) My only additions would be Okra and swamp cabbage. Did you start your day with some eggs, grits, biscuits and sausage gravy? Yummy Thanks for the morning smile!


    Comment by Charlie — January 1, 2011 @ 11:08 PM

    • we made swamp cabbage for thanksgiving,, It’s illegal to cut cabbage palms but we have a friend who owns 4,000 acres and gave us two nice ones after a lot of rain,, that’s when it’s best !!!
      HAPPY NEW YEAR !!!


      Comment by patricia moran — January 2, 2011 @ 2:38 AM

  4. Hi Charlie, you sure made me smile!!
    I had one of my favorite breakfasts. I had grapenuts cereal with non fat milk. Oh, I had coffee, too, with non fat milk and 2 fig newton bars. A diabetic friendly breakfast. Simple, but I love it.

    I will go for a walk today or do some exercise.I only have 2 more Phsyical Therapy sessions. My left leg is in great shape. My left leg and foot does not hurt with the exercises.

    I am thankful that my right leg will get better soon. It will just take longer.

    I am thankful for all of my friends.


    Comment by ruth brown — January 1, 2011 @ 11:53 PM

    • 1. I am thankful for a 3 day get-away. (But I couldn’t stand “getting away” from YOU!)

      2.New Year’s Eve dinner was lovely but I ate too much carrot cake and paid the conquences afterwards. (See Jennifer, there IS justice!)

      3. Our room is enormous, overlooking Rittenhouse Square, which is still beautifully decorated for Christmas.

      4. Today, I have a real day on my own to walk, explore, and just chill out.

      5. Tomorrow, we’ll have dinner with some “wine” friends whom we haven’t seen since my birthday in June!

      6. And the next day, we pick up Lucy (my kitty) whom I miss desperately!


      Comment by Phylis Feiner Johnson — January 2, 2011 @ 1:30 AM

      • Rittenhouse sq.,, !!! can you see the mummers ?? JEALOUS<< I AMMMMMMM!!!


        Comment by patricia moran — January 2, 2011 @ 2:40 AM

      • Hi Phylis, I’m glad you enjoyed your ‘getaway’. You deserve it!


        Comment by Charlie — January 2, 2011 @ 9:01 AM

  5. alright,, I’m sorry,, that is a dream I have ,, to take Violet to Philly for new years and get a nice room and watch the Mummers Parade ,, nice and warm,, with gooood room service ,,
    I think downtown at Christmas is something to see,,, espically for Violet,,


    Comment by patricia moran — January 2, 2011 @ 8:07 PM

    • where did you stay ???


      Comment by patricia moran — January 2, 2011 @ 8:08 PM

      • I’m still at the Rittenhouse Hotel, have walked miles round the city (partily, because I kept on getting lost and I have a miserable sense of direction).

        I DID see a bit of the Mummers, but because they are no longer subsidized by the city, there were definitely less of them.

        But many were young, which was encouraging. One “off-duy” Mummer asked me to marry him. (How drunk do you think he was?)

        And all, in all, it was fun to be here at this time of the year.

        Note to Pat, wait until Violet gets a little taller to see the Mummers! 🙂


        Comment by Phylis Feiner Johnson — January 3, 2011 @ 10:22 PM

  6. im greatfull for nice weather today, being able to do all I can such as walk, talk…etc. that somepeople may not able to do.,

    I adnit I cheated with my diet this morning, but I will not anymore.


    Comment by jennifer schnegg — January 4, 2011 @ 12:35 AM

  7. Phylis,,,
    you are so lucky !!! that’s what the Mummers do !! they get drunk down on second st. and look for beautiful women to marry and safe places to pee all the way to city Hall !!! that means you will be blessed with the Luck of the Mummers all year !!!!!!! I am Jealous,,,, I’m sorry,,, I’m sorry,,,
    you lucky lady !!!! you probably had a street pretzel from the pretzel factory and a cup of Greek coffee from a street vendor !!!!
    well you deserve the luck of the Mummers after being stuck in the snow,,,
    The University of the Arts is a few blocks from city Hall ,, if you are able get your self a uarts t shirt,, they are usually really cool !!!
    the school might not be open,,,
    I am very very Happy !!! I can almost smell Philly !!!!! and hear the string bands !!!!
    and you got asked to be married to a Mummer !!!!
    JACKPOT !!!! I can’t stand it !!! I’m going to the airport,,, I can catch the train downtown
    Rittenhouse Square !!!!!! lucky,, lucky,, lucky!!!!!!
    you are blessed !!


    Comment by patricia moran — January 4, 2011 @ 2:18 AM

    • Phylis,
      did you go to high tea? I forget where it’s at,, one of those fancy hotels,,, lucky
      May you be blessed with everything that you need to be happy ,,,


      Comment by patricia moran — January 4, 2011 @ 4:14 AM

    • Well, if a green mummer can bring me luck, I’m all for it! (Yesterday, I fell UP and DOWN 2 steps in the garage and I ended up in the hospital for x-rays. Happily no breaks, just a bad sprain, so maybe the mummers were looking after me!)


      Comment by Phylis Feiner Johnson — January 6, 2011 @ 5:42 AM

  8. Hi everyone, Im greatfull that I feel good, my glutenfree bread turned out quite good. Fresh, and moist, not dry like most people think of glutenfree bread, at least not this one. Im greatfull to be going out to the bok store.


    Comment by jennifer schnegg — January 4, 2011 @ 10:15 PM

  9. Happy New Year!

    We have been traveling!

    Hi Phyllis! You are writing inspiring things that I will love to write back too! Thank you for that and a BIG HUG!!!

    Hi Jennifer! I am grateful the bread went great!

    Hi Ruth! I am glad you are on the mend! I have been falling but not breaking anything!

    Hi Charlie! Thank you for your notes! Happy New Year!

    Hi Patricia! I thought you were talking about San Francisco for a moment! We travel alot in the holiday period. I do not have a computer.

    December is not a computer friendly time for me!

    I pray we all have a good year in 2011! My friend Mariane liked that number better and laughter! We agreed it only can get better!


    Comment by Toni Robison — January 4, 2011 @ 11:54 PM

    • Toni,

      How do you write all these brilliant things WITHOUT a computer? Who do you share a computer with and are they in your household or somewhere else?

      I agree with you, 2011 can only get BETTER! 😉


      Comment by Phylis Feiner Johnson — January 6, 2011 @ 10:46 PM

  10. I am thankful that I got my daughter through college,,,
    I am very thankful that my dog is staying in the yard,( he can fly over a 4 ft chain link fence !)
    I am thankful that we have a 4 ft chain link fence,,,
    I’m just thankful to be here and for all of the little things that God blesses us with everyday,
    I am thankful that Allie Mae finally got to go to heaven to be with Leon,,


    Comment by patricia moran — January 6, 2011 @ 9:07 AM

  11. I am thankful that I had the influences ,,,as a child,, that made me like I am,,,
    I am thankful that God helped me raise my child to be who she is,,,I am thankful that I can forgive and be forgiven,,,
    Today ,, I am just feeling very thankful,,,


    Comment by patricia moran — January 7, 2011 @ 6:20 PM

  12. Im very greatfull

    that someone from the board of directors of the swing dance society has volunteered to give me a ride to tomorows dance. I got the email this morning from another member. I sent an email to the lady named Diana and gave her my phone number. Now I have to wait for her to call me so that we can work out the details.

    2. also greatfull I was able to go to the book store yesterday.

    3. I slipped up yesterday with my diet, but am glad todays a new day. I will start again and eat right today and following days.


    Comment by jennifer schnegg — January 7, 2011 @ 10:09 PM

    • swing dancing is really fun!!! yipeeee!
      a slip up is not a failure,,just a minor setback,,, happy trails !!


      Comment by patricia moran — January 7, 2011 @ 10:14 PM

  13. Yes Diana, I love it too. I’ll let everyone know how it goes.


    Comment by jennifer schnegg — January 7, 2011 @ 10:19 PM

  14. I am thankful that I only have 3 more PT sessions. I am getting a lot better.


    Comment by ruth brown — January 8, 2011 @ 4:36 AM

  15. I agree, Phylis

    I am thankful that I have a computer. I can talk to everyone.

    I love music.


    Comment by ruth brown — January 8, 2011 @ 10:49 AM

  16. And we LOVE you. So hang onto that computer, no matter what. If push comes to shove, I’ll PAY for your electricity bills. And I MEAN IT!


    Comment by Phylis Feiner Johnson — January 9, 2011 @ 1:53 AM

  17. im greatfull :

    to be able to go dancing tonight. My dream come true.

    The thing is I sure hope I will not have a seiz then.

    I already had 1 complex partial today, and this morning a couple simple partials.


    Comment by jennifer schnegg — January 9, 2011 @ 2:20 AM

  18. im greatfull my dance was better than I thought. I danced for about 3 1/2 hr straight. I loved it. There is going to be another dance in 2 wks. I hope to be there.

    A change of subject, why have everyone told me” what do you eat then, being on the GARD diet? ”

    There is plenty, meat, fish, veggies, gluten free grains besides wheat, and all fruit. Just have to read all labels. The foods should not contain any forms of wheat, ( also includes white flour), rye, barley, corn, MSG, and cows milk, or nuts. Also includes anything derived from them like, corn syrup, soy lechithen, whey, etc…..

    Most processed foods are out, because they contain them.


    Comment by jennifer schnegg — January 9, 2011 @ 10:48 PM

  19. I am thankful that all of Jennifer’s hard work is now blossoming,, good job !!!
    I am thankful that it snowed at Violets house again already this winter,,, ( I got her a sled last year)
    I am thankful that I finally know what Earl wants me to do with his Harley Davidson T shirts !!!
    I am thankful that the Lord is blessing us with everything we need to survive in this world,,,
    I am thankful that Phylis heard God’s wisper in her heart and jumped full throttle into her new work,
    good Job !!!


    Comment by patricia moran — January 11, 2011 @ 1:48 AM

  20. Yes Pat, Dancing was GREAT! There is another dance in two weeks. I had so much fun, and yes there were alot of dancers. Some good, some had no clue what they were doing. Most were older than I. The others were 16 and under.There is a 10 $ fee to dance there, but I would gladly have paid more if I had to. The dance was from 7pm till 12am. I left at 11:30pm. There was live music. GREAT huh.


    Comment by jennifer schnegg — January 11, 2011 @ 1:56 AM

    • any blisters?


      Comment by patricia moran — January 11, 2011 @ 6:00 AM

      • no blisters so far, cant wait till next dance. Yes, a little serching online did pay off. If you want something bad enough, you will find what you are looking for.


        Comment by jennifer schnegg — January 11, 2011 @ 6:10 AM

  21. I am thankful for this “job” and all of your enthusiasm and generosity.

    I am grateful that Arthur got me a new super-duper desk top upgrade and a new laptop computer so I can do my “job” better. (And you should see the neat carrying case I found!!!)

    I’m honored (but not so thrilled) that Arthur set up a Facebook page for Epilepsy Talk.

    I look forward to writing, researching and talking to you each day.


    Comment by Phylis Feiner Johnson — January 11, 2011 @ 7:35 AM

  22. Hi Y’all !
    This has been an amazing couple of weeks! A friend of mine told me “Miracles are falling out of heaven!!!! look up so yours doesn’t
    bounce off your head !!!!!
    you are being blessed !!!! heads up !!!!”
    Is that cool or what?
    I’m thankful for so much, I can hardly believe it!
    Work has been great! my friends who have been hurt are healing well.
    Me and my wife’s anniversary just passed and we had an awesome day and night! :o)
    I’m thankful i’m connected to many great outreach’s.
    I’m blessed to be part of this caring and sharing community and I’m thankful Phylis started it.
    I’m thankful I can give to others.
    I don’t have money, but I can share my time, talent’s and Jesus’ love.
    I find it amazing that when we give to others, we’re the ones that get the blessing.
    I’m thankful I can honor someone by respecting their cherished possesions and putting them to good use.
    I’m thankful that this month is going to be more blessed than last. I’m thankful for a couple epilepsy awareness articles are almost ready to start. I’m thankful my friend didn’t get killed in a car wreck on the ice last week. I’m thankful that my blessing of having a vehicle and driving again will help my friend get around. I pray all will be safe as this next winter storm approaches.
    God Bless and stay safe.


    Comment by Charlie — January 11, 2011 @ 10:26 AM

  23. im greatfull: for charlies strong beleif in the bible, and Pat’s willingness to help in finding solutions or advise for others. For all I have that many dont. For being able to visit my parents anytime I wish.

    Pray for Diane, girl that went to dance with me. she has bone cancer. It is in remision now, but she still has 3 more treatments. She feels very sick after each. She is the sweetest girl. She and my 2 younger sisters went to dance class yrs ago. We had so much fun saterday at swing dance.


    Comment by jennifer schnegg — January 11, 2011 @ 11:44 AM

  24. I am grateful that I was able to destroy a virus in my computer all by myself !!!


    Comment by patricia moran — January 13, 2011 @ 1:19 AM

  25. Howdy,
    Got a lot to be thankful for today. I’m Thankful that Pat killed that bug by herself and can continue sharing her insights. I’m thankful that my Pick-up has 4 wheel drive and that I even have a vehicle!. I’m thankful I got to work safely and the snow thrower started on the first pull. I’m thankful I was able to clear paths for the Animal Caretakers to get in (and out). I’m still looking forward to helping my coworker get to work when he feels better. sure could have used him today. I’m thankful I had some money on hand to pay some fellow’s looking to make a buck shoveling my driveway. That was the last thing I wanted to do when I got home! To have to go out and shovel MY OWN DRIVEWAY! Plus I was able to show Jesus and share the Gospel with people that get such a hard time for even being in this country. I’m thankful I have a warm house, food to eat and people that love me. I do have quite the headache today as I think my cap was too tight and was rubbing my scalp against the edge of the titanium mesh the surgeon put over the hole in my head. I’m thankful I can laugh about it. There’s three guys in my church that have had brain surgery. Me, a fellow who had a tumor removed, and another guy who had brain surgery to remove cancer. We call ourselves….The Hole In The Head Gang !
    I recognize that there’s always someone that’s got it worse and I count my Blessings.


    Comment by Charlie — January 13, 2011 @ 11:15 AM

    • Tell me about the titanium mesh. Where is it? Does hair grow over it or does it just look like a bald spot?

      Exactly what did the surgeon remove from your brain? Are you completely seizure free or seizure controlled?

      I love the “Hole in the Head Gang!”

      When I was in rehab, some people had gold stars on their name plaques. Being from the “gold star” (good job!) generation, my roommate and I thought all the people who had gold stars by their names were special.

      We came to find out that the gold stars meant we fell a lot. So we began to call ourselves “The Falling Stars!” Much like the “Hole in the Head Gang!” 😉


      Comment by Phylis Feiner Johnson — January 13, 2011 @ 9:47 PM

      • Hi Phylis,
        You said “exactly”, so here goes. On the Xray, it looks like a flat piece of a steel radiator hose that flexes, probably 4″ by 5″. The mesh is kinda cool except for an edge or two that rub the inside of the scalp.I don’t even know it’s there most of the time. You know that dent in your temple? well the bottom of the mesh can be felt by finger and pressure like a hat, or a careless barber, can aggravate it. my hair grew back like normal. I keep it cut close so the scar from the flap is visible. If someone asks me about it,I have an opening to tell them about Epilepsy Awareness and how the Lord has Blessed me.
        History lesson…quit here if you’ve heard enough.
        1973,in the ‘old days’ I had a different Brain surgery to remove a small benign tumor. They thought that would cure my Epilepsy.It didn’t. Back then the piece of skull they removed was thicker, (my wife says it still is). ;o). They put it back, I healed well, but still had seizures.
        2009,Have an Epilepsy surgery. They cut my head open, wire me up for a week, Then the next week operate to remove the siezure focus area in the right temporal lobe. As they removed the skull, it came out in pieces because my skull had thinned. After the surgery, when the surgeon put it back together, he placed the titanium mesh over the pieces and screwed the bones to the mesh to keep them in place. So far so good ! PTL
        Funny story… As I healed I heard some clicking that was new to me. I called the Doc, he told to get my head Xrayed in case something shifted. It didn’t! PTL and I got used to an occasional click that has since gone away.
        However….I now have Xray proof that ….
        I don’t have a screw loose! haha
        Today is the 15 month anniversary of my surgery and I’m Seizure Free. First time in 53 year’s. PTL


        Comment by Charlie — January 14, 2011 @ 9:43 AM

  26. oh for Heavens sake !!! and I do mean for Heavens
    sake !!! thank you for sharing that Charlie !!!


    Comment by patricia moran — January 14, 2011 @ 9:55 AM

  27. Charlie, I did ask a friend about it who had surgery to remove a triple tumor on her cerebellum. She had a tough time of it. (It was 2 years ago.) Swelling, cascades of seizures and she lost all of her motor and executive functions.

    She spent 6 months at Kesseler Institute (best place for Rehab), went though all of her savings and obviously could not return to her former life as a psychologist and life coach.

    But she’s here: brave, courage and making progress every day. She’s a terrific cook…stained glass artist…she’s emailng me every day to practice her writing, communications and grammar…and she just read her first book in three years!

    HOORAY for you and for Sally, with all your grit, strength, perseverance, optimism, and spirit!


    Comment by Phylis Feiner Johnson — January 14, 2011 @ 9:33 PM

  28. Charlie, congratulations on the success of your surgery. Things will only get better for you.

    I have great news!! I am well!! My challenge is finally over. I can do things and exercise. My muscles are firming up. My son said that I looked better today.


    Comment by ruth brown — January 16, 2011 @ 2:03 AM

    • YAY Ruth!

      You all should see the speech Charlie wrote to present to his local churches (and wherever he may go.)

      That guy is a real go-getter…sincere, caring, compassionate and dedicated, too!

      Let’s have a hand for Charlie!!! Along with our thanks…


      Comment by Phylis Feiner Johnson — January 16, 2011 @ 2:54 AM

      • Phylis is the one who needs a ‘hand’ by my book !
        I think we only see the surface of all she does and is involved with.
        Thank you for all your help and encouragement.


        Comment by Charlie — January 16, 2011 @ 10:15 AM

      • YOU are the one I’m so proud and grateful for.

        You, together with the whole Epilepsy Talk “family” are doing so much to help and teach others, including those of us who need guidance and understanding.

        Sure I work hard, but this is not only my “job”, it’s my life. And I thank you for all you contribute to make it worthwhile…

        Sent via BlackBerry by AT&T


        Comment by Phylis Feiner Johnson — January 18, 2011 @ 3:23 AM

  29. Oh, and one more piece of fabulous news:

    Tonialpha was contacted by the Epilepsy Society to be at their offices on Tues of next week to work w/ Social Security.

    As she said: “It will be a question type period to make it easier for the individual to fill out the forms for the Social Security Assoc. It is for the the Social Security Disability benefits.

    They ask you the questions — describe that we are testing the proposed form, not you — describe how the data will be kept anonymous by never putting
    individual names in the report — respond to questions that arise during the session.

    I thought this was a turn around but more positive!!!!

    They needed volunteers and I am one of their volunteers for different things. This was juicy!!!

    I said I would love it snow, ice, rain, cold! I thought this was interesting!”

    And I (Phylis), think it’s a real coup and VERY exciting. Where there’s life, there’s hope!


    Comment by Phylis Feiner Johnson — January 16, 2011 @ 3:05 AM

    • I am thankful that Phylis can travel all over the world and keep in touch with us,,,
      I am thankful that Dr. Ford ( my Doc ) is a
      wonderful man and cares about his patients and is verrrry smart,,,
      I am thankful that God made cats and dogs ( most times they are cooler than people)
      I am thankful that Jennifer hasn’t landed in jail from listening to my advice !!!
      I am very thankful that a master gardener gave me advice on what to do if my Mangoe tree blooms early then loses it’s blooms !!
      I am thankful that you guys are just so wonderful and that Miss Ruth is really perking up !!!


      Comment by patricia moran — January 17, 2011 @ 2:26 AM

  30. hi,

    I have been very busy. Fighting with my self emotionaly. but im greatfull:

    1. I finally am able to go dancing every 2 mo. All the looking did pay off.

    2. most days im excited that I have a good attitute about my new G.A.R.D diet. I like the challenge. Im finding out new foods, and found a website that gives new recipies.

    3. My parents are there for me to listen to my feelings if needed.

    4. I finally finished brushing, combing, washing him, combing, and drying. It took me 2 hrs to do. I really dont like the process coz it takes so long. He is a LONG haired shi tzu. But I love him

    5. im now walking him 1 hr a day. Actually he was walking me.

    If it werent for my dog and cats, I wouldnt be crawling out of bed. They sure know how to get me out of bed. The 3 yr old black prince jumps on the bed up and down like a child would do.

    The 13 yr old long haired queen, walks all over me. Qhincey, the dog will pound on the door, or shake the bed and make these sweet purring noices.

    These three are my children. When Im asked if I have children, I say “yes”, a black haired boy, a blond boy, and a gray girl.

    6. tomorow is a new day


    Comment by jennifer schnegg — January 18, 2011 @ 8:01 AM

  31. I am grateful to have spent real “quality time” with my cousin and friend in NYC. A good time was had by all, along with insightful conversation.

    My cousin has finally put her husband’s picture away. (Bruce, who was my actual cousin. Colleen is his widow.) She’s replaced it with her new love — David — my best friend in high school who I introduced her to.

    Colleen is in love and looks much happier and fulfilled. I am thrilled two people I love are in love with each other!!!


    Comment by Phylis Feiner Johnson — January 18, 2011 @ 10:11 PM

    • hooray for love !!!!


      Comment by patricia moran — January 18, 2011 @ 10:14 PM

  32. I am thankful that Jennifer is starting to realize how special she really IS and that she understands that anyone who does not KNOW how special she is and APPRECIATE it ,,, dosen’t deserve her love,,, hasen’t earned her love and would never be able to return her love,,,
    Please Bless her heart with wisdom Lord,
    thank you


    Comment by patricia moran — January 19, 2011 @ 3:38 AM

  33. im greatfull for all of you will help me through this painfull emotional time. My boyfriend broke up with me. I will not be alone. im greatfull that I have music wed., fri. I go to target or the bookstore. I go dancing 2 x a month on saterday. Epilepsy support group 1 x mo.,


    Comment by jennifer schnegg — January 19, 2011 @ 10:08 AM

    • congratulations !!!
      I think you probably don’t understand yet,, how wonderful this news is for YOU !!! to me it means that you have graduated !! when we truly begin to love ourselves,, we stop attracting self serving dotes,, they can no longer get what they need from us because we can look them square in the eye and say
      ” Quid Pro Quo ” that means,,,
      something for something ! if you can look someone in the eye and they look into you and see that you care about yourself,,,
      the only people that look back are the ones that care about themselves,,, and they are the ones who will value who you are !!! so now is the time to celebrate !!! you’ve made it !! he saw a spark of self love igniting in your soul and thought to himself,, can’t control this one anymore ,,,
      unfortunately he will now go look for another woman who will love a man more than she will love herself,, pity her,, but I’m glad that it won’t be you !!! now I could write until next month without stopping how important this step that you’ve made is,,,
      you just open the door for love to find it’s way to you !!!


      Comment by patricia moran — January 19, 2011 @ 8:27 PM

    • Remember that you are LOVED and very lovable!


      Comment by Phylis Feiner Johnson — January 19, 2011 @ 9:39 PM

  34. you are So right Pat, im guessing you have been in my situation before. Why did it take so long? I mean I did care about myself. I have been told that im a “want, want” type of person.

    I have slowly begun to be able to do things for myself. Like go out shopping without needing him there. Im finding it less stressful to do certain things, coz of having been going going by myself out and getting more confidence.

    I am now more concerned about my diet.

    Im going dancing now. Im going to go to check about volunteering down the road. I can walk there. Its just 10 min. walk from here.

    I guess if I begin to love myself more, then I will attract a wonderfull man. I just have certain specifics on what im looking for.

    I would like to travel more with him, by plane too hopefully.

    2.One that knows how to speak german, loves pets, loves to dance, cares about his diet, and also knows when it is a good time to spend money and knows how to save too for important expenses.

    3.One that likes to give flowers. And can accept my music. Onethat doesnt consider thing items for love. It is not the more things you give that mean more love.

    4. One that is not a mamas boy, and has a healthy relationship with his family.

    I have learned many things from this relationship. It just would have been nice to not have to find out before 4 yrs was up.

    I hope I wont die alone and childless. I know it will happen. There will be a way for it to work, have mild seiz and still have at least one. There are always nanys. My mother had one when she had us twins. Or even my future husband may have a family to help me out.

    I know I will not have as many seiz now. Hopefully.

    I will start to go back to church.

    But I hate the tears, and no sleep I got last night. I didnt cry all night. Just couldnt sleep.

    Why did I not see this that he had none of these things?

    I will need every ones wisdom here to help when I need it. Dont worry about giving me your thoughts, ok. I am one that likes to listen, and if I want to do it, I will. If I dont then I wont.

    I hope I will not sink into depression. I guess if I do all the thinks I say I will, then I wont.

    I know alot said, I know. Thanks so much, Pat. All those qualities, you mentioned, he had.

    I cant beleive I stuck with him this long.

    I have been thinking for a while, that I need to leave him, but didnt know how or when to leave him. Im kind of glad he was the one that had done it.And releived sort of. Free. Im just scared.


    Comment by jennifer schnegg — January 19, 2011 @ 9:54 PM

    • I am sure that Charlie will say something loving and wise to give you the male perspective,,, if we haven’t scared him away !!!
      may you be blessed


      Comment by patricia moran — January 19, 2011 @ 10:05 PM

      • Wow! I’ve been outta the loop a couple days and read “It’s Your Turn” before “G.I.T.A”. As I shared over there, I know this one thing for sure… God may close one door, but He always opens another. I Pray the door He opens for you has nothing but wonderful things behind it and all your hopes and dreams are fulfilled. Hugs
        As for being ‘scared away’, forget about it! I don’t scare easily.
        Blessings to you all.


        Comment by Charlie — January 20, 2011 @ 9:49 AM

      We have all been through it to some degree .. some of us have had to repeat the lesson many times before we learned it !!! you will not have to repeat this lesson because we are going to help you learn and understand,, if he had all the qualities I mentioned,,, ( which I doubt,, because you were looking at him thru the eyes of love ) he wouldn’t have bitched about the shirt thing,,,


      Comment by patricia moran — January 20, 2011 @ 5:08 AM

  35. Lions and tigers and bears OH MY !!!
    the only thing to fear is fear itself !!!

    You will soon be soaring with the eagles !!!
    fly little one fly !!!


    Comment by patricia moran — January 19, 2011 @ 10:01 PM

    • I am thankful that Larry got me half&half for coffee in the morning,,,
      I am thankful that Jennifer will grieve, then move on to be a fully blossoming young beauty,with radient skin, cause she is gonna stick to her diet like Ruth and I,,, ( misery loves company ! )
      I am thankful that I can take a hot bath tonight and soak the stress out of my bones,
      May you be blessed,
      Good night John Boy !


      Comment by patricia moran — January 20, 2011 @ 9:27 AM

  36. Hi Y’all
    I’m thamkful that I’ve able to help a couple friends get through tough emotional times. I’m thankful for our military all over the world. I pray for peace in all the troubled parts of this planet. I’m thankful for people that open up and let their friends love on them. I thankful for friends that love on us during our tough times. I’m thankful for an encounter in a coffee shop this AM, that allowed me to tell someone about Epilepsy and directed him to an Epilepsy center as opposed to the Family MD he was seeing. I’m thankful that the big scar on my head (which I wear proudly) is like a picture worth a thousand words. Finally,
    I am so impressed with you all, and the way you came to yhe aid of one of our own that it blows my mind!
    Later Gator’s, back to work


    Comment by Charlie — January 23, 2011 @ 1:55 AM

  37. im so greatfull

    1. that I had so much fun at the swing dance this evening. It sure gives you alot of energy. The next one is feb 12.

    2. Im greatfull to have been going to the book store this morning.

    3. for my seiz are actually a bit less, thankfully. dont know why

    4. neighbor told me there is a lutherine church here in town that has a ladies group that does quilting. Im excited. I know you all have read emails where im sobbing and have tears in my eyes, and others where im excited about the future, but also terrified.

    5. Thankfull for my dog and 2 cats, they get me up in the morning

    6. I finally went to the elderly home hospital to find out about volunteering. I have an interview feb 1st. cant wait

    7. have a peicefull home to go to after being out dancing, walking, instead of a house full of kids.

    8. thankfull I have a computer, and have a good time researching new information.

    for friends


    Comment by jennifer schnegg — January 23, 2011 @ 1:30 PM

    • Way to go, Jen! It sounds like you got your ‘Mojo’ back!” You’ve regained that special spark you used to have, as well as your inspiration and creative genius!!I’m so happy to hear you talk this way! Anybody tries to take it away from you, dig your heels into the ground, and REFUSE to give it up!
      Let me share this with you,
      We pray,
      God listens,
      God speaks,
      We listen,
      Things happen !


      Comment by Charlie — January 23, 2011 @ 8:16 PM

      • ( I had a feeling Charlie would have
        something inspirational to say )
        I am thankful for Jennifer,,she teaches me how to cope !
        may you be blessed


        Comment by patricia moran — January 23, 2011 @ 8:29 PM

  38. I too am thrilled that Jennifer is recovering and finding fun + constructive things to do.



    Comment by Phylis Feiner Johnson — January 24, 2011 @ 12:32 AM

    • I am thankful that Jennifer is rebounding very well ( Even though it never feels good ) I know that God is blessing her with the stregnth and wisdom to bloom,,
      I am thankful that everyone is well,,,
      I am thankful that spring is right around the corner !!!
      I am just thankful !
      may you be blessed (please send any extra smiles and giggles to Jennifer thank you Lord)


      Comment by patricia moran — January 24, 2011 @ 6:04 AM

  39. Im thankfull that im relaxed today. Man did I ever cheat on FOOD today bad. Wuincey behaved, charley my cat didnt knock anything iff the shelf. I had alot of fun last night at dance. BOY did I ever have fun. I got home 12 am and didnt get to sleep till 1:30 am. I was so wired up that I had to wind down. There was a live band of 2 guitar players, 1 drummist, 1 base player. I dance about 3 hr straight. well, im going to lay down and watch tv. Just got in from a walk with my dog, Quincey.


    Comment by jennifer schnegg — January 24, 2011 @ 6:54 AM

  40. oh cheeze,

    Raymond came by today gave me my birthday gift. He asked me if I want to go back with him. I told him to take more time and really think about it long and hard. I told him that:

    1.im still going to go on computer alot,

    2. play alot of music,

    3. am looking for a church,

    4. am going to persue my interest.

    5. am going to dance

    6. going to the YMCA once I find a way of getting there

    7. am still going to have same new diet

    8. have same view about saving money.

    9. am not going to put all that off

    10. am still going to find the church that has a ladies quilting group, that my neighbor told me about.

    I dont think he’s worth giving all that off. Give me strength to tell him this. Pray for me.


    Comment by jennifer schnegg — January 24, 2011 @ 10:56 AM

  41. Thanks charles.

    Im sure I wont cry anymore. Im going to let him cry now. I know what my goals are. I went to church this morning. It was a bit loud. I’ll search for some others. There is a church around the corner from here, i’ll check that one out next week.

    Thanks again for my new inner strength. Its my life. I’ll still be his friend, but it will just be a casual one. If he can fit, the get togethers into my schedule, then fine.

    Im not going to be mean to him about it. Just to the point.


    Comment by jennifer schnegg — January 24, 2011 @ 11:55 AM

    • crying makes us feel very sad,, and it is not fun,,, but the good side of crying is that,,,
      it reminds us how human we are and how deeply we feel things, and that we are in touch with our feelings,, even the very painful ones,
      if you don’t feel the painful ones,, you can’t feel the joyful and happy ones,,,so when you cry all of those painful emotions out,,, you are making room for the new ones,, love ,joy ,contentment,peace,happiness, wonderfulness,
      I am so Happy for you,
      you are being blessed !!!


      Comment by patricia moran — January 24, 2011 @ 10:11 PM

  42. yes, I know I will. We both need to take some time to figure out what we want. As far as my goals so far, it looks like we will not be couples aymore. Just friends.


    Comment by jennifer schnegg — January 25, 2011 @ 12:17 AM

  43. I dont understand why im angry. I called him to see if he wanted some old sheets I have that I no longer want. I have some new ones. He didnt answer st first. I called later, and he answered then. I asked him. I dont understand my feelings. Maybe coz its an automatic feeling. Maybe I should not call him anymore, and wait till he calls me for something. Dont know. Im going to take a walk.


    Comment by jennifer schnegg — January 25, 2011 @ 1:54 AM

  44. New Thankful thing….
    I am just so blown away by the people God is putting in my path to talk to about Epilepsy. last week the coffee shop, last night at a Motorcycle show, and today, while visiting someone in the hosp. I meet a lady who just started having seizures a year ago and she’s worried about not driving. I gave her me and my wife’s business card in case she ever needs a ride. PTL


    Comment by Charlie — January 25, 2011 @ 6:36 AM

  45. You sure do get around Charlie! Are you making up for all that missed time not driving? 🙂

    You truly are an angel on earth…


    Comment by Phylis Feiner Johnson — January 25, 2011 @ 7:14 AM

    • Phylis, I’m getting around so much I had to put new tires on my pick-up today. I figure I ‘owe’ thousands of rides


      Comment by Charlie — January 25, 2011 @ 7:53 AM

  46. I did not use the sheets as an excuse to call him. I didnt want to throw them away. Today im having a roller coaster of emotions. Mostly hate, confusion and frustration.


    Comment by jennifer schnegg — January 25, 2011 @ 7:22 AM

  47. Jenn, Why don’t you try what my daughter did, she took ALL her ex-boyfriends stuff, put it to the curb, told him (ONE PHONE CALL ONLY), to come get it and what was left she put in the dumpster!
    She said it was Exhilerating!!!
    Go get a wheelbarrow and dump those negative emotions at the curb


    Comment by Charlie — January 25, 2011 @ 8:00 AM

  48. Thanks for the suggestions, but I will not get rid of the gifts that he gave me through the 5 yrs we were together. His personal things are already out of the house. How do I just get rid of my emotions? I know that when I start to find a church to go to, start to volunteer, join the YMCA, and swing dance. I will feel better.


    Comment by jennifer schnegg — January 25, 2011 @ 8:09 AM

  49. who do I talk to or what do I do if I think of him too much?


    Comment by jennifer schnegg — January 25, 2011 @ 9:08 AM

    • Prayer always helps any painful situation for me.


      Comment by Charlie — January 26, 2011 @ 7:33 AM

  50. I want to call him and tell him that I love him, so bad. I wasnt feeling good today. I was slightly dizzy most of day. I took an hr nap. I felt better afterwards. Im lonely. I didnt get a chance to talk with Reem, my friend.

    Im greatfull for peace and quiet
    2. friends
    3. music lesson is tomorow
    4. my epileptologist appointment is monday
    5. I finally sewed a snap button on my jacket.


    Comment by jennifer schnegg — January 26, 2011 @ 8:41 AM

  51. im greatfull:

    1. im out of my blues
    2. that its only raining instead of mix of snow and rain
    3. finally sewed a snap button on my jacket, kept putting it off, not wanting to work on it
    4. finally getting my hunger back
    5. ordered the book that I had been wanting. I used my sisters gift card that she had given me for Christmas. Bought the book at Target.com online


    Comment by jennifer schnegg — January 26, 2011 @ 10:47 PM

  52. Hi Y’all,
    I’m thankful for a great day at work. We accomplish a lot and have fun whether they like it or not. I aimed the snowblower at the back door and piled it half way up the door! You oughta seen the look on the bosses face when she opened that door! HAHA
    I’m super thankful that when I opened an e-mail from the hospital that did my surgery, my Surgeon (Werner Doyle) was being honored by the FACES group for his dedication! SO COOL !!!
    F.A.C.E.S stands for Finding A Cure for Epilepsy and Seizures. They do a lot, check them out! I wanted to go to the fundraiser, until I found out the price. Yike!
    I’m Thankful because,now that I’m more vocal about my life with Epilepsy, I’m running into people left and right that have Epilepsy or “know someone” and want my advice.
    I’m thankful that friday I go to NYC to see my Neuro for a checkup. hope it don’t snow no more!
    Been an awesome week so far, and can’t wait to see what the rest of it brings!
    Blessings to you all


    Comment by Charlie — January 27, 2011 @ 9:19 AM

  53. I’m excited because this biotech company is coming to my house Friday (the weather shouldn’t be bad, Charlie), to discuss trials for an exciting new med for Partial Seizures.

    I’m honored to be part of their effort.

    I hope this med will be an asset to our epilepsy community so that people will suffer less.

    I’m afloat with enthusiasm and hope!


    Comment by Phylis Feiner Johnson — January 28, 2011 @ 3:03 AM

    • That’s awesome!!!! There’s alway’s hope, and I pray these trials are a step toward helping many people!


      Comment by Charlie — January 28, 2011 @ 7:33 AM

    • how’d it go with the biotech Co?


      Comment by Charlie — February 1, 2011 @ 2:19 AM

      • Wonderfully! They want me to help find qualified applicants for this partial seizure clinical trial med. It’s meant as an adjunct med, to help those who are still having partials, despite their current AEDs. I’m really fired up about it and already wrote an article which is now in their hands…

        Also, I have a conference call today with one of their nurses…should be interesting!


        Comment by Phylis Feiner Johnson — February 1, 2011 @ 2:27 PM

  54. Greatfull for. a beutifull day
    2. cooking better now, and not going out to eat has made me loose some unwanted weight without trying to
    3. will go out to bookstore tomorow
    4. im happy


    Comment by jennifer schnegg — January 28, 2011 @ 3:10 AM

  55. im greatfull that my book camed in yesterday. It was a juicing book that I ordered online.

    2. I bought myself a nice red soft bathrobe from belks for 10 $ . I had Been wanting it but it was 50 $. After christmas, they marked it down to 10$.

    3. My Dr. appointment is tomorow. Not looking for it, but its my neuro. I dont really have any news, except my new diet, and daly head ach. 2 x day.

    4. I sleep through almost all night.

    5. The weather is getting warm.

    6. mother called and we had a nice chat about whats new. We havent talked in a week. I did my father. He took me to music wed., and grocery shopping directly afterwards. And to target.

    7. My friend was working there that day. I told her about my seiz., she said , she was sorry it happened. I asked her how long she was working. She was working till 2, and asked me if I needed a ride home. I told her no. Then later I told her I was getting dizzy and probbably needed to go home. She had to work another hr. I told her i’ll wait, but wanted to get me some of that 90% ,dark chocolate. I also had told her that there was the red robe that I wanted to buy from belks. So, she and I went to belks, Yes, the robe was still there. I was so happy. I took a long bath that night. Im thankfull that she took me there and this for me, and it all worked out. Im sure going to give her one of my baby plants that needs to be taken appart from the mother plant. I’ll do that in spring.

    8. Im getting stronger emotonally. Today I just wanted to kick the door down. But I didnt. Thankfull I didnt and later I calmed down.

    I wish everyone is having a good night.


    Comment by jennifer schnegg — January 31, 2011 @ 4:14 AM

  56. Hi Jennifer,

    I am having a good night.
    Did anyone got caught in that horrible blizzard?
    I am completly well now.



    Comment by ruth brown — February 1, 2011 @ 3:21 AM

  57. yes Ruth.

    I had my epileptologist appoint.. My dr is optimistic that my seiz number will go down
    now that I have good hapening. Im greatfull to hear that. Im now going swing dancing, volunteer, go to church, my new diet, excersizing, and good attitute about things. Good night. Im tired. No we did not get snow. I fell the other day. I went walking with my dog, had a complex partial, and he pulled me down. Wasnt hurt, just a bruse on knee, and scraped my left hand knuckles. well good night again. I just have a bundle of excess of energy tonight, and it is 10pm.


    Comment by jennifer schnegg — February 1, 2011 @ 3:29 AM

  58. We’re having an ice storm today and I’m grateful to have a roof over my head…heat (at least for now!)…lots of candles…many flashlights..and the wine cellar if things get too bad! 😉


    Comment by Phylis Feiner Johnson — February 1, 2011 @ 2:11 PM

  59. hey, today was great. Im greatfull to go volunteer today, from 1:30 till 5. Tomorow, I will be helping the beautician go and get the residents to and from their room for them to get their hair done. This is done mon. and wed. Im greatfull to have made a delicious dinner of fish and onions. Later I will have some oranges with rice milk. Im going to kick my feet up. Im greatfull that the day went great.


    Comment by jennifer schnegg — February 1, 2011 @ 11:30 PM

  60. I am thankful that I have such vivid memories of my Father,,,
    I am thankful that Jennifer stirred those memories,
    I am thankful that Violet is 3 today !! she’s my little ground hog !!!
    I am thankful that Jennifer has taught me to remember that no matter how painful today is,, set your sites on a wonderful tomorrow,,,
    I am thankful that Phylis and Ruth are back to full stregnth and that spring is just around the corner,
    may you be blessed


    Comment by patricia moran — February 2, 2011 @ 2:52 PM

    • Same here Pat, about stirring memories, My Dad was so special and he passed away when I was 17. He died in my boat while reeling in a fish.(what a way to go) Everyone’s dad isn’t the same but I wish I had more time with mine. I was one year out of my 1st brain surgery and was on the wrestling team in High School the year he passed. He never got to see my girls or know more about my battle with Epilepsy after the surgery.
      When it comes to daughter’s… there’s only one thing to say about messing with my girls and Mr. T said it best, “Pity the Fool”


      Comment by Charlie — February 4, 2011 @ 1:38 AM

  61. Please pray for my friend from Egypt, coz of the troubles there right now, that nothing will happen to her and her family. Im greatfull we are not going through anything like this.

    2. im also greatfull I got to help out with bingo, at the nursing home. Im going to try to play music before their afternoon activity.

    3. the weather was beautifull today. thankfully no snow.

    4. I made some delicious fresh fish, with rice, and cabbage for dinner.

    5. I was able to the grocery store

    6. im greatfull I feel good and had the confidence to ask if it would be ok for me to bring my guitar and play for some of the residents. She said yes, that would be great. Even the residents that arent able to get out to their rooms might enjoy it.


    Comment by jennifer schnegg — February 2, 2011 @ 11:48 PM

    • Jennifer, I think it’s an inspired idea to play for the residents! I remember being in the hospital around Christmas and my nurse stole a wheelchair from somewhere (I was too thin to walk) and took me down to the lobby where they were singing Christmas carols.

      It made my day! 🙂


      Comment by Phylis Feiner Johnson — February 3, 2011 @ 12:50 AM

  62. im greatfull 1. that the residents at the nursing home enjoyed listening to my guitar playing.

    2. I found a church that will pick me up before church to join them for breakfast, to bible school, and then service.

    3. its still hard to be patient, and to trust that things will work out, and that I will make new friends. At least im reaching out and not afraid to.


    Comment by jennifer schnegg — February 4, 2011 @ 12:01 AM

    • I’m so happy for you Jenn! And I know those people are happy to have someone care enough to share their talent with them. I remember being in the hospital bed with a hundred wires on/in my brain and I start to hear Tchaikovsky.(Oh Boy.get a nurse!!!)
      NO !It was just beautiful music coming from a roving quartet of musicians, and it made my night. I’m sure the folks you played for felt the same way. keep up the good work and hang in there, prayers are being answered!


      Comment by Charlie — February 4, 2011 @ 1:14 AM

  63. im greatfull to learn just how much the residents enjoyed mu music. I went to visit them today. They asked why I didnt bring the guitar. I t0old them that I will bring it next week. I wasnt sure if it was going to rain today. I have to walk to this resident home. I assured them I will bring it next time I come.

    2. My daily head achs were not very bad today

    3. I was able to take a nice nap today, after I had a seiz spell.

    4. I found a church to pick me up tomorow. I hope that I will like this one.

    5. I now fit into the dress I had been wanting to wear to the next dance. I now need to buy some pany hose.

    Take care. I will let you all know how it went tomorow at church.


    Comment by jennifer schnegg — February 6, 2011 @ 3:22 AM

  64. Hi All,
    I’m thankful for the awesome week it’s been! Our Biker Church moved closer to the Biker area and will be able to reach out to many lost souls.
    I’m thankful that,I was able to connect a lady with help. She’s been living without heat. We’re so blessed to just have climate controlled homes and running water
    I’m thankful that God put us where we are in this place and time. We could living in horrible conditions somewhere else in the world.
    I’m thankful that we’re free and can express our opinions without being thrown in jail.
    I’m thankful for you all, and the amount of wisdom and insights you have. It’s amazing.
    I’m thankful to see how many people are motivated to get the word out about Epilepsy awareness.


    Comment by Charlie — February 6, 2011 @ 1:55 PM

  65. im greatfull,

    1. I have many 60 + yrs of my life to enjoy
    2. I liked the church I went to on sunday. It was very similar to the catholic church that I grew up going to.
    3. I played my guitar for some of the residents at the nursing home, they asked me to come back.
    4. I will get taxes back
    5. today is a beautifull day


    Comment by jennifer schnegg — February 9, 2011 @ 5:05 PM

  66. I am thankful that although Larry had a TIA on Friday nite,, it did not damage anything and our Doc has him on meds for prevention,,,
    I am thankful that I know where my shoes,car keys and wallet are,,, when I get upset I lose one or all of them,,,
    I am thankful for Violet,, she makes me laugh,,
    I am thankful that tomorrow we are begginning the
    testing to check Larry’s brain,, I think it may be his 150,000 mile check up,,,
    I am thankful that we have peace and quiet and 3 happy dogs in our home,,, and no fleas !!!
    thank you Jennifer !!!
    may you be blessed,


    Comment by patricia moran — February 10, 2011 @ 6:54 PM

  67. I am very, very thankful that we got to spend the weekend at the Ranch instead of the hospital,
    I am thankful for teenagers,, they are bright ,inquisitive and just going 90 miles an hour,
    (they’re not sure where yet !)
    I am thankful for campfires,
    I am thankful that I didn’t eat a s’more,,,
    (marshmallow, chocolate and gramcraker)
    I am thankful that the bunk house had a real bathroom !!!


    Comment by patricia moran — February 15, 2011 @ 10:50 AM

  68. I am thankful for your endless generosity and love…


    Comment by Phylis Feiner Johnson — February 15, 2011 @ 2:14 PM

  69. hey Pat,
    You sure do make me homesick when I read about your cooking and camping. ;o)
    I’sure miss our fire’s that you mentioned. After Hurricane Charley (boy did I catch stuff about the name) we were burning piles as big as a house and we still had our weekly weekend “campfires”. When I moved North, I found out they dont allow that kinda stuff. My house here did have an old Brick BBQ that I stuffed with twigs and firewood and would light it up! I’d get a good one going and show the kids up here how to toast marshmallows.

    During one of my fires the Fire Dept showed up (dang neighbors) and asked me what I was doing. I told the guy “Duh, I’m having a Barbque”. :O)


    Comment by Charlie — February 17, 2011 @ 12:15 PM

  70. Maybe you should have told them you were burning leaves for a backyard cleanup. Same thing happened to my neighbor, but she got out of the fuss by using that excuse! 😉


    Comment by Phylis Feiner Johnson — February 17, 2011 @ 2:24 PM

  71. hi everyone, long time no see. I have been very busy volunteering, almost 5 days a week. Im even playing guitar for them. Im greatfull 1. that they enjoy it.
    2. no more seiz. this afternoon, after many all morning long.
    3. I had a great birthday and valentines
    4. my cable is back on
    5. the weather is finally nice again
    6. finally did my taxes
    7. my pets keep me from staying in bed, and happy instead of sad
    8. im enjoying to cook
    9. for everyone here


    Comment by jennifer schnegg — February 17, 2011 @ 11:04 PM

  72. I am ecstatic. I took part in 2 webinars today, explaining to other clinical trial screeners all about what people with epilepsy want and need. Their situations and fears. Their hopes and courage.

    All this because they are trying to find a new med for partial seizures. Could it be that a new option is on its way???


    Comment by Phylis Feiner Johnson — February 18, 2011 @ 12:28 AM

    • You are one busy lady Phylis! You all are for that matter. Jenn, I’m glad you found a church and are ministering to the residence of the Nursing Home with your music.Pat taking care of her hubby, I dont know about Ruth though, because she’s probably Busy! ha
      And Phylis, where do you get your energy from? A great story about the potential of MEG, ADHD or Epilepsy, and Clinical trials.
      Thank you for all the latest info that might change lives.


      Comment by Charlie — February 20, 2011 @ 12:38 AM

  73. Hi everyone, I really enjoy and am greatfull for my improved self. It is very rewarding to spend time volunteering, playing music, church. Im always out doing something. I guess you could say, im glad my boyfriend broke up with me. Im glad I finally gave my dog his much needed bath. I really didnt want to do it, it is a long 2 hr process. But he really needed it. I had forgotten how fluffy he was.


    Comment by jennifer schnegg — February 20, 2011 @ 1:09 AM

  74. I am thankful that everyone is doing well,,,
    I am thankful that my daughter got me an Ipod so I can facetime with Violet,,
    I am thankful that my National honor Society smartie pants is helping me learn more about computers,,,
    I am thankful that people are good and God answers prayers,,,I am thankful that our dogs always wag their tails and are happy to see us,,,
    I am thankful for all of you,, your prayers and your blessings,,, Larry is back to 150 % and looking and feeling good and that I have to make him slow down a bit,, and he is listening,,,


    Comment by patricia moran — February 21, 2011 @ 6:52 PM

  75. I gotta share something with you all…
    I just got back from delivering my Epilepsy Awareness “Letter to The Editor” (seeing as they’re dragging their feet on an article about it!) To the local paper’s, missed meeting a Hospital Administrator to discuss Epilepsy Awareness. I told them I’d drop by on a Monday, however because of the Holiday no one was in. (they aint seen the last of me though)
    And the best thing……. I might get to help the fellow that originally told me about Epilepsy Surgery but never went because he was scared of it. Now he is considering it and wants to hear about my experience. Sooo Cool !
    I heard something cool today also. When we realize how fortunate we are, regardless of our own situation, we develop an attitude of gratitude. how cool is that?


    Comment by Charlie — February 21, 2011 @ 10:27 PM

  76. There’s this young woman at the EFA forum who’s been emailing me about her upcoming brain surgery. Of course, she’s scared to death.

    I copied Charlie’s description of his brain surgery (mesh and all)and a few of his other words of wisdom and sent it to her for comfort.

    Charlie, you help more people than you’ll EVER know…


    Comment by Phylis Feiner Johnson — February 21, 2011 @ 11:20 PM

  77. I have a lot to be grateful for:

    1. Sorry I have not been on the internet.

    2. I have been really busy doing things. My health is great now.

    3. Hi everyone, I have missed everyone. I have read a lot of what is going on with everyone. I am glad to be back.

    4. Everyone is doing great, except for that woman who is scared to death about having brain surgery. Maybe she should wait until she is sure that is what she really wants. It sounds to me that she is not sure. Am I right or wrong Phylis? You know best because you have been in contact with her.


    Comment by ruth brown — February 21, 2011 @ 11:43 PM

  78. What Jenn needs is care and support which is sadly lacking in her family and those nearest to her.

    I think if she would reach out to her sisters, they would find a way to help her…even though one is only 15 and the other one is expecting.


    Comment by Phylis Feiner Johnson — March 5, 2011 @ 6:35 PM

  79. I’m walking on air.

    Last night I was honored at our local Epilepsy’s fundraising gala for my contributions to the Foundation through my communications which help those in the epilepsy community through education, support, and also as an advocate. 🙂


    Comment by Phylis Feiner Johnson — March 5, 2011 @ 6:37 PM

  80. im gratefull for: having met 2 people that have epilepsy too, and then will share info and support with each other
    2. my parents
    3. making friends again
    4. spring
    5. a good electrician to fix electrical problems
    6. slowly learning the technique to relax my hand to not cause my hand to shake while playing guitar music
    7. many other things, too many to list


    Comment by jennifer schnegg — March 9, 2011 @ 4:51 PM

  81. im greatfull that I didnt fall today, I went to bible study with a friend of mine, parents brought over a paper shredder for my birthday, I have a ride to dance for saterday, my twin called me yesterday, good news for music: that I figured out what was my hand to shake when playing guitar, greatfull its something that can fix it and that I figured out how too.

    Im not greatfull for the nagging headache all afternoon though.


    Comment by jennifer schnegg — March 10, 2011 @ 2:33 AM

    • Happy Birthday! It sounds like you’ve been doing well. keep it up. I hope your headache went away.


      Comment by Charlie — March 11, 2011 @ 1:15 AM

      • hi, really havent being too great. Im having problems with complex paretial. I cant do as much as I would like. I just get worn out. Pray for me, everyone. I really need it.


        Comment by jennifer schnegg — March 11, 2011 @ 1:46 AM

  82. I’m greatful that I was able to stuff 68 mailboxes yesterday with our advocacy letter, although my back protested and I had to take a Percoset! 🙂


    Comment by Phylis Feiner Johnson — March 10, 2011 @ 1:45 PM

    • Way to go, Phylis!
      That’s what I call walking the talk! if we can’t get out and spread the word, at least we can sit at our computers and fire off some letter’s from there. Hope your back’s feeling better.


      Comment by Charlie — March 11, 2011 @ 1:08 AM

      • I am soooo thankful ,, praise the lord and pass the biscuits !!! what a battle I have been in !!! I think they stood me up at the gates of HELL !! but I had St. Patrick and St. Michael on each side of me !!! and all of the love and powerful prayers from all of you,, I could feel Charlies prayers ,, telling me don’t give up,, never back down,, stand for the lord !!! thank you Charlie,,
        you have a bigger pile of jewels in Heaven for your steadfastness !!! thank you Lord for blessing us with each other especially Phylis,, her gentle loving support was there for me when I was too tired to ask for it,,, I don’t even have time to tell you all what has happened,, but say a prayer that we be blessed with a huge donation,, to support Epilepsy Outreach,,
        I have been asking God for a big chunk of money to help drag epilepsy out of the dark ages and I think it is on it’s way !!!
        phylis ,,, remember when I came to talk about it all upset and needing help,, you were there for me and Joe,, thank you so much,, You are my hero!! I love your gentle stregnth and warm open and hard working heart,,,
        back soon,, much love,,


        Comment by Patricia Moran — March 12, 2011 @ 1:13 PM

  83. im sad, but lets see what im greatfull for:

    im making progress in music, dance is saterday, I finished the book I started to read…im going to take a nice nap


    Comment by jennifer schnegg — March 10, 2011 @ 8:14 PM

  84. Well, yesterday I stuffed about 75 mailboxes, but I should have started at 2:00 rather than 4:00 because many of the mailboxes were already empty.

    But I’m happy to be reaching out to so many people and hoping some awareness will come out of it as a result.

    Pat, I don’t know what you’re going through, but remember, we’re all here for you.

    With love,


    Comment by Phylis Feiner Johnson — March 12, 2011 @ 2:50 PM

    • Phylis,,, I don’t understand how everything in my life ( it seemed that way to me ) flared into a major problem at once,,, I am very thankful that it has passed,,,
      I am thankful to be a part of this , Phylis’s little cluster of love,,
      I am thankful ,,, that when things get tough, Charlie has taught me to just clamp down and stand your ground,,, Ruth has taught me to be patient and keep your eyes and heart on God,,, Jennifer has taught me that things do get better,,, and Phylis has taught me that you must never surrender your Hope,,,
      I am thankful for all of you,,, my most special friends,, and Now I will hop over to it’s your turn and try to take my turn,,
      may you be blessed


      Comment by Patricia Moran — March 14, 2011 @ 9:52 AM

  85. Pat, I appreciate you and care for everyone. You are right, we are all special friends. Everything will work out for you. I will go to My Turn and see what you said there.

    i am thankful that I have today to prepare for. I am thankful that I have a hope for the future that will come to be. I hope you will be there too. You can!!




    Comment by ruth brown — March 17, 2011 @ 12:39 PM

  86. Hi y’all,
    it’s been a crazy month, and hard to believe it’s almost April. it’s so nice to see the flower’s starting to stick their heads up, The deer showing up with young-un’s, and the fresh feel in the air, knowing that Spring is here! It’s still cold here and could still snow oneday, but we are on the slippery slide to Summer. Watch-out Frosty, your day’s are numbered! I just came back from an awesome retreat (needed it) and got to tell many people about the miracles God has worked in my life. Not just that I’ve been seizure free for 17 months, but that I’m trying to educate whoever I can, tell them about our situations and let them know what they can do about it.
    I’m so thankful for the times we can get alone with God and just be still and listen.
    I’m thankful I’ve been blessed with a great wife, who has stood beside me thru these years of transformation. I’m thankful for all of you, I consider y’all family and pray for you daily.
    I’ll be forever thankful to Phylis, who invited me over from the EFA site and has taught me so much. Not to mention the help she gives me, clarifying my letter’s ;o).
    I’m thankful that I can get out of bed and move around. I have a friend who has to lay in bed until an aid comes and lifts him into his motorized wheelchair. He’s taught me so much.
    I’m thankful that we can choose to love and help people on their journey in life.
    Keep those letter’s going out to your newspaper’s and other media.
    We Will Be Heard!


    Comment by Charlie — March 29, 2011 @ 12:22 AM

    • thank you Charlie,, God touches many thru you,
      keep up the good work,,, I’ve got an extra crack in my butt ,, that’s how hard I’ve been working,, I’ll be back soon
      may you all be blessed

      and I am thankful for the extra crack Lord,,, it makes my jeans fit better,!!!
      Happy,, Happy Anniversary to you and Arthur,
      may you be blessed with many more special years of love and sharing


      Comment by Patricia Moran — March 30, 2011 @ 2:09 AM

  87. I had a wonderful anniversary celebration in Philly with Arthur. Got to see my cousin and had a VERY productive lunch with the Executive Director of our local Epilepsy Foundation. She’s full of action and full of plans and ideas.

    Yesterday she was stumping on Capitol Hill, breakfasting with Senators and State Representatives.

    I’m so proud of her and all the good work she’s doing!


    Comment by Phylis Feiner Johnson — March 29, 2011 @ 12:59 PM

  88. Phylis, congratulations on you and Arthur’s anniversary. How many years have you been married?

    I am very happy for both of you.

    The future will be even better.



    Comment by ruth brown — March 30, 2011 @ 9:43 AM

    • 31 years! Can you believe it? And I had a seizure on our first date!!! 😉


      Comment by Phylis Feiner Johnson — March 30, 2011 @ 1:34 PM

      • My new boyfriend has seen numerous of my seiz and it didnt scare him away. He is a vet specialist, so he has some med. back ground.


        Comment by jennifer schnegg — July 20, 2011 @ 1:58 AM

  89. Ok folks, it’s time to move on to another page here, too.

    Look for Gratitude is the Attitude — Part 5!


    Comment by Phylis Feiner Johnson — March 30, 2011 @ 1:36 PM

  90. Hi, im greatfull for the dance im into, my new boyfriend, and im going to volunteer at an animal shelter this thursday.

    Check out my facebook, many photos of me, and him and our dogs. Jennifer Schnegg


    Comment by jennifer schnegg — July 20, 2011 @ 1:56 AM

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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