Epilepsy Talk

From AEDs to Surgery and Beyond…Some Options Explained

May 12, 2013
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The saying “there’s something for everyone” may be true. But with epilepsy, it’s often a dicey proposition — not to mention frustrating — to determine what that “something” is for you.

Anti-Epilepsy Drugs

No, they’re not for everyone, and sometimes it’s like going on a non-stop merry-go-round (dizziness and all), but when you’re lucky enough, you can find your “magical medicine mix”.

Here are some interesting facts…


Responsive Neurostimulation (RNS) Shown to Reduce “Untreatable” Seizures

May 5, 2013
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The idea that we can implant a Star Trek-type device that will detect seizures and interrupt them without causing injury is entirely new. And exciting. And scary.

Especially for those people with epilepsy that have seizures that begin at one focal point in the brain, but aren’t appropriate for epilepsy surgery.


Epilepsy and Neuroengineering — A Brave New World of Possibilities

April 28, 2013
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Traditionally, the mainstay of epilepsy therapy has been treatment with antiepileptic drugs (AEDs).

But for 30% of those affected, no combination of standard therapy — medications and/or surgery — can control their seizures.

Although more new AEDs have come to the market over the past 10 years than during any other time in history, their primary contribution has been to improve adverse effects of medication, rather than to make more people seizure-free.

The proportion of people with epilepsy worldwide — whose seizures cannot be controlled by medical therapy — has remained unchanged, despite all these new pharmaceutical interventions…


Seizure Free – A Hope or a Promise?

October 23, 2012
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Is it a reality…a hope…or a promise?

Have you been there once for a visit? And then come back, to the land of falling down, shaking, quaking and blackouts.

We all know, the only thing that remains the same is change. Everything is in a state of flux. Drugs, science, our bodies, our brains. From that you can choose hopelessness. Or hope…


The Gamma Knife — Non Invasive Surgery

September 12, 2012
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Neurosurgeons continue to explore the less invasive Gamma Knife radiosurgery for elimination of temporal lobe abnormalities and brain lesions.

The Gamma Knife itself has been around for quite a while, so there’s a history of its use. But its application specifically for this form of epilepsy hasn’t really been done before. Therefore, the purpose of recent research was to see if the advantages of this minimally invasive tool could provide an alternative to standard surgery…


Children’s Brain Surgery…Preparing YOUR Child…

April 22, 2012
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There is no “welcome” sign to the world of childhood brain surgery. And the resulting combination of fear, shock, and pain is almost too much to bear.

No amount of preparation or knowledge can help to ease or minimize the situation.

But preparing a child for surgery emotionally, is one of the most important things you can do. Surgery, without proper explanations and preparation, can traumatize a child…


Cheers for Charlie!

March 5, 2011
12 Comments

A Story of Hope

“If this letter helps just one person, it will be worth the months of indecision and silence of our media.”

Charles Peterson, East Quogue


MEG — Could It CURE Your epilepsy?

February 18, 2011
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Regardless of your age or epilepsy syndrome, all patients of all ages deserve the possibility of living seizure-free. And for those with intractable seizures, surgery is often the answer. But it’s a scary and risky proposition.

But, now there’s new hope when all else fails. A powerful new brain scanning tool which could make all the difference between successful and unsuccessful surgery. Even for those whose surgery has failed before.

Called the MEG (Magnetoencephalography), this powerful scanner acts as a real-time brain mapping and imaging device to determine where the epicenters of seizures are in the brain. It can detect changes in brain waves that occur on the order of milliseconds, as opposed to a second or more with magnetic resonance imaging (MRI). And for a select few patients, those extra milliseconds can mean the difference between life and death.


Epilepsy, Anxiety and Depression

November 9, 2009
30 Comments

One study stated that 80% of the patients with epilepsy were also diagnosed as having a depressive disorder. Upwards of 60% of these individuals had a history of significant episodes of depression. And 10-32% experience symptoms of anxiety.

And for those whose epilepsy cannot be controlled by meds, the likelihood of depression and anxiety are even greater.


    About the author

    Phylis Feiner Johnson has been a professional copywriter for 30 years. She also spent 20 years with epilepsy. She writes from the heart to increase education, awareness and funding for epilepsy research. For further information, contact The Epilepsy Foundation of Eastern Pennsylvania at http://www.efepa.org/ and please make a contribution to become an advocate, too.

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