Epilepsy Talk

Adult Epilepsy Support Groups — Updated

February 24, 2013
11 Comments

Here’s a list of Adult Epilepsy Support Groups across the country that I’ve compiled. Hopefully it will be of help.

If you have any additions or suggestions, please, sing out!!!


Where’s The Funding? Epilepsy As An Orphan

February 5, 2013
18 Comments

Here are the facts, unhappy though they may be…

Epilepsy is the fourth most common neurological disorder in the U.S. after migraine, stroke, and Alzheimer’s disease. Its prevalence is greater than autism spectrum disorder, cerebral palsy, multiple sclerosis and Parkinson’s disease combined.

Yet, public and private funding for epilepsy research lags far behind other neurological afflictions, at $35 a patient (compared, for instance, with $129 for Alzheimer’s and $280 for multiple sclerosis).


No-Cost or Low-Cost Drugs and Patient Assistance Programs

May 23, 2012
6 Comments

Today, things are constantly changing. Especially when it comes to epilepsy medications and resources.

Some companies have expanded their programs or even offer new ones. Others have cut their funds, and sadly others have ceased to exist.

Here’s a new and comprehensive list…


Epilepsy and Education…Coming Out Of The Closet

February 2, 2011
28 Comments

It starts in the playground. A kid has a seizure and everybody freaks out. Nobody knows what to do. Maybe not even the school nurse. Even though epilepsy first aid is a cinch.

It’s frightening to see a child seize and then, based on that fright, they think “I can’t deal with this.” Some people still think epilepsy is contagious!


Your Child Has Just Been Diagnosed With Epilepsy…

January 23, 2011
6 Comments

The diagnosis comes in. It’s epilepsy.

Your heart drops to the bottom of your stomach. You may panic…or cry…or call in the troops for support.

Whether your child is an infant, toddler, grade schooler, adolescent or young adult, how you behave now will make a world of difference to their future.

Here are some resources to help you help your child…


Health Insurance — No-Cost & Low-Cost

January 12, 2011
1 Comment

These days, health insurance costs an arm and a leg (literally), if you can even get it. But before you lose hope, here are some resources that might just make the impossible become possible…


FREE Prescription Drugs

October 8, 2010
2 Comments

With drugs costs and insurance costs rising every day, it’s often difficult to get the meds you need. Below is a guide to no-cost or low-cost prescription programs. Pass the word along…


FREE Legal Resources

September 19, 2010
6 Comments

I think that pro bono legal aid is perhaps more difficult to find than almost anything else in this country, except perhaps, FREE medical care. But here are six resources where you can find FREE legal aid and assistance.


    About the author

    Phylis Feiner Johnson has been a professional copywriter for 30 years. She also spent 20 years with epilepsy. She writes from the heart to increase education, awareness and funding for epilepsy research. For further information, contact The Epilepsy Foundation of Eastern Pennsylvania at http://www.efepa.org/ and please make a contribution to become an advocate, too.

    Enter your email address to subscribe to this blog and receive notifications of new posts by email.

    Join 342 other followers

Follow

Get every new post delivered to your Inbox.

Join 342 other followers