Epilepsy Talk

Epileptic Synesthesia: What Is It?

September 13, 2015

Epileptic Synesthesia is pretty rare. It occurs in 4% of temporal lobe seizures and is theoretically caused by the actual electric discharge or abnormal stimulation of the brain in a seizure. Sight, sound, touch, taste (and, much less often, your sense of smell) sensations can occur simultaneously and also involve involuntary movement. An example is the sensation of flashing lights, a taste, a feeling of heat rising, and a high-pitched whine.

Here are three other (rather alarming) examples:

Autism — Who Has It?

August 29, 2015

The autism rate has increased — 1 in 68 kids are now identified with the disorder. 20-30% of children with Autism Spectrum Disorder (ASD) develop epilepsy. And children whose language skills regress before they turn 3 have been found to have a higher risk of developing epilepsy.

In Tribute to Charlie Petersen

August 9, 2015

Charlie Peterson was a man who suffered from epilepsy for decades. He had one unsuccessful brain surgery, then another, which was successful, ten years later.

Since that time, he had risen to be an active advocate and to give back by helping all those in need.

He was my friend and a friend to the world. Starting a support group where there was none. Counseling others with epilepsy and those who had a loved one with epilepsy.

He was generous to a fault, giving back in turn for the “miracle” that had saved his life.

He was patient, kind, generous and giving. He was my #1 hero.

Top Seizure Apps For Smartphones…

August 2, 2015

A recent study published in the International Journal of Epilepsy has found that certain smartphone apps might aid those with epilepsy.

These apps include seizure diaries as well as medication trackers with reminders to take the next pill.

Apps are available to answer any question patients with epilepsy might have and to remind doctors about drug interactions to watch out for.

Most of them are free of charge.

Seizures and Steroids

June 14, 2015

I always thought that steroids were the kind used by athletes and bodybuilders to pump up their performance. Yes, they do exist and, yes they are quite dangerous, but those aren’t the kind of steroids this article is about.

In fact, anyone who has epilepsy should NOT take anabolic steroids because they may change the level of anti-epileptic drugs (AEDs) in the blood and may make seizures more likely.

The steroids I’m talking about are naturally occurring hormones. Common oral prednisolone or less common/higher risk ACTH — which have a place in the management of severe epilepsies.

Epilepsy, Employment and the Law

May 30, 2015

Everyone knows that it’s hard to get a job these days. And if you have epilepsy, it’s twice as difficult.

But here are some tips if you DO land an interview and also your legal rights.

Celebrities with Epilepsy

May 9, 2015

The names are probably familiar to you. But the fact that all of these people have epilepsy may surprise you. Despite that fact, they have lived their lives, becoming prominent in their fields, an inspiration to us all.

Famous Athletes with Epilepsy

May 2, 2015

There are many athletes who have overcome or gone on to surpass their epilepsy condition. They have strived, succeeded and provide an inspiration to us all. Along with some athletes’ outstanding commitment to epilepsy — advocating, teaching and supporting epilepsy.

Epilepsy In Movies and Television

April 26, 2015

The portrayal of epilepsy and seizures in films and television usually has negative connotations.

In general, they do nothing but reinforce the stigma that is rampant around the condition.

On the other hand, TV shows and movies have the potential to educate and begin to address genuine issues in a positive fashion, rather than misusing epilepsy to add tension and drama.

The following TV shows and movies all feature characters with epilepsy. Included are the good, the bad and the plain ugly portrayals of epilepsy on screen.

Epilepsy: Art Therapy

March 14, 2015

A paintbrush is a powerful communication tool for experiences that are hard to explain in words.

It helps and allows your mind to wander without any restriction. The mixture of colors and the strokes define the inner feeling you want to express.

Your art is the extension of who you are, what you want and where you want to be. Your masterpiece, no matter how you made it, is priceless…

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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