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	<title>Epilepsy Talk</title>
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		<title>Epilepsy Talk</title>
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		<title>A Caregiver’s Guide to Survival…</title>
		<link>http://epilepsytalk.com/2012/05/29/a-caregivers-guide-to-survival/</link>
		<comments>http://epilepsytalk.com/2012/05/29/a-caregivers-guide-to-survival/#comments</comments>
		<pubDate>Tue, 29 May 2012 21:40:59 +0000</pubDate>
		<dc:creator>Phylis Feiner Johnson</dc:creator>
				<category><![CDATA[Tips]]></category>
		<category><![CDATA[balance]]></category>
		<category><![CDATA[burn out]]></category>
		<category><![CDATA[caregiver]]></category>
		<category><![CDATA[emotionally]]></category>
		<category><![CDATA[health]]></category>
		<category><![CDATA[help]]></category>
		<category><![CDATA[isolated]]></category>
		<category><![CDATA[physically]]></category>
		<category><![CDATA[support group]]></category>

		<guid isPermaLink="false">http://epilepsytalk.com/?p=3282</guid>
		<description><![CDATA[It’s called “burn out.” Because, let’s face it, being a caregiver is exhausting. You may feel guilt, resentment, anger, anxiety or helplessness. You may have to give up your income and career prospects to care for someone. Even if you love the person very deeply, it can feel as though the focus is always on them and your needs and wishes go unnoticed. Often you deal with the situation alone and feel very isolated. (My mother-in-law didn’t leave the house for two years when my father-in-law was dying.)

But you can’t do anything to help another person if you’re a basket case yourself. To be the best caregiver possible, you need to be physically and emotionally well, yourself... 
<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=epilepsytalk.com&#038;blog=9257692&#038;post=3282&#038;subd=epilepsytalk&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://epilepsytalk.com/2012/05/29/a-caregivers-guide-to-survival/feed/</wfw:commentRss>
		<slash:comments>7</slash:comments>
	
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			<media:title type="html">Phylis</media:title>
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		<item>
		<title>Epilepsy Help! No-cost or low-cost drugs and patient assistance programs</title>
		<link>http://epilepsytalk.com/2012/05/23/epilepsy-help-no-cost-or-low-cost-drugs-and-patient-assistance-programs-2/</link>
		<comments>http://epilepsytalk.com/2012/05/23/epilepsy-help-no-cost-or-low-cost-drugs-and-patient-assistance-programs-2/#comments</comments>
		<pubDate>Wed, 23 May 2012 22:14:28 +0000</pubDate>
		<dc:creator>Phylis Feiner Johnson</dc:creator>
				<category><![CDATA[Epilepsy]]></category>
		<category><![CDATA[Medication Issues]]></category>
		<category><![CDATA[Tips]]></category>
		<category><![CDATA[comprehensive list]]></category>
		<category><![CDATA[free]]></category>
		<category><![CDATA[help]]></category>
		<category><![CDATA[low-cost]]></category>
		<category><![CDATA[medication]]></category>
		<category><![CDATA[new]]></category>
		<category><![CDATA[pharmaceuticals]]></category>
		<category><![CDATA[resources]]></category>

		<guid isPermaLink="false">http://epilepsytalk.com/?p=3270</guid>
		<description><![CDATA[Today, things are constantly changing. Especially when it comes to epilepsy medications and resources.

Some companies have expanded their programs or even offer new ones. Others have cut their funds, and sadly others have ceased to exist.

Here’s a new and comprehensive list...
<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=epilepsytalk.com&#038;blog=9257692&#038;post=3270&#038;subd=epilepsytalk&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://epilepsytalk.com/2012/05/23/epilepsy-help-no-cost-or-low-cost-drugs-and-patient-assistance-programs-2/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
	
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			<media:title type="html">Phylis</media:title>
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	</item>
		<item>
		<title>12 Epilepsy Travel Tips</title>
		<link>http://epilepsytalk.com/2012/05/23/12-epilepsy-travel-tips/</link>
		<comments>http://epilepsytalk.com/2012/05/23/12-epilepsy-travel-tips/#comments</comments>
		<pubDate>Wed, 23 May 2012 21:17:43 +0000</pubDate>
		<dc:creator>Phylis Feiner Johnson</dc:creator>
				<category><![CDATA[Epilepsy]]></category>
		<category><![CDATA[Medication Issues]]></category>
		<category><![CDATA[Tips]]></category>
		<category><![CDATA[checklist]]></category>
		<category><![CDATA[contact information]]></category>
		<category><![CDATA[double medication]]></category>
		<category><![CDATA[explanation]]></category>
		<category><![CDATA[first aid]]></category>
		<category><![CDATA[FREE ID]]></category>
		<category><![CDATA[medical alert card]]></category>
		<category><![CDATA[medication list]]></category>
		<category><![CDATA[refills]]></category>
		<category><![CDATA[schedule]]></category>
		<category><![CDATA[travel]]></category>
		<category><![CDATA[VNS]]></category>

		<guid isPermaLink="false">http://epilepsytalk.com/?p=3260</guid>
		<description><![CDATA[Traveling has never been easy, and people with epilepsy have always had to think twice about safety and managing medications while traveling. Since September 11, 2001, taking a trip has become even more difficult for people with epilepsy and their family members.

There are several reasons for this. Increased security is producing closer scrutiny of medications carried on flights, more questions regarding implanted Vagus Nerve Stimulators, and increased concerns about the possibility of having a seizure during a flight.

And not everyone knows what a seizure is or what to do. They may not recognize certain behaviors as being cause by a seizure. They may just think that a person who is confused during a seizure will become agitated or attack someone. Or in a mistaken attempt to help or detain, they may try to restrain that person. 

So it’s mandatory to have written information from your GP or neurologist which explains about your epilepsy and the anti-epileptic medication you take, together with a list.

In short, protect yourself and identify who you are to avoid any mistaken perceptions...
<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=epilepsytalk.com&#038;blog=9257692&#038;post=3260&#038;subd=epilepsytalk&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://epilepsytalk.com/2012/05/23/12-epilepsy-travel-tips/feed/</wfw:commentRss>
		<slash:comments>18</slash:comments>
	
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			<media:title type="html">Phylis</media:title>
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		<item>
		<title>10 Ways to Cope with Your Fear and Anxiety</title>
		<link>http://epilepsytalk.com/2012/05/18/10-ways-to-cope-with-your-fear-and-anxiety/</link>
		<comments>http://epilepsytalk.com/2012/05/18/10-ways-to-cope-with-your-fear-and-anxiety/#comments</comments>
		<pubDate>Fri, 18 May 2012 20:28:58 +0000</pubDate>
		<dc:creator>Phylis Feiner Johnson</dc:creator>
				<category><![CDATA[Epilepsy]]></category>
		<category><![CDATA[Tips]]></category>
		<category><![CDATA[anxiety]]></category>
		<category><![CDATA[best case]]></category>
		<category><![CDATA[celebrate]]></category>
		<category><![CDATA[cope]]></category>
		<category><![CDATA[fear]]></category>
		<category><![CDATA[panic]]></category>
		<category><![CDATA[perfection]]></category>
		<category><![CDATA[perspective]]></category>
		<category><![CDATA[pro-active]]></category>
		<category><![CDATA[reality]]></category>
		<category><![CDATA[support]]></category>
		<category><![CDATA[talk]]></category>
		<category><![CDATA[worst case]]></category>

		<guid isPermaLink="false">http://epilepsytalk.com/?p=3238</guid>
		<description><![CDATA[You're choking. You're drowning. You're going down for the count. How many times have we all been there?

I'm sure everyone has their own way of coping -- or else we wouldn't be here.

Nonetheless, here are some helpful tips to get you over that hump... 
<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=epilepsytalk.com&#038;blog=9257692&#038;post=3238&#038;subd=epilepsytalk&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://epilepsytalk.com/2012/05/18/10-ways-to-cope-with-your-fear-and-anxiety/feed/</wfw:commentRss>
		<slash:comments>9</slash:comments>
	
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			<media:title type="html">Phylis</media:title>
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	</item>
		<item>
		<title>Groundbreaking Report: A Giant Step for Epilepsy</title>
		<link>http://epilepsytalk.com/2012/05/16/groundbreaking-report-a-giant-step-for-epilepsy/</link>
		<comments>http://epilepsytalk.com/2012/05/16/groundbreaking-report-a-giant-step-for-epilepsy/#comments</comments>
		<pubDate>Wed, 16 May 2012 20:41:09 +0000</pubDate>
		<dc:creator>Phylis Feiner Johnson</dc:creator>
				<category><![CDATA[Epilepsy]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[13 recommendations]]></category>
		<category><![CDATA[accreditation]]></category>
		<category><![CDATA[advocacy]]></category>
		<category><![CDATA[awareness]]></category>
		<category><![CDATA[community services]]></category>
		<category><![CDATA[education]]></category>
		<category><![CDATA[eliminate stigma]]></category>
		<category><![CDATA[expansion]]></category>
		<category><![CDATA[families]]></category>
		<category><![CDATA[healthcare]]></category>
		<category><![CDATA[implementation]]></category>
		<category><![CDATA[improvement]]></category>
		<category><![CDATA[Institute of Medicine]]></category>
		<category><![CDATA[national agenda]]></category>
		<category><![CDATA[patients]]></category>
		<category><![CDATA[quality]]></category>

		<guid isPermaLink="false">http://epilepsytalk.com/?p=3228</guid>
		<description><![CDATA[In a special presentation from the Institute of Medicine (IOM), a groundbreaking report was released with 13 recommendations that the IOM designed to help improve care for all people with epilepsy...<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=epilepsytalk.com&#038;blog=9257692&#038;post=3228&#038;subd=epilepsytalk&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://epilepsytalk.com/2012/05/16/groundbreaking-report-a-giant-step-for-epilepsy/feed/</wfw:commentRss>
		<slash:comments>4</slash:comments>
	
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			<media:title type="html">Phylis</media:title>
		</media:content>
	</item>
		<item>
		<title>Dating Disasters and Epilepsy</title>
		<link>http://epilepsytalk.com/2012/05/12/dating-disasters-and-epilepsy/</link>
		<comments>http://epilepsytalk.com/2012/05/12/dating-disasters-and-epilepsy/#comments</comments>
		<pubDate>Sat, 12 May 2012 15:47:37 +0000</pubDate>
		<dc:creator>Phylis Feiner Johnson</dc:creator>
				<category><![CDATA[Epilepsy]]></category>
		<category><![CDATA[Tips]]></category>
		<category><![CDATA[33 years]]></category>
		<category><![CDATA[damaged]]></category>
		<category><![CDATA[dating]]></category>
		<category><![CDATA[disasters]]></category>
		<category><![CDATA[married]]></category>
		<category><![CDATA[pariah]]></category>
		<category><![CDATA[secret]]></category>
		<category><![CDATA[seizures]]></category>
		<category><![CDATA[stigma]]></category>

		<guid isPermaLink="false">http://epilepsytalk.com/?p=3198</guid>
		<description><![CDATA[When I was a teen I fell down, walked into walls, bumped into virtually everything in my path, and almost drowned in the shower.

So, you can imagine what a disaster dating was. Of course, in my infinite wisdom, I would never tell my dates that I had epilepsy. My parents wouldn’t even utter the word, so rather than become a pariah, I kept my mouth shut.

Bad idea...
<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=epilepsytalk.com&#038;blog=9257692&#038;post=3198&#038;subd=epilepsytalk&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://epilepsytalk.com/2012/05/12/dating-disasters-and-epilepsy/feed/</wfw:commentRss>
		<slash:comments>52</slash:comments>
	
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			<media:title type="html">Phylis</media:title>
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	</item>
		<item>
		<title>The Stats and Facts of Epilepsy</title>
		<link>http://epilepsytalk.com/2012/05/10/the-stats-and-facts-of-epilepsy-2/</link>
		<comments>http://epilepsytalk.com/2012/05/10/the-stats-and-facts-of-epilepsy-2/#comments</comments>
		<pubDate>Thu, 10 May 2012 20:02:16 +0000</pubDate>
		<dc:creator>Phylis Feiner Johnson</dc:creator>
				<category><![CDATA[Epilepsy]]></category>
		<category><![CDATA[Research]]></category>
		<category><![CDATA[2.2 million Americans]]></category>
		<category><![CDATA[children]]></category>
		<category><![CDATA[death]]></category>
		<category><![CDATA[facts]]></category>
		<category><![CDATA[genetics]]></category>
		<category><![CDATA[head injury]]></category>
		<category><![CDATA[soldiers]]></category>
		<category><![CDATA[stats]]></category>
		<category><![CDATA[Stroke]]></category>
		<category><![CDATA[uncontrolled]]></category>
		<category><![CDATA[underfunded]]></category>

		<guid isPermaLink="false">http://epilepsytalk.com/?p=3188</guid>
		<description><![CDATA[I call epilepsy a “stealth” disease, because it’s difficult to imagine how so few people can know about a disease that affects so many.

For example, few people know:

* Epilepsy affects over 2.2 million Americans of all ages – almost twice the number who have Parkinson’s Disease, Multiple Sclerosis, and Autism spectrum disorders combined...<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=epilepsytalk.com&#038;blog=9257692&#038;post=3188&#038;subd=epilepsytalk&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://epilepsytalk.com/2012/05/10/the-stats-and-facts-of-epilepsy-2/feed/</wfw:commentRss>
		<slash:comments>11</slash:comments>
	
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			<media:title type="html">Phylis</media:title>
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		<title>Teen Epilepsy Support Groups</title>
		<link>http://epilepsytalk.com/2012/05/07/teen-epilepsy-support-groups/</link>
		<comments>http://epilepsytalk.com/2012/05/07/teen-epilepsy-support-groups/#comments</comments>
		<pubDate>Mon, 07 May 2012 18:15:35 +0000</pubDate>
		<dc:creator>Phylis Feiner Johnson</dc:creator>
				<category><![CDATA[Epilepsy]]></category>
		<category><![CDATA[Tips]]></category>
		<category><![CDATA[dating]]></category>
		<category><![CDATA[driving]]></category>
		<category><![CDATA[Employment]]></category>
		<category><![CDATA[friendships]]></category>
		<category><![CDATA[sexuality]]></category>
		<category><![CDATA[social issues]]></category>
		<category><![CDATA[support groups]]></category>
		<category><![CDATA[teen]]></category>

		<guid isPermaLink="false">http://epilepsytalk.com/?p=3136</guid>
		<description><![CDATA[In recent years, support groups that cater specifically to teens with epilepsy have emerged, started by hospitals, religious groups, and affiliates of the Epilepsy Foundation. The number of support groups for teens with epilepsy is growing, but it is still small when compared to the many for adults with epilepsy and parents of children with epilepsy...<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=epilepsytalk.com&#038;blog=9257692&#038;post=3136&#038;subd=epilepsytalk&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://epilepsytalk.com/2012/05/07/teen-epilepsy-support-groups/feed/</wfw:commentRss>
		<slash:comments>2</slash:comments>
	
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			<media:title type="html">Phylis</media:title>
		</media:content>
	</item>
		<item>
		<title>If you’ve just been diagnosed with epilepsy…</title>
		<link>http://epilepsytalk.com/2012/04/30/if-youve-just-been-diagnosed-with-epilepsy/</link>
		<comments>http://epilepsytalk.com/2012/04/30/if-youve-just-been-diagnosed-with-epilepsy/#comments</comments>
		<pubDate>Mon, 30 Apr 2012 21:52:40 +0000</pubDate>
		<dc:creator>Phylis Feiner Johnson</dc:creator>
				<category><![CDATA[Epilepsy]]></category>
		<category><![CDATA[Medication Issues]]></category>
		<category><![CDATA[Tips]]></category>
		<category><![CDATA[auras]]></category>
		<category><![CDATA[fear]]></category>
		<category><![CDATA[first aid]]></category>
		<category><![CDATA[forums]]></category>
		<category><![CDATA[help]]></category>
		<category><![CDATA[ignorance]]></category>
		<category><![CDATA[knowledge]]></category>
		<category><![CDATA[Neurologist]]></category>
		<category><![CDATA[prejudice]]></category>
		<category><![CDATA[seizure diary]]></category>
		<category><![CDATA[support groups]]></category>
		<category><![CDATA[tests]]></category>
		<category><![CDATA[triggers]]></category>
		<category><![CDATA[websites]]></category>

		<guid isPermaLink="false">http://epilepsytalk.com/?p=3117</guid>
		<description><![CDATA[You’ve just been diagnosed with epilepsy…

YOU'RE SCARED. Who wouldn’t be? THE DOCS. There are lots of terrific ones. THE TESTS. They can actually help to correctly diagnose your epilepsy. I’LL DIE. Not very likely. MY LIFE IS OVER. No, it’s not, but it will change... 

<img alt="" border="0" src="http://stats.wordpress.com/b.gif?host=epilepsytalk.com&#038;blog=9257692&#038;post=3117&#038;subd=epilepsytalk&#038;ref=&#038;feed=1" width="1" height="1" />]]></description>
		<wfw:commentRss>http://epilepsytalk.com/2012/04/30/if-youve-just-been-diagnosed-with-epilepsy/feed/</wfw:commentRss>
		<slash:comments>12</slash:comments>
	
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			<media:title type="html">Phylis</media:title>
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		<item>
		<title>Epilepsy – Yes or No?</title>
		<link>http://epilepsytalk.com/2012/04/25/epilepsy-yes-or-no/</link>
		<comments>http://epilepsytalk.com/2012/04/25/epilepsy-yes-or-no/#comments</comments>
		<pubDate>Wed, 25 Apr 2012 14:40:39 +0000</pubDate>
		<dc:creator>Phylis Feiner Johnson</dc:creator>
				<category><![CDATA[Epilepsy]]></category>
		<category><![CDATA[Research]]></category>
		<category><![CDATA[Tips]]></category>
		<category><![CDATA["pseudo-seizures"]]></category>
		<category><![CDATA[diary]]></category>
		<category><![CDATA[EEGs]]></category>
		<category><![CDATA[false]]></category>
		<category><![CDATA[grand-mal]]></category>
		<category><![CDATA[hypochondriacs]]></category>
		<category><![CDATA[misdiagnosis]]></category>
		<category><![CDATA[Panic Attacks]]></category>
		<category><![CDATA[petit mal]]></category>
		<category><![CDATA[physical]]></category>
		<category><![CDATA[Physiologic Non-Epileptic Seizures (NES)]]></category>
		<category><![CDATA[Psychogenic Non-Epileptic Seizures – (PNES)]]></category>
		<category><![CDATA[psychological]]></category>
		<category><![CDATA[symtoms]]></category>
		<category><![CDATA[trauma]]></category>
		<category><![CDATA[true]]></category>
		<category><![CDATA[Video EEG Monitoring]]></category>

		<guid isPermaLink="false">http://epilepsytalk.com/?p=3103</guid>
		<description><![CDATA[Epilepsy is not a dirty word.  Neither is pseudo-seizures.  But they both coexist, side by side. 

One of the most common complications is the misconception that people who suffer from pseudo-seizures are hypochondriacs, hysterics, or "faking it." The name for the condition alone, "pseudo-seizures," perpetuates that misunderstanding.
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