Comments for Epilepsy Talk http://epilepsytalk.com news and views Thu, 23 Feb 2012 03:09:08 +0000 hourly 1 http://wordpress.com/ Comment on Epilepsy Nightmares – WHY? by Gerrie http://epilepsytalk.com/2012/02/15/epilepsy-nightmares-why/#comment-6844 Thu, 23 Feb 2012 03:09:08 +0000 http://epilepsytalk.com/?p=2975#comment-6844 Phylis,
Thank you for sharing your experience & providing us this very invaluable forum to share our ordeals, hopes & dreams on how to cope & live with Epilepsy.
I guess, FIRST I tried to DENY for being Epileptic, then I tried to COVER UP in being epileptic from my co-workers, families, friends & now I’m just ANGRY & BITTER to being Epileptic.

Therefore, as you can read between my words, I guess I’m just lashing out at the unfortunate predicament, I’ve NEVER grown to accept & overcome.

Yes, I totally agree with you,,, “I am a person with epilepsy. It could be a LOT worse”.
Though,, I WILL HAVE TRY HARDER TO STOP FROM EPILEPSY RULING MY LIFE.
Therefore, Thank you for bearing it with me. It feels good to come over here & cry on your shoulders.

To Health, Peace & Love
Gerrie

]]> Comment on What’s on your medical chart? by Phylis Feiner Johnson http://epilepsytalk.com/2012/02/22/whats-on-your-medical-chart/#comment-6843 Thu, 23 Feb 2012 00:14:55 +0000 http://epilepsytalk.com/?p=2988#comment-6843 Ironically, Charlie LOST all of his records when moving from Florida (where they botched his surgery) to NYC. In his case, it turned out to be a good thing.

After all, they had the maps of scars on his skull to go by.

]]> Comment on What’s on your medical chart? by mkfarnam http://epilepsytalk.com/2012/02/22/whats-on-your-medical-chart/#comment-6842 Thu, 23 Feb 2012 00:04:30 +0000 http://epilepsytalk.com/?p=2988#comment-6842 When I left Calif, for OK. in 2007, I went around collecting medical records($45.00). I aslo had my neurologist. make a special note and memo that my seizures were controlled under current dosage dilantin and that it was not to be change unless under an emergency or by request of the patient…with both of our signitures..

]]> Comment on What’s on your medical chart? by Phylis Feiner Johnson http://epilepsytalk.com/2012/02/22/whats-on-your-medical-chart/#comment-6841 Wed, 22 Feb 2012 22:49:48 +0000 http://epilepsytalk.com/?p=2988#comment-6841 They probably went the way of house calls! :-(

]]> Comment on What’s on your medical chart? by Gerrie http://epilepsytalk.com/2012/02/22/whats-on-your-medical-chart/#comment-6840 Wed, 22 Feb 2012 21:35:34 +0000 http://epilepsytalk.com/?p=2988#comment-6840 Even a used-car salesman trys to make you feel good for buying a lemon.

It makes you wonder,,,What ever happened to the daysof “DOCTORS” going the extra-mile & doing anything possible to make their patients feel good & feel themselves proud for serving the greater-good of human breed?

But,,, Lucky you Maggie,,, You finally got those who care for your well-being than those who consider your well-being an annoyance to deliver your “report-card” as a waste of time, energy, resources & hindrance from making MORE MONEY to window-shopping-health-business.

As always, very interesting great article Phylis.

]]> Comment on What’s on your medical chart? by Phylis Feiner Johnson http://epilepsytalk.com/2012/02/22/whats-on-your-medical-chart/#comment-6839 Wed, 22 Feb 2012 19:46:22 +0000 http://epilepsytalk.com/?p=2988#comment-6839 Good for you! Maybe he can teach other docs a lesson!

]]> Comment on What’s on your medical chart? by Maggie http://epilepsytalk.com/2012/02/22/whats-on-your-medical-chart/#comment-6838 Wed, 22 Feb 2012 19:22:08 +0000 http://epilepsytalk.com/?p=2988#comment-6838 Not at my neurologist’s, but at my recent annual physical with my internist, the nurse asked me whether I wanted my “report card.” Surprised, I of course said yes, and my doctor delivered it to me. It was a list of everything he had discussed with me, test recommendations and results, and I was able to take it home to keep and study. This is the first time this has happened, and I appreciate it. I understand that in the case of cancer or other circumstances it might be different. But for now I’m happy with the more “open book” about me.

]]> Comment on Stopping seizures… by Phylis Feiner Johnson http://epilepsytalk.com/2010/04/23/seizure-interruptions/#comment-6837 Wed, 22 Feb 2012 15:22:20 +0000 http://epilepsytalk.com/?p=972#comment-6837 Here’s an idea Jennifer.

Call your local Epilepsy Affiliate.

http://www.epilepsyfoundation.org/aboutus/Find-an-Affiliate.cfm?CFID=1982742&CFTOKEN=70704965

They will probably have an advocate there, or at least someone to steer you in the right direction.

]]> Comment on Epilepsy Nightmares – WHY? by Phylis Feiner Johnson http://epilepsytalk.com/2012/02/15/epilepsy-nightmares-why/#comment-6836 Wed, 22 Feb 2012 15:08:07 +0000 http://epilepsytalk.com/?p=2975#comment-6836 You’re right. (Paragraphs #1 and #2.) Point well taken.

Yes, I agree that epilepsy can sometimes take you hostage. Yesterday, I was shaking so badly, I knew the inevitable would come.

So I went to bed for a few hours, got up and the shaking was a bit better.

But I refuse to let epilepsy rule my life. I am a person with epilepsy. It could be a LOT worse.

Hugs and happiness to you Gerrie, for being so candid and wise.

]]> Comment on Stopping seizures… by jennifer http://epilepsytalk.com/2010/04/23/seizure-interruptions/#comment-6834 Wed, 22 Feb 2012 12:34:03 +0000 http://epilepsytalk.com/?p=972#comment-6834 someone please help me. I had an atonic seizure at hospice flea market and hhit my head. I refused many times to go with the ambulance, till the manager of hospice told me that they will pay for the bill , on what my insurance didnt cover. Now, the manager is saying, that they wont pay. They probaably said that to get me to go. How am I going to pay for the bill?!! I dont work. I will call the hospice director, but dont know what im going to say to them, or explain to them what happened.

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