Epilepsy Talk

Epilepsy Bill Of Rights

November 5, 2015

The Bill of Rights for People Living with Epilepsy was created for people living with epilepsy by people living with epilepsy and was spearheaded by The Epilepsy Foundation in conjunction with many concerned contributors.

If you don’t know about these rights, please read on…

Epilepsy Advocacy Letter

November 3, 2015

Dear Friend / Neighbor,

This isn’t a note asking for money. (Although feel free to donate if you want to!)

It’s about epilepsy. Because even though over 3 million Americans have it (more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined), no one seems to want to talk about it.

Epilepsy Abuse and Civil Rights

November 3, 2015

The following letter was written to local Legislators, Health & Human Service Agencies, The Office for Civil Rights and selected members of the President’s Cabinet…

Dear President Obama:

Re: Epilepsy Abuse and Civil Rights

Embrace — A Beautiful Smart Watch — Designed to Save Lives

September 27, 2015

“The first medical-quality wearable to help measure your stress, epileptic seizures, activity and sleep.”

“It has been created to track your activity, stress and overall body balance, enabling people that live with epilepsy to get an alert when an unusual event happens, such as a convulsive seizure, warning them and their loved ones,” says Empatica, the watch’s creators.

For Sleep Apnea — Three Revolutionary New Types of CPAP

November 8, 2014

These days, there’s an endless variety of CPAP options. But, since purchasing a new CPAP can be a big investment and expense, you want to pick the best you can. And the most comfortable and efficient.

Here are three of the newest, most revolutionary, and top-performing CPAPs on the market.

With one of these on your nightstand, sleeping just got easier.

In Case of Emergency…

October 11, 2014

Here are some methods to stop a seizure in its tracks. Or shorten one. And some help relieve you of the dreaded after-effects. Possibilities you might not have known about, especially the new nasal sprays…

Epilepsy’s Stigma

September 28, 2014

People with epilepsy have been viewed as degenerate, demonic, or possessed, through the ages.

Women have been sterilized, people have been burned at the stake, and many were placed in institutions for the criminally insane.

Today, the stigma for people with epilepsy is that you are weird, dangerous, or mentally ill…


September 20, 2014

I’m so excited, I just can’t hide it!

Our family has just reached 1,000 members today.

Which is a testament to YOU!

Your compassion, sharing and caring.

The selflessness with which you help others. Your patience and persistence.

All the things I treasure about you as a family.

Epilepsy — At What Cost?

September 7, 2014

Here’s a look at how epilepsy can affect your pocketbook…

2014-2015 Top-Ranked Pediatric Hospitals for Neurology & Neurosurgery

August 9, 2014

For the 2014-15 rankings, U.S. News surveyed 183 pediatric centers to obtain clinical data in 10 specialties and asked 150 pediatric specialists in each specialty where they would send the sickest children.

Here are the top-ranked centers for children with serious neurological problems, ranked in order…

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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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