Epilepsy Talk

2016 Top Ranked Hospitals for Neurology and Neurosurgery

January 10, 2016
4 Comments

Every year, patients and potential patients alike, look forward to the U.S. News & World Report’s list of top ranking hospitals.

Attached is a link to their most current list for Neurology and Neurosurgery.


Who’s at Fault?

December 14, 2015
26 Comments

Malpractice, negligence, arrogance. The doctor’s oath of “DO NO HARM,” seems to have been forgotten.

Instead of humane and compassionate treatment, doctors and hospitals are treating epilepsy patients with little or no regard for their condition.

Here are some chilling examples:


Epilepsy Bill Of Rights

November 5, 2015
2 Comments

The Bill of Rights for People Living with Epilepsy was created for people living with epilepsy by people living with epilepsy and was spearheaded by The Epilepsy Foundation in conjunction with many concerned contributors.

If you don’t know about these rights, please read on…


Epilepsy Advocacy Letter

November 3, 2015
6 Comments

Dear Friend / Neighbor,

This isn’t a note asking for money. (Although feel free to donate if you want to!)

It’s about epilepsy. Because even though over 3 million Americans have it (more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined), no one seems to want to talk about it.


Epilepsy Abuse and Civil Rights

November 3, 2015
4 Comments

The following letter was written to local Legislators, Health & Human Service Agencies, The Office for Civil Rights and selected members of the President’s Cabinet…

Dear President Obama:

Re: Epilepsy Abuse and Civil Rights


Embrace — A Beautiful Smart Watch — Designed to Save Lives

September 27, 2015
21 Comments

“The first medical-quality wearable to help measure your stress, epileptic seizures, activity and sleep.”

“It has been created to track your activity, stress and overall body balance, enabling people that live with epilepsy to get an alert when an unusual event happens, such as a convulsive seizure, warning them and their loved ones,” says Empatica, the watch’s creators.


For Sleep Apnea — Three Revolutionary New Types of CPAP

November 8, 2014
2 Comments

These days, there’s an endless variety of CPAP options. But, since purchasing a new CPAP can be a big investment and expense, you want to pick the best you can. And the most comfortable and efficient.

Here are three of the newest, most revolutionary, and top-performing CPAPs on the market.

With one of these on your nightstand, sleeping just got easier.


In Case of Emergency…

October 11, 2014
14 Comments

Here are some methods to stop a seizure in its tracks. Or shorten one. And some help relieve you of the dreaded after-effects. Possibilities you might not have known about, especially the new nasal sprays…


Epilepsy’s Stigma

September 28, 2014
18 Comments

People with epilepsy have been viewed as degenerate, demonic, or possessed, through the ages.

Women have been sterilized, people have been burned at the stake, and many were placed in institutions for the criminally insane.

Today, the stigma for people with epilepsy is that you are weird, dangerous, or mentally ill…


WE ARE FAMILY!

September 20, 2014
10 Comments

I’m so excited, I just can’t hide it!

Our family has just reached 1,000 members today.

Which is a testament to YOU!

Your compassion, sharing and caring.

The selflessness with which you help others. Your patience and persistence.

All the things I treasure about you as a family.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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