Epilepsy Talk

Heat and Seizures

August 24, 2015
12 Comments

Heat can trigger seizures for some people. For example, when you take a very hot shower. (I ended up having a seizure and bonked my head.)

An epileptologist explained that heat can sometimes trigger a seizure for some people because the hot water — as well as the warm air — is firing up the neurons in the brain which can cause a seizure.


There’s a hidden artist inside you!

August 15, 2015
3 Comments

Maybe you’re an artist…actor…architect…painter…poet…philosopher…singer…or someone you just don’t know.

Because, quite simply, there’s another side to that electrical mischief that epilepsy produces.

Some types of epilepsy can spark inspiration, enhance creativity and bring out the latent artist in you.

It’s just waiting to be discovered…


In Tribute to Charlie Petersen

August 9, 2015
15 Comments

Charlie Peterson was a man who suffered from epilepsy for decades. He had one unsuccessful brain surgery, then another, which was successful, ten years later.

Since that time, he had risen to be an active advocate and to give back by helping all those in need.

He was my friend and a friend to the world. Starting a support group where there was none. Counseling others with epilepsy and those who had a loved one with epilepsy.

He was generous to a fault, giving back in turn for the “miracle” that had saved his life.

He was patient, kind, generous and giving. He was my #1 hero.


Top Seizure Apps For Smartphones…

August 2, 2015
5 Comments

A recent study published in the International Journal of Epilepsy has found that certain smartphone apps might aid those with epilepsy.

These apps include seizure diaries as well as medication trackers with reminders to take the next pill.

Apps are available to answer any question patients with epilepsy might have and to remind doctors about drug interactions to watch out for.

Most of them are free of charge.


Advance Health Care Directives and Living Wills

July 26, 2015
7 Comments

Most people don’t want to think about death and dying — so they don’t. Until they have to.

Unfortunately, that often means that families are left struggling with difficult decisions about important matters, such as whether or not Mom would like to be kept alive using a ventilator, or who should be in charge of managing Dad’s financial affairs, because Mom or Dad never made clear what they wanted for themselves.

Advance directives are important tools for anyone to have, because even the healthiest person could experience a sudden accident and not be able to speak for herself…


Resources For When You Can’t Drive…

July 18, 2015
4 Comments

The secret here is the numbers 2-1-1.

Go to the website: http://www.211.org/. Where available, 2-1-1 allows people to give help and to get help. And it’s sponsored by the United Way.

2-1-1 can also give people who live in rural areas better access to health and human service information.


Toxic Chemicals Found In Health Foods, Vitamins, and Supplements

July 13, 2015
4 Comments

You eat healthy foods, take your vitamins, and supplements. And those of us who do are lured into thinking we’re doing what’s best for our bodies.

Or, at least we’re trying to.

Little do we know what’s lurks within those “healthy” products…


Is it Organic?

June 28, 2015
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For quite some time there’s been an explosion of health food products on the market, specifically advertised as either “organic foods” or “natural” foods.

Most people don’t know that there is a major difference between “organic” and “natural” foods, believing that the two are interchangeable.

But, there’s a huge difference between a food labeled “natural” and one that is labeled “organic.”


Exciting News!

June 20, 2015
3 Comments

The Food and Drug Administration (FDA) has approved a new generator for the VNS Therapy® System.

The new generator, called AspireSR®, offers the ability to provide automatic stimulation in response to increased heart rate, in addition to its other stimulation timing.


Seizures and Steroids

June 14, 2015
12 Comments

I always thought that steroids were the kind used by athletes and bodybuilders to pump up their performance. Yes, they do exist and, yes they are quite dangerous, but those aren’t the kind of steroids this article is about.

In fact, anyone who has epilepsy should NOT take anabolic steroids because they may change the level of anti-epileptic drugs (AEDs) in the blood and may make seizures more likely.

The steroids I’m talking about are naturally occurring hormones. Common oral prednisolone or less common/higher risk ACTH — which have a place in the management of severe epilepsies.


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    About the author

    Phylis Feiner Johnson

    Phylis Feiner Johnson

    I've been a professional copywriter for over 35 years. I've also had epilepsy for decades. My mission is advocacy; to increase education, awareness and funding for epilepsy research. Together, we can make a huge difference. If not changing the world, at least helping each other, with wisdom, compassion and sharing.

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