Epilepsy Talk

2014 Comprehensive List of GOOD Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors | January 2, 2013


Below is a compilation by website forum members who have had positive personal experiences with docs over the years.

This list is based on recommendations and, of course, is purely subjective. But it might be helpful for anyone looking for a good Neurologist…Epileptologist…Neurosurgeon…or Pediatric Doctor.

NOTE: The National Association of Epilepsy Centers (NAEC) provides a directory of specialized epilepsy centers in the U.S. along with other useful information about epilepsy.  http://www.naeclocator.org/find.htm

NEUROLOGISTS/EPILEPTOLOGISTS

ALABAMA

Dr. Jennifer DeWolfe, University of Alabama, Birmingham, AL

Dr. Nasrollah Eslami, Bessemer, AL

Dr. Edward Faught, University of Alabama, Birmingham, AL

Dr. Robert Knowlton, University of Alabama, Birmingham, AL

Dr. A. Lebron Paige, University of Alabama, Birmingham, AL

Dr. Potts, Tuscaloosa, AL

ALASKA

Dr. M. Hillstrand. A.N.P., Anchorage, AK

ARIZONA

Dr. Joseph Drazkowski, Mayo Clinic, Phoenix, AZ

Dr. Matthew Hoerth, Mayo Clinic, Phoenix, AZ

Dr. David Labiner, University of Arizona, AZ

Dr. Rama Maganti, Barrow’s Neurology, Phoenix, AZ

Dr. Katherine H. Noe, Mayo Clinic, Phoenix, AZ — Neuropsychologist

Dr. Joseph Sirven, Mayo Clinic, Phoenix, AZ

CALIFORNIA

Dr. Kristin D. Ashley, Auburn, CA

Dr. Everett Austin, Kaiser in Redwood City & UCSF Epilepsy Center, CA

Dr. Robert Burgerman, Sacramento Comprehensive Epilepsy Program, CA

Dr. Christopher DiGiorgio, UCLA, CA

Dr. Robert S. Fisher, Stanford Epilepsy Center, CA — Director of Stanford University Epilepsy Center

Dr. Blondell Gage, Kaiser, Stockton, CA

Dr. Christianne Heck, USC, CA

Dr. Rosalind Hsia, Sacramento Comprehensive Epilepsy Program, CA

Dr. Vincente Iragui, UCSD, CA — Epilepsy & Neurophysiology

Dr. Kelfer, Cook’s County Medical Hospital, Los Angles, CA

Dr. Christopher Lock, Palo Alto Medical Foundation, Palo Alto, CA

Dr. Nicole Lopez-Seminario, Sutter Health Neuroscience, Sutter Roseville Medical Center, Roseville, CA

Dr. William Marks, UCSF, CA

Dr. Majid Molaie, San Pedro Peninsula Hospital, Rancho Palos Verdes, CA — Psychiatry, Neurology & Sleep Medicine

Dr. Martha Morrell, Chief Medical Officer of Neuro Pace, Mountain View, CA

Dr. Karen Parko, San Francisco Veterans Administration Medical Center, San Francisco, CA

Dr. Josef Parvizi, Stanford Comprehensive Epilepsy Center, Stanford, CA

Dr. Edwin Tasch, Kaiser, Santa Clara (Permanente Medical Group), CA

Dr. Victoria Walton, Fresno, CA

Dr. Calvin Wheeler, Kaiser, Fremont, CA

COLORADO

Dr. Patricia Fodor, Colorado Springs, CO

Dr. Mark C. Spitz, Epileptologist, Professor and Head of Adult Comprehensive Epilepsy Program, University of Colorado Hospital, Denver, CO

Dr. Laura Strom, Assistant Professor of Neurology in the Neurology Clinic, University of Colorado School of Medicine, Denver, CO

CONNECTICUT

Dr. Robert Duckrow, Yale (at least somewhere in New Haven, if not at Yale), CT

Dr. S. Kadimi, Fairfield and Milford, CT

Dr. Adam Mednick, Comprehensive Neurological Management, North Haven, CT

FLORIDA

Dr. Jean E. Cibula, Shans Medical Clinic, University of Gainesville, FL

Dr. George Dmytrenko, Sacred Heart Hospital, Pensacola, FL

Dr. William C Hulley III, Clearwater, FL — DO, M.P.H.

Dr. Jobe, St Petersburg, FL

Dr. Erasmo A. Passaro, Bayfront Medical Center & Suncoast Medical Clinic, FL

Dr. Ahmed Sadek, Orlando, FL – Epileptologist with his own Epilepsy Monitoring Unit

Dr. Enrique Serrano, UHealth Neurology at the Professional Arts Center, Miami, FL — Epileptologist

Dr. William Tatum, Mayo Clinic, Jacksonville, FL – Epileptologist

GEORGIA

Dr. Eric Awad, Piedmont Hospital Healthcare, Atlanta Area — Epileptologist

Dr. Donald King, Medical College of Georgia, GA

Dr. Suzette LaRoche, Emory Epilepsy Center, Atlanta, GA

Dr. Joseph Smith, Medical College of Georgia, GA

Dr. David Villasanna, Kennestone Neurology Associates, Marietta, GA

HAWAII

Dr. Allen Stein, Queen’s Medical Center/Kaiser Medical Center — Epileptologist

IDAHO

Dr. Robert Weschler, Boise, ID

ILLINOIS

Dr. Balabanov, Rush University Medical Center, Chicago, IL

Dr. Sofia Dobrin, Northshore University Health System, Chicago, IL

Dr. John Ebersole, University of Chicago, IL

Dr. Andres Kanner, Rush University Medical Center, Chicago, IL

Dr. Michael Smith, Rush University Medical Center, Chicago, IL

INDIANA

Dr. Allison Weaver (somewhere in Evansville, IN)

KANSAS 

Dr. William Nowack, University of Kansas Hospital, Comprehensive Epilepsy Center, Lawrence, KS

Dr. Fatima Rahdi, Manhattan, KS

KENTUCKY

Dr. Meriam Bensalem, University of KentuckyHospital, Lexington, KY (Epilepsy Unit)

Dr. Maria Pavez, Danville, KY&Lexington, KY

LOUISIANA

Dr. William Gladley, Baton Rouge, LA

MAINE

Dr. Heidi L. Henninger, Maine Neurology, ME

MARYLAND

Dr. Hopp, University of Maryland, Baltimore, MD — Epileptologist

Dr. Gregory Krauss, Epilepsy Center, Johns Hopkins, Baltimore, MD

Dr. Francis Mwaisela, Towson Neurology Associates, Towson, MD

MASSACHUSETTS

Dr. Andrew Cole, Massachusetts General Hospital, Boston, MA

Dr. G. Rees Cosgrove, Lahey Clinic Medical Center, Burlington, MA

Dr. Andrew Herzog, Beth Israel Hospital, Boston, MA

Dr. Dan Hoch, Massachusetts General Hospital, Boston, MA

Dr. Jayant Phadke, Worcester, MA

Dr. Catherine Phillips, UMassachusetts Medical Center, MA

Dr. Kenneth Sassower, Massachusetts General Hospital, Boston, MA — Children & Adults

Dr. Steven Schachter, Harvard Medical School, Cambridge, MA — President of the American Epilepsy Society

MICHIGAN

Dr. Gregory L. Barkley, Henry Ford Hospital, Detroit, MI

Dr. Kerry Hulsing, University of Michigan, Ann Arbor, MI

Dr. Jack Parent, University of Michigan, Ann Arbor, MI

Dr. Steven H. Schechter, William Beaumont Medical Building, West Bloomfield, MI

Dr. Linda M. Selwa, University of Michigan, Ann Arbor, MI

Dr. Brien J. Smith, Spectrum Health, Grand Rapids, MI — Chair of Neuroscience/Neurology

Dr. Adriana Tanner, Hauenstein Neuroscience Center, St. Mary’s Epilepsy Clinic, Grand Rapids, MI — Epileptologist

MINNESOTA

Dr. Irfan Altafullah, Minneapolis Clinic of Neurology, MN

Dr. Greg Cascino, Mayo Clinic, Rochester, MN — Epileptologist

Dr. Thomas Henry, MN — Epileptologist

Dr. Frank Ritter, Minnesota Epilepsy Group, MN

MISSOURI

Dr. Robert Hogan, Advanced Medical Center, Washington University, Barnes Hospital, St Louis, MO

Dr. Waqar Mirza, DePaul Health Center, St. Louis, MO — Epileptologist

Dr. William Rosenfeld, Epilepsy Comprehensive Center, St. Luke’s Hospital, Chesterfield, MO

MONTANA 

Dr. Nicole Clark, Helena, MT 

NEBRASKA

Dr. Deepak Madhavan, Nebraska Medical Center, Omaha, NE — Epileptologist

NEW HAMPSHIRE

Dr. Greg Holmes, Dartmouth-Hitchcock Medical Center, Lebanon, NH

NEW JERSEY

Dr. Eric Gellar, St. Barnabas, NJ

Dr. Wei Ma, New Jersey Neuroscience Institute at JFK Medical Center, Edison, NJ

Dr. Richard Sultan, Jersey Shore University Medical Center, Neptune, NJ

NEW MEXICO

Dr. Griggs, University of New Mexico, Albuquerque, NM — Epileptologist

NEW YORK

Dr. Carl Bazil, Columbia Comprehensive Epilepsy Center, New York City, NY

Dr. Orrin Devinsky, NYU Comprehensive Epilepsy Center, New York City, NY — Epileptologist

Dr. Werner Doyle, NYU Comprehensive Epilepsy Center, New York City, NY

Dr. G. Erba, University of Rochester and Strong Memorial Hospital, Rochester, NY

Dr. Mark Gudesblatt, South Shore Neurological Associates, Long Island, NY

Dr. Cynthia L. Harden, Hofstra North Shore-Long Island Jewish School of Medicine, Great Neck, NY — Chief, Epilepsy Division

Dr. Lawrence J. Hirsch, Columbia Comprehensive Epilepsy Center, New York City, NY

Dr. Steven Karceski, Columbia Comprehensive Epilepsy Center, New York City, NY

Dr. Jeffrey T. Kessler, North Shore University Hospital, Great Neck, NY

Dr. Daniel Luciano, NYU Comprehensive Epilepsy Center, New York City, NY

Dr. Steven Pacia, NYU Comprehensive Epilepsy Center, New York City, NY

Dr. Alison Pack, Columbia Comprehensive Epilepsy Center, New York City, NY

Dr. Stanley R. Resor, Columbia Comprehensive Epilepsy Center, New York City, NY — Pregnancy

Dr. Laura Gray Schoenberg, Lake Success, N.Y

NORTH CAROLINA

Dr. John DeToledo, Wake Forest Medical Center, NC

Dr. Laura Jozewicz, Raleigh, NC

Dr. James Parrott, Neuroscience and Spine Institute, Charlotte, NC

Dr. Sheila Smalls, Forest City, NC

OHIO

Dr. Imran Ali, University of Toledo Medical Center, Toledo, OH

Dr. William Bingaman, Cleveland Clinic, Cleveland, OH

Dr. William Carroll, Grant Medical Center, Columbus, OH

Dr. Jean Cibula, Mt. Carmel Healthcare, Columbus, OH

Dr. David Ficker, University of Cincinnati, Cincinnati, OH

Dr. Hans Lüders, UH Hospitals, Cleveland, OH (Speaks fluent Spanish.)

Dr. Iam Najm, Cleveland Clinic Epilepsy Center, Cleveland, OH

Dr. Privitera, University of Cincinnati Medical Center, Cincinnati, OH

Dr. Basel Schneeker, Ohio State Neurological/Epilepsy Center, Columbus, OH

Dr. Robert Simkins, Wallace Kettering Neuroscience Center, Kettering, OH

Dr. Norman So, Cleveland Clinic Epilepsy Center, Cleveland, OH

OKLAHOMA

Dr. Michael Karathanos, Tulsa, OK

OREGON

Dr. Paula Gerber, Oregon Clinic, Portland, OR

Dr. W. Brewster Smith, Oregon Comprehensive Epilepsy Center/OHS, OR

PENNSYLVANIA

Drs. Shobha Asthana and Belle Vernon, Lemont Furnance, PA

Dr. Jacqueline French, University of Pennsylvania Epilepsy Center, Philadelphia, PA

Dr. Frank G. Gilliam, Director of Neurology/ Neurosciences, Geisinger Medical Center & Geisinger Wyoming Valley Medical Center Danville, PA & Wilkes Barre, PA — Epileptologist,

Dr. Thomas Graham, Graham Neurological Associates, Paoli, PA

Dr. Roderick Hines, Neurological Associates of Lancaster, PA

Dr. Joyce Liporace, Riddle Hospital, Media, PA — Epileptologist

Dr. Timothy Martin, Neurological Associates of Lancaster, PA

Dr. John Pollard, University of Pennsylvania Epilepsy Center, Philadelphia, PA — Epileptologist

Dr. Paul L. Schraeder, Albert Einstein, Philadelphia, PA

Dr. Michael Sperling, Thomas Jefferson Hospital, Philadelphia, PA

SOUTH CAROLINA

Dr. Mahmoud Abu-Ata, SC

Dr. Jonathan C. Edwards, Associate Professor of Neurology, Director of the Comprehensive Epilepsy Program, The Medical University of South Carolina, Charleston, SC

SOUTH DAKOTA

Dr. Kathryn Florio, Sioux Falls, SD

TENNESSEE

Dr. Bassell Abou-Khali, Vanderbilt Clinic, Nashville, TN

Dr. Bola Adamolekun, Semmes-Murphy Neurological Clinic, Memphis, TN

Dr. Julie Jacques, Morristown, TN

Dr. Andre Lagrange, Vanderbilt University Hospital, Nashville, TN

TEXAS

Dr. Mark Agostini, University of Texas Southwestern Medical Center, Dallas, TX

Dr. Jose Cavazos, University of Texas Health Science Center, San Antonio, TX

Dr. Peyton Delaney, San Antonio, TX

Dr. Stasha Gominak, Tyler, TX

Dr. Robert Leroy, Medical City, Dallas, TX

Dr. Michael Newmark, Houston, TX

Dr. Padraig O’Suilleabhain, University of Texas Southwestern Medical Center, Dallas, TX

Dr. Jeremy Slater, Texas Comprehensive Epilepsy Program at University of Texas, TX

Dr. Charles A. Szabo, University of Texas Health Science Center, San Antonio, TX — Epileptologist

Dr. Richard Ulrich, Tyler, TX

Dr. Paul Van Ness, University of Texas Southwestern Medical Center, Dallas, TX

UTAH

Dr. Tawnya Constantino, Salt Lake City, UT

VIRGINIA

Dr. Marco Castro, Neurology Center of Fairfax, Fairfax, VA

Dr. Jane Fountain, PhD, UVA, Charlottesville, VA — Geneticist

Dr. Nathan Fountain, UVA, Charlottesville, VA

Dr. Mark Quigg, UVA, Charlottesville, VA

Dr. Donald Taylor, Saint Mary’s Hospital, Richmond, VA

WASHINGTON

Dr. Lisa Caylor, Swedish Epilepsy Center, Seattle, WA

Dr. Michael Elliot, Virginia Mason, Seattle, WA

Dr. Ryder Gwinn, Swedish Medical Center, Seattle, WA

Dr. John Miller, Harborview Medical Center, Seattle, WA

Dr. Nicholas Poolos, Harborview Epilepsy Center, Seattle, WA

Dr. David Vossler, Washington Neuroscience Institute, WA

Dr. Alan Wilensky, M.D., Ph.D., University of Washington Epilepsy Center, Seattle, WA — Professor of Neurology

WASHINGTON D.C.

Dr. Samuel Potolicchio, GW Medical Faculty Associates, Washington, D.C.

WISCONSIN

Dr. Greg Fischer, Gundersen Luthern Clinic, LaCrosse, WI

CANADA

Joseph Bruni, St. Michael’s Hospital, Toronto, Ontario
– Epileptologist

Dr. Marika J. Hohol, St. Michael’s Hospital, Toronto, Ontario

ENGLAND

Dr. Dennis, Royal Hallamshire Hospital, Sheffield, South Yorkshire, UK

NEUROSURGEON RECOMMENDATIONS

ARIZONA

Dr. Richard S Zimmerman, Mayo Clinic, Phoenix, AZ

CALIFORNIA

Dr. Michael Appuzo, USC, CA

Dr. Barbuo, USC, CA

Dr. Kenneth Laxer, California Pacific Medical Center, CA

Dr. Charles Liu, USC, CA

CONNECTICUT

Dr. Dennis Spence, Yale New Haven Hospital, CT

FLORIDA

Dr. Kirk Jobe, Bayfront Medical Center & Suncoast Medical Clinic, FL

Dr. Steven Reid, Southeastern Neurosurgery, Gainesville, FL

Dr. Robert E. Wharen, Jr., Mayo Clinic, Jacksonville, FL

GEORGIA

Dr. Robert Gross, Emory University Hospital, Atlanta, GA

HAWAII

Dr. Leon Liem, Queen’s Medical Center/Kaiser Medical Center

ILLINOIS

Dr. Richard Byrne, Rush University, IL

MAINE

Dr. Jeffery Florman, Maine Medical Center — Epilepsy Care Unit — Portland, ME

MASSACHUSETTS

Dr. Emad Nader Eskandar, Massachusetts General Hospital, Boston, MA

MICHIGAN

Dr. Kost Elisevich, Henry Ford Hospital, Detroit, MI

Dr. Oren Sagher, University of Michigan, MI

MINNESOTA

Dr Aviva Abosch, Assistant Professor of Neurosurgery, University of Minnesota, Minneapolis, MN

Dr. Richard Marsh, Mayo Clinic, Rochester, MN

MISSOURI

Dr. Eric Leuthardt, Advanced Medical Center, Washington University, Barnes Hospital, St. Louis, MO

NEBRASKA

Dr. Michele R. Aizenberg, Nebraska Medical Center, Omaha, NE

NEW YORK

Dr. Werner Doyle, NYU Comprehensive Epilepsy Center, New York City, NY

Dr. Robert Goodman, Columbia Presbyterian Hospital, New York City, NY

Dr. Guy McKhann, Columbia Comprehensive Epilepsy Center, New York City, NY

Dr. Theodore Schwartz, Cornell, Ithaca, NY

OHIO

Dr. William Bingaman, Cleveland Clinic, OH

SOUTH CAROLINA

Dr. Johnathan C. Edwards, Director, Comprehensive Epilepsy Program, Medical University of South Carolina, Charleston, SC

TENNESSEE

Dr. Boop, LeBonheur Hospital, Memphis, TN

TEXAS

Dr. Nitin Tandon, Memorial Hermann Hospital, Houston, TX

Dr. Yosher, Baylor Clinic, Houston, TX

UTAH

Dr. Paul House, Salt Lake City, UT

VIRGINIA

Dr. John Jane, UVA Medical Center, Charlottesville, VA

Dr. Mark Shaffrey, UVA Medical Center, Charlottesville, VA

WASHINGTON

Dr. Jeff Ojemann, University of Washington, Seattle, WA

ENGLAND

Mr D Bhattacharyya, Royal Hallamshire Hospital, Sheffield, South Yorkshire, UK

PEDIATRIC RECOMMENDATIONS

ARIZONA

Dr. Kevin Chapman, Barrows Neurological Institute, Phoenix, AZ — Pediatric Epileptologist & Neurologist

Dr. Randa Jarrar, Phoenix Children’s Hospital, Phoenix, AZ

CALIFORNIA

Dr. Kelfer, Cook’s County Children’s Medical Hospital, Los Angles, CA

Dr. Nutik, Kaiser, Redwood City, CA

Dr. Donald Shields, UCLA Mattel Children’s Hospital Division of Pediatric Neurology, CA

Dr. Diane Stein, Irvine, CA

Dr. Joyce Wu, UCLA Mattel Children’s Hospital Division of Pediatric Neurology, CA

Dr. Mary Zupanc, Children’s Hospital, Orange County, CA — Epileptologist

CONNETICUT

Francine Testa, Yale-New Haven Hospital, New Haven, CT

Susan Levy, Yale-NewHavenHospital, New Haven, CT

Dr. Laura Ment, Yale-NewHavenHospital, New Haven, CT

FLORIDA

Dr. Ronald Davis, Orlando, FL

Dr. Kojik, Orlando, FL

Dr. Naqvi, Miami Children’s Hospital, Miami, FL

Dr. Passero, St. Petersberg, FL

GEORGIA

Dr. Robert Flamini, Scottish Rite Children’s Hospital, Atlanta, GA

Dr. Sandra Helmers, Emory University, Atlanta, GA

Dr. Roger Hudgins, Scottish Rite Children’s Hospital, Atlanta, GA

ILLINOIS

Dr. Kelfer, Cook Children’s Medical Hospital, Cook County, IL

Dr. Marianne Larsen, Children’s Memorial Hospital, Chicago, IL

Dr. Douglas Nordli, Children’s Memorial Hospital, Chicago, IL — Pediatric Epileptologist

Dr. Marvin A. Rossi, Rush University Medical Center, Chicago, IL

Dr. Blas Zelaya, Peoria, IL

INDIANA

Dr. Vicenta Salanova, Riley Hospital for Children, Indianapolis, IN

KENTUCKY

Dr. Vinary Puri, Director of Child Neurology, Kosair Children’s Hospital and University of Louisville, Louisville, KY

MARYLAND

Dr. Eric Kossof, Johns Hopkins, Baltimore, MD

Dr. William R Leahy, Greenbelt, MD

Dr. Naidu, Kennedy Krieger Institute, Baltimore, MD

MASSACHUSETTS

Dr. Adjani, UMassachusetts Medical Center, MA

Dr. Blaise Bourgeois, Children’s Hospital, Boston, MA

Dr. Laurie Douglass, Boston, MA

Dr. Frances E. Jensen, Children’s Hospital, Boston, MA

Dr. Joseph Madsen, Children’s Hospital, Boston, MA

Dr. Annapurna (Ann) Poduri, at Boston Children’s Hospital, Boston, MA

Dr. Kenneth Sassower, Massachusetts General Hospital, Boston, MA — Children & Adults — Neurologist/Epileptologist

Dr. Ronald Thibert, Massachusetts General Hospital, Boston, MA

Dr. Elizabeth Thiele, Massachusetts General Hospital, Boston, MA — Pediatric Neurologist/Epileptologist

MICHIGAN

Dr. Harry Chugani, Detroit Children’s Hospital, Detroit, MI

Dr. Eileen McCormick, Michigan Institute for Neurological Disorders (MIND), Farmington Hills, MI

MINNESOTA

Dr. Jason Doescher, Minnesota Epilepsy Group, St. Paul, MN

Dr. Mary Dunn, St. Paul Children’s, St. Paul, MN

Dr. Frost, Minnesota Epilepsy Center, St. Paul, MN

MISSOURI

Dr. David Callahan, St. Luke’s Hospital, Chesterfield, MO

Dr. James Rohrbaugh, St Luke’s Hospital, Chesterfield, MO

Dr. William Rosenfeld, Children’s Hospital, St. Louis, MO

Dr. Micheal Symth, St. Louis Children’s Hospital, St. Louis, MO — Neurosurgeon

Dr. Richard Torkelson, Children’s Mercy, Kansas City, MO

Dr. Edwin Trevathan, St. Louis Children’s Hospital, St. Louis, MO

Dr. John Zempel, St. Louis Children’s Hosptial, St. Louis, MO — Epileptologist

NEW JERSEY

Dr. Daniel Alder, New Jersey

Dr. Steven Kugler, Robert Wood Johnson Hospital, New Brunswick, NJ

Dr. Wollack, Robert Wood Johnson Hospital, New Brunswick, NJ

NEW YORK

Dr. Claudia Chiriboga, Columbia Presbyterian, New York City, NY

William S. MacAllister, Ph.D., Pediatric Neuropsychologist, NYU Comprehensive Epilepsy Center, New York City, NY

Dr. Gail Solomon, NYU Comprehensive Epilepsy Center, New York City, NY

NORTH CAROLINA

Dr. Corbier, Concord, NC

Dr. Darrell V. Lewis, Duke Children’s, Atlanta, NC

Dr. Gallentine, Duke Children’s, Atlanta, NC

Dr. Michael B. Tennison, Chapel Hill, NC

Dr. Shana Wallace, Charlotte, NC

OHIO

Dr. Kerry Crone, Children’s Hospital Medical Center, Cincinnati, OH

Dr. Cynthia Foldvary, Cleveland Clinic, Cleveland, OH

Dr. David Franz, Children’s Hospital Medical Center, Cincinnati & Mason, OH

Dr. Gupta, Cleveland Clinic, Cleveland, OH

Dr. Roger Hudgins, Akron Children’s Hospital, Akron, OH

Dr. Kotogal, Cleveland Clinic, Cleveland, OH – Epileptologist

Dr. Lichwanni, Cleveland Clinic, Cleveland, OH — Epileptologist

Dr. Ingrid Tuxhorn, Rainbow’s Babies and Children’s Hospital, Cleveland, OH

Dr. Wyllie, Cleveland Clinic, Cleveland, OH — Epileptologist

PENNSYLVANIA

Dr. Khurana, St. Christopher’s Hospital, Philadelphia, PA

Dr. Roger Porter, Children’s Hospital of Philadelphia, Philadelphia, PA

Dr. Strom, Children’s Hospital of Philadelphia, Philadelphia, PA

TENNESSEE

Dr. Stephen Fulton, LeBonheur Children’s Hospital, Memphis, TN — Epileptologist

Dr. Paul Knowles, T.C. Thompson’s Children’s Hospital, Chattanooga, TN

Dr. Barbara Olsen, Pediatric Neurology Associates, Nashville, TN

Dr. James Wheless, LeBonheur Children’s Hospital, Memphis, TN

TEXAS

Dr Gretchen Von Allmen, University of Texas Physicians/Memorial Hermann Hospital, Houston, TX

Dr. Imad T. Jarjour, Houston, TX

Dr. Howard Kelfer, Cook Children’s Medical Center, Fort Worth, TX

Dr. Anthony Riela, Texas Child Neurology, Plano, TX

Dr. Josh Rotenberg, Pediatric Neurologist, Texas Medical & Sleep Specialists, San Antonio and Houston, TX

Dr. Angus Wilfong, Texas Children’s Hospital, Houston, TX

VIRGINIA

Dr. Pearl, Fairfax, Virginia

WASHINGTON, D.C.

Dr. Pearl, Children’s National Medical Center, Washington, D.C.

WISCONSIN

Dr. Kurt Hecox, Children’s Hospital of Wisconsin, Milwaukee, WI

Dr. S. Anne Joseph, Children’s Hospital of Wisconsin, Milwaukee, WI

Dr. Sean Lew, Children’s Hospital of Wisconsin, Milwaukee, WI

Dr. Charles Marcuccilli, Milwaukee, WI – Epileptologist

For other hospital resources, click here:

2013 Top Ranked Neurology and Neurosurgery Hospitals — For Adults and Children

http://epilepsytalk.com/2013/01/03/2013-top-ranked-neurology-and-neurosurgery-hospitals-for-adults-and-children/

2013 Top Psychiatric Hospitals in the U.S.

http://epilepsytalk.com/2013/01/10/2013-top-psychiatric-hospitals-in-the-u-s/

To subscribe to Epilepsytalk.com and get the latest articles, go to the bottom box of the right column and click on “Sign me up!”


88 Comments »

  1. anything from Toledo, OH?

    Comment by Karen Diaz — January 2, 2013 @ 2:44 PM

    • These are recommendations from eforum members. Looks like we need someone who lives in Toledo, Ohio!

      Comment by Phylis Feiner Johnson — January 2, 2013 @ 3:16 PM

  2. Perhaps someday, it might be worth adding Canadian docs to this registry.

    Comment by donna — January 2, 2013 @ 3:05 PM

    • I’d love to, but first we have to get the recommendations.

      Ideas? Suggestions? Recommendations?

      Comment by Phylis Feiner Johnson — January 2, 2013 @ 3:17 PM

      • My doc has been great!

        Joseph Bruni, Epileptologist
        55 Queen St. East (St. Michael’s Hospital)
        Toronto, Ontario
        (416) 864-5501

        Comment by donna — January 2, 2013 @ 3:21 PM

  3. Yay Donna! Now we have two in Canada. (At least it’s a start…)

    Many, many thanks!

    Comment by Phylis Feiner Johnson — January 2, 2013 @ 3:30 PM

  4. Anybody to speak w/on Epilepsy Talk? Would really appreciate assistance.  ED

    ________________________________

    Comment by lckyedd — January 2, 2013 @ 4:03 PM

  5. What would you like to speak about? Perhaps you can use the search bar and then ask a question.

    We are not, strictly speaking, a “chat room”.

    Comment by Phylis Feiner Johnson — January 2, 2013 @ 5:14 PM

  6. I just started seeing Dr. Samuel Potolicchio in DC, good to know I’m in good hands. :)

    Comment by Liza — January 2, 2013 @ 9:27 PM

  7. I always knew you were a smart lady, Liza!!!! :-)

    Comment by Phylis Feiner Johnson — January 3, 2013 @ 9:09 AM

  8. Not an updated list. In fact there’s deceased people on this list!

    Comment by Costas — January 3, 2013 @ 12:14 PM

  9. I noticed you don’t have anyone listed for Orlando, FL. I would highly recommend Dr. Ahmed Sadek. He is an Epileptologist and has opened his own Epilepsy Monitoring Unit.

    Comment by Yuri — January 3, 2013 @ 12:41 PM

  10. Sorry, I meant to say that you don’t have any adult neurologists listed in Orlando. Dr. Kojic is pediatric.

    Comment by Yuri — January 3, 2013 @ 12:43 PM

  11. Find it interesting no Dr in Pittsburgh but the article from US News & World Report ranks UPMC #7 ???

    http://www.neurology.upmc.edu/faculty/index.html
    http://www.upmc.com/healthcare-professionals/Pages/default.aspx

    Comment by pghkatrina — January 4, 2013 @ 1:32 AM

  12. Well, there’s got to be great docs out there. No question. Just none of us has discovered them. (Or liked them?)

    Do YOU know of any great doc in Pittsburgh?

    Comment by Phylis Feiner Johnson — January 4, 2013 @ 8:07 AM

  13. If you are in Washington State, go see Dr. Elliott at Virginia Mason in Seattle. He is the best!

    Comment by Jeanne Cox — January 7, 2013 @ 3:53 PM

  14. I’d also very highly reccomend Dr.Jeff Ojemann with the University of Washington in Seattle for neurosurgery. He did an LTL surgery on me seven years ago, and I have not had any seizures since!!

    Comment by Jeanne Cox — January 7, 2013 @ 3:56 PM

  15. TOEDO, OHIO
    Imran Ali
    UTMC (University of Toledo Medical Center)
    3065 Arlington Ave.
    419-383-4000

    Comment by Lorraine Konesni — January 7, 2013 @ 6:27 PM

  16. Thanks Lorraine. I just posted him, as you can see. It’s a really big help.

    Comment by Phylis Feiner Johnson — January 7, 2013 @ 7:17 PM

  17. i live in england and i have a brillant neurologist called dr dennis hes very good i have also seen a brilliant neurosurgeon this country would be lost without him is name is mr bhattacharryya they are both based at royal hallamshire hospital in sheffield south yourkshire

    Comment by susan pimperton — January 11, 2013 @ 12:50 AM

    • Thanks so much Susan. As you can see, we have NOTHING listed for the UK. This will add a new dimension to our list (which hopefully will continue growing)!

      Comment by Phylis Feiner Johnson — January 11, 2013 @ 1:09 PM

  18. i AM DEALING WITH WHAT YOU CALL A NON RECORDABLE SEIZURE THAT IS WHERE THE VIDEO EEG DOESN’T CAPTURE A SEIZURE . IS THERE SOMETHING THAT COULD CAPTURE A SEIZURE LIKE THIS?

    Comment by LORI ARCAND — February 2, 2013 @ 6:08 PM

    • Lori,

      This can be so frustrating and scary. I too had seizures that EEG’s would not capture. What finally happened, is that after years of being told I had a panic or stress disorder, I was describing an attack, and had a counselor tell me that what I had sounded like a seizure. She referred me to an internist who ordered an EEG and an MRI. Of course, the EEG showed “slight abnormalities”, however, the MRI showed scarring on the temporal lobe of my brain (mesial temporal sclerosis). Then, after two years of seeing a neurologist and 3 different meds to attempt to control my seizures, I went through a week of continuous 24 hour video EEG monitoring in the hospital, and they caught 2 seizures.

      The moral of the story, an EEG is just a snap shot in time, and you have to be “lucky” enough to catch a seizure during the testing. However, if there is scarring the MRI can catch it, and the continuous 24 hour EEG and video monitoring I went through really upped the odds of catching a seizure.

      Good luck Lori, I hope they find a way to capture one of your seizures.

      Comment by David — April 16, 2013 @ 12:26 PM

  19. How frustrating Lori!

    The good news is there are MANY diagnostic options. The link below is sort of like a primer to different tests…

    Beyond EEGs…Diagnostic Tools for Epilepsy

    http://epilepsytalk.com/2010/09/13/beyond-eegs%E2%80%A6diagnostic-tools-for-epilepsy-2/

    I hope this helps!

    Comment by Phylis Feiner Johnson — February 2, 2013 @ 6:25 PM

  20. My epileptologist is Dr. William Tatum Mayo Clinic
    Jacksonville Florida…..My surgeon is Dr. Robert E. Wharen Jr also at Mayo Clinic Jacksonville Florida
    which he should be on the list of neurosurgeons he is a great surgeon.

    Comment by Dianne — February 15, 2013 @ 8:54 PM

    • Dianne, thanks so much for your contribution.

      They’ve been added to the list.

      Comment by Phylis Feiner Johnson — February 16, 2013 @ 11:25 AM

      • Thanks Phylis for responding and for putting my doctors
        on the lists.

        Comment by Dianne — February 16, 2013 @ 11:45 AM

  21. Thank YOU! :-)

    Comment by Phylis Feiner Johnson — February 16, 2013 @ 2:50 PM

  22. Has anybody ever looked in to holistic or naturopathic doctors? I’ve wondered if anyone has come across anyone utilizing alternative therapies that focus on nutrition, hormones, or biofeedback, and what their success level was like..

    Comment by Doug — February 17, 2013 @ 5:29 PM

  23. I myself haven’t but both Arthur and I come from the field of Health and Wellness.

    I believe in CAM (Complimentary Alternative Medicine), however, at best, I think it could help identify your triggers and perhaps neutralize them.

    And it MUST be used in conjunction with your regular doc. NOT as a substitute.

    Naturopathy

    A Naturopathic doctor treats the whole person, taking into account the interaction of their physical, mental, and emotional factors in causing a condition.

    Naturopathic medicine recognizes the importance of the whole person instead of just single organ systems or particular symptoms.

    When it comes to epilepsy, naturopathy and a range of related treatment methods may have a good deal to offer, as long as it is coordinated with your neurological care.

    Options include: aromatherapy, acupuncture, behavior control, biofeedback, stress management, to name just a few.

    Homeopathy

    The main argument for treating epilepsy — or any disease — homeopathically is because each patient is different. Though they may be diagnosed with the same disease or disorder, their symptoms are different, as are their responses to treatment and medication. This is why people believe there are many benefits to treating epilepsy based on symptoms rather than the generalized disease.

    By being able to zero in on exact symptoms which patients are experiencing, it’s believed that homeopathy will have a better chance of treating those specific symptoms.

    Alone, homeopathy may not help all cases of epilepsy. But together, with conventional treatment for epilepsy, it’s seen success as a supportive line of treatment. And in cases of drug resistant epilepsy, people often do respond significantly to homeopathy.

    What Type of Doctor is Best for YOU?

    http://epilepsytalk.com/2010/05/21/what-type-of-doctor-is-best-for-you/

    Biofeedback

    One of the most beneficial aspects of biofeedback, is the reduction of stress in everyday life, which in turn, also helps reduce seizures.

    According to research, approximately 50% seizure control is attained within approximately 2-3 months and full seizure control can occur somewhere between 6-18 months.

    However, to achieve these kind of results, there has to be a lot of proficiency by the practitioner along with commitment, motivation and concentration on your part.

    But with this success, patients with epilepsy have been able to decrease levels of medication and increase normal daily activity.

    It seems that once the high expense decreases, biofeedback therapy will become the wave of the future: for its non-invasive qualities, safety and high level of success.

    Biofeedback — Retrain Your Brain

    http://epilepsytalk.com/2011/06/25/retrain-your-brain-%E2%80%93-with-biofeedback/

    Two other articles that may be of interest:

    What Is Complementary and Alternative Medicine?

    http://nccam.nih.gov/health/whatiscam

    Alternative Epilepsy Treatments

    http://www.coping-with-epilepsy.com/index.php?p=alternative-treatments

    Comment by Phylis Feiner Johnson — February 18, 2013 @ 9:17 AM

    • Interested what you wrote. I am one who has had epilepy my whole life. All these years I treated the systems of my seizures. I went to Mayo Clinic in Jacksonville Florida and went into their testing unit and went through all the testing. They found the focus of my seizures where the seizures were starting and why. I had scar on my right temperal lobe. I had the MRI guided laser surgery. I am in post surgery now and it was not that long ago I had it. I am totally seizure free and not suffering before surgery. I agree epilepsy is different for every person. There are many ways now to treat the systems to control the seizures. This procedure is in the study stage and I think it can help many people as people hear and the results from those who have had it. I am part of a study of this kind of surgery for epilepsy. they are doing at Jacksonville Mayo Clinic. I will be posting on my profile as I go through recovery from the surgery. Thank you for your post.

      Comment by Dianne — February 18, 2013 @ 9:31 AM

  24. Congratulations Dianne and fingers crossed.

    Please do let us know the progress of your recovery.

    For those who aren’t acquainted with Laser Guided Surgery, here are a few links that explain it:

    MRI-Guided Laser Ablation Technology for Minimally Invasive Neurosurgery

    http://www.visualaseinc.com/

    Cutting-edge laser brain surgery stifles seizures for epilepsy patients

    http://www.nj.com/news/index.ssf/2012/03/cutting-edge_laser_brain_surge.html

    Laser Surgery an Option for Severe Epilepsy

    http://www.medpagetoday.com/MeetingCoverage/AES/36238

    Laser treatment to cure seizures (Video)

    http://video.foxnews.com/v/1686084387001/laser-treatment-to-cure-seizures/

    Comment by Phylis Feiner Johnson — February 18, 2013 @ 10:36 AM

  25. Yes Dianne, please update everyone on your progress.. I would be very interested to hear more about the procedure.

    Comment by Doug — February 25, 2013 @ 11:04 PM

    • BTW, Phyllis.. in regard to your mentioning Biofeedback earlier. Here is a link to a doc I saw in Dallas.

      http://www.neurotherapydallas.com/articles-by-dr-walker.html

      I had the QEEG done, but was looking at months of therapy at the time, and being doctor burned out, I decided against it. Although I might try it again down the road. Curious what you think about him.. he claimed he felt he could “end” seizures..

      One weird thing.. during evaluation he did some Applied Kinesiology stuff that I felt was suspect, but it didn’t seem like that was a part of the therapy. The QEEG seemed legit.

      Comment by Doug — February 26, 2013 @ 12:02 AM

  26. You can actually get a certified biofeedback person through their professional society (and they advise you to do so).

    The International Society for Neurofeedback and Research

    http://www.isnr.org/

    But, as you know, the cost is really up there. You might want to read:

    Biofeedback — Retrain Your Brain

    http://epilepsytalk.com/2011/06/25/retrain-your-brain-%E2%80%93-with-biofeedback/

    Comment by Phylis Feiner Johnson — February 26, 2013 @ 8:31 AM

  27. Here in Montana I must add Nicole Clark. She is in Helena and did good by me. Also, the staff out at Swedish Medical Center in Seattle is excellent. The surgeon who operated on me, Dr. Ryder Gwinn was excellent too. Thanks to them, I have been seizure free for nearly 2 years now.

    Comment by David — March 15, 2013 @ 11:10 AM

  28. Wow, David. That’s GREAT. We didn’t even have a doc in Montana.

    Thanks a zillion for your contribution!

    Comment by Phylis Feiner Johnson — March 15, 2013 @ 2:31 PM

    • Phylis. We have a few in Montana. That is why it is hard to get in to see one. There is another one I was based in Great Falls I was seeing. He seemed like a pretty competent doctor. His name is Eliad Culcea. He is in a practice with another neurologist. Her name is Debra Dover.

      I ended up seeing Dr. Clark because I ended up in the emergency room after a bad seizure and she was on call. Talk about a stroke of good fortune.

      Comment by David — March 18, 2013 @ 11:00 AM

  29. Thanks so very much. Is that the same doctor as Dr. Nicole Clark in Helena, MT?

    Comment by Phylis Feiner Johnson — March 18, 2013 @ 12:20 PM

    • Yes, Dr. Nicole Clark in Helena.

      Comment by David — March 18, 2013 @ 1:32 PM

  30. THANKS David!

    Comment by Phylis Feiner Johnson — March 18, 2013 @ 1:48 PM

  31. is kaiser in los angeles area really hopeless?

    Comment by frank — March 19, 2013 @ 8:47 AM

  32. NO. Not at all! In the U.S. News & World Report’s 2013 list of top ranking hospitals, Kaiser was ranked as high-performing in Neurology & Neurosurgery and 8 other specialties.

    http://health.usnews.com/best-hospitals/search?hospital_name=Kaiser+Permanente+Los+Angeles+Medical+Center&specialty_id=IHQNEUR&city=City%2C+State+or+ZIP

    Comment by Phylis Feiner Johnson — March 19, 2013 @ 10:20 AM

  33. Where do you have a list for Indian Neuros,
    there are a large number of patients in this country who need attention

    Comment by Maandeep Singh — April 6, 2013 @ 2:28 AM

    • For reliable recommendations (That are not commercially motivated), I would start with
      the Indian Epilepsy Association.

      They have a list of support groups:
      http://www.epilepsyindia.org/iea/supportgroups.html

      Here are the different branches:
      http://www.epilepsyindia.org/iea/chapters_branches.html

      There’s also the Epilepsy Foundation of India, but I couldn’t understand the writing or the language. Here’s their link:
      http://www.epilepsyfoundationindia.com/

      Here’s a list of the Best Social Networking Sites for India which might help answer questions and give you personal feedback:
      http://www.bestindiansites.com/social-networking/

      I hope this helps…

      Comment by Phylis Feiner Johnson — April 6, 2013 @ 10:17 AM

      • The US has a fair share of Indian Neuros who can help you translate whatever is mentioned on the sites which you have sent me. I specifically want to know what is the help for patients who have been under the allopathic cure for a number of years and now seek a cure through the generic remedy; no doubt the doctor is the first one I will refer to but as referring consultant you may be having an answer, please

        Comment by Maandeep Singh — April 7, 2013 @ 2:17 AM

  34. Naturopathy has it’s benefits, but are you saying you now want to go the traditional route with a neurologist?

    As far as generics go, most doctors will prescribe a generic, unless you ask for the name-brand and it is specifically requested on the prescription.

    Even then, the pharmacy may switch your prescription to a generic brand, unless the name-brand is insisted.

    Here’s some info on generic drugs:

    Epilepsy Generics: Yes, No or Maybe So?

    http://epilepsytalk.com/2009/09/01/epilepsy-generics-yes-no-or-maybe-so/

    Deeply Discounted Drugs Without Insurance

    http://epilepsytalk.com/2010/03/18/deeply-discounted-drugs-without-insurance/

    Generics: Important News From The American Academy of Neurology

    http://epilepsytalk.com/2009/12/22/important-news-from-the-american-academy-of-neurology-of-neurology/

    Basically, generic drugs from reputable manufacturers contain the same basic chemicals as do the branded drugs.

    However the generic drug contains 80% of the medication of a name-brand drug and the rest of the 20% can vary from generic to generic.

    Even the actual generic supplied by a pharmacy may change with prescription refills, causing variability in blood levels that could lead to seizures or side effects.

    The key is CONSISTENCY.

    Comment by Phylis Feiner Johnson — April 7, 2013 @ 1:53 PM

  35. EXCELLENT DOCUMENT :-)

    Now people can at least have a chance & a good idea from a very reliable & dependable SOURCES & REFERENCES who have been there before to depend on, than having to try this,,, try that,,,, ENDLESS GUESS WORK, HOPING, PRAYING, TRYING & TRYING & TRYING,,, this or that.

    Feeling there is ONE around to relay on, LIFTS most of the TORMENTING burden.

    For me,,, THIS ANGEL,,,, Dr. Robert S. Fisher, Stanford Epilepsy Center, CA — Director of Stanford University Epilepsy Center,,, in MY learning, accepting & living with my Epilepsy.

    MAY THE LORD BLESS HIS GOOD NAME & DEVOTION TO CURE EPILEPTICS!!!

    Phylis,
    It helps to know what to look for & where to go to, when nothing seems working.

    Thank you for your time & resources in devoting to research & compiling this VALUABLE EXCELLENT DOCUMENT :-)

    Comment by Gerrie — April 15, 2013 @ 11:39 PM

    • Actually Gerrie, I consider it the most important article on this website.

      Because NOTHING is more important than to have tried and true (and successful) recommendations when we’re talking about neurologists.

      I mean, we’re not just talking orthopedists (!) here.

      The only thing as important as our brains are those that tend to them.

      Comment by Phylis Feiner Johnson — April 16, 2013 @ 9:06 AM

  36. Phylis, what are your thoughts or experiences on D.Os as neurolgists vs. MDs?

    Comment by Doug — May 14, 2013 @ 2:00 PM

  37. I’d choose a neurologist or epileptologist any day!

    Comment by Phylis Feiner Johnson — May 14, 2013 @ 3:22 PM

    • Yes, I’m assuming both would be neurologists/epileptologists, but one would have a D.O and one an M.D. I didn’t know if you felt the doc with the D.O training might take more holistic approach often spoken about at osteopathic medical schools, along with the traditional medical techniques taught at both types of institutions.

      Comment by Doug — May 14, 2013 @ 6:59 PM

  38. It seems to me that an O.D. is something like a naturopath.

    Here’s the definition:

    “Like allopathic physicians (or M.D.s), osteopathic physicians complete 4 years of medical school and can choose to practice in any specialty of medicine.

    However, osteopathic physicians receive an additional 300 – 500 hours in the study of hands-on manual medicine and the body’s musculoskeletal system.

    Osteopathic medicine is dedicated to treating and healing the patient as a whole, rather than focusing on one system or body part.

    An osteopathic physician will often use a treatment method called osteopathic manipulative treatment (also called OMT or manipulation) — a hands-on approach to make sure that the body is moving freely. This free motion ensures that all of your body’s natural healing systems are able to work unhindered.

    Osteopathic physicians hold to the principle that a patient’s history of illness and physical trauma are written into the body’s structure.

    The osteopathic physician’s highly developed sense of touch allows the physician to feel (palpate) the patient’s “living anatomy” (the flow of fluids, motion and texture of tissues, and structural makeup).

    Like M.D.s, osteopathic physicians are licensed at the state level. Osteopathic physicians who wish to specialize may become “board certified” (in much the same manner as M.D.s) by completing a 2 to 6 year residency within the specialty area and passing the board certification exams.

    D.O.s practice in all specialties of medicine, ranging from emergency medicine and cardiovascular surgery to psychiatry and geriatrics. A majority of osteopathic doctors use many of the medical and surgical treatments that are used by other medical doctors.”

    http://www.nlm.nih.gov/medlineplus/ency/article/002020.htm

    Comment by Phylis Feiner Johnson — May 14, 2013 @ 7:27 PM

    • I understand that DOs and MDs are both doctors that have essentially the same schooling (other than OMT), but from a practical standpoint, I wondered if DO – neurologists might take a more whole body approach.. and therefore be more vigilant about how drugs affect other body systems.. based on their professed “osteopathic philosophy” of health.

      Comment by Doug — May 15, 2013 @ 2:07 AM

      • Since a D.O. does musculoskeletal manipulation, you might try it as an adjunct treatment, along with your present neuro.

        But, you know, I’m still in favor of a naturopath, if you are going to have auxiliary treatment.

        Comment by Phylis Feiner Johnson — May 15, 2013 @ 10:56 AM

  39. I wasn’t looking at the musculoskeletal manipulation part. I was just wondering if imperically a DOs willingness to look at all body systems, while also being a full fledged neurologist, equal to MD neurologists, might be beneficial to a patient concerned about how side effects mess with other body systems that my current neuro (an MD) seems to know nothing about.

    Comment by Doug — May 16, 2013 @ 4:08 PM

  40. A DO who’s also a neurologist? Do they exist?

    Comment by Phylis Feiner Johnson — May 16, 2013 @ 5:38 PM

    • Yes, the exist. A D.O. and an MD do the exact same in medical school, except the DOs also do the OMT instruction. After med school, they are eligible for any and all specialty residencies in either DO or MD programs, including neurology and epileptology.

      Comment by Doug — May 17, 2013 @ 6:43 PM

  41. In fact, the first doc on your list (Dr. Jennifer DeWolfe in Alabama) is a D.O.

    Comment by Doug — May 17, 2013 @ 7:19 PM

    • Bravo! As usual Doug, you’ve been doing your homework!

      Comment by Phylis Feiner Johnson — May 17, 2013 @ 7:20 PM

    • and, Dr. William Tatum at Mayo Clinic Florida from the list above is shown as an Epileptologist and he is a D.O.

      I just wondered if you take that in combination with the D.Os often being known for looking at health issues from a total body system approach might mean they were better at helping with side effects of drugs that are concerned with other body systems – such as endocrine function or whatever..

      Comment by Doug — May 17, 2013 @ 7:26 PM

  42. It’s possible. Even probable. But you seem to know a whole lot more about this subject than me!

    Comment by Phylis Feiner Johnson — May 17, 2013 @ 10:28 PM

  43. I have seen Drs. when living in Los Angeles at UCLA 20 years ago and they were quite good. When I moved to the east coast I went to George Washington Hospital and saw Potolichiio. He was nice but not what I was used too. I was then referred to John Hopkins and they were quite good and at that time all men. Now I go to University of Maryland in Baltimore and see a wonderful Epileptologist Dr. Hopp. She listens and communicates well. Is slow to change things. All Drs. are good but I liked the Dr/patient repore with Dr. Hopp the easiest. She has a great recall too! Her nursing staff note emergencies when I don’t. That is how relaxed I have gotten with my doctor! It is a turn around for me.

    Comment by Toni Robison — July 15, 2013 @ 6:19 PM

  44. As usual, your contributions are priceless, Toni. You’ll see, I’ve added Dr. Hopp to the list.

    Thank you so very much!

    Comment by Phylis Feiner Johnson — July 15, 2013 @ 7:14 PM

  45. I just wanted to let everyone in Texas know my experience trying to get an appointment to SPEAK with Dr. Robert Leroy, Medical City, Dallas, TX. I have been looking to find a neuro who has a better understanding of how other body systems are affected by AEDs and I have had major difficulty in doing so. Most know nothing and refuse to test for things like thyroid or hormone issues.

    So, as I look for new docs I always try to speak with them first so I can determine if they offer what I need and if we are a good fit. I tried Dr. Leroy’s office based on the recommendation of this list, and his office said that for me to see him I would have to have my current neuro forward my entire medical record and history for him to review.

    I told her I wanted to wait on because I wanted to speak with the man and determine if we were a fit since I’d had trouble finding neuros who took seriously my side effect concerns. I was obviously willing to pay to see him, and if it went well, then I would go about the process of having my records sent over. I wasn’t having seizure problems, I was having side effect problems and that is what I wanted to discuss.

    They refused to take the appointment, saying that unless I went ahead and gave them my records first they would not see me. So, I told them forget it, and the search continues..

    Comment by Doug — August 15, 2013 @ 7:23 PM

  46. That’s OUTRAGEOUS Doug!

    I always INSIST on a consult before I sign up with a doc.

    Who does he think he is? God? He’s too high and mighty to answer YOUR questions?

    I guess he wants to do all the talking.

    Lot’s of egomaniacs out there. Lots of them are docs! :-)

    My step-father was a surgeon. HE thought he was a Demi-God. (You can guess how well we got along!)

    Comment by Phylis Feiner Johnson — August 15, 2013 @ 7:47 PM

  47. Phylis, are the docs on this list all supposed to epileptologists? Or are some normal neurologists while others are epileptologists?

    This can be a difficult designation to nail down. I asked my neuro if he was an epileptologist and he said yes, but I haven’t been able to find anything on him that says anything other than neurologist. I wonder if a neuro who treats people with epilepsy automatically considers himself to be an epileptologist, or if there is an actual difference in training that can be verified..

    Comment by Doug — August 21, 2013 @ 1:27 PM

  48. Yes, there IS a difference.

    Not all neurologists are epileptologists. But all epileptologists are neurologists.

    Unfortunately, since this is a word-of-mouth recommendation list, many people didn’t distinguish between the different disciplines.

    You might find this article interesting:

    Neurologist Or Epileptologist — Who Is Best For YOU?

    http://epilepsytalk.com/2013/06/02/neurologist-or-epileptologist-who-is-best-for-you-4/

    Comment by Phylis Feiner Johnson — August 21, 2013 @ 5:21 PM

    • I checked out the article and noted this quote.. “An epileptologist has: Additional fellowship training beyond residency in EEG interpretation and epilepsy.”

      So, if my neuro is claiming he is an epileptologist, i should be able to find a fellowship proving such somewhere in his resume correct?

      And, if I don’t find it, then he is making this claim based solely on his interest and the fact that he has epilepsy patients.. sound right?

      Comment by Doug — August 23, 2013 @ 1:42 AM

  49. Correct. But WHY would he lie?

    Comment by Phylis Feiner Johnson — August 23, 2013 @ 9:11 AM

    • I dont know that he is lying per se, but maybe he just feels that his interest in epilepsy and his treating people with epilepsy allows him to call himself and epileptologist..? Not sure, really.

      Comment by Doug — August 23, 2013 @ 12:33 PM

  50. I found my docs CV online. His fellowship reads as follows: “Clinical Neurophysiology, Epilepsy, Advanced Neurology 1989-92″

    So, based on that info, then I suppose he is actually an epileptologist?

    Comment by Doug — August 30, 2013 @ 4:15 PM

  51. WOW! With those credentials, how could you go wrong.

    (VERY clever of you to look up his CV.)

    You’re a very smart guy, Doug!

    Comment by Phylis Feiner Johnson — August 30, 2013 @ 7:00 PM

    • Well, even with those credentials he hasn’t been able to offer me any assistance on side effect issues. He doesn’t do testing for thyroid or hormone issues that can be caused by drugs. He’s the one who told me he wouldn’t know what to test for or how to treat anything other than seizures. Claims I need a different doc for that other stuff, but the other docs say if its related to seizure drugs, then talk to your neurologist. So, you end up plain stuck.

      Comment by Doug — August 31, 2013 @ 1:10 AM

  52. It looks like you: need a different neuro (bring all your records with you) do some serious med research, then go to an endocrinologist.

    But don’t dump the doc until you get the necessary EEG.

    Comment by Phylis Feiner Johnson — August 31, 2013 @ 11:07 AM

  53. What do you mean the necessary EEG? Are you saying that if you get a new doc they should to a new EEG even if they have your records?

    Comment by Doug — September 1, 2013 @ 1:38 AM

  54. They must know what your current brain status is before giving you permission to drive.

    Comment by Phylis Feiner Johnson — September 1, 2013 @ 2:57 PM

    • Maybe I’m not understanding, but I don’t have any driving problems, as I haven’t had a seizure in over 2 years. Plus, I have my records, and past EEGs and MRIs, so I guess I’m not sure why I’d have to do another one if I switch docs.

      Comment by Doug — September 1, 2013 @ 9:23 PM

  55. Please, Please, Praying! Praying!! Needing the best for my daughter, Ashley Elizabeth Manning (Kittle). No drug or alcohol related…State of confusion on morning and early afternoon, Dec.27,2013. Very disoriented on talk and text on phone. Was yet still able to drive around and still very confused if met with friends who had seen her in public. Ashley continued to drive until she was so disoriented and squad was called. Went to Reid Hosp in Richmond,IN. @ approx 4pm. Cat scan at that time showed fine. At 3am on Sat.Dec.28,2013,,she had multiple seizures. Reid Hospital medical staff intubated her. Same morning Ashley was care flighted to Miami Valley, Dayton,OH. Under medical induced coma for over 2 weeks. Started weaning her of meds and she started to wake up, more small or “focal” seizures still occured. Med were then increased again. EEG/cameras were then monitored. Steroids plus seizure meds were again given for 2 more weeks.. Taken off again with certain meds, she woke up, The past 2 days she has been awake under steroids, attivan, and keppra(seizure med). Ashley walked today for the first time in over 4 weeks. She seemed very alert and comprehending. Her first most is to “go home and be with her kids” Very emotional to see her children….Please help. This is my FIRST BABY DAUGHTER!!!!! Ashley is amazing, wonderful, and beautiful. Please Help! Ashley was under alot of stress due to many factors at the time and very overwhelmed. Ashley also had a “grand mal seizure” when she was 4 years old and also represented the same type stresses and disturbances weeks prior, even at that age. Ashley has never had a known seizure until this time. Please Help Ashley, Her Children, and Myself.
    I Beg,Plead,and Pray!!!!!
    Amen.

    Thank You,
    Karen Kittle
    Ashley’s Mom

    Comment by Karen Kittle — January 19, 2014 @ 2:40 AM

  56. It sounds like your daughter is under very good care.

    I, too, was put into an induced coma to stop seizures which were giving me a heart attack.

    And through lots of scary steps afterward. But I’m here.
    And so is she.

    If this is the first seizure she’s had since she was four years old, I definitely agrees with you. The answer is STRESS.

    STRESS is #1 on the seizure trigger parade.

    Stress can trigger hyperventilation which can provoke seizures, especially absence seizures.

    It can increase cortisol, known as “the stress hormone” because cortisol is secreted in higher levels during the body’s “fight or flight” response to stress.

    And, as you may imagine, it’s responsible for several stress-related changes in the body which also may influence seizure activity.

    Negative emotions related to stress, such as anger, worry or fright, may also cause seizures.

    This happens because the limbic system, the portion of the brain that regulates emotion, is one of the most common places for seizures to begin.

    An article you might find interesting is: Common Epilepsy Triggers

    http://epilepsytalk.com/2010/03/02/common-epilepsy-triggers/

    The best of luck to you and Ashley.

    Comment by Phylis Feiner Johnson — January 19, 2014 @ 12:19 PM


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    About the author

    Phylis Feiner Johnson has been a professional copywriter for 30 years. She also spent 20 years with epilepsy. She writes from the heart to increase education, awareness and funding for epilepsy research. For further information, contact The Epilepsy Foundation of Eastern Pennsylvania at http://www.efepa.org/ and please make a contribution to become an advocate, too.

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